| Name: anom | Date: May 23rd, 2008 11:14 PM |
| I think I'll call the practice and get hold of the dr. who originally prescribed the med and ask her. I don't know about the pill I thought the pill gave a reaction to children with seasonal allergies.Do you think the reaction is from a combination of reducing the dosage and the infraction? I have to see. Anyway how is your child doing? And for the person who something negative look in the mirror before you cast nasty remarks ↑ |
| Name: anom | Date: May 26th, 2008 9:43 AM |
| Hi Natalie Guess What- My son Looked at me the other day and said goodbye as he was boarding the bus. Also this whole week he keeps going over to people and saying hello how are you. However I don't think other people are happy about it.ut this is a good thing. Don't you think? I am going to talk to his doctor this week and run things over with him also I can tell he is understanding more when I talk to him.Still disphonic but not as much as last week I hope this lasts. Happy Memorial Day weekend. ↑ |
| Name: loli | Date: Jun 2nd, 2008 5:06 AM |
You people are so full of it.
I dare you to try risperdal! I dare you.
Your 4 year old DOES NOT NEED IT! ALOT OF ADULTS CANT EVEN HANDLE THE DRUG!
Your child with autism does NOT need it and yes I know about autism first hand.
What is going on here is that there is this greedy marketing being pushed on you gullible parents just to make others rich and because you don't want to be inconvenienced or you care so much of what others think of your kid...you put them on dangerous drugs that could also put them at physical risks.
You wouldn't even care about those who died using the drugs either would you? Oh you'd probably say, yeah but it's just so great for ME....oh wait I mean my child.
Uh right. Nope. I dare you to try it yourself.
If someone actualy showed you how to handle certain situations you would probably shoo the person away even though the person had good cost free solutions because you're brainwashed.
What you are doing to your child's brain is wrong. Your child is being treated like a lab rat. Why else would everyone want to know how it works out?
Oh gee, could it be because there were no real valid tests done and perhaps the drug companies own lab "researches" in which do you really believe that?
You really believe a company which that is what it is, would put out a negative report affecting THEIR sales?
You think they care about your kid?
Why don't you stand up for your kid instead of allowing others to treat your kid as an inconvenience in school? Stand up for your child's right to not be medicated to suit a teacher's wishes because the teacher just doesn't know how to handle it.
If it's not the teacher then what is your deal? Could it be that YOU embarass easily? YOU care too much about what others think? YOU wanted a completely acceptable child in the eyes of conformists? Could it be that YOU feel inconvenienced?
I sure don't see much of real side effects expressed by the child but more of a sigh of relief that you aren't being embarassed as much.
Would you have liked being a drugged out child growing up? Would you resent your parents? ↑ |
| Name: anom | Date: Jun 2nd, 2008 3:18 PM |
| Dear Loli who do you think you are talking to all of us like that? Do you honestly think that parents want to give their kids meds?What barrel did you crawl out of; the only thing you are right about is that there should be another way of treating our children. However, none of us were given any other option ↑ |
| Name: kimberly | Date: Jun 2nd, 2008 11:16 PM |
| Name: anom | Date: Jun 4th, 2008 11:51 PM |
hi Natalie
I went to a nutritionist and he has asked for me to have my son take a glucose test and make sure he's not hyperglycemic or pre diabetic. I'll let you know what happens. Hope all is well with you and your family.
p.s. I found a child study center - I intend to look them up and see if they specialize in autism
bye for now. ↑ |
| Name: anom | Date: Jun 13th, 2008 11:02 PM |
hey what happened no one has made any statements or reply's.
