| Name: Pamela | Date: Dec 15th, 2008 6:47 AM |
| Hello, I'm a mother of a 6yr old autistic daughter. I've been looking for some support, friendship and just some adult conversation with someone who is going through similar situation. Hope everything works out good for you and your family. ↑ |
| Name: Frank | Date: Dec 18th, 2008 8:51 PM |
| My name is Frank and I am 20. I have CP and am still in diapers although I am congitivly ok. I am in college and this problem is not makinig it any easier I walk with a walker as well. Does anyone have tips on how to deal with excessivie odor after a bowel movement in my diaper or how to dispose of them discreetly so my rooomates dont make fun of me ↑ |
| Name: FrankieB | Date: Dec 23rd, 2008 4:06 AM |
| can someone please help me ↑ |
| Name: anna | Date: Dec 25th, 2008 4:02 PM |
| I'm interestated in talking with someone who is placing their handicapped child in to the system. I have a alot of fears and thoughts about this. Would like to talk to other parents who are having this deliemma ↑ |
| Name: dmc | Date: Jan 13th, 2009 12:05 AM |
WOW...you parents are unbelievable! I came on this site as a mother of a 17 year old boy who has recently become a quadripalegic. My parenting was going so well up until now and I just don't know what to do and how to cope. When I scanned the stories on this forum I feel as though I have no complaints. If any mothers of SCI would like to chat, please contact me @ rehab4michael@hotmail.com. I'd love to share stories and trade ideas on how I might best support him and myself through the coming years.
I don't know how you all do what you do! Much Admiration, dmc ↑ |
| Name: clair | Date: Jan 19th, 2009 12:04 PM |
hi im a mum of two with autism one 14 one 16 both at different schools and we provide transport to school as a few things have failed oveer the years lol one is in remission from leukaemia too i could do with a chat some times am jolly hocky sticks most of the time but do have bad days :-)
clair ↑ |
| Name: Pam48 | Date: Jan 19th, 2009 12:42 PM |
| Hi! I'm new to this forum and I'm trying to find some new resources. I have 3 kids 2 boys, 20 and 18 and my daughter 16. My daughter has multiple severe disabilities and requires total care (physically impaired and uses a wheel chair, cognitively impaired, unable to self feed, non verbal, spastic quadraplegia with very tight muscles, incontinent and wears diapers, blind in one eye, hearing impaired and so on). On top of everything she also has OCD and Cyclic Vomiting Syndrome. Since she has OCD she loves to pick and shred anything she can and then she puts whatever she is picking or shredding into her mouth. I don't think she means to swallow it, she is exploring it but sometimes accidently swallows it which can be a choking hazard. We are having a lot of trouble with her picking at the top of her diaper and shredding it, then putting that plastic into her mouth. She has swallowed it a few times which has been very scary. Then what happens is she starts vomiting which lasts for hours because her CVS kicks in. Anyway, we have tried using Pull ups instead because she wasn't able to shred them. But she has since started shredding them as well not to mention they are a hassle to put on her and she always pees out then I have to change her clothes all over again. I'm just wondering is there anyone else out there that has had to deal with a "shredder" too? Thanks much for listening. Only a parent of a kids with a disability could ever read this and not judge my daughter. She is a doll and we love her very much, but she is also a bugger and making her mom crazy. Have a great day! ↑ |
| Name: Pam48 | Date: Jan 19th, 2009 12:51 PM |
| To Frank who posted on 12/18/08. Dear Frank, I hope school is going well for you. Hurray for not letting the CP stand in your way of going to college. I haven't ever used one just because it hasn't been a problem yet with my daughters diapers, but what about one