| Name: dani | Date: Nov 26th, 2007 11:25 AM |
| hi there is lucy beale there its danielle xxxxxxxxxxxxx ↑ |
| Name: Victoria | Date: Nov 30th, 2007 1:37 AM |
| My daughter is 3, four in February. She has epilepsy and has been diagnosed with ADHD. She is being evaluated futher for psycological issues, and the doctor has mention Risperdal. I am concerned about the side effects (especially with the epilepsy seizure threshold) but I am shocked to see so many parents on here asking other parents for advice on how to wean their children off medications, and what side effects to watch for. I personally would NEVER place my child on ANY medication that I have not personaly researched and asked all these kinds of questions prior to being handed the prescription. ↑ |
| Name: Karter | Date: Dec 1st, 2007 2:15 AM |
| My son has this strange syndrome called Smith-Lemli-Opitz Syndrome which can have some autistic-like symptoms in it's mildest form. He has been on Risperdal for 4 years. I trusted my Dr. explicitly and he never mentioned any of the side effects that I now read about. I am like many, trying to wean him off now after all this time to see where he is. He has only ever been on .25 mg. I have only taken him down 3/4 of a tablet over the course of 3 weeks because I can see the withdrawal effects. He could hardly go to school this week and has had terrible outbursts and is highly unreasonable. Now I am wondering if I should keep him at the 3/4 dose or continue to finish weaning him. I feel terrible for him. He looks and feels miserable, has diahhrea and is not eating /sleeping well. Does anyone have any advice? Thank you so much. ↑ |
| Name: tallmom | Date: Dec 1st, 2007 9:23 PM |
| Name: JACK | Date: Dec 2nd, 2007 1:29 AM |
| Name: amy | Date: Dec 12th, 2007 5:54 PM |
| hello my son has been put on this as from last week because he is at the stage where he cant live at home hes tried to kill his older brother and hes 9 ive been fighting drs to get help and socail services for the past 7 years anyone got any help for me ↑ |
| Name: Aunty | Date: Jan 1st, 2008 9:03 PM |
| I am raising my nephew after his father and mother both passed away when he was five (not at the same time). He was already in speech therapy and his school was concerned about language and behavior. In the past year, he is diagnosed ADHD and is on Adderall XR. Anyway, that's a bit of my story. I am in the medical field so I didn't make my decision lightly. His mother did not want him to be on medication, but when I started working with him he could not read, or do adding/subtracting. Even worse, his comprehension, language skills, and short term memory was very poor. Yet, it is obvious to me the child has a genius IQ! His psychologist recommended starting him on a high dose, but his GP and I elected to start with a low dose. I have raised the dose one time so far. He can read now and do math, and I work on behavior modification. I do whatever I need to with discipline-time outs, corporal punishment, take away privileges. I find that not having him watching TV and playing video games, and having him sit with books and workbooks have improved him tremendously. He is still restless, hyper, and hard to focus, but his grades are very good and he even scored well on the standardized IOWA test! So 2 points..first, please always discuss and research with your doctor. All meds do not work the same for every person. Think of it as some people are allergic to penicillin. It's not always the med or the doctor. Keep the lines of communication wide open!! Second, do what is best for the child...if you are unhappy with a doctor, go see another one. Don't dally. If you see a side effect, let them know immediately if you are concerned. Sometimes my nephew doesn't want to eat...it may be the meds...I make him eat something he likes better. He is also wetting himself but I feel it is because he gets so focused on play he waits until the last minute to go. May be the meds...but kiddie diapers will do for now. When he is off the med...there is a noticeable change, he even looks sleepier and sounds dopier. If this med did not work I would try another one. I would try one at a time. I would make sure I am working on his behavior therapy, as meds alone will not help. There is no cure. In my family tree there is also depression, and bipolar, and OCD, as well as genuis IQs, so I have a lot to stay on top on. I wish you all luck with your children! It is not always a "label" and some children need extra attention. ↑ |
| Name: sharon | Date: Jan 15th, 2008 6:17 AM |
| My daughter refused to take any medicine so i had to get her to take the risperdal .I told her to hold her nose and i had a cup of milk ready for her to sip]She got so used to the taste she doesnt care .There are however flavors for meds i hear that you can mix in that can be purchased at walmart.God Bless the soul of that inventor! ↑ |
