| Name: Crystal | Date: Apr 20th, 2006 9:28 AM |
| I have found so much support and inspiration on this forum. Thanks to all you ladies (and men) who post your success stories. I guess when it comes down to it, every baby is a success, no matter what the outcome of their health scares. My husband tells me to stay off the internet because i worry myself sick, but I always feel reassured when i read this forum. I will keep all of you in my prayers and keep you updated on my babygirl. God bless and keep you all....... ↑ |
| Name: Leilani | Date: Apr 20th, 2006 11:44 AM |
| I have an ob app.on the 25th and we are to sit the dr.down and ask him.It kinda felt like the other dr. just would not give us a straight answer,i just thought it was me being upset,but my husband felt the same way.So hopefully we will get the answers we need.My ob didn't think it was anything but wanted to make sure thats why we had the level 2 u/s. ↑ |
| Name: dean & mona | Date: Apr 20th, 2006 12:01 PM |
| We've had a new arrival. Little Brandt was born on the 15th and still has his left kidney dialation(his is actually hydronephosis) 18mm. Our Pediatric Urologist seems to think his kidney may need a little intervention becuase the dialation was significant. This will not take place for a year or two. Every nurse, doctor, and specialist is very casual about this whole situation. It is actually very encouraging. This condition effects a whole lot more pregnancies than anyone knows. It was going on at the same rate for years upon years before ultrasounds were available. That in itself shows that this situation, more often than not, resolves itself or does not effect quality of life. The average person only uses about twenty percent of there kidneys capabilities. I hope this will encourage some of you. We are keeping all of you and you bundles of joy in our prayers. ↑ |
| Name: Jessica | Date: Apr 24th, 2006 2:47 PM |
| I am thrilled to report we had a healthy baby boy last week, born on the 19th. I know how anxious and worried you all are as I was too, right up until the minute I delivered him. I was so relieved and grateful to God that he didn't have Downs Syndrome. The last we checked the kidneys was at 37 weeks and his left kidney still showed a dilation of 9mm. Our pediatrician said he'll follow up with an ultrasound of his kidneys at about a month after birth, he doesn't think it's necessary to put him on antibiotics as there are other risks associated with giving antibiotics to a newborn and there's a good chance the kidney has normalixed anyway. I thought I would let you all know he also said that he has seen this condition many times and said that urinary tract problems, of which pyelectasis is one, are the most commonly seen problems in newborns and in most cases take care of themselves or are easily treated. That made me feel better! You are all in my thoughts and prayers and I would say, as hard as it is ( I know, I was there) try to enjoy the rest of your pregnancies and the special time that it is in your life. May God bless you and your babies. ↑ |
| Name: Kristin | Date: Apr 24th, 2006 6:17 PM |
| Well I went for my 34 week ultrasound and the spot on the heart is gone, and only one kidney is still dialated so I guess thats good news! THe doctor told me not to even worry about down syndrome...that it would be really rare in my case, and he told me worse case senerio would be a minor surgery when the baby is older, but its unlikely. I feel very relieved and want to thank all of you for listening to me ramble and being so supportive. I wish you all the best, and will keep in touch :) ↑ |
| Name: Marie | Date: Apr 25th, 2006 10:00 PM |
| Can anyone provide some information (or relief)? I am 35 and PG with our 3rd child. I was sent to a peri for a level II US and I had a quad screen at 14 wks and it came back with an elevated chance for DS. My regular OB had another quad done at 17 wks and it came back normal. When I returned to the peri, he became critical of me for having a "second opinion". He then informed me that our daughter had SUA (single umbilical artery) and dialated kidneys (9 mm/ 6 mm). He then proceeded to go on and on about DS, still birth, and renal failure. Needless to say I left very freaked out and parinoid. Has anyone had a similar situation. I have read a lot about the kidney problem, but not very much about SUA w/ kidney dialation. ↑ |
| Name: hello | Date: Apr 26th, 2006 11:55 AM |
| Is SUA a marker for downs syndrome? I have never heard of that, but the dialted kidneys is a very common finding in in boys. It does increase your risk for downs, but only a little. You could always do an amnio if you are that worried, but there is a risk of miscarry.. ↑ |
| Name: Lyn | Date: Apr 26th, 2006 2:13 PM |
| At my 20 week ultrasound they told us one kidney was larger than the other and wanted to see us back in 8 weeks for a follow up. I had the follow up ultrasound and the one kidney is still larger than the other but "within a safe range". However, I am being sent to a perinatal specialist for an additional ultrasound in 2 weeks. Now I'm reading the pylecetasis is a sign of down's syndrome. I'm 31 yrs old and in great health-no disabilities run in either family. What does this add'l ultrasound really mean? Anyone? ↑ |
| Name: Linda D | Date: May 1st, 2006 8:52 PM |
| What does bump mean???? ↑ |
| Name: mandy | Date: May 2nd, 2006 9:51 AM |
I was wondering the same thing... what does bump mean?
