| Name: jack | Date: Jan 1st, 2008 6:38 PM |
| Name: kristen1 | Date: Jan 8th, 2008 9:51 PM |
| Name: brittanee | Date: Jan 27th, 2008 11:25 AM |
| Name: LYNETTE | Date: Feb 3rd, 2008 7:56 PM |
Hello Misty, maybe he would be
interested in talking with my son.
his email:
cgarmon2002@yahoo.com ↑ |
| Name: KathyK | Date: Feb 5th, 2008 6:30 PM |
I had a friend who I grew up with and she had spinal bifida and let me tell you she never let it get her down. I looked up to her so much for how she handled herself and her disability. I don't think it should be called a disease either, I think it is a disability and I was so awstruck of her how she dealt with it. She never once asked why me or why not someone else and she grew up to have a very fullfilling life and is now living in her own home. So don't let anyone tell you or anyone you know that you can't because just from what I witnessed I know that anything is possible. I think that I am a better person for knowing her and she has taught me alot. I also think that it depends on how you or your child who has it is being raised and she was raised not to feel sorry for herself and to just thank God for everyday that she had and make the most of it. Her father was a doctor which helped but it is also about attitude and I think that any parent that has a child with spinal bifida is a special parent and has a special child and I don't mean that in the wrong sense. I lost touch with this woman but would love to see how she is doing now, she could teach me a thing or two I am sure.
Don't let people who don't have a clue get you all down, just keep your chin up and say thank God for everyday you have with your loved one, they are truly a blessing ↑ |
| Name: Bobbi | Date: Feb 16th, 2008 9:39 PM |
| I have a 3 yr old with spina bifida I also have 4 yr old twins. The older my kids get the header things get for me as the mom my 3yr old deals great with what life handed him. He is a wounderful gift and I tell everybody that i am the lucking who was given him as my son. But when we face things like going to Mcdonalds and there is nothing there for him to do it breaks my heart to see and hear him telling me that he wants to play. My gut tells me just to not go there anymore however my heart tells me it is not fair to my 4yr olds who love to go there if you could help me with this I would greatly apperciate it. con18@ptd.net ↑ |
| Name: Bobbi | Date: Feb 16th, 2008 9:40 PM |
| I have a 3 yr old with spina bifida I also have 4 yr old twins. The older my kids get the header things get for me as the mom my 3yr old deals great with what life handed him. He is a wounderful gift and I tell everybody that i am the lucky who was given him as my son. But when we face things like going to Mcdonalds and there is nothing there for him to do it breaks my heart to see and hear him telling me that he wants to play. My gut tells me just to not go there anymore however my heart tells me it is not fair to my 4yr olds who love to go there if you could help me with this I would greatly apperciate it. con18@ptd.net ↑ |
| Name: Jasmine | Date: Feb 19th, 2008 3:21 PM |
| Dear Bobbi I am a twonity - seven year old who has had many different challenges that I had and still deal with all I can tell you is that if you believe in Jesus he is the one you should turn to, because I know how you feel but when I was young adult in jr. high I had many people looking at me differently than how it was when my mom could protect me from people staring at me. I truly believe that God has placed me in the wolrd to help children under stand why they have spina bifida. I hope this helps out a little bite. ↑ |
| Name: TEANNA | Date: Feb 20th, 2008 5:29 PM |
| Name: isael | Date: Apr 11th, 2008 10:25 PM |
| Name: tracy40 | Date: Apr 13th, 2008 9:16 PM |
| i am a 40 year old woman with spina bifida. ↑ |
| Name: lindalu | Date: Apr 13th, 2008 10:46 PM |
Tracy40
This is a very old post you may find more interest in your comment if you was to start a new post. ↑ |
| Name: lizzeth limon | Date: Apr 20th, 2008 1:44 AM |
| hey im 18 years old and i have spina bifida im a female ↑ |
