| Name: precious | Date: Jan 11th, 2009 2:02 PM |
Yael,
i must congratulate you on your baby.
thanks alot for your words of encouragement.
i hope all goes well with my boy as i wait for confirmation next month .
my baby is due in march.
thanks once small. ↑ |
| Name: momm87 | Date: Jan 14th, 2009 12:53 AM |
| i just went for my 32 week ultrasound and now my baby boy's right kidney is measuring 10mm,im really scared and don't know what to expect i have already been tested for down sydrum and it was negative,could he die and how much bigger could it get before my due date,could somebody please help me out with this? ↑ |
| Name: Susan | Date: Jan 14th, 2009 9:56 AM |
momma87
if you are getting ultrasounds to monitor the kidney, you are receiving good prenatal care and nobody is going to let your baby die. If your doctors think that the kidney is getting too dilated, I'm sure they would induce early, and it doesn't sound like they've talked about that yet. A kidney that remains dilated after birth may simply need to be investigated/observed further and the larger the kidney dilation, the higher the liklihood he may need surgery. Corrective surgeries for this condition have a very high success rate. Good luck, sorry that you have to go through this. ↑ |
| Name: momm87 | Date: Jan 14th, 2009 4:07 PM |
| thanks susan for your help. ↑ |
| Name: Sandy | Date: Jan 14th, 2009 5:59 PM |
Hi , This is Sandy.I had posted few days back on my baby having bilateral pyelactisis of 8mm on both the kidneys.Now I am 20 weeks pregnant and went for an ultrasound by a specialist, they initially said it is 8mm and after 15 min it measured 4mm then after 10 min 6mm.It is kind of fluctuationg every 15 min.The doctor told that it could be a reflux issue and there could be a mild obstruction in the bladder.He also told that it is an indication of down syndrome.I am totally freaked out since my AFP came back negative and Nuchal translucensy came back negative.Then why is he telling me that there is possibility of DS.He aske me if I wanted to do aminocentisis and I clearly refused .I cannot take risk since I conceived this baby after 3 miscarriages and after going through extensive treatment.Can someone please advice.
Thanks in advance
Sandy ↑ |
| Name: susan | Date: Jan 15th, 2009 10:22 AM |
| Sandy, sorry that you have to get worried about something like this, please go back and read all of these prior posts. Speaking from personal experience, I wouldn't be too worried if I were you. ↑ |
| Name: Yael | Date: Jan 24th, 2009 5:20 PM |
| Hey Sandy, please try not to worry so much. I know it's easier said than done. The doctors need to tell you about the "marker" for liability reasons. You tested so well in all other areas. My last two nuchals came back "positive". My last child had a 1:90 chance and this one was 1:130. I chose both times to get amnios...this time it took me until 20 weeks to decide because I am older (40) and feeling more conservative but when the kidney thing came up it consumed me, so I gave in and got it. As Susan said read all the posts..it's amazing how much worry there is and just about every baby turned out fine. Keep faith that yours will too! :o) ↑ |
| Name: Nicole R | Date: Jan 24th, 2009 8:51 PM |
Wow, I just spent 45 minutes reading through this site & it's given me some comfort. I went bouncing into my 20 wk appointment yesterday only to be told the baby has pyelactisis - in both kidneys, between 3 and 3.5 mm. Talk about feeling like a fool -- I was so excited & now I feel so confused & deflated.
Not only that, but I'm 36 so the Dr immediately suggested amnio & brought up the increased risk for DS. He also said we "had to" make a decision on amnio in the next day or 48 hours so we opted to do it right away & are awaiting for the results.
Before yesterday - based on my blood work & previous ultrasounds - my chance of Down's was 1/2,400 & now they've increased it to 1/1,200. Yes, I know these are good odds but it's still stressful.
My husband has a "you're unnecessarily flipping out" attitude because I have been crying & worried. NO, I'm not flipping out - just sad & so concerned & can't find support at home.
The truth of the matter is we are not prepared to commit to raising a special needs child so the stakes are very high. ↑ |
| Name: SvitlanaS | Date: Jan 25th, 2009 3:57 AM |
| At my 19 week I had my U/S the technician didn't say anything to me, but I got a letter a week later that stated I had another app. for a 2nd u/s at 28weeks. I freaked my self out over the weekend, but spoke with my NP and she said it was nothing to worry about it. I have a friend at a major hospital who did another U/S for me and said that everything was normal and the kidney size fluctuated a bit during the U/S. Regardless I made an app. with genetics counselor and was going to do amnio but after talking to her and doing another US they told me it was in the normal range and I backed out of the amnio. I go back in a month, so I'll update. But it made me feel a lot better to get a few other opinions. My friend said that it was never proven that dilated kidneys are connected in any way to DS. He did examine the spine, heart, feet, nose and everything was fine ↑ |
| Name: baby32b | Date: Jan 26th, 2009 10:46 AM |
hi everyone, thought I would share my story.... I am 21 weeks with baby #3. My daughter, now 5, was diagnosed in utero with pyelectasis. Throughout that pregnancy no mention of Ds, just the doctor telling me the potential complications. I the end, she has a few ultrasound follow -ups after she was born and is healthy as can be!!!!
