| Name: kristin | Date: May 24th, 2006 3:03 PM |
| Name: kristin | Date: May 24th, 2006 3:07 PM |
| I gave birth to my beautiful healthy baby boy May 22nd!! He weighed in at 8lbs 9oz 21 inches long. He has tons of hair, and is so cute! He has to get an ultrasound at 2 weeks to check the kidneys.....other than that he is great! THanks for all your help you gave me on this site, all the information all the support.....I was so scared that my baby would have downs or be sick but he is doing great! All of you are in my prayers....always remember how often pyelectasis clears itself up and how little it is associated with down syndrome. I wish you all the best! ↑ |
| Name: crystalno | Date: May 24th, 2006 5:31 PM |
| congratulations Kristin! and what a big BOY! i am so happy for you, and i wish you, your family, and your new baby the best of everything! ↑ |
| Name: Jennie | Date: May 26th, 2006 4:25 PM |
| I have been reading about all of the problems and I don't feel alone. I am 19 weeks along. We have had one more bad week. I went for the regular sonogram on Tuesday. It's a GIRL! Although she has Choroid plexus cysts and her femur and humerus are both shorter than they should be. The Femur's are around the 2nd percentile and the humerus's were around the 4th percentile. My AFP had come back normal. I have two healthy children , boy and girl. This pregnancy was not planned. IOf course I went home and started my research. My husband and I were preparing ourselves for the worst news possible because the doctor called and moved my amnio up to Wed. at 3:15. When we got there we found that the fist were not clenched, the heart had all 4 chambers and were the size that they should be, her feet were normal, her nualfold was normal, telling us that we must have a healthy baby. We went ahead with the amnio and did the FISH which showed normal as well. BUT we are still worried about the short femur and humerus and the chroid plexux cysts. We are relieved to see that these ting are normal. Our Dr. say that the FISH is 99% sure we will have a healthy baby. BUT STILL we keep thinking about the femur and humures's. From what I have read babies with short femurs usually have chromosomal deficits of some kind. We are relieved but still worried. Has anyone ever had this experience? I want to reasure myself that things are fine but there is that little nagging at the back of your mind. Help? How should I feel? ↑ |
| Name: kate | Date: May 26th, 2006 5:55 PM |
| Hi Jenni, I also had the FISH done because my baby kidney was enlarged. Also the rest of the amniotic fluids did go for further evaluation for other chromosomal defects detection. Why it was never done in your case, since they already had your amniot. fluids? ↑ |
| Name: dean & mona | Date: May 26th, 2006 9:36 PM |
| Our little Brandt is now 6 weeks old. Before he was born his hydronephrosis had grown to 19mm. We had our second test done, the first was a postnatal ultrasound, the second a renal scan. The ultrasound looked no different than the prenatal one. We were still most likely looking at surgery. The renal scan showed that there was some drainage from the kidney and now looks as if he might grow out of it. That is, as he grows, the ureter may unkink(if it is a kink) . We are very hopeful, and thought that this may give some of you hope also. We will continue to pray for our little one, all of you, and yours. ↑ |
| Name: candy | Date: May 27th, 2006 10:04 AM |
| my doctor told me that my b-hcg came back from the lab how far am i in my pregancy how many weeks can u please help me out ↑ |
| Name: silvia | Date: May 27th, 2006 2:58 PM |
| Hi! I was told at 5 months That my baby has pyelectasis but that it would go away at my 3rd trimester but it hasent and i am really sad. ↑ |
| Name: Jennifer | Date: May 31st, 2006 4:14 PM |
Hi! I just wanted to share another happy story with you. I posted back in Oct, I know it has been awhile. I found out at my 20 week ultrasound that my baby had a bright spot on his heart. I was then sent for a level II ultrasound where they discovered he also had slight dilation of the kidneys. I too was told that these were soft markers. I was devastated. I am 34 years old and this was my first baby. My quad screen came back fine but I still worried throughout the rest of my pregnancy. It turned out that I had an absolutely beautiful, HEALTHY baby boy. I just wanted to give all of you some good news. I know what an extremely stressful time this can be. It changed my pregnancy from one of the happiest times of my life to one of the scariest. Also the dilation was gone at my 36 week ultrasound.