I am now trying to follow a diet that was layed out by a nutritionist. Most days are good. But I can't seem to tell how he is doing in school lately. I haven't heard anything so I am assuming that that is good news. Talk to you again .Natalie I have an appointment with the dr. who prescribed the drug 7/3. In the meantime do you think I should contact neurologist and have him check my son and explain what is going on or wait and see what happens with the dr from his medical group. ↑ |
| Name: anom | Date: Jun 13th, 2008 11:09 PM |
| Hi Natalie i made an appointment with the dr who prescribed the drug and I intend to run things over with her. Also the nutritionist said my childs sugar was very low and feels this is why he had the behavior problems like he did. His sugar was normal now but who knows. He is trying to adjust his blood sugar levels so his behavior and attending will be better and hopefully then he might be able to come off the risperidol. After I see the doctor I intend to call the neurologist and see what he has to say and ck out my child. How is your child doing? ↑ |
| Name: Natalie | Date: Jun 17th, 2008 5:03 PM |
| Hi Anom! All is well here! I'm glad your finding out new things...it sounds like the new Dr is starting to get to the bottom of things. The reason I took my son off of Risperdal (not that I didn't have sereral, but I guess this was the final) was because is sugar was VERY low as well. The Dr @ All CHildren's said that he had no option but to get off. Turning diabetic on this drug is not all that uncommon, and has to be monitored very closely. I'm not sure about seeing a neurologist... I've never seen one, but my son isn't autistic, so I'm not sure of the benefits of a neurologist. Actually, none of his Dr's have ever even mentioned seeing one now that I'm thinking of it. Let me know how his appt goes in July. I wish YOU & YOUR SON well- contrary to what the presumptious psycho loli thinks, I know that this is so hard on BOTH of you. Talk to you soon! ↑ |
| Name: tyeriauna | Date: Jul 3rd, 2008 1:54 PM |
| fvdguxfgjwehd kxfghvcjegruigh3i ↑ |
| Name: anom | Date: Jul 10th, 2008 11:36 AM |
| Hi Natalie, sorry I haven't written but I haven't had time to respond. I went to the pediatrician and the dr kept insisting that it was adolescence in an autistic person going through change. The dr agreed that my son seemed happy and was ful of smiles in which he hasn't been for a long time. So she wants for me to wait a couple of weeks and then see how he does by removing one dose. Meanwhile my son has been very hyper I hope i am not doing all this just to wind up on med's again. The nutricionist said he's just feeling very good plus he's going through a period of rebounding. The teacher even complained that he's teasing too much. Have you or anyone you know gone through this with their child? have a good day talk to you soon. ↑ |
| Name: Natalie | Date: Jul 14th, 2008 9:12 AM |
Hi Anom,
No, I can't say that I know any child going through what your describing that isn't ADD or ADHD. My son displayed those exact symptoms (along with several others) when the Dr tried ADHD meds, with no success. My son would be so hyper @ school that he has flipped out of his chair 2x & hurt his head, he has gotten into physical attracations, etc... then he would crash at night. Sooo tired he had a hard time carrying on conversations. Now, needless to say that there were far more problems then these when we started the risperdal, but now that he off things seemed to be much more level. The highs & lows aren't so drastic, and his Dr says it's because he is more mature & can mentally handle some of this now. I don't know...