| Name: brandy | Date: Jan 17th, 2008 11:19 PM |
| i don't what to do my son is 3 and has been on this for about ayear and it has changed him so much but then i took him off of it about a week ago have its like i have no control over him ↑ |
| Name: brandy | Date: Jan 17th, 2008 11:40 PM |
| hello anybody there i need help for my son ↑ |
| Name: anom | Date: Jan 18th, 2008 10:43 AM |
| once a child has been on risperidol I don't think they can ever come off. I think the aggression you see is part of a side effect my son was placed on risperidol in june of 2007 to be used as needed, well let me tell you that by 9/07 i found that the child needed it all the time. These children need theraputic learing in a behavioral way in learning to deal with there feelings;however I don't think enough people care. Does anyone know if there is a doctor that can get them off safely without the concurrent aggressive side effects? A part of me feels no one really cares what happens to our kids because if they did they would have a better solution ↑ |
| Name: Natalie | Date: Jan 22nd, 2008 12:44 PM |
| I am currently working with my son's psych. Dr. (at All Children's hospital) to get him off of the drug. I want to this particular Dr. because my son's teacher has a daghter who was on Risperdal for years and her got her off of it safely. Its been 4 yrs since she was on it and it doing great! Anyway, he has told us that the first step is to combine Risperdal w/ an anti-depressant. Once we find one that seems to work, we will begin to SLOWLY wheen of Risperdal. The effects of just stopping it all at once are horrific. The anti-depressant is to combat the symptoms until it is completely out of the system...which he says could take several months to a year. I hope this info is helpful ↑ |
| Name: Natalie | Date: Jan 22nd, 2008 12:55 PM |
| Also, anom... I am certainly not an expert on this AT ALL, but am a mom that has been dealing with and researching this drug for alomst 2 yrs now. I found something you said very alarming the minute I read it, and that was that I Dr told you to use Risperdal as needed? My first reaction is that that would only cause your child to be on a HUGE emotional rollercoaster. The idea is to level them out to be able to function happily on a daily basis. That would only seem to cause constant mood swing. I don't mean to sound noisey... just concerned for you & your child. ↑ |
| Name: anom | Date: Feb 2nd, 2008 7:03 AM |
| Thank you Natalie I will try to look up for a doctor in the area of which I live and try to do the same. I am in the Staten Island Area and will look up through a neurologist for better info and help. In school I recently had them add counseling and give back his ABA.I hope this works for his benefit. ↑ |
| Name: anom | Date: Feb 4th, 2008 12:23 PM |
| dear brandi why did the doctor put him on this or any meds at such an early age? A child around two or even three are difficult do to the time of their life. He is still only a baby . Anyway you can't just take them off because the drug alters the brain and they just will always become violent. I am in a similar boat my son is 15yrs. old and it seems the drug either makes him attentive at times but his skills that he has always had is not always apparent. Also the noise level is worse. The neurologist and told me to try it and if it doesn't work we'll find something else. Meanwhile they can't stop the aggression that starts from this drug when it isn't even given regularly. There should be a law that no drug that can produce side effects of aggression when trying to come off the drug should never be used on anyone esp. an autistic child. there like is isolated enough ↑ |
| Name: Susan | Date: Feb 18th, 2008 6:43 PM |
| Hello i was wondering can you take risperdal and Focalin together it says that children should not take Focalin if they have tics and my doctor prescribed both of these to my son it is safe and does it work? ↑ |
| Name: Rhay | Date: Feb 19th, 2008 2:29 PM |
| My son is 10 and takes 72 mg. concerta and .05 resperdal then a 10mg.rittilan at 2p.m. and hefinishes the day with a 1mg resperdal he has severe a.d.d.( no hyperactivity) and n.o.s. mood disorder...i found a lot less side effect with resperdal than seraquill he had aduitory and visiual hallucinations with seraquill....and he didnt have any with draw symptoms......i found a web site for juvenile bipolar research foundation which suggests that many kds diagnosed with adhd may in fact have bipolar disorder instead or inconjunction with adhd. they have a free survey you print and take to doctor i found my son fitts almost all the symptoms. cant hurt right? the thing is my son has a high i.q. but just doesnt preform to his ability......and the school isnt very helpful they tell me 1 thing and his doctors another. i think the whole situation is very trying, we try new meds every month or every other month and he still not functioning at full ability......but as a mother you know your child and when something isnt right you gotta keep telling the doctors otherwise they settle on the old mantra leave well enough alone.....and im sorry no matter how frustrating it is we shouldnt settle for well enough we want the best!!! ↑ |
