| Name: ilce | Date: Jun 19th, 2008 2:25 AM |
| do you think that having a baby with cleft pallet can cause post part um depretion ↑ |
| Name: lisasing | Date: Jun 19th, 2008 5:45 AM |
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| Name: Autumn's Mom | Date: Jun 19th, 2008 12:45 PM |
Personally, I think that having a baby with anything not right can be depressing, since you have to adapt and learn quickly how to care and nourish and difficulties can be hard to deal with. But I believe Post partumn depression is your body reacting to a change in your hormone levels after givivng birth and it doesn't help when you mentally prepare yourself for a certain way of delivery or expectations are not met when the baby is born or there are difficulties after the birth and with the baby, it can be hard to cope. I have been dealing with depression on and off my whole life, I find eatitng the right foods, getting enough sunshine, excercising helps alot. * My biggest suggestion about trying to deal with post partumn deppression is to adapt quickly to your childs needs learn as much as you can about cleft Pallet and or lip and make the best of it. I had to deal quickly with the heartbreak that I was not able to breastfeed. It was not easy but we made other opportunites to bond. Sick Kids Toronto has an amazing programe called the Cleft Lip and Pallet programm great team very knowledgeable and helpful in the journey for you and your child.
Good Luck on your depression. ↑ |
| Name: NAOMI | Date: Jun 30th, 2008 3:05 PM |
Hello my name is Naomi. I am from Dundalk M.D. My son is almost 8 years old and he has a cleft pallet. I was never told untill now that he had it. I'm trying to find a good doctor to do his surgey. But I am having a hard time finding one that takes his insurance. He really needs this done. can anyone please help!
my e-mail is naomi.ccm@comcast.net ↑ |
| Name: Brandon | Date: Jul 10th, 2008 7:04 PM |
I rote a book to help kids with clefts check it out at WWW.CLEFTBOOKS.BIZ
This is a amazing Book. ↑ |
| Name: baylee | Date: Jul 16th, 2008 7:04 PM |
| i had a cleft pallet once well when i was a baby ↑ |
| Name: jeannette | Date: Jul 18th, 2008 10:27 AM |
| My little girl will be one year next month and she was born with a cleft on her soft pallet . The hospital had me so freaked out that I didn't know what to think or expect. She is absolutely fantastic. She has an older brother and there was no difference in there growth or development. So just know that your little girl will be just fine ↑ |
| Name: ashu chawla | Date: Jul 19th, 2008 7:15 AM |
| ihave a babby who doesnt have cleft pallet .iwanna cleft pallet nipple ↑ |
| Name: Dionne | Date: Aug 2nd, 2008 1:44 PM |
| Has any one gotten there childs surgery at ucla and had dr james p bradley as a plastic surgon he is my childs dr and i was woundering if any one else has had any experience with ucla and that dr ↑ |
| Name: josephs mom | Date: Aug 6th, 2008 8:17 PM |
| looking for some one who has had a bone graft already my son is 8 and is getting ready for his just wanted some feed back on the surgery ↑ |
| Name: lisasing | Date: Aug 6th, 2008 9:45 PM |
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| Name: graham | Date: Aug 7th, 2008 8:28 AM |
I'M 67 YRS. i HAVE A DOUBLE cleft Pallet and hair lip was repaired when A baby, then more at 10 yrs, this has never bothered me through life.
Sad to when we were married we had two siblings born, they both had very severe problems and died at birth.
We then adopted to little girls, then after some years, another son was born, to my disbelieve every thing was normal. To day I have 3 loverly grand-children plus 7 with my adopted girls. I feel so thankful ↑ |
| Name: Brandon Lipman | Date: Aug 12th, 2008 8:47 PM |
| Learn More about Cleft Palets and Experiences at WWW.Cleftbooks.biz ↑ |
| Name: DAVID | Date: Aug 13th, 2008 4:16 PM |
| I am a 40 year old male with a bilateral cleft pallet/lip. What would you like to know? ↑ |
| Name: RHONDA CHRISTIAN | Date: Aug 20th, 2008 4:41 PM |
for automn's mom:
I just gave birth to a boy with acleft pallet (only) and am having trouble feeding him can you relate? and can you tell me what worked for you? and if you can tell me anyhting you think would help I would appreciate it! he is 2 days old!