You sound a little stressed. I hope everything is going ok for you guys. I know your very busy, so I'll talk to you when you get a chance. Good luck- Natalie ↑ |
| Name: Natalie | Date: Jul 14th, 2008 9:13 AM |
| Physical attractions... oopps~ ALTRACATIONS ↑ |
| Name: ANOM | Date: Jul 16th, 2008 1:31 PM |
| hI NATALIE tHANKS FOR RESPONDING. Can I ask you something? I thought your son was only 7-8 yrs. old, How long was your child on risperidol before you took him off? I don't need to be nosy - My son's school is having a meeting today to discuss his behavior and they don't want me there. I am a little bit annoyed. The summer session started jul 3rd. and no one told me till the end of last week that he's been very hyper and can't settle down. I don't know what to do about it myself. All I've noticed around home is that he likes to tease alot. I hope all my trying wasn't in vain. Do you think I should consider asking the dr for another med or see if there is something over the counter yhat can be used instead? Meanwhile I found out from my daughters bf that towards the end of the nite at 6 flags they had to chase after him. Maybe he's not ready to go without a drug but the drug I'm using is not the right one=what do you think I hope someone has a right answer for me ↑ |
| Name: anom | Date: Jul 16th, 2008 1:32 PM |
| Natalie, as far as the school goes I feel my rights are being violated. I intend on calling an advocate to find out ↑ |
| Name: Dawn | Date: Jul 31st, 2008 7:00 AM |
| My boyfriends 6 year old son was prescribed risperdal yesterday 0.5 mg and concerta 36 mg. When he told me I freaked out. The child doesn't have any kind of bipolar or schitzophrenia symptoms. He's 6! He does have ADHD, but very concerned about the starting dosage of the concerta also. I called my phamacist and she assured me that the pyschitrist are now prescribing these two together and it was safe. When I explained the age of the child and the learning disablity he had she then said OK tell him to call the Dr tomorrow and to not start that medication. He has two others that were diagnosed with ADHD and they were prescribed Adderall XR 20 mg....ages 11 and 9....one was prescribed clonidine, a blood pressure medication and the other paxil....an SSRI that has been linked to suicide in children and teenagers as well as addiction in adults. What in the world are these doctors thinking? I'm a nurse and know that when starting any child on a stimulant to start them on a low dose. My boyfriend is ignorant when it comes to medications and asking questions. The doctor also told him the youngest needed a CAT scan because there was a knot on his head.....I was like where is the knot? He said I don't know but he was looking into his eyes a lot with the light. Take your child wherever you need to take him and sue the hell out of that doctor. I am hoping my boyfriend will call me today with news of new doses of the ADHD medication and new and safe other prescriptions or none. ↑ |
| Name: Dawn | Date: Jul 31st, 2008 7:47 AM |
| Oh, I forgot the middle child is 9 and displays symptoms of bi polar and goes through these strange fits of anger and crying about nothing and I mean nothing. He laughs at things that are totally inappropriate. I had him diagnosed myself without telling his father that he was bi polar with anti social/schizophrenic personality disorder with ADHD. His mom abused him severely when his dad deployed over seas and locked him in his room to use the bathroom in there and didn't feed him. She should be in prison, but the dad...my bf said he didn't think anything could of been done. Something can still be done! Anytime your child is a minor no matter what....up until they are of age 18 you can take any physician into court for malpractice. That is one of the reasons so many pediatricians don't prescribe such nonsense. They send them to the psychiatrist. Just a little need to know for some of you that didn't. I'm wondering if the doctor prescribed the wrong medication to the wrong child. Either way I don't see where risperdal should be prescribed for any child for any reason. There are way too many bad side effects that can become permanent in these children. Just a little info I forgot to mention. ↑ |
| Name: anom | Date: Jul 31st, 2008 6:25 PM |
dear Dawn Pediatricians prescribe risperidol all the time to children and teenagers in the asd spectrum. It is given for mood and irritability. When they say that they mean those who wouldn't think twice about throwing things breaking things such asd a window or putting holes in the walls with their fist etc and they say it is from growth spurts during puberty. I've been trying the gf diet but my son is getting very tired but I am still trying. If you have any advice please feel free to give it to all of us who do not have your expertise. It could be useful.