| Name: Katie | Date: Mar 7th, 2008 11:51 AM |
| I am new to all of this but I do have questions. I have a 7yr. boy who has been it seems like everything. We are on Focalin XR20mg, Focalin 10mg, Enalapril, and Rispidal at the moment. And it is not working again. We change meds about every month to 2 months. But my question is how much is too much? And has anybody found something that is working for their child long term? ↑ |
| Name: anom | Date: Mar 7th, 2008 11:00 PM |
| dear katie I don't know what the other drugs are for however I've had to start using risperdol on my 15 yr. old over the past few months. Now I know this might sound crazy but I've noticed that when the bottle goes down to almost a qtr of the medicine left it does not work anymore;each time I replaced the bottle and found that the new bottle in less than a day had better results. I've asked the dr. and the pharmacy and no one has an answer for me. So, if your child is taking this drug in liquid form try replacing the bottle and see if that makes a difference. ↑ |
| Name: anom | Date: Mar 7th, 2008 11:11 PM |
| Natalie Hi how is your child doing has the doctor found another drug to use so they can ween her off of the risperdol? Hope all is well thank you for your advice. I have been trying to gfind a doctor to help with the situation. All I found was a dan dr. up in rhinebeck new york. I don't know if this would work. I must investigate this further in the meantime I am going back to do AIT and maybe look into metronome therapy. I have to see. ↑ |
| Name: Natalie | Date: Mar 8th, 2008 1:56 PM |
| Hi Anom! Thank you for asking about my son. We are now on no meds at all. Its been 2 full weeks, and I am seeing a decline in his ability to maintain @ home as well as school. We are going back to the Dr on Monday to discuss behavioral therapy for my son as well as parenting direction for my husband & I. I'm not sure how long he will be ok at school based on the rapid decline so far, but we are going to try. Respidal won't even be an option for him in the future. As good of results as we got with it, his gluclose went haywire (after 1.5 yrs!) Now... how is your son? It seems you are really having difficulty finding the right Dr., huh? May I make a suggestion? Call the closest University w/ a medical facility & ask if they have a psych. department. If they do, ask for a referral. Also, do you have a All Children's Hospital anywhere around you? If you do, that would be a good place to start. We have 2 hospitals somewhat near us... 1 is Univ. of South Florida and they offer behavior therapy as well as counceling. The other is a hospital in Gainsville called Shands. This is the one I am really trying to get into. They offer compresensive behavioral modification programs. I have talked with other moms who say that that made the all the difference in the world for their children. Maybe you could even call them for a referal in your area. ↑ |
| Name: anom | Date: Mar 9th, 2008 4:22 PM |
| Natalie thanks for the info I really appreciate it. I think maybe I will take your advice and called that hospital and get a referral .I truely think the risperdol was the wrong kind of med that should have been prescribed because I have not seen any progress in my son only the reverse of the situation. Yesterday my son for no reason at all ran out of a restaurant at night in the middle of lower manhattan and it took me a good thirty minutes to reach him to come back in and then he I had to wait 20 additional minutes for him to settle down before he would go back to his seat. I find my sonneeds help but feel this drug is the wrong one and is bringing out behaviors he never had not to mention loss of skills and the repetitive speech. I feel so bad my son might not have been a college student fully verbal but at least he was able to rake care of himself and enjoyed in participating in life. Now his wanting to do things on a daily basis is just so inconsistent . Thank you again I will call first thing in the AM ↑ |
| Name: Katie | Date: Mar 11th, 2008 9:34 AM |
| Anom- Thanks for the input, but he takes pills on everything. No liquid. It is not only the rispidal that stop working, it almost seems like everything. From the Focalin to the Rispidal. Morning from waking up until we go to bed now are crazy. We are going back to the doctor next week but do you have any suggestions on new meds to try? ↑ |
| Name: mom2nadhdson | Date: Mar 11th, 2008 6:57 PM |