Baby #2 - my beautiful son is now 3 and healthy as can be. However, in utero was diagnosed with 3 soft markers (thicker nuchal fold, echogenic foci and again the kidneys, but this time they considered it hydronephrosis. We had the amnio because I was an absolute basketcase and i couldn't bear going 20 weeks not knowing. Amnio came back that he was fine- no abnormalities. Still being followed for kidneys through ultrasounds, but the urologist seems t think it is resolving itself on its own and no intrevention will be needed.
So here I am with baby 3 and the 20 week ultrasound has yet again shown that this baby, a girl, has two soft markers...echogenic foci and ...yet again,,,mild pyelectasis.
To be honest, I am not that worried as I have come to realize that these doctors seem to over exaggerate the risks, however it is just frustrating.. I will definitely not be doing an amnio this time around... ↑ |
| Name: Nicole R | Date: Jan 26th, 2009 1:52 PM |
Dear baby32b-
Thank you for sharing your story about your 3 kids. Reading it is comforting.
If I may ask, how old are you? I think they suggest Down's to all mothers-to-be who are 35+ where pyelectasis is found.
It has temporarily stripped the joy away from my pregnancy. All I do is worry & I have stopped rubbing my belly, writing in my journal, etc. because I am so worried & am afraid to continue to getting attached to this child. ↑ |
| Name: baby32b | Date: Jan 26th, 2009 3:55 PM |
| Hi Nicole, I am 32 years old. I really hope you can relax a bit - I truly believe there is nothing to worry about! I was like you while awaiting the amnio results for my son...it was at the point where I would cry all day long, and I didn't even want to feel him moving inside me. I will not let myself feel that way again, especially with all the positive things I've read out there. ↑ |
| Name: Susan | Date: Jan 28th, 2009 12:29 PM |
Nicole R-
Please don't let this minor finding ruin your pregnancy. To be honest, I didn't think that 3.5 mm even qualified for pyelectasis. I thought that 4 mm or less was normal. Regardless, go back and read these posts for reassurance. I delivered a healthy baby boy in May 2008 and now look back sadly upon the fact that I didn't enjoy my pregnancy as much as I should have. I was 35/36 during my pregnancy. I hope that you get your amnio results soon. ↑ |
| Name: Lola | Date: Jan 29th, 2009 11:51 AM |
| I am 26 weeks pregnant and I just found out that my baby has pyelectasis. The baby did have a choroid plexus cyst but it resolves on its own. My triple screens and blood work came back great. I am really nervous abouts downs....some one help! ↑ |
| Name: LEANNE | Date: Feb 2nd, 2009 6:13 PM |
| HI.HAVE BEEN READING A FEW POSTS.I HAVE BEEN THROUGH THE SAME THING .ENLARGED KIDNEY ON MY 20 WEEK SCAN STRESS!!!MY SON IS NOW 16 MONTHS AND HAS HAD REG SCANS.BUT NOW HAS TO HAVE SURGERY ON IT .I AM SO WORRIED !! DID NOT THINK IT WOULD GET TO THIS TO BE HONEST. ↑ |
| Name: Susan | Date: Feb 5th, 2009 9:25 AM |
Leanne
Could you tell me what happened on your scans. How often were you getting them and what did they show? Why does he need surgery now? I'm just wondering because my little guy was "discharged" from urology follow up, but I still feel the need to have follow up ultrasounds.
I'm sorry you have to go through this. Nobody wants to have her child go through surgery, but in all of my reading I did see that the surgery has a very high success rate. There were a few people on here who have posted about having surgery, but I doubt that they check this forum anymore since it's been a while. Keep us posted. ↑ |
| Name: precious | Date: Feb 7th, 2009 11:36 AM |
i must say i have gained alot from this forum and peoples stories have given me hope.
i am still waiting to have my next scan on thursday next week(12/02/09)
i want you all to pray for me for the best result.
my last scan showed 3.8mm on the right kidney and 8.2mm on the left. i was 31weeks pregnant then.