Natalie, Hi haven't heard from you. Guess what I'm going to florida next week. The break should be good I hope.Hope all is well with your family. ↑ |
| Name: anom | Date: Jul 31st, 2008 6:31 PM |
| Dawn maybe your bf's son is aspergers or somewhere on the spectrum, or it sounds like nonverbal learning disabled. . Find a developmental dr. or nerologist to find out for sure. ↑ |
| Name: Dawn | Date: Jul 31st, 2008 9:16 PM |
He isn't autistic, but does have a learning disorder. He and the other two went through extensive pyschological testing. I've read up on this medication and have asked other doctors and nurses their opinions and they are with me on the prescribing to children so young. My boyfriends mom called the psychiatrist and he told her that the reason he prescribed it to him was to offset the Concerta and assured her it was safe. As far as me having so much expertise....I don't know everything and I will never know everything there is to know about medical issues, but I do educate myself as much as I possibly can. The child that has all the problems is a repetitive liar, hits, kicks, screams, and at times seems possessed. He has no friends at all. He has said offensive things to myself, my father, my mother, my brother, and my sister. He thinks it is funny when something dies....or someone. He laughs at things that are totally inappropriate and cries for no reason. He constantly thinks everybody is out to get him and that everytime something happens that everybody is going to blame him for it. He has been through a lot with the abuse of his mom that went on for 15 months while his dad was deployed. I have been looking into every medical book, googling, and talking with senior nurses and doctors to help me understand what may be going on with the 9 year old. Some have said puberty until the abuse part comes into play along with the fact that his mom is bi polar. When he is in a normal state he is pleasant, which is rarely.
OK, back to the child I am concerned about at the moment. My boyfriend has decided to take the advice of the doctor without doing any research on his own. He said that doctors give medications because that is what they need and that obviously his child needs it. He said that he wouldn't prescribe something that would make him lose his licenses. I replied with a have you ever heard of malpractice insurance? I then told him he was his son and if he wanted to start him on that medication that was his decision. I told him I would never give him that medication. We were planning to get married, but at this time I think I have just become way too involved personally with his children. I am not trying to offend anyone. I am just trying to understand why some of the doctors do the things they do....besides the contracts they have with the companies that make these medications.
Thank you for your responses I appreciate them and I was told today by a nurse that has been in it for 40 something odd years to tell him to take him to a neurologist. She is thinking something is going on within the brain because the doctor looked into his eyes for so long with the pin light and the fact that the child had a knot on his head. He is delayed with his speech but can be understood. Well, not today he is hyper bouncing off the wall. My boyfriends mom decided to give them their ADHD medications at lunch time today, so they're all over the place....but especially the younger one.
I don't live in a big city. Around here doctors don't just prescribe things like that. ↑ |
| Name: anom | Date: Jul 31st, 2008 10:56 PM |
| dawn if the child can talk and can have some understanding maybe he needs counseling to deal with all that has happened as far as his father's deployment and his mother's erratic behavior. Sometimes I think there should be classes on becoming a parent. I think its great that he has you in his corner.Also seek out an counseling for each other in trying to be able to cope with his behavior. Maybe the school can provide counseling if it is a problem with the insurance. Also, it might be the right thing to do if his behaviors are to extreme. Just stay calm we all have problems and it is good to bounce ideas off of each other. As far as your friend goes I think he just doesn.t want his kid to get in trouble or lose him in some sort of deep depression. I have no idea why more and more people today need medication maybe its the chemicals in the food. Well goodnight and take care I hope all goes well. ↑ |
| Name: Natalie | Date: Aug 1st, 2008 7:44 AM |
Hi Anom! What part of Florida? Yes, my son will be 8 in Sept. We started ADD meds @ 5, and Resperdal @5.5 or 6. Where the maturity level got tricky is because he is EXTREMELY intelligent (and a foot taller then the kids his age!) By age 5, he was well aware that he had problems. He used to say things like "I keep praying to God for a new brain to control myself but he isn't listening" and " I should just go live with God where people won't judge me and will like me even though I can't control myself". THe Dr's thought at 6 he was bipolar (which is nonsense- it can't be DX that young). I wasn't until recently that his maturity caught up a little with his intelligence that things started to become more balanced- therefore, we were able to stop the drugs and teach him how to start handling things on his own. He understands alot more now and is able to think before reacting. Things aren't perfect, but so much better. A lot has happened during a short period of time. I'm just greatful he is able to function w/out the drugs, and the side effects weren't perm. (vision, headaches etc...).I was a LONG period of time, but eventually things worked out, and I pray that the same happens for you & your son. I agree with you about school- you have every right in the world to participate in anything that pretains to your child. I'm just not sure what advice to suggest to handle what they are doing. I'm very sorry that this is going on- it seemed as if he were doing better. The one thing that another mom told me once that I live by is probably something you've heard 10 times- listen & go with your gut instinct. No one loves that child in the way that you do. You may not always be right, but you are always doing for the right reasons.