God bless you all and your precious babies. They truly are gifts from God. ↑ |
| Name: Linda D | Date: May 31st, 2006 6:55 PM |
ANOTHER HAPPY ENDING!!!!!!!!!! Just wanted to let everyone know that I had a HEALTHY baby girl born on May 27th. 9lbs 4oz 22" long. She had pyelectasis at 22w, and 28week U/S. of 6mm both sides. It did clear itself at the 35 w u/s. They all had me scared to death of the risks of DS. She is 110% healthy!
It is really frustrating that these doctors make us worry to death during what is supposed to be the happiest time of your life!
Keep your chins up ladies! Oh, and prayers obviously work too! ;0) ↑ |
| Name: Karen | Date: Jun 3rd, 2006 12:28 PM |
| I am 29 yrs old and i'm 16 weeks pregnant. I got my triple screen results back a few days ago and i'm freaking out. My test came back positive with a 1 in 52 chance of my baby having Trisomy 18. Has anyone expereinced something like this? ↑ |
| Name: LILIAN | Date: Jun 4th, 2006 7:08 PM |
Hi guys, just wanted to know once the baby is born do they do the ultrasound right there and then? Or do they say to wait about 4 days or so? My hospital is telling me that they do it a couple of days after the baby is born? Doesnt sound right to me.
im due in 3 -4 weeks and im getting more worried now.
THey found 4-5mm in the left renal pelvis. ↑ |
| Name: crystalno | Date: Jun 7th, 2006 4:33 PM |
| hi ladies. i am 35 weeks and 4 days today, and after my 4th level 2 ultrasound, my peri told me that my daughters left kidney was still dilated to about 8mm. i guess the right side is fine. they told me to contact a pediatric urologist. i called, but had to leave a message. i am scheduled for a c-section on june 28th, (3 weeks from today). i was wondering if anyone has been in my shoes, and if so, will they have me see the pediatric urologist now, or do i wait until after my baby is born? ↑ |
| Name: kristin | Date: Jun 7th, 2006 7:08 PM |
| mY BABY IS TWO WEEKS old and went in for an ultrasound today and the left kidney is still dialated. We have an appt. with a urologist July 10th. The told me they will take xrays and he will have to have a catheeter at the appointment.. I am confused why he needs a catheter..and why they are not doing another ultrasound. Has anyone had a baby and been to the urologist that would be willing to tell me what is done at the appt. Also how do you tell if this situation is mild, moderate, or or severe. I know the kidneys can be dialted to differnt millimeters, but what means what. Please help! ↑ |
| Name: Dyanne | Date: Jun 12th, 2006 9:51 PM |
| Kristin - I son (6 weeks, diagnosis hydronephrosis) just had the catheter and x-ray exam. It's part of a VCUG test (voiding cystourethrogram) - you can find info on the Net about it. The catheter is used to introduce fluid into the bladder and the x-ray is used to take pictures during voiding/urination. It's basically to test for reflux (urine backing up into the kidneys) which you apparently can't see on the ultrasound. We did have an ultrasound the same day as well, but that was to check the size of the kidney (they can also tell whether it has formed properly during pregnancy). I have seen different charts on what constitutes mild/moderate/severe . My pediatric urologist sid one important thing to consider though is that the size (in millimeters) can change as the baby grows, so while he considered 10mm to be moderate 3 weeks before birth, that level would not be considered moderate 6 weeks after birth. Generally he told me anything around 20mm is severe. ↑ |
| Name: Stephanie | Date: Jun 13th, 2006 10:55 AM |
Hi everyone,
I posted quite some time ago about a bright spot on the heart and mild pyelectasis for my son. I am happy to announce that he was born healthy on May 28th, 7 lbs, 8 oz. He has not had to have any follow-ups on his pyelectasis. Thank you to everyone who offered encouragement on this board. I was devestated after my first ultrasound. I did have some good news with my second opinion but you always worry. . .
From what I have read, it seems that there are many success stories out there, so those of you who are still worrying, try to find some comfort and reassurance that everything will probably be okay.
thinking of you all,
stephanie ↑ |
| Name: Brit | Date: Jun 14th, 2006 9:47 PM |
| Hi - I am 23 weeks pregnant and at my 18 week ultrasound I was told that my baby had pyelectasis (4mm). I went in for a second ultrasound last week and it is the same. Does anyone konw how concerned I should be about Down Syndrome? It's all I can think about. ↑ |
| Name: jackie | Date: Jun 14th, 2006 11:10 PM |
hi there, sorry everyone who is really worried about their babys situation, but trust me all will be fine in the end, these usually correct themselves.
