Name: RachelL Title: Single Parents with Special Needs Kids

Im Rachel 24 years old with 4 year old daughter with spastic quadreplegia cerebal palsy. She has gtube with all feedings, can eat pureed foods twice a day. Just wanted to see if there are any other parents who can relate to what im going thru. And the dad does not accept her disability.  ?

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Name: mel211985 • Date: 01/30/2007 11:21:48

hiya i dont have any children with special needs but im here if you fancy a chat or to just offloadi have family with diabilities so i understand it can be extra stressful at times.  =

Name: UNFORTUNATEEVENTS • Date: 01/30/2007 15:49:11

what do you think about how the school system deals with behavioral or developmental delay children?  =

Name: UNFORTUNATEEVENTS • Date: 01/30/2007 16:03:40

It really makes things difficult when the dad is usually in denial I have a daughter who is considered slightly autistic.  =

Name: RachelL • Date: 02/02/2007 14:53:30

I really dont think that the school system does enough for kids with special needs. I definitely dont get my word in , if i dont agree i still dont get a word in. So i try to get other services that i can do with her on her own. I am really pissed that no companies offer life insurance it makes me very upset. which im in the process of sending my letter to the VA govenor. Its really hard for me being im only 24 and have to do this by myself. But god gave this to me for a reason and i love her to death and wouldnt change her for the world. Yeah i think that the dads are the hardest ones to cope with a child like this.  =

Name: Catcorn • Date: 02/05/2007 08:16:13

Hello Rachel, I have a 7 year old son who has mild cerabral palsy caused by a porencephalic cyst in his brain. He also has ADHD, epilepsy and is dyslexic. He has only been diagnosed with all of the these when he turned 5. His father had already walked out and we havent seen him since just after my sons 4th birthday. We now have 7 different doctors/therapist so seem to spend a lot of the year between hospitals and Enable Ireland which is for children with disabilities. I know how you feel i wouldnt change my son for anything. I know my son isnt as badly affected as your daugther but im hear if you want to talk.  =

Name: etta lenn • Date: 03/06/2007 15:59:06

Hello RachelL i understand the stress you are under. I have an eight year old daughter who is border line hypertensive cp she is not as bad off as your daughter but it still gets stressful. I live in Mo where we have state schools for the severly handicap and of us parents pull togather you need to find a support for yourself and her. And know you are not alone. Also remember your daughter is a huge blessing.  =

Name: Milu Pais • Date: 09/13/2007 21:58:17

I'm a single mom of two adult mentally chalenged children , that were never accpetd by their father, until it got to the point were he left us and never looked back it is very hard but with Gods help we are managing  =

Name: Milu Pais • Date: 09/13/2007 22:08:06

I'm a single mom of two adult mentally chalenged children , that were never accepetd by their father, until it got to the point were he left us and never looked back it is very hard but with Gods help we are managing, just be patient there willbe days that would be harder than others , but it also has it's rerwards, although I've been through a lot with my children whom today
are 35 and 29 years old, I wouldn't trade them for anything in the world. they have thought me how to be kind patient, and how to smile even when ther isn't much to smile abouth they are my gardian anjels my pride and joy good luck my God Bless and Keep you all always
Milu  =

Name: Heather • Date: 09/15/2007 14:18:19

hi rachel. im not a parent of a disabled child, but i am the sister of one. my so called father left when my sister was 12, i was 6 and my disabled brother was 2. he has severe autism and will never be able to be independant in society. (i mean get a job, live on his own etc.) our father never took him seriously either. and would cut his child support when he felt like it. my mother worked full time in a shop since he left and supported all of us on national min wage. my brother went to special school. and although, he was different, my brother is not one of the hapiest 18 year olds ever. he cant speak or read or write but is always cheerful and plays his video gams and is currently in college. so everything worked out ok for him in the end. my mum was very strong and so can you be. youare very wonderful to be doing it on your own and your daughter will always appreciate it. good luck!  =

Name: nicola • Date: 04/30/2008 15:04:34

hi im in the same sirtuation as you!  =