Home » Pick Your Crowd » Moms of Special Needs Children » Does anyone else have a child with Acrodysostosis or help?

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Name: apeanutgallery [ Original Post ] I have not found anyone else with a child with Acrodysostosis? Am I the only one? I guess in the grand scheme of things this is not the most debilitating condition but I could still use a k indred spirit. My 6 year old daughter has this condition. I would also like to iear from anyone with a special needs child and can offer support. I invite you to visit my blog at http://specialneedsandfamily.blogspot.com/ ↓

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Name: Cecilia | Date: Feb 11th, 2008 8:27 AM

Hi! My name is Cecilia and I live in Sweden with my family. Our son Gabriel (3 years old) was diagonsed a week ago with Acrodysostosis. It is not 100% sure yet but we feel quite sure the diagnosis is right based on what we have read on the internet about the disease. I am happy to be a support for you if I can. How is your daughter now? When did you get the diagnosis. You can email me on cecilia_malmsten@hotmail.com Best wishes and I look forward to hear from you soon! Cecilia ↑