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| Name: Vidya | Date: Feb 17th, 2006 8:32 AM |
| Hi All, I am new to this forum but share your concerns. I have been on the internet trying to find answers since we found out that our baby boy has bilateral pylectasis ( .77 and .79). I had my first U/S on Jan 18 and the next one on Feb 13 but the situation has not changed and the dilation remains the same. I am right now 26 wks. I see that many of you noticed reduction after the 30th week scan so hoping for the best. I am so worried but trying to say positive...thats what the doc says too 'Stay positive' ..my prayers and wishes to all of u in the same boat. ↑ |
| Name: Brenda | Date: Feb 17th, 2006 4:39 PM |
| Hi I'm Brenda and I'm new to the board :) I was told my baby boy has pyelectasis 5mm (right side) when I was 20 weeks. I go for a follow up apointment next Tuesday. I'm now at 26 weeks. I'm glad I found this forum here because it helps ease some of the stress. I hope and pray that it does resolve itself. My dh and I already went through medical issues with our last baby who had CHD and died last May when she was 5 months old. She had two open heart surgeries but it failed and she was not a candidate for heart/lung transplant. So we are definitely praying hard for a healthy baby. ↑ |
| Name: Michelle | Date: Feb 20th, 2006 12:44 PM |
| I'm new here and so thankful I found this board. Just came from an ultrasound where the peri said my son had what she referred to as "juicy kidneys". One was at 5mm and the other I actually can't remember because I am in shock. Then I heard the word down syndrome, so that's not calming me down. I am at 26 weeks, everything else looked great, and I'm not at risk for having a ds baby, but I'm still terrified. I'm starting to see that it is more common than I thought, hopefully that will relax me. They scheduled another ultrasound in 6 weeks, I wish it was sooner, so I could have some peace of mind. I'll keep everyone posted, and my prayers are with all of you with going through these difficult times.. ↑ |
| Name: Vidya | Date: Feb 21st, 2006 9:28 AM |
| Hi Brenda and Michelle, Guess all of us are at the same stage(26-27wks) and waiting for next round of U/S in 6 weeks. I can truly relate to u on how difficult this waiting period can be. Lets all be positive and pray hard and not think too much of any complication. Vidya ↑ |
| Name: lilian | Date: Feb 21st, 2006 11:48 PM |
| hi guys, i just had my 20 week ultrasound and i was told "minimal fullness of the left renal pelvis (4-5mm) i am really worried now, i am 28 years old with one baby (healthy boy), and i had an ultrasound at 12 weeks to detect DS but my odds were 1/1559. should i get another ultrasound done at 32 weeks? i cant sleep or do any housework or look after my little one im soooo worried ↑ |
| Name: petra | Date: Feb 24th, 2006 4:41 AM |
| hi Dawn, just wanted to know where u got that infor from that Some kidney problems are linked to blue eyes, fair skin, and light hair? heheh its very funny you say that. just curious why u would say that? ↑ |
| Name: Claudia | Date: Feb 25th, 2006 5:49 PM |
| Hi to everybory, I,m mexican an I'm having twin boys and in my last ultrasound at 18 weeks the doctor found that one of my boys had pyelectasis. Thanks to this forum now I have a lot of questions for him. At the time I didn't know anything about it. I have my next ultrasound app in 4 weeks. ↑ |
| Name: dean and mona | Date: Feb 26th, 2006 10:41 AM |
| We still have all of you in our prayers and are hoping for more good news on friday with our 32 week follow-up u/s. God bless and keep the faith. ↑ |
| Name: lilian | Date: Feb 26th, 2006 6:41 PM |
| hi guys its me again, im from sydney im new to this, but very happy i found this info on the net. my 20 week ultrasound showed one of the kidneys was 4-5mm yeh they didnt even know the exact measurements! but i have read that lots of you are doing a follow up US? But they advised me that they are only going to check the baby again after he is born? SHOULD I ASK FOR ANOTHER US? ↑ |
| Name: wendi | Date: Feb 26th, 2006 11:14 PM |
| I had my 20 week US on Friday and was told that both R and L are measuring 4mm. I immediately got on the internet and found as much literature as I could about pyelectasis and what that means. I called my OB on Saturday and demanded to see a maternal/fetal expert for a second opinion. I will be scheduling an US for this week with an expert that deals only with high risk/problem pregnancies and has seen more of this than my OB. I hope he will be able to shed more light on the real reality of this soft marker for someone like me who is not high risk and has no other markers for risk. Goodluck to all of you and my prayers are with you. I will keep you posted. ↑ |
| Name: lilian | Date: Feb 28th, 2006 3:17 AM |
| hi wendy, please keep us updated thanks heaps, my doctor found it no big deal and said 4mm is nothing and wait for the baby to arrive, but like you im only half way there and cant bear to think that something is wrong with the baby for another 20 weeks! Please let us know what your ob says ↑ |
