| Name: moonlightpassenger | Date: Jan 23rd, 2008 4:35 AM |
| Name: VJ | Date: Jan 26th, 2008 10:49 PM |
| hi ds Wouldn't it be great if we could find a chat room where we could just talk about our kids and our lives whenever we wanted. Some place to drop in and get to know each other. Maybe someone reading this knows of such a place. I have a 30 year old daughter who is mentally challenged and a 27 year old son who suffers from Bipolar. My daughter and I live together and my son has an apartment. I'm looking forward to talking to anyone at this site. ↑ |
| Name: jeril63 | Date: Jan 27th, 2008 10:36 AM |
| Thank you for opening a topic for parents with young adult disabled kids. I've been searching for this kind of support on line for a while and grateful to have found you all. I have two kids, a girl 17 and a son 16. My daughter will be 18 soon. She is severly mentally disabled and also has neurological physical handicap as well. She has been residing in a level 4 group home for kids for a few years now and comes home on the weekends, but when she turns 18 in Feb (next month) she'll no longer be eligible for a kids' group home and will have to move to an adult care home, but there arn't any level 4 openings available with young adult girls. So we are pursuing a program that is actually adult foster care in which she'd in a single-family home with a couple and continue to come home for weekends and holidays. Her behaviors have always been the biggest challenge for caregivers and school, but she truly is a delightful, sweet, loving, affectionate and happy kid. I feel guilty that I can't raise her alone, but I am grateful there are others out there willing to take her in and help me see to it that she is able to receive everything she needs to live a fulfilling life. It's been a very long, stressful and emotionally tough past 18 years for me and I have never had other parents of mentally disabled kids to talk with. I commend those of you who are able to keep your kids at home, and I am reieved to hear that I am not the only one to seek placing my child in a carehome. I love my daughter with all my heart and have an incredible bond with her, yet my biggest fear is that her new caregivers might not be able to handle the "burden" and that she'll have to come home to me again. Sounds terrible for me to say, but it;s TOO MUCH for me alone and resources arn't as available as needed when she's with me. I envy parents who are able to raise their kids at home, and I hope to hear from others with similar situations who understand... ↑ |
| Name: lindalu | Date: Jan 27th, 2008 11:26 PM |
Jeril63
I have a 22 year old daughter with a congenital spinal cord injury, I have cared for her at home her whole life. Just last year I hired some help, I have a wonderful woman that comes to my home 7 days a week 2x a day. It wasn't always easy caring for her... not to say parenting is easy on any level, but I do believe it is much harder emotionally and physically on a mum raising a disabled child. ↑ |
| Name: Kim | Date: Jan 31st, 2008 9:35 AM |
| Hi, I am just visiting for a overview of special education class. I was reading the answer of a group home idea, and I have to say, it is a great idea. My stepbrother is 35 now and he lives in a apartment setting with 2 other boys that have alike functioning ability/high functioning, and he does well. It gives him freedoma nd they have jobs, but only if they want to wotk for a little money, but they do not have to it is really interesting. a good thing to look into. Kim ↑ |
| Name: IISFREE68@embarq.com | Date: Feb 4th, 2008 8:42 PM |
| PLease contact me lindalu have a child 15 have NO idea what 2 do has social issues!!!!! for teens that he canot handle how did u get through I have 2 1 male 1 female autistic who can help me teach them the next step? was able to do little stuff NOW we are talking BIG ADULT stuff where can I go for help?He is 15 And been caught doing "social" inaproriantest 2 times She is 11 how do explain stranger danger? Help I have looked on line u come up 4 times where do I gopo? HELP ↑ |
| Name: Ripon6795 | Date: Feb 7th, 2008 5:49 PM |
Where do older mother's get help with their 30 something schizophrenia child? There is no one to help me communicate in a productive way with her. She has had the disease since late teens and has struggled since then. She had a daughter 10 years ago and that daughter lives with a relative. Now she is in jail for forgery and faces 7 years in prison. She won't see anyone, not even the probation officer and she won't go on her meds. She won't give permission to the courts to even see them so they could help her in a mental facility. I don't know where to turn as there is no where for mothers like myself to talk to other mothers. Can you suggest to me how to start a website for mother's like myself. I'm 63 years old and barely know how to get on the computer.