Let me know where you guys are staying! If its close & you have free time, we should get together & have lunch or something! ↑ |
| Name: anom | Date: Aug 1st, 2008 9:13 PM |
Hi Natalie great hearing from you. We will be in kissemee
florida. the plans are to go to disney and universal. Also I'm planning on seeing an old cousin while I'm out there. I took my son and did the AIT again he seems alot better. But I think it might be too soon for him to come off the meds entirely. He still has a very big problem with anger and a short frustration threshold. While I was away doing the therapy he didn't stay on his gfcf diet. However he seemed to do okay. This month I will implement him on the diet and this time by the end of aug he will stay on it . He doesn't have a choice. I noticed one thing that this time around doing the therapy he started eating more so I'm thinking that maybe his hormones are making him very hungry and possibly a little bit unsettled - that would explain the short frustration level. Let me talk to my husband and I'll let you know . Are you near disney world or universal? ↑ |
| Name: Merle in South Africa | Date: Aug 3rd, 2008 3:24 AM |
| Hi, I have been reading all your comments. My son is 11 1/2, diagnosed with ADD and was on Strattera 60mg. He started having irrational fears about everything and so in discussion with the psychiatrist we decided to reduce the dose to 25mg. He also loses his temper at least twice a week, screaming, aggresive, abusive behaviour. He quietens down after about an hour and then its like it never happened. The Dr has now prescribed 0.5 mg Risperdal quicklets to be taken at night. After reading the side effects and all your comments, I am afraid to give it to him. He was bullied at school and this affected him emotionally. He doesn't stop carbo loading with toast and yellow cheese all the time. Could the food be causing the aggresive behaviour? He is a terribly fussy eater, no veg or fruit, ever. I have just started giving him a multi vit everyday. He was the most amazing kid with an awesome termperament - I don't know what has happened to him - puberty? What is the gfcf diet? Please post some comments - I need to know what to do - my gut tells me not to start this medication. ↑ |
| Name: anom | Date: Aug 3rd, 2008 8:23 PM |
Dear Merle, Wow are you really responding from south africa? That.s amazing.
The gfcf diet is gluten free casien free. gluten is a by produc of wheat , barley,soy,corn, and oats. It breaks down into sugar vety quickly in some people and can send them into an emotional rollercoaster ride. The person can act as if they had too much sugar ; be on a sugar ride and within 2 hrs or so crash and hit rock bottom and become very irritable or even aggressive. This is also true of casien- a protein found in milk and milk by products. The diet isn't easy but it can help.As far as chemicals
they can have behavorial reactions in a person . I don't know if I helped but if someone can tell me what I can give to get rid of a gressive behavior as a precurser side effect to risperidol let me know. There has to be a better methodology in getting the kids off this horrible drug and another way of helping them naturally ↑ |
| Name: jenijenjeni | Date: Aug 13th, 2008 11:00 AM |
Hi, I'm new here! My son just turned 9 and has been on meds for 3 years now. Right no he is on Concerta 18mg, Strattera 40mg and Risperdal...he is suppose to be taking 1.5mg, but I have been slowly weaning him down and he is now just taking .5mg. I am planning on getting him off of itcompletely, but have to see what his Dr says first. Im sure he will be mad I have been weaning him off without them knowing. He was orginally given the risperdal because when he was on the Daytrana Patch he got real BAD side effects, his shoulder would raise for no reason and his arms had weird movements, scary stuff. Anyway, they went away, but we had also stopped the patch and switched back to Concerta. I do not know if Risperdal was the "helper" or not. He was also given the risperdal to help him sleep. To me, that is SAD! A child can't sleep so you give him a drug like Risperdal?! I feel so stupid, but the tics was why I agreed. Now the tics have been gone months and now I really want him off this drug.