| Name: Stephanie | Date: Feb 28th, 2006 12:35 PM |
| Lillian and Wendi-- I saw a Perinatologist for a second US and he is the one that told me that 3 or 4 mm is not that big of a deal. He said that in their practice if that is seen at 20 weeks that no further US would be needed. If you are at all anxious about this I would definitely demand to see one of these specialists. I think you will come away from the experience feeling a lot better about the situation. Dean and Mona- I am keeping you in my prayers and hope everything works out well at your 32 week appt. ↑ |
| Name: Ann | Date: Feb 28th, 2006 2:25 PM |
| Hello All - I just stumbled onto this board. At my 18 week u/s they discovered 4.6mm right and 5.3 left and sent me off to the high risk people who found 4.5 right and 4.9 left - but said the difference is meaninless. I go back at 28 weeks. My AFP was normal an no other soft markers seen. I am still completely freaked out. I am 33. Here is my questions - should I start interviewing/researching pediatric urologists now...wait to see if it persists at 28 weeks? Plan to have him checked by a urologies even if the 28 week shows normal? What did other people do???? ↑ |
| Name: lilian | Date: Feb 28th, 2006 4:54 PM |
| hi guys, i just sent an email to doctor at the hospital and here is what she said: Answer Hello I am going to assume the ultrasound showed a dilated renal pelvis. (Renal is the medical term for kidney) This is actually not the kidney itself, but the first part of the tube that drains the urine from the kidney down to the bladder.(I will go on to explain this common finding. If this is wrong, and your baby does in fact have kidneys that are 4-5mm bigger, let me know) The dilation of the renal pelvis is a very common finding in the second trimester. I would like to put your concerns at ease right now! It is usually nothing to worry about!! There has been much discussion, by many, on the topic of renal pelvis dilation and there are conflicting schools of thought. The conservative approach would be any renal pelvis measuring more than 4 mm would be followed up until 33wks. After 33wks any measurement over 7mm would continue to be monitored. Most doctors consider any measurement over 10 mm to indicate some kind of clinically relevant disease and would follow the baby after delivery, doing a number of urology tests. In most cases with no additional findings in the fetus and in which the only significant finding is dilation of the renal pelvis, there is a low incidence of pathology. From my personal experience, almost every patient I have ever seen with a dilated renal pelvis, has returned for a follow up ultrasound and had the kidneys completely normal. With Regards, Jane RDMS ↑ |
| Name: petra | Date: Feb 28th, 2006 9:06 PM |
| THERE IS NO USE GOING BACK FOR ANOTHER US. WHAT CAN YOU DO WHEN THE BABY IS IN YOUR STOMACH? NOTHING!! IT WILL JUST GET YOU STRESSED EVEN MORE! THEY CANT HEAL THE BABY WHEN ITS IN THE WOMB. JUST PRAY AND WAIT FOR DELIVERY. ↑ |
| Name: Ann | Date: Mar 1st, 2006 12:57 PM |
| Hello Petra - I do see your point, but I don't agree. I want to know before the baby is born if the condition persists - this way I have time to research/interview urologists and have an exact plan of action. I understand the there is nothing I can do right now...but I can make sure I am prepared for what needs to be done later. For me having my newborn seen by whatever staff urologist happens to be on call that day is not acceptable. Also, if the condition persists into the 3rd trimester they will put the baby on antibotics right after birth as a precation. This can eliminate the possbility of kidney damage from an early kidney infection - if the condition goes away in the third trimester then I can avoid unnecessary antibiotics while I wait for post birth testing that they cannot do until 3-5 days after birth since they need to baby to be feeding normally (and hydrated.) ↑ |
| Name: lilian | Date: Mar 1st, 2006 4:25 PM |
| hi Ann, my doctor told me that 4-5mm was minimal and not to worry about having another ultrasound. I like you really want to have another one, but then again ill only stress if the blockage has increased. So im waiting till my baby boy is born and then from then decide what to do, because the doctor said most heal b4 delivery, so im praying it will. ↑ |
| Name: Ann | Date: Mar 1st, 2006 5:00 PM |