IM JUST DOING A SURVEY CAN EVERYONE ON THIS BOARD WHO WAS TOLD THAT THEIR BABY HAD PYELECTASIS TELL ME IF THEIR BABY WAS BLONDE OR LIGHT? THANK YOU SOOO MUCH FOR YOUR HELP I WOULD REALLY APPRECIATE IT.
We are trying to find out if this relates to lighter babies. ↑ |
| Name: proud | Date: Jun 15th, 2006 12:56 PM |
| im not familiar with that, but my prayers are with you. ↑ |
| Name: kristin | Date: Jun 15th, 2006 1:34 PM |
| My baby has tons of dark brown hair and is kindove tan looking....not white at all. He still has one dialated kidney and we have to go see a urologist in a couple weeks. I doubt that fair skinned children have a higher risk of this, but who knows. Hope this helps ↑ |
| Name: kristin | Date: Jun 15th, 2006 3:21 PM |
| Dyann Thanks for the information. I am really nervous about going to the urologist because I feel so bad my son has to go through this, and in all honesty I don't know what the differnt outcomes can be. I know its possible he will be put on meds or it will clear up or there is a chance he will need a minor surgery later but I still worry it can get worse than that. What did they tell you? Is surgery the worst thing that could happen? ↑ |
| Name: anne | Date: Jun 15th, 2006 10:04 PM |
| i'm 20 weeks pregnant and was told that there was fluid (pyelectasis) in both of my baby's kidneys. i'm wondering how much fluid (mm ?) you were told your baby had during prgnancy. thanks for this board. ↑ |
| Name: mandy | Date: Jun 16th, 2006 1:19 PM |
still a little confused, but Thankful.
I FINALLY had another ultrasound after waiting 8 weeks. I'm now 33 weeks and his kidneys look great!
I'm still a little confused though because they are still measuring at 4mm, but the Dr. assured me that he is normal and will need no further monitoring or testing now, or after he's born. She said that she wanted to re-test to make sure they didn't get any bigger and that if they would have reached 8mm, then we would have needed to take further steps.
I guess what confuses me is that i thought Any fluid in the kidneys was bad, but she assured me he's perfectly fine and it's a normal thing.... 8 weeks of worrying for no good.
anyway, I wish everyone the Best of Luck with your little ones and pray that we all have healthy babies.
Thank you for your support here =)
Mandy
edd 8/5/6 ↑ |
| Name: britt | Date: Jun 16th, 2006 1:37 PM |
| that feels really helpful, mandy. i guess part of me couldn't even think straight to figure out what questions to ask the doctor. but you made a ggod point...at what point should there be reason for concern. wilth all the research i've done, it sounds like 4mm or above is an abnormal reading. but my doctor keeps trying to tell me this is common, but it doesn't feel at all reasuring. i did ask her what else it could be and she said she doesn't think it is this, but mentioned something called posterial urethral valve. with my research, i have been most concerned about Down's. Now there is this PUV and everything else to worry about. ↑ |
| Name: mandy | Date: Jun 16th, 2006 1:54 PM |
Britt,
I was told that they monitor anything 5mm and above and at 8mm+, they will maybe need to do further testing after birth. It seems for a lot of things, I've been on the high end of the "normal" range and have had a lot of extra tests and everything is coming out good. I feel like I go for one thing, it's normal, and then something else is a little "high", so they need to wait and test for that... it's nervewracking and I can't help but now question how much of this is needed.