| HELLO I JUST JOIN ......IM A SINGLE MOM I HAVE 1 SON HE IS 8 YRS OLD , HE HAS [..SEVER ADHD ], OCD , ODD , TICS , ANGER MOOD SWINGS !...HE HAS BEEN ON MEDS SINCE HE WAS 4 1/2 ... WE HAD TRIED SEVERAL OF THEM ......FOCALIN , CLONIDINE , ABILIFY , METADATE , CONCERTA , RIGHT NOW CANT THINK OF ANYTHING ELSE HE WAS ON BUT RIGHT NOW HE IS ON THE DAYTRANA PATCH ....AND RISPERSAL.....BEFORE HE WAS ON THE DAYTRANA PATCH HE WAS TAKING CONCERTA AND WAS DOIN BAD IN SCHOOL WORK , SO WE SWITCHED TO THE DAYTRANA PATCH AFTER 1 MONTH SHE COULD TELL A DIFFERENCE BUT NOW HE IS STRUGGLING WITH MATH , I ASKED HER IF SHE THOUGHT IT WAS DEYSLEXIA AND SHE SAID NO IT WAS DYSCALCULIA...SO WE ARE WORKING ON THAT , NOW THE ONLY PROBLEM HE IS HAVING IS HIS ANGER !.......THE RISPERDAL IS NOT WORKING ALONG WITH THE PATCH ! ...SATURDAY I DID NOT GIVE HIM A PATCH BECAUSE HE WOULD NOT HAVE ENOUGH UNTIL WENS, SO I JUST GAVE HIM THE RISPERDAL , THE WHOLE TIME HE WAS VERY HYPER COULD FOCUS AND WAS JUST JUMPING ALL AROUND , IF YOU TOLD HIM TO DO SOMETHING YOU HAD TO TELL HIM SEVERAL TIMES TO GET HIS ATTENTION , MEAN WHILE HIS BEHAVIOR WAS GOOD !...WE NOT SEE NO NASTY BEHAVIOR ONCE , THE NEXT DAY HE GOT UP ARGUING BEFORE ANY MEDS GOT INTO HIM , SO WHEN I GAVE HIM MEDS HE WAS STILL ARGUING FOR LITTLE WHLE LONGER HE DID NOT CALM DOWN TILL THAT AFTER NOON....YESTARDAY HE CAME HOME ON AN RAMPAGE .........!!!!!!!!!!................WE ARE GOIN TO THE DR WEN AND IM GOIN TO TELL HIM THAT HE NEEDS TO CHECK FOR BIPOLAR OR WHAT EVER MAY BE CAUSING HIM TO ACT OUT IN THIS WAY ...... ↑ |
| Name: mom2nadhdson | Date: Mar 11th, 2008 6:59 PM |
| THAT WAS SUPOSED TO BE COULD NOT FOCUS ! SORRY FOR THE MISTAKE ↑ |
| Name: anom | Date: Mar 11th, 2008 11:17 PM |
| katie I have to give my son melatonin at night to go to sleep.In the beginning of this whple sorted mess he had trouble sleeping. I didn't know what to do. He would get up at 2am and 4am banging on the walls and on the doors. Also he would go and call Hello Hello allover the house then the melt downs started. So, the first thing that the dr. did that probably was the right thing was prescribed was to give him 4- 6mg of melatonin Rhis worked for about one month then the melatonin wouldn;t work.So I looked online and found out that you have to start with 1 mg of the vitamin and then if you need to increase but no more then 6mg. However your child is very young it sounds as though your child is doing cocktails . I am taking Natalies advice and calling a local college and see if there is someone else that can help. Maybe this is something you can also try.The only thing I can tell you is to hang in there, Maybe he needs to go out and play inorder to get his energy out. Perhaps try walking or rollerskating in getting him to get that release. If not find some kind of outlet loke special olympics they have swimming, bowling ,soccer for the special needs ↑ |
| Name: Natalie | Date: Mar 13th, 2008 8:27 PM |
Hi Anom! I also took something you mentioned (as advise) and looked into it... that IM (Metronome therapy). After doiong hours of research online, I talked to the OT specialist at All Children's. She said it has only worked in a handful of cases, but when it worked it worked well. The problem appears to be that it is very costly and so few have had the great results. I just started my son in OT and he his still off meds. I'm not sure if he'll be able to maintain be I'm keeping my fingers crossed!
You did the right thing by not giving up & going home at dinner the other night. I can fully sympathize with you. GIve yourself a pat on the back though, we know that this can be just as hard on the parents as it is on the child- but your staying in control. Sometimes I wonder who really is the boss in my house... then I have to remind myself! ↑ |
| Name: anom | Date: Mar 15th, 2008 10:06 PM |
| Natalie I know what you mean. I think the only time a parent is in charge is when the child is in the womb. lol. The only time kids listen today is when they need or want something,and that doesn't just apply to autistic children . My son just turned 16 I'm happy and yet I constantly feel as though time is running out on his ability to progress. ↑ |
| Name: lola | Date: Mar 16th, 2008 8:46 PM |
| Name: Another Mom | Date: Mar 20th, 2008 1:25 PM |
| don't add to the malpractice suits, pay more attention to the risks and benefits of medications before putting them in your kids body ↑ |
| Name: anom | Date: Mar 27th, 2008 9:30 AM |
| dear another mom when things go wrong they go wrong all at once, When your child goes through puberty and their behavior changes you sometimes have to act fast inorder to keep the child from having an even worse episode. I did not want to place my child on any drug but there was no choice. This was the option that was given at that time. Plus this is the only durg of choice that doctors give to the asd population ↑ |
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