| It is so funny how differently doctors react. When you say wait until the baby is born...what is your plan - what I mean is will you just plan to have tests run on the baby or take a wait and see attitude to see if actual symptoms develop (like infection or lack of urine output.) I have seen both my OB and the Maternal-Fetal medicine people and they both agree that anything over 4mm before 28 weeks deserves follow-up. But you know - sometimes these drs are just covering their own butts - figure if the 1 in a million happens and there is a real issue and they did not do the follow-up then they would be in big trouble. I have done a ton of internet research and I do find conflicting information...some sites say anything over 4 deserves follow-up - some say anything over 6-7. The one thing I can say (if this mean anything) is that my insurance company is covering all follow-up since they consider anything over 4 a condition for which they will approve additional u/s and appointments with the maternal fetal medicince people. The maternal fetal people said if at 28 weeks the numbers are still between 4-5 then i am done since in the 3rd trimester 7 is considered the cut-off for follow-up. If the number is 6 or greater I will have another u/s at 35 weeks. ↑ |
| Name: Ann | Date: Mar 1st, 2006 5:04 PM |
| Hello again Lilian - I forgot to mention that my research has shown that bi-laterial dilation (both kidneys) is more apt to need follow-up - I think one or your posts said yours was showing left side only - maybe that is why they are not planning additional u/s??? Worth asking the dr. about. ↑ |
| Name: Linda D | Date: Mar 1st, 2006 8:55 PM |
| I am about in the same boat with all of you. I would be interested in some of your ages. I am 36 and will be when I deliver as well. I am 28w now. At 21w they told be the kidneys where 6mm, They also said it was a soft marker for DS. Which really has me upset. I did not have the AFP and quad screening because of the false positives. Plus my doctor said at 'my age' they would automatically come back positive. Also adding that IF I was under 35 they wouldn't even think twice about this. I know we are having a girl and she has no other markers at all. When I went at 26 w. the kidneys where still at 6mm , which she said was good since they didn't get any bigger. I am so confused, I am starting to feel like I should have had an amino just to know. We would not have terminated either way. So besides the possible after birth treatment, are any doctors scaring you about DS? I do have another follow up at about 32w. ↑ |
| Name: Ann | Date: Mar 2nd, 2006 8:27 AM |
| Hello Linda. I am 33 - will turn 34 before my due date. I did have the quad screen which came back normal and then had an detailed u/s with the perinatoligist to look for any other "soft" markers and they found none. My ob had actually played down the DS issue - calling pyelectasis a VERY soft marker especially in the absence of any other marker. I know there is one person who posted here had this as their only soft marker and did end up having a DS baby - but my ob says he has never seen a case in his entire career so I think it is pretty rare. As far as the pyelectasis itself - ff the WORST case scenario is that the baby will need minor surgery I can live with that - but the more likely scenario is that the baby will be put on anitbiotics to avoid infection while they monitor the kidneys and wait for the condition to resolve on it's own - which normally happens by age one or two. I am so glad I found some people here to communicate with! ↑ |
| Name: wendi | Date: Mar 2nd, 2006 3:37 PM |
| Hi Ladies, I wanted to follow up in regards to my situation. I am 33 and had my 20 week US last Friday. The OB found or I should say the "qualified technician" found 4mm on the L and R ureters. I freaked out-looked up everything I could and immediately contacted my OB for a referral to a maternal-fetal expert. I finally got in yesterday, Wednesday for a second opinion. I am happy and relieved to report that he did not find any such readings. He told me that one measured 2.9mm and the other side at 3mm. He continued to tell me that I was the third woman in that day for follow up with renal pyelectasis. My comment was that someone was keeping him busy with referrals. He also stated that he has seen only three cases where this was the only soft marker and the child was Downs. The study that was done years back on this issue ONLY looked at Downs babies and DID NOT compare them with a normal group of babies. How do we know if this renal pyelectasis would not have been seen in a normal population in this particular study? My point is that if you do a study and only look at Downs children and have no comparator group then the mere fact that they all have eyes could indicate your child could have Downs!!!!! I personally believe that this measurement causes a lot of unnecessary stress and anxiety. It also fills the pockets of the specialists since most women would follow up ASAP with a reading like this. However, I do not discredit the fact that yes some children do continue to develop hydronephrosis at birth, that is why I would follow up regardless what anyone else says. I would continue to be diligent in your follow up and demand only the best of care for you and your children. Level 2 US is much better at readings and measurements. Be your best advocate and Goodluck. ↑ |
| Name: lilian | Date: Mar 5th, 2006 6:17 PM |
| hi ANN, yes I was told the baby only has 4-5mm in the left renal pelvis. im 28 years old. ↑ |