Momindespair ↑ |
| Name: VIRJ | Date: Aug 27th, 2008 10:30 PM |
| Hi, i was born with a cleft and lip pallet... i had many surgerys done... im 27 now and found out im pregnant... im so scared.... what are the chances of my baby being borth with what i had.......... =( ↑ |
| Name: Summer | Date: Aug 29th, 2008 12:12 AM |
TO VIRJ:
I am 27 and have a cleft lip and palate and so does my daughter. When I got pregnant with her, I was told my chances were only 4% It depends also on who else in your family has one. For example, my uncle also has one. I am pregnant with my second baby and the chances go up to 11-14% with this baby. If you are the only one in your family with one, the chances of your baby having one are VERY low; probably around 4%. So try not to worry and congratulations! P.S. Even if your baby does have one (which isn't likely) It's so much better than when we were kids. They have so many more techniques to make them look really good! ↑ |
| Name: Johnna Elwood | Date: Aug 29th, 2008 1:24 PM |
| My son was born 8-21-08 and we found out he has a cleft pallet and he is in pheonix AZ at Childrens hospital. He will be sent home soon and I am sooo scared... because of the breathing issues we will have to deal with until surgery.! if anyone has advice on how I can deal with this. (we also have other children) I feel this will get my anziety going crazy... anyone want to e-mail me Johnnabean1@yahoo.com with any advice, and how to get these special bottles and anything else i might need to buy for our little special guy... thanks! ↑ |
| Name: Luther | Date: Sep 3rd, 2008 7:20 PM |
This is to all the parents who fear this "Cleft Palate"
I was want to let everyone know that even if a child is born with a cleft palate
some can actually look "normal" with the right surgery rite away and don't suffer speech/nose/. but it sucks to the ones who have the speech problems ↑ |
| Name: truealityfiction489 | Date: Sep 8th, 2008 5:05 PM |
| ok, so im a 17 year old boy with a cleft lip and pallet. i had it repaired when i was 11 months, but the incompetant doctor obviously didnt do a very good job, because, after a week and a half, it fell apart ever so conviniently. so my panicked mother rushes me to the hospital, so i can get repaire, turns out that the doctor vanished from the hospital and was releived of mal practice. so i, being the ugly duckling of my unfortunet family, are going under 34 surgeries since my childhood. i was/am the misfit of my high school. nobody can understand what i am saying, because of the obvious speech inpediment. i currently under went a surgurie taking the extra shin from my bottom lip, and flipping it to the top so they can form a "normal look". it hasnt really formed as well as i liked, but, time will go on. i am very excited i found this web site, if any of you parents have any advice, or would like some, please email me. uncledeth489@gmail.com. please, i want to talk to other people my kind. ↑ |
| Name: Taylor Haight | Date: Sep 8th, 2008 9:34 PM |
I was born with a cleft lip and pallet. I am 14 now and i have to have at least 2 more surgeries. I am really worried about it because where I live almost everyone goes by how you look and i dont like the way I look and for everything i need done we are in a lot of debt. Its hard. But im pulling through. My parents are much support either. If you would like to contact me you can e-mail me at kiddy2012@hotmail.com
~Tay ↑ |
| Name: thruthly_fiction489 | Date: Sep 8th, 2008 11:15 PM |
hello,
i am 16 and with a cleft lip and palate. i have had countless surgeries, all leading to a dead end. i have been in countless expirements that lead to nowhere, so i look just as hidious as i did when i was born. but recently, i under went a surgury that involved a skin graph from my unusualy large lower lip. the slendid surgeon cut some of the lower, flipped it to the top, to form a sort of normal looking lip. so, it has failry healed, but still. i get stares, i get the naive peolpes rude curiosity. if anyone has any advice for a (low self esteemed always thinking everyones staring at him, thinking hes a complete freak)..guy. or if anyone wants any advice on help there child cope, email me. legosrok@hotmail.com..thanks for reading, and understanding. im glad that i found this site, i know that im not alone. ↑ |
| Name: hbj1983 | Date: Sep 12th, 2008 12:05 PM |
| i myself have just found out my daughter has a clef pallet she is five months old now and we only found it the other day when she was crying my doctor never picked up on it after i told him she was always being sick out of her nose the hospital never picked it up either i was wondering if anyone else went though that and what happened with the complant i fell really guilty as a parent that i didnt find it myself sooner.i was also wondering if anyone knows if you can stay in the hospital overnight with your baby when they go in many thanks ↑ |