anyone have any more updates or information to share =) ↑ |
| Name: Shan | Date: May 2nd, 2006 6:13 PM |
Marie....get a new peri. Any doctor threatened by (or critical of) a second opinion is probably not the best doctor around. From what I understand, at 35, your risk for DS is automatically high. I think the risk for women 35 is 1 in 350, and the risk of miscarrying due to an amnio is 1 in 250... If you trust your OB, request a referral to a different peri. Or find one on your own -- the internet is a great resource for this since you can check out their qualifications, the amount of time they have been practicing this, and find out if they are part of any doctors groups that continue to do research in their specialty.
I definitely would NOT go back to any doctor critical of my need/reliance on a second opinion, especially if the first doctor is spouting doom and gloom. In fact, I would seek out a 2nd and 3rd opinion if my first doctor spouted doom and gloom. ↑ |
| Name: Shan | Date: May 2nd, 2006 6:19 PM |
By the way, this is from:
http://www.obfocus.com/high-risk
/birthdefects/pyelectasis.htm
Wha
t
is the Risk of Down Syndrome in a Fetus with Pyelectasis?
Presently genetic testing of the fetus (amniocentesis) is offered if the risk of Down syndrome in the fetus is 1 in 190 or greater. For a 34 year old woman the isolated finding of pyelectasis at midtrimester increases the risk of Down syndrome from 1 in 365 to 1 in 192.
For a woman 34 years of age or less with a normal triple marker screen for Down syndrome the risk benefit ratio does not favor amniocentesis when the only ultrasound finding is pyelectasis [12,13]. ↑ |
| Name: Leilani | Date: May 3rd, 2006 2:29 PM |
| Well we talked to the Dr. and he said the spot was in his bowls.And that was the the only spot and he thinks the chances of him having downs is less than on percent. And they did not tell us to have another u/s to check that spot.So maybe it will resolve its self. ↑ |
| Name: Marie | Date: May 3rd, 2006 3:42 PM |
| I went to see my regular OB yesterday and the left kidney has remained the same, but the right dialated to 9mm. I spoke with her about my dislikes of the peri, but she really recommended talking with him about his comments. Unfortunately, there are no other peri's in my area unless I want to drive 4 hours to get there. I will give him one more chance. On a brighter note, the baby looked great in every other aspect of the sonogram. In fact, my OB was getting frustrated with her because she wouldn't hold very still for certain measurements. Growth is in the 82% and no other visiable signs of problems. Keeping our fingers crossed!!! ↑ |
| Name: Karen | Date: May 5th, 2006 10:34 AM |
| I am 36 years old and 29 1/2 weeks along with my third child. I was told yesterday that my baby has a dialated right kidney tube. They are sending me to a hospital in a bigger city for further assessment but I believe there's nothing they can do till the baby is born. I hope I won't be induced early. My doc says this is common and not life threatening. I had an amnio done and the baby does not have Down's. I don't think they can tell if the baby needs surgery till born but baby may be put on antibiotics right away. The funny thing is they did not detect this at my 20 week u/s. I only went back for a second u/s because they did not get clear pics of the spine. My first child (a son) had kidney reflux which resolved itself but at 5 yrs old it was discovered he had gall stones which is very rare. Not sure if that's related to the kidney issues. I wish everyone luck with this issue. ↑ |
| Name: Marie | Date: May 5th, 2006 1:59 PM |
| Well, my doom and gloom Peri discovered his bedside matter and wasn't as bad yesterday. I went for another level 2 U/S and we found that DD's kidneys went down to 8mm dialation. We are hopeful that they continue on this path. The peri doesn't need to see me back for at least 5-6 weeks if I want to. Thanks for letting me post and share my concerns with everyone. I will continue to hold good thoughts and prayers for all and please pray for us as well. ↑ |
| Name: Kate | Date: May 8th, 2006 7:10 PM |
Hi, I found this thread through another baby site. My 1-month old son's kidney dilation did not resolve before birth, so I have some experience to share with those who are waiting and worried, and questions for those who've been through this.