| Name: Ann | Date: Mar 8th, 2006 12:22 PM |
| Lilian - did you ever ask for another u/s? Wendi - I agree with you about the need to be your own avocate! This seems like a condition that if treated should cause no long term issues - but if untreated can lead to kidney damage. I am taking no chances and will take my son anywhere he needs to go to get the best treatment. Luckily, I live near NYC so I should have easy access to some of the best drs an hospitals around. Although I have actually read the Childrens Hospital in Philadelphia is the best in the country for pediatric renal and urological disorders. If I had to go there I would for sure! ↑ |
| Name: Michelle | Date: Mar 8th, 2006 8:36 PM |
| My OB didn't seem the slightest bit worried about the pyelectasis finding on my last ultrasound. She told me it was very common and was happy to know I have another ultrasound the first week of April just to check on the baby's condition. I feel a lot better now. We'll see how the next U/S goes. Hope everyones' pregnancies are going well. ↑ |
| Name: Melissa | Date: Mar 8th, 2006 11:38 PM |
| Hi Everyone, I just had my first ultrasound (18weeks4days) and my doctor said that there was dialation in the kidneys (2cm), a few spots on the brain that could indicate cysts, and a small portion of the bowel that was brighter. She said that they were minor concerns, however, after going on the internet and seeing that these are all signs of DS, I am very worried. I will have the level II ultrasound tomorrow but am very nervous. I am 25 years old and the triple screen came back fine. I am also having a boy. I will keep you updated. Anyone else have all three of these abnormalities? Melissa ↑ |
| Name: kristin | Date: Mar 9th, 2006 3:31 PM |
| When I went in for my 20 week ultra sound they found a brite spot on the heart, and pyelectasis in the kidneys. My doctor told me that it gave me a 1 in 500 chance of having a downs baby, and then I took a triple screen and everythin came back normal with that, so the doc said my chances of having a downs baby at this point are 1 in 1000. Bieng pregnant is so scary! When I talk to my doctor I feel fine but when I look things up on the internet I get scared. I dont recommend doing research about down syndrome markers on the internet just because every web site has something differnt to say. If you are concerned talk to your doctor. I am now 27 weeks and have to have another ultrasound to see if the pyelectasis has gone away. If this doesnt go away does anyone know what happens? Does my baby have to get surgery? Is this a life threatining thing?? ↑ |
| Name: KND | Date: Mar 9th, 2006 9:11 PM |
| I am wondering if there are any moms here that had markers for dowm syndrome in there ultrasounds who have already had there baby. I am curious if you had a healthy baby or not. In my ultrasound they found that the kidneys had fluid in them, and they found a white spot of calcium on the heart. My Doctor said my triple screen looked fine and came back normal, giving me a low chance of having a downs baby. But I am so nervous and scared! I would love to hear from anyone..........im very confused.. ↑ |
| Name: Ann | Date: Mar 9th, 2006 9:18 PM |
| Kristin - from what I have read (and I have read a lot) a VERY small percentage of pyelectasis babies will need surgery. Most cases of pyelectasis correct themselves in the 3rd trimester. Those that remain at birth usually resolve by age 1 or 2 on their own. Babies will often be put on antibiotics to avoid kidney infection while the kidney situation is just watched over time. My perinatologies said she has seen cases where babies with pyelectasis have has obstruction that needed surgery - but it is more common with hydronephrosis. I have actually seen varying opinions of what separates pyelectasis with hydronephrosis - but the most common I have seen is a 10mm (1cm) cut off. I know everything you read can indicate that pyelectasis is usually not serious - but I also know when it is your baby it is so hard to relax. I have had 2 u/s so far showing measurments between 4.5 and 5.3 - now I am just waiting for my next u/s at 28 weeks - On March 23rd! ↑ |
| Name: kristin | Date: Mar 9th, 2006 9:31 PM |
| Ann- Thanks so much for your feedback. I have felt so alone in this because I dont know anyone who has been through it ya know? When my doctor told me that this is a marker for downs I freaked out...especially since they also found a white spot on the heart. I'm glad I took the triple screen test and it came back normal. But i'm still worried! I am due June 7th. That is a long time to wait to see if I have a healthy baby. I feel in my heart that he is fine. And my doc said hes fine so maybe I need to get a hobby and stop worrying so much!! ↑ |
| Name: Ann | Date: Mar 9th, 2006 10:01 PM |
| I am having a schedualed c-section on June 9th so we are due at the same time!! I freaked out about the down thing also - and being almost 34 I am getting toward the "older" mom group. Keep in touch! ↑ |