| Name: tasneem | Date: Sep 17th, 2008 9:40 AM |
| i am now 19 years and my nose looks close to normal! i was born with a biletteril cleft pallet, i really thank my parents for all they went through. i had all my opps done at johannesburg gen in south africa. i dont have any speech difficulties, had lots of problems with my teeth but now im glad i can finally smile:) it was honestly painfull going for the opps bt well worth it:) im happy now. ↑ |
| Name: marco antonio solis | Date: Oct 14th, 2008 12:03 PM |
| Name: mr capone-e | Date: Oct 14th, 2008 12:04 PM |
| Name: mr. capone-e | Date: Oct 14th, 2008 12:04 PM |
| dont get it twisted........... hahhhhhhhhhhh.. ↑ |
| Name: gf+ | Date: Nov 9th, 2008 5:54 AM |
| hi i want to ask is it true that if you have a cleft palate, it would be more or less pass through to your children? ↑ |
| Name: Ashley | Date: Nov 23rd, 2008 11:47 PM |
| It realy depends upon your family history. I was born with cleft pallet and lip and I have a great great greadt uncle who was also born with it on my mothers side. Our doctor told us that because we do have a history of it in our family that it is more likely I could pass it on to a child of mine. He said it was a 50/50 chance. But I do have a beautiful 3 year old who was born healthy and without the cleft pallet/lip. I know it isn't the worst thing in the world to be born with and of course if your fortunate enough to have it fixed at an early age you dont have to deal with all the stairs and questions in school like "why does your nose look like that" unfortunately my surgeries where not complete till i was about 17 so if you do have a child that is born with this I recommend that you do all you can to have there surgeries completed before they get to old. 1. they dont have to deal with as much teasing from cruel kids 2. The younger they are the less pain they will remember from the surgeries and the fewer the surgeries they have to have will be. I know because I did not get to have my surgeries complete at a young age I had to have twice the amount I would have had they all been done within the time frame they should have been after i was born but because we did not have insurance the only thing that was repaired was my lip. Im very thinkfull I didnt have to go through school with half a lip but having a flat nose on one side of my face and it being normal on the other did not help with my self esteem at all and I had to deal with name calling such as two face and other crueltys from my peers. ↑ |
| Name: AshShan | Date: Nov 23rd, 2008 11:48 PM |
| It realy depends upon your family history. I was born with cleft pallet and lip and I have a great great greadt uncle who was also born with it on my mothers side. Our doctor told us that because we do have a history of it in our family that it is more likely I could pass it on to a child of mine. He said it was a 50/50 chance. But I do have a beautiful 3 year old who was born healthy and without the cleft pallet/lip. I know it isn't the worst thing in the world to be born with and of course if your fortunate enough to have it fixed at an early age you dont have to deal with all the stairs and questions in school like "why does your nose look like that" unfortunately my surgeries where not complete till i was about 17 so if you do have a child that is born with this I recommend that you do all you can to have there surgeries completed before they get to old. 1. they dont have to deal with as much teasing from cruel kids 2. The younger they are the less pain they will remember from the surgeries and the fewer the surgeries they have to have will be. I know because I did not get to have my surgeries complete at a young age I had to have twice the amount I would have had they all been done within the time frame they should have been after i was born but because we did not have insurance the only thing that was repaired was my lip. Im very thinkfull I didnt have to go through school with half a lip but having a flat nose on one side of my face and it being normal on the other did not help with my self esteem at all and I had to deal with name calling such as two face and other crueltys from my peers. ↑ |
| Name: Rielysmom | Date: Dec 21st, 2008 3:28 PM |
| I was wondering if any one could help me my daughter was born with a soft cleft she has had it fixed on 10-2-08 she is a little over a year every since her surgery she drinks really not normal she makes a loud sound she tilts her head back and she also always has pulmonary infections is this normal please write asap ↑ |
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