When I was pregnant and worried about down's syndrome, dh found the latest research that says the connection with kidney dilation is so weak that it should not even be mentioned. That helped me worry a tiny bit less.
DS had an ultrasound and then the VCUG at 1 week of age. The VCUG was really not that bad. The ultrasound was actually worse on ds, so for those worried about the VCUG, don't go nuts worrying about it like I did.
Since there was no reflux but maybe a blockage, ds now has to go for a renal nuclear scan. He will have to have a urinary catheter and an IV. Can anyone share their experience with this procedure? Or with the surgery that will probably follow? It would be open surgery, not laparoscopic, according to the urologist.
I totally understand what you guys are going through, having your pregnancy overtaken with this worry, so I won't try to tell you not to. Now I'm not able to enjoy my baby's first weeks as I should with all this stress. How did those of you who've been through these tests and surgery cope with it?
If anyone has questions or comments, feel free to email me at wilmathefetcher@yahoo.com.
Kate ↑ |
| Name: mandy | Date: May 9th, 2006 4:14 PM |
Kate,
Thanks for posting! I'm very interested in how your DS makes out. I can't really imagine the stress you are going through, but I will be keeping you, and everyone, in my thoughts and prayers.
I do thank you for posting about the weak connection between kidney dilation and DS... that was a big worry for me, but I'm trying not to worry about that part of it.
I still have almost 5 weeks to go until I get an ultrasound to see what, if anything, is going on with the dilation.
again, thanks
I hope to hear back from you. =) ↑ |
| Name: hello | Date: May 9th, 2006 6:19 PM |
| what does DS stand for? I though it was for down syndrome, but is there anything else? ↑ |
| Name: mandy | Date: May 10th, 2006 7:56 AM |
DS = down syndrome
I don't think it stands for anything else. ↑ |
| Name: ?? | Date: May 10th, 2006 10:05 AM |
| DS is used sometimes in sentances and it doesnt make sense that it would be "down syndrome" for example.... "I am very interested in how your DS makes out" and "DS had an ultrasound and the the vcug at one week of age" does that stand for downs syndrome? ↑ |
| Name: mandy | Date: May 10th, 2006 12:02 PM |
oops... forgot about that...
ds- dear son
dd- dear daughter
dc- dear child
dh-dear husband
ya get the point!! LOL ↑ |
| Name: hello | Date: May 10th, 2006 12:05 PM |
| Mandy---thanks for clearing that up! got a little confused there. :) ↑ |
| Name: Juli | Date: May 12th, 2006 4:06 PM |
| Hi, I'm 29 wk pregnant and at my 20 wk-ultrasound they found a "mild pyelectasis" in both kidneys (3.0-4.5 mm). They recommended genetic counselling because of Down Syndrom and I got really scared. Anyway, my risk for my age (I'm 32) was 1:500, with the nuchal translucency screening (incl. bloodwork) 1:1360 and now with the pyelectasis 1.5times higher, so 1:900. I thought about doing an amniocentesis, but did an AFP screening first, which came up with a risk of 1:3400. So I didn't do the amnio. They wanted to do another scan 4 weeks later and that showed that the right kidney was back to normal and the left kidney is still at 4.4 mm. I had another scan yesterday at my regular ob/gyn (the other ones were at a Perinatal Diagnostic Center) - because it's quite a big baby (it's a boy, btw) - and he couldn't see anything wrong with the kidneys. He doesn't have such a fancy scan though, but anyway. I'll probably have another scan at 34 wk and hopefully the kidneys are ok. I'm hoping that the baby doesn't have Down's, I guess I have to wait now... But if they found this pyelectasis in your baby, don't panic, most likely everything is fine! ↑ |
| Name: Mandy | Date: May 15th, 2006 11:23 AM |
Juli-
Thanks for sharing! That does bring some comfort... my boy has the same thing, measuring right around 4mm.