thanks all. ↑ |
| Name: leanne | Date: Feb 9th, 2009 6:10 PM |
| hi susan..well my son has now had the op and he is doing really well..when he was born he was scaned every few weeks to see how enlarged the kidney was.one minute it was ok next it would be big again he then had a scan with a dye put through him to see were the problem was after that scan they waited a few more weeks and then decided surgery was the only option. due to the right kidney not draining properly it was damaging the kidney now.They done open surgery on him and found the tube was blocked and they have repaired it we were in for 4 days with him. we go back on friday to have stent removed i have never been so stressed!!!but glad its all over with now there is nothing i dont know about all this been on every site about it!!but my little boy is doing really well .not that he wasnt before this dont know what other children are like but he was fine did not bother him one bit . ↑ |
| Name: Susan | Date: Feb 11th, 2009 11:58 AM |
| Leanne-so glad that your little guy is doing well. Hugs to him. ↑ |
| Name: leanne | Date: Feb 11th, 2009 7:40 PM |
| hi susan..how is your boy? why do you think you still need to see somene about this?surely when they discharged your son he was ok?? ↑ |
| Name: Matt 9200 | Date: Feb 12th, 2009 11:25 AM |
| Hello everyone. Just thought I would share our story. Our ultrasounds found that our son had pyelectasis at his 20 week, 24 week, and 28 week exams with a 5.0mm, 7.3mm, and then 8.2mm respectively. However, it cleared up by the 35 week where it went down to a 6.7mm. The sonogram technician mentioned that it was a soft marker for DS and that our odds were still 1 in 500 and not to worry. Of course, that's all I did for the rest of the pregnancy. Well, I'm proud to announce that our beautiful son was born on Feb. 10th weighing in at 8lbs 2oz and completely healthy! No DS. After months of reading this forum, I just wanted to come back and post our story. I know it is easy to say now, but please don't worry. This is a relatively common find in an ultrasound. Best of luck to all of you expecting mothers out there. And enjoy your pregnancy, the gift of life is truly a miracle!! ↑ |
| Name: precious | Date: Feb 12th, 2009 1:48 PM |
Leanne and Matt 9200,
I must congratulate you both for the successfull end of your stories.
i pray that God hears my prayer too and give me a good story.
I have gone for my check up today and the left kidney is still enlange, infact it has increase from 8.2mm that it was at 31weeks to 9.0mm today at 36weeks. My doctor assured i should not worry that everything will correct itself before or after birth.
i believe so and waiting on God for a miracle.
that is my story for now. ↑ |
| Name: nervous_momma_2_b | Date: Feb 17th, 2009 7:34 PM |
Hi Everyone, I'm in a similar situation to some people here regarding the pyelectasis.
I was sent to a perinataologist very early in my pregnancy because of a previous M/C. At the U/S they found that I had uterine synechia and followed me every month until I got to my 5th month when he told me the synechia was no longer an issue, but one of the baby's kidneys appeared large, but he wasn't worried and sent me away until I was 34 wks along when he wanted to check the position of the baby for delivery.
Well, I'm now at 34wks and had an appt with the perinatologist today. During the U/S the sonographer said that the baby was measuring big (5lb 13oz) for the due date (4/4/09), she said it could be a 9lb + baby.
So, we go in to see the Dr. and he tells us that the right kidney is measuring at 7 something (I don't remember the exact number, I shut down) and he wants us to go back in 3 weeks. Of course he explained that it can rectify itself and if it doesn't he explained the scenario.
I'm 36 Y/O and took the blood work, but not the amnio. I can't remember the blood results at the moment, but I remember the Dr. saying everything is fine.
Now, reading the posts here and on the internet I'm terrified something has been missed.
So, to sum it up, I'm afraid of a big baby, a kidney problem and the connection to D/S, so I'm kind of a mess right now.
I just wanted to share my story with others who know how I feel. Thanks for reading. ↑ |
| Name: Samantha/35 | Date: Feb 20th, 2009 1:22 PM |
| To everyone out there please keep in mind that when you have these test done, the doctors have to comment on everything they see.. good or bad. Many times they HAVE to mention the worst case scenarios. But what it comes down to is you have to make a decision,(that you are comfortable with) when faced with the news that everything isn't perfect. ↑ |
| Name: newmommy1 | Date: Feb 22nd, 2009 6:43 PM |
| Just an update and a question. My little boy is now 7 months old and doing wonderful. He was dxed with pyelectasis when I was 36 weeks. He has had several ultrasounds. The one at 2 months old showed that one side had gone down and the other had stayed the same. The last one in November came back saying that the dilation had decreased in both kidney. The doctor said "slowly but surely" it was going down. She r/s him for 4 months from then so we go back in March. Has anybody had the dilation go down each time only to go back up and need surgery? It's hard to find anything about this out there on the internet. I've been real positive but as it gets closer to the ultrasound, I start freaking out again. ↑ |
| Name: Dana | Date: Feb 24th, 2009 3:44 PM |
Hi Everyone-
Update
Just thought I would share my story. This chat room got me through 20 weeks of worry..