Of course I want to do what is healthy for the baby, but I want to stay healthy in the process and ENJOY being pregnant
But I hope my experience helps a little. ↑ |
| Name: crystalno | Date: Jun 17th, 2006 9:55 AM |
like so many of you, i have been worried sick about the dilation, the risk of Down syndrome, my baby's future......i mean worried sick! i have been monitired very closely since march....and my babygirl still has fluid. it's more severe in her left kidney then the right. i believe her lieft kidney averages 8mm and her right one averages 3mm. what has made this worse is that during one of my level 2 u/s in march, they saw a "skipped heartbeat." so that sent me to be monitored 2x's a week with a NonstressTest.....thankfully, they have not ONCE seen any problems with her heatbeat. she's been great. and just when i thought that things were getting better, i measured very low with my amniotic fluid. i was like GEEZ! what the hades??? it's like they find one thing, determine that it's not a problem, and then they find somthing else. i am 37 weeks today, and according to yesterdays tests, my daughter is doing great. EXCEPT for the kidney thing. i was finally able to see a pediatric urologist this past wednesday, and let me tell you, i left that clinic with such a peace in my soul. i still don't know exactly what is going to happen to my daguhter after she's born, but i have a better idea of what to expect. he said at 4 days old, she will have an u/s. (that's the last day we'll be in the hospital due to c-section). he said they will put her on a low dose of antibiotics, (i think he said amoxci......like 2 teardrops a day), and then between 4-6 weeks, he will make another appt with me to further evaluate her. he assured me that nothing i did caused this problem. (you know, nothing i ate, drank, was exposed to). he just said it's one of those things. i expressed to him my concern about having to leave my daughter in the hospital while i am discharged, and he told me that wouldn't happen. my husband's oldest son, (now 7) was born with ruptured intestines. he was hospitilized for almost 5 months. my very close friend gave birth to a baby boy whose intestines grew on the outside of his stomach, (called short-gut or gastro-something), and her son died at 9 months of age. so i take any problems very seriously! this stuff hits close to home. the peidatric urologist told me my babygirl will be wettin' and poopin' in just as many diapers as any other baby.....that she shouldn't get any kind of UTI because of the antibiotics, and the problem could very well clear up by itself at her 4-6 week checkup, and that the worse case scenario is a minor surgery. as far as i'm concerned, i want them to do whatever they need to to make sure she is healthy. i'd rather this happen now then later on in life. he also told me that in the Childrens Hospital of Philadelphia, any dilation more than 30mm is considered bad......mine is still very mild. i know i wrote so much, but after almost 5 months of worrying, i finally have some peace that my babygirl will be fine. i know that comes from hearing someone with a PhD tell me so, my friends and families reassurance, all the posts here, (cuz let me tell you, i read this forum EVERYDAY!), and from countless prayers. whatever happens, it is in God's hands....
my prayers are with all of you. i am scheduled to deliver via c-section June 28th @ 8:45 am, so as sson as i am discharged, i will give you all an update on the condition of my babygirl. ↑ |
| Name: Kristin | Date: Jun 17th, 2006 4:19 PM |
| Hi Crystal how are you? I'm glad that you wrote the information you did...it makes me feel better. We go see a urologist July 10th. my son is now one month old and doing great...he is such a good baby. His right kidney is all cleared up but the left is about 11 mm dialated still. At this point I am just so thankful that this is not a life threatining situation. There are so many worse things that could happen. I still have you on my instant message so if you wanna talk thats cool. I know you are scared and worried about down syndrome but I have yet to hear from someone on this site that dealt with this kidney problem and had a downs baby, I am confused why the two are even related. I read in an article that pyelectasis increases your chance of having a downs baby by 1% if that is the only thing they find in your ultrasound. 1% isnt even worth worrying about!! Even though we still will! Well I wish you good luck and hope you dont worry too much. Try to get sleep....im sure not getting any!! Kristin ↑ |
| Name: kimberly | Date: Jun 17th, 2006 6:00 PM |
| Hey....as i was reading this i was thinking about my own situation my baby has the same thing in her kidney and the doctors dont seem to tell me anything to make me feel better soo if you hear anything please let me know and ill do the same ...god bless and have faith in him ↑ |
| Name: crystalno | Date: Jun 18th, 2006 8:23 PM |
| hey kristin. please keep me up to date on how your baby boy progresses. i am so excited about finally seeing my daughter! i have 10 days left, and she'll be here! then i'll be in your same boat. no sleep......but it's all part of the package. and i totally agree with you.....there are so many worse things that could happen! i'm going to continue with prayers and faith that everything is going to work itself out. and kimberly, i'll update you on my baby's condtion as well. how far long are you? try not to worry. that makes it harder on your baby. good luck to all of us!!!! ↑ |
| Name: Mama2LnE | Date: Jun 22nd, 2006 11:33 AM |
| I'm 22 wks pregnant w/a DD. At my 18wk US they found that she had pyelectasis on both sides. I guess about 3-4mm. It was rechecked this week, I guess no change. Well to say the least I was suprised when they told me its a marker for Downs. I've read through all the posts here and tried to research it but I just don't know how worried to be. My doctors tell me not to worry but its hard not to. I turned down the amnio. The risks scare me more than the unknown. Anybody have a good website that describes the markers for Downs and explains the chances??? Thanks! ↑ |
| Name: L | Date: Jun 26th, 2006 7:24 PM |
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