It drives me crazy that they found it at 24 weeks and I have to wait until 32 to be checked at all... but this does bring some relief!
Thanks!! ↑ |
| Name: amnio convert | Date: May 15th, 2006 4:06 PM |
| hi- i too have had a level II sono with two soft markers. i got an amnio, which i intended all along b/c i'll be 41 when i deliver. thankfully, everything looks fine so far chromosomally at least (fish results were good). we are following the pyelectasis with sonos (i'm 20 wks now), and it seems to be a manageable problem, quite minor considering the scary menu of what can go wrong for a fetus. i wanted to comment b/c it seems that a lot of people are much more willing to put their faith in statistics than i, and i'm troubled by that. the amnio is the only test that can tell you what's going on with your baby, period. plenty of ds babies have normal level II sonos--no soft markers at all. plenty of ds babies have moms who had normal triple and quad screens. sure, the amnio carries risks, but the risks are much lower than the internet would lead you to believe. moreover, you can probably find out exactly what the complication statistics are for your particular practitioner. just ask. bottom line is, if you are the kind of mom who really needs to know (and we know who we are) you'd be a fool to rely on statistics when there is a relatively painless and safe test that will tell you exactly what's going on with your baby. i don't think i could relax for a day if i didn't know ... now after five months, i am finally allowing myself some joy amid the caution and caveats. for me anyway, no amnio, no peace. best of luck to you all. ↑ |
| Name: hello | Date: May 15th, 2006 6:28 PM |
| Amnio convert.......I have to agree that pylectasis does appear minor and managable compared to all the differnt things that come about during pregnancy. I had two soft markers at one time, but one went away, or it was a mistake on the ultrasound so now there is only one. I decided against amnio becasue my doctor and u/s tech told me that the risk of miscarraige is 1 in 200 (avarage) and my risk of having a downs baby is1 in 1000. I personally dont feel that pylectasis is connected with downs syndrome enough to have gotten an amnio. I am only 25 and everything else at this point looks very good.. My doctor gave me no impression that amnio was nessisarry, he said he see's this potential kidney problem on a monthly basis, and is not often a sign of downs unless there are other ultrasound findings, or the bloodwork or amnio results come back not so good. In fact.....has anyone ever heard of someone having a downs baby with pyelectasis being the only problem found? Like you said...some downs babies have no soft markers of any kind. I am due in 3 weeks and pray my baby is healthy.....and I will pray for yours too. Good luck to you also ↑ |
| Name: Suparna | Date: May 20th, 2006 8:02 AM |
| I want all these women to know that worrying unnecessarily will not help. Have faith in the almighty. Everything will be fine. ↑ |
| Name: reply to suparne | Date: May 22nd, 2006 9:47 AM |
that's a rather insensitive comment.
don't know how you could tell anyone that may have a possible problem with their baby to not worry.... I'll worry as much as I want and do as much research as I want, thanks. ↑ |
| Name: Ann | Date: May 23rd, 2006 8:18 AM |
| I used to post/read this board - but I had to walk away since I was obsessed and was at the point in my pregnancy that all I could do was wait and see (i.e. no more u/s planned) - but now I am having the baby in 2 weeks (June 9th - schedualed) I am starting to freak. Especially since I have the appointment for the babies first u/s and appointment with the pediatric urologist on June 13th. It is all becoming less theoretical and more real. I hope the Jun 13th u/s just shows that there is no problem at all!! ↑ |
| Name: kristin | Date: May 24th, 2006 3:03 PM |
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