Anyway, does anyone know what will help a child on Concerta sleep at night? Is there anything safe out there? I will ask his Dr today and let you guys know what he said. This is his pediatrician, I decided to leave the ADHD clinic he was going to because they have terrible scheduling. They can only see kids on Thursdays. Thats it! How rediculous. Plu I would have to pull him out of school once a month to go...no thanks. So we are now back to his pediatrican for the refills and care for his ADHD. ↑ |
| Name: jenijenjeni | Date: Aug 13th, 2008 11:03 AM |
Me again.... sorry, I forgot to say this:
For the past 6 monthsnow my 9 year old son says he has a "CREEPY FEELING" every night when it's bed time. He HAS to sleep with his light on. But, the past few weeks he is now BEGGING to sleep with me saying he is scared to sleep in his room even with the lights on.
I let him fall asleep in my bed a few times, but carried him back to his own bed after he fell asleep. That is ONE solution I do not like honestly. A 9 year old should not be sleeping with moomy and daddy. Thats my opinion. BUT I feel like such a BAD mom making him stay in his room where he is scared and cant sleep. ANY ADVICE???!!! please help!!! Thanks!! ↑ |
| Name: anom | Date: Aug 18th, 2008 3:16 PM |
| Hi Natalie I'm back from florida. We had a good time. However we all came home sick with strep. How are things with you? ↑ |
| Name: KathyK | Date: Sep 6th, 2008 11:49 AM |
| My 7 year old son is on 0.5 of Risperdal (2x a day)for the morning when he first wakes up and then again before bed but he is also on .01 of Risperdal for after school (which seems like alot of medication)but even with all of that medication I don't see any big changes. Although the risperdal does make him tired he still had a very bad sleeping issue where he would go to bed and sleep for a few hours but then get up every night (this has been going on for years)so finally the doctor put him on 1/2 a pill of Mirtzaphine at night to help him sleep all night. That is the only thing that helps him sleep all night. I am worried about so much Risperdal and he is also on Vyvanse. Is anyone else's child on that much medication and what should I do about it? I know talk to the doctor which I plan on doing but was wondering if anyone else's children are taking that much Risperdal or how much are they taking and how old are they? I have not seen any bad side effects except he eats all the time but he has not gained any weight so that is a good thing. He doesn't sit still long enough to gain any weight. ↑ |
| Name: buddhamom | Date: Sep 10th, 2008 10:46 PM |
| Hi. My 9-year old son has been on Risperdal for two years -- currently .75 mg twice a day. Before Risperdal I was worried that he might not be able to continue living at home because my other children weren't safe. Since risperdal, his more violent and destructive behavior has almost disappeared. No side-effects noticed; just nagging worry based on others' storeis. Meanwhile, my son continued to be disruptive, agressive, abusive and very difficult to live with. New Psychiatrist put him on Concerta (27mg a day) and our family finally feels like a family instead of a crisis management team. I may start weaning him off the Risperdal when the Concerta has been on board longer. Who knows? This new doc says there is a set of children - mostly boys- who are very bright but have impulsive, explosive behaviors. He said diagnoses are all over the map: ODD; ADHD, BIPOLAR, etc, but what we're really doing is treating symptoms. I think we have to trust our instincts as parents and "feel our way" through the pharmacological jungle with an eye on what seems to work for our specific kid. I wish we could get together and chat. After 4 years of panic and stress I'm finally feeling like I might survive parenting this child and it is such a relief to find this place where so many of you seen to have kids like mine. Thank you. ↑ |
| Name: Natalie | Date: Sep 12th, 2008 8:04 PM |
Hi Anom! Sorry I haven't responded, but when it rains it poors! I hope you had a good vacation! I live about 2 hrs away from Orlando. How is your son? I'm assuming he has started this school year, right? (We start earlier than most states). Mine is having a much better year so far. He has an amazing teacher who had made all of the difference in the world!
Have you gotten into any med colleges? I know you were searching).
Well, I hope all is well, Natalie ↑ |
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