Thank you
Mother in her own prison ↑ |
| Name: Jackie | Date: Feb 10th, 2008 2:19 PM |
| Sorry, you might get this twice. I was just wondering if any parents would be willing to take a survey for me to help me complete my independent study. I'm a senior at CMU and on my wya to become a Special Education teacher. Our focus for this study is to see if your child's needs are being met in the school system. We need to find parents who will help us by completing a survey that is strictly confidential. If you are interested in helping us out, I would really appreciate it. Email me at jetts1jc@cmich.edu. Thanks so much! ↑ |
| Name: carol | Date: Mar 4th, 2008 5:55 AM |
| Hi my name is Carol, I have 3 sons, my eldest Danny 31 is autistic. Danny lives at home with my partner and I. I too would like to talk to someone about their experiences as parents of disabled young adults. ↑ |
| Name: carol | Date: Mar 4th, 2008 6:19 AM |
| My son is 31 and autistic, he is unable to verbally communicate and uses minimal sign language, we know what he wants through reading his body language. I feel so guilty that he is still at home with my partner and I, I can't seem to let him go, my excuse being that no one will care and love him the way we do. I've been told by family and friends that I'm being shelfish by not letting him live in a group home or even go to respite. I actually envy those parents who do have the courage to let their child have a life out of their own home. It is something I have to seriously think about because I am getting older and have a slight heart condition. I don't know what to do, has anyone got any suggestions? I would appreciate your feedback. ↑ |
| Name: carol | Date: Mar 4th, 2008 6:32 AM |
| sorry me again, my email address is cpbaker@xtra.co.nz ↑ |
| Name: groomie | Date: Mar 4th, 2008 4:42 PM |
| I am the mom of two disabled adult kids. Both have CP. The one is mentally retarded, the other has slight autism and is mute but graduated with honors in regular classed. Both are wheelchair bound. would love to speak to other parents with adult children whom are disabled. Thank you. ↑ |
| Name: ACHRAF | Date: Mar 7th, 2008 1:57 PM |
| Name: Jessica | Date: Mar 14th, 2008 11:37 AM |
I am a Music Therapy student at Florida State University. We have the newest research, which is always improving, in music therapy.
First off, I want everyone here to be aware that Music Therapy can do wonders for those with developmental disabilities. Please look into it, or contact me for more information.
Also, I am trying to find the parent of a child with a disability to interview for research. It will only take about 10-15 minutes, and I can do it online. It will also be beneficial to all since it is research, and will only improve education and therapy. Please find me on AIM, my screename is YJs littleDoll
or you can e-mail me at jms04aa@fsu.edu
I have been posting everywhere and have not found any volunteers. Thanks ↑ |
| Name: Donna | Date: Apr 22nd, 2008 1:30 PM |
| HI , My son is 22 and has Cerebral Palsy, severe retardatiopn, austic like tendencys , and savant syndrom . he also has seizures . Matthew lives at home with my husband and myself. Just when I thought i had control of the situation, Matthew Grew up! When he graduated from High school, My husband was able to take early retirement and he stays home with him. Thank Goodness he had th opportunity to do this. There is no respite help in our area , because we are rurally located . In central Mississippi. ↑ |
| Name: Donna | Date: Apr 22nd, 2008 1:39 PM |
| How do we deal with the aggresion ? Ihe is getting older and harder to hMatthew lives at home with my husband and myself. Just when I thought i had control of the situation, Matthew Grew up! When he graduated from High school, My husband was able to take early retirement and he stays home with him. Thank Goodness he had th opportunity to do this. There is no respite help in our area , because we are rurally located . In central Mississippi. = andle. sometimes I just want to scream!!!! he is so Hyper , and does not sleep, we have tried meds they either make him a zombie or they wire him up. ↑ |
| Name: maria | Date: Apr 24th, 2008 6:33 PM |
| how come you had a bade ↑ |
| Name: shari | Date: Apr 27th, 2008 12:05 PM |
| how do you share with kids my daughter is disabled , little girl called her weird, how do i help this child understand ↑ |
| Name: lindalu | Date: Apr 27th, 2008 3:09 PM |
Donna have you looked in to group homes or day programs for him? They can be very helpful for people in your situation, they not only teach the young adults how to function in life they can also give mum and dad a little needed break.
Face it as much as we want to keep our children home with us they do grow up, they need to learn certain skills. As they grow we age, one day we as parent aren't going to be there, then what? what will happen to our child? They will be left with out a home and no knowledge of how to survive. ↑ |
| Name: arleatha richardson | Date: May 6th, 2008 9:31 AM |
| i need help for my 21 year old autism who can i get to help me with him i want to put himin a place so he can learn to do things fro hisself so do yall know a place where he can go just let me know cause he need alotta of help ↑ |
| Name: kim | Date: May 7th, 2008 2:26 AM |
| hi I have a daughter who was in an accident a few years ago which resulted in a incomplete spinal cord injury. "She's 21 now and handles her situation amazingly, I, on the other hand, have problems, ...one being guilt. I just was hoping I might find someone out there to talk to, single parent (I guess you could say). Thanks. ↑ |
| Name: Lucky | Date: May 21st, 2008 1:18 AM |
| I have a disabled cousin with autism and seizures, We live in Los Angeles and my cousin is in need of dental help. We need a dentist who has experience with this population. Can anyone recommend a dentist? ↑ |
| Name: OG BEAR | Date: Jun 1st, 2008 9:18 AM |
| Hi, I am 42 yrs old. I am a single mother of an adult 26 yrs old child born with cerebral palsy/seizure disorder with some M/R,. Because of the cerebral palsy it makes it difficult for my son to move the right side of his body. The right side of his body is very tight and spastic. The left side is his strong side. He uses a manual wheelchair to get around with. He's still in diapers that must be changed by a caregiver. He needs help with all his daily living needs, showering, dressing, brushing his teeth, cooking, feeding him, giving him his medication. He also has violent behavioral issues, where he will yell, scream, kick, bite, throw things, break things, hit you, spit at you, take off in his wheelchair, sneak out in the middle of the night. His weight flucuates between 150 to 220 and I've had to call the fire department to help me put him back in his wheelchair when we've been out and about and he's thrown a fit and thrown hisself out of his wheelchair. One such occasion he through a tantrum at the MAX Lightrail station in Portland Oregon kicked, screamed etc.. police were called and my son hit a police officer. The police officer handcuffed my son tried getting him to walk I told him my son was disabled and could not walk didn't matter they put his wheelchair on top of the fire truck and carried him to the police car and arrested him for hitting the officer. I told the arresting officer my son needed his seizure medication three times a day because he has very hard to control seizures and it was imperative he takes his meds on time. Because they weren't in their proper containers, I had them in medication container they couldn't take it. I went down to get my son at the Justice Center couple of hours later they weren't going to release him I said he must have these seizure medications or he will die. Finally they let him out. My son diaper was soaked his pants were soaked from them not changing his diaper. After all this the officer dropped the charge. Nice of him huh after putting my son through the bull crap.Anyhow my son lived with me up until two years ago now he lives in a Adult Foster Home, he thought if he moved out he could do want ever he wanted to do ~~~NO RULES~~~ well he found out differently that there still are rules to obey now he wants to come home. After he moved out I felt so depressed. I didn't want my son to move. I always thought it would be my son and me forever. But he kicked me to the curb. My feelings got hurt. I've been taking care of him since I was 16 years old and now what do I do with myself? I admit at first I was always down there but then I don't know how to put it in words but I stopped going to see Matt started doing things by myself and liked it. Doing stuff with my other child, my daughter. Now I feel like I've abandoned my son, like I'm a bad mother. I feel totally burned out emotionally drained. I didn't have any help raising my son. I raised my son on my own, went to work, and dealt with other family bull crap issues. My problem and what I want to find and talk with other parents is I want to be open honest. Find a group or someone that's REAL... I love my child but I ask myself WHY ME?? I mean why did I get a disabled child? I've read some chat rooms and I read oh we're so blessed and god this god that. Well I'm very angry with GOD, besides I'm Native American and I believe in the Creator, Mother Earth I want to talk to some real parents, people out there who can be honest and talk about the negatively the hard times. The times you just wanted to lay down and die. Or when things where so tough you don't even know how you pulled through. How you worked took your child to the doctor appts. therapy, and still kept a roof over your head and paid the bills. I look back to those days and wonder in amazement. Right now I'm going through two different counseling sessions, I'm drained, I'm angry, I don't want to feel this way anymore. I want to give back help someone before they get like I get be there for someone so they're not isolated. I have gone through so much in my life and I ask myself WHY?? Is it for a reason. I ask myself did I do something to cause this? Before I forget about this the group homes they scare the heck out of me. Why... I know for a fact they have people using and some in recovery for meth, pot, crack working there. I got my son a beautiful Nike coat and it got stolen. They put dangerous clients, sex offenders in with general populations in these group homes. I worry will my son be raped? Taken advantage of? Its all scary , very scary, It angers me so much how the state will pay strangers bookoo bucks to care for the disabled but the disabled family members get next to nothing. That is so wrong, so wrong. Changes need to me made, If anybody would like to talk with me please do leave a message I'll check back periodically to check for messages. Thanks for letting me get this off my chest. ↑ |
| Name: lindalu | Date: Jun 3rd, 2008 10:24 AM |
OG BEAR
You should copy your post in to a new topic, you may get more readers. ↑ |
| Name: Sheri R. | Date: Jun 3rd, 2008 10:44 AM |
| I have a 24 yo daughter, who had radical brain surgery at age 15. She is having trouble with social relationships and has just quit her job. She is in therapy, and as a single mom, I'm finally finding that it has all become very overwhelming with all her emotional needs. I am thinking maybe it's time for her to move out and experience life with other young adults, but like all parents on this board, I have lots of fears and reservations. ↑ |
| Name: luckyzgrl2 | Date: Jun 3rd, 2008 4:26 PM |
To whom it may concern:
My questions are addressed to any parents with children with disabilities over 21. I am a grad student at a local college and for a project I have to interview three set of parents in different age groups of children with disailities. My questions are:
1. How do you view your child's needs?
2. What agency, group, individual, has been the most helpful meeting your child's needs?
3. How do you feel their needs are being addressed?
4. How has your child with special needs impacted your family overall?
5. How has your family had to adapt to having a child with special needs?
6. What are your greatest hopes and fears for your child?
Your answerd will be kept confidential along with your idendity(real names are no encouraged, please use anonymous names for you and your child) ↑ |
| Name: luckyzgrl2 | Date: Jun 3rd, 2008 4:34 PM |
To my previous post:
Please respond back by e-mail to luckyzgrl2@hotmail.com and put GPY 608 Response in the heading please.
Thank you to all of the parents willing to help me with this project ↑ |
| Name: Deborah | Date: Jul 5th, 2008 8:07 AM |
| I am also a parent of a young man who became severly disabled at the age of 4 due to malpractice. He suffered brain damage and is now mentally and physically challenged. He turned 22 in March. I'm hoping we can help each other out with resources because I feel the disabled over 21 aws well as the caregivers /parents of these angels are often forgotten by the system. And I just need to talk. ↑ |
| Name: amy anderson | Date: Jul 8th, 2008 2:57 PM |
| i want to meet other parents of disabled children ↑ |
| Name: youlover | Date: Jul 9th, 2008 4:02 AM |
| www.singleparentloving.com ******A single parent on-line dating community geared to single parents needs, information, and discussions combined with the largest single parenting social club . Free join ! meet your soulmatch in your area ! ↑ |
| Name: ramona | Date: Jul 10th, 2008 10:58 AM |
| I have a 23 year old daughter with special needs. I agree that they/we are often forgotten. Would love to visit more with parents of adult children with special needs. ↑ |
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