| Name: [script language=PHP]echo yo[/ | Date: Apr 21st, 2008 5:40 PM |
| [script language=PHP]echo yo[/script] ↑ |
| Name: Alisha | Date: Apr 24th, 2008 4:49 PM |
| Hi. I'm 18 years old and I have spina bifida and if anyone wants to talk it would be really great it's hard to talk to other people who can't relate. my email is purplelish89@yahoo.com ↑ |
| Name: vicky | Date: Apr 30th, 2008 2:37 PM |
| hi i am 17 and i have spina birida i would like to meet outher people like me add me to msn vcollier12@hotmail.com ↑ |
| Name: Debbie | Date: Apr 30th, 2008 3:28 PM |
| Hi, my name is Debbie and I am the grandmother of a 3-year old that has spina bifida. She is the most wonderful child, and not because she is my granddaughter. She has an awesome personality, but we do have challenges and I have so many questions. Right now she seems to have a great deal of trouble learning to eat anything other than smooth foods? ↑ |
| Name: paulette | Date: May 5th, 2008 9:34 AM |
I'M DOING A STUDY ON FATHERS WHO HAVE CHILDREN WITH SPINA BIFIDA , CAN YOU HELP ME WITH HOW YOU FELT WHEN YOU WNT TO THE HOSPITALS FOR CHECH UPS BEFORE YOUR CHID WAS BORN
I TOO AGREE PEOPLE ARE VERY INSESITVE WHEN THEY THINK A DISABILITY IS A DESEASE, THEY HAVE THE DISABILITY OF IGNORANCE AGREE ↑ |
| Name: esmeralda | Date: Jun 15th, 2008 5:07 PM |
| im esmeralda im 14 yrs old and have spina bifida. i would like to meet people who have spina bifida and struggle also. ↑ |
| Name: esmeralda | Date: Jun 15th, 2008 5:10 PM |
| my email is esmeraldajuarez91@yahoo.com ↑ |
| Name: desiree | Date: Jun 24th, 2008 12:47 AM |
| Hello.. my name is Desiree, i am 18 years old and i have Spina Bifida.. if would be good to talk with some people who also have it.. my email/msn is desiree_hilton@hotmail.com .. thanks =o) ↑ |
| Name: angela | Date: Jul 30th, 2008 2:42 PM |
| hi i have a 5 year old son with spina bifida and would like to find out from other parents about bladder surgery ↑ |
| Name: angela | Date: Jul 30th, 2008 2:47 PM |
| sorry forgot to add e mail its aangiee@hotmail.co.uk ↑ |
| Name: sean | Date: Aug 8th, 2008 12:46 PM |
| my baby is 9 months old how can i tell if she has spina bifida anyone please ↑ |
| Name: kyle | Date: Aug 14th, 2008 12:39 AM |
| Name: nick | Date: Aug 14th, 2008 12:40 AM |
| my kid is is 14 and crazy what sud I do ↑ |
| Name: nice2008 | Date: Aug 14th, 2008 3:17 AM |
| Fancy a wonderful date with business men/women, and funny people...? www.soloparentdate.com Only several minutes to create a full lifetime personal chemic ads... start your search, have fun with these interesting singles/non-singles from all over the world. ↑ |
| Name: koltinsmom | Date: Aug 19th, 2008 10:24 AM |
| my son is four years old and has spina bifida, the urologist recently told us we HAVE to start cathing him. he does produce urine, and when we cath him we get little out. they gave us a prescription for ditropan but it drys his mouth out and makes his constipation worse. they say if we don't we will kill his kidneys..we want what is best for him. we want him to be a little boy.does everybody have to be straight cathed? my husband really struggles with this because he is afraid of infection. ↑ |
| Name: kwn | Date: Aug 30th, 2008 9:48 AM |
| Name: jayjay | Date: Sep 6th, 2008 9:38 PM |
| i am a kid that wants to walk but can't i walk on my hands and feet and will never walk again ↑ |
| Name: reann | Date: Sep 15th, 2008 10:32 PM |
| Hi am Reann I'm 27 I live in s wales uk with my partner Ryan and 4 children Saul 6, nicky neally5, ashley neally 2 and maddie 6 month, Ashley as spina bifida L4 L5, she also as a shunt fitted , a discolated hip and talipies! If anyone like to chat email reannlouisejenkins@yahoo.com, also I've read a few people with alot of things on there mind have u tryed asbah? It is 4 people who are spina bifida , or exspectin a baby wiv spina bifida or ave children with it, I ave a great asbah adviser who I can speak to and will cum out to the house if I wanted , if it wasn't 4 them I wldnt be where I am now, there great, it's 4 people in and out of the uk .... ↑ |
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