Iam 27 years old and at my 20 week sonogram my son was diagnosed with pyelectasis. As the weeks went by it got worse, finally measuring 13mm at my final sonogram before he was born. I didn’t have an amino, so I worried about downs the WHOLE time. I had a c-section and my first question when he was born was, is he downs??? I was soooo scared. Well, he is here and perfectly healthy – weighing 8lbs 5 ozs!!!!!!! He got a sonogram the day after he was born and the doctor told me that there is no fluid. I was very confused and then remember that I read online that by getting a sonogram done within the first couple of days of the child’s birth it does not give you an accurate reading. So I waited 3 weeks and took him to get another sonogram, by the way they call this a renal sonogram for babies.. The renal sonogram showed that he indeed still had the pyelecatais, which the doctor called hydronephrosis. The doctor also didn’t give me the measurements on the fluid, only that it was mild. At that point the doctor wasn’t sure what the fluid was, either kidney reflux or a blockage in his kidney. Since he didn’t know, he put him on a low dose antibiotic ( he is now 4 months), which is to prevent a UTI and fever if it was the kidney reflux. Last week we went for a VCUG test, which was not fun. It was very uncomfortable for the baby, but we found out that he has a blockage not reflux, so he was taken off the antibiotics. He probably will need surgery at some point in his life, but for now we have to watch it. He goes back every 3 months to the specialist. Anyway, moral of the story is that my beautiful son is perfectly healthy and leading a normal life. So please try to relax and do not worry. When I read the chat room there was only like one person whose child actually had downs. It is such a faint marker.. These doctors always have to tell you the worst..
Good luck to you all.. Congrats ↑ |
| Name: Sandy | Date: Mar 5th, 2009 7:48 PM |
Hi, All,
this is sandy again,I had posted a couple of months back that my baby has bilateral pyelactisis of 8mm in both the kidneys.I was 20 weeks at that time.Now I went to another ultrasound at 27 weeks and the doctor said that bilateral pyelactisis has grown a bit ,now I think it is 9 mm.Doctor told me that it grows since the baby is also growing.I thought the fluid would have disappeared by now since the doctor told me that it disappears in 3rd timester,now the doctor told that it will disappear after birth.I am totally worried.I am having this baby after 3 miscarriages and I want it to be healthy.Does the baby need a surgery after birth?I dont want the baby to undergo troubles such as surgery.Please advice, I am totally frusrated.I am taking thousands of treatment to sustain this pregnancy.I also have gestational diabetes and on top of everything bilateral pyelactisis.Will I ever get peace of mind at all? ↑ |
| Name: Sandy | Date: Mar 6th, 2009 1:52 PM |
| Hi This is sandy , during my 27 weeks u/s kidneys measured 18mm(right) and 16mm(left), is there anything to worry, please advice ↑ |
| Name: sandy | Date: Mar 6th, 2009 2:06 PM |
| Hi This is sandy again just an update right kidney = 15/6/18mm , left kidney 13/16/14mm, can someone please explain me how much is the fluid retention? I am totally confused ↑ |
| Name: sherryb | Date: Mar 7th, 2009 8:17 AM |
To Sandy & all others having mini heartattacks & anxiety over this... I know it's long & time consuming but well worth it... please take the time to read the many pages of posts before yours & I think you'll understand & realize that this is not anything to ruin your pregnancy over worrying & fretting about. Nature tends to correct the problem during the end of thre pregnacy or soon after pregnancy. To jump to the conclusion that the child would need surgery or have life long kidney problems even before it's even born is inflicting unneccessary stress upon yourself . Even if they are enlarged after a follow up ultrasound after birth they generally treat it w/antibiotics for a year, if still not corrected (which is almost never) the surgery, from what I understand is not complex.
Slow down, take it one day at a time. Worrying helps nothing. He's fine right now in there floating around, growing & hiccuping, he's growing & happy, he's not in pain. He'll be followed up on in the future & have comfort that this situation almost always resolves itself naturally.
I let it ruin the last 20 weeks of my 3rd pregnacy & I regret it to this day. Live in the moment w/this situation, reread the previous posts for assurance & listen to your doctor, I'm sure you'll find they aren't overly concerned w/it at this point. It'll be ok, you wait & see. ↑ |
| Name: Sandy | Date: Mar 9th, 2009 1:49 PM |
Thank you so much sherry, your words have put my mind at ease.I was worried since I am having this child after lot of hurdles and miscarriages and did not want the baby to undergo surgery but as you say nature will correct this problem and I will keep my fingers crossed.I read through this forum and I guess 2 ladies are waiting for surgery for their kids.All the best to them.
Thanks once again for your positive reply
sandy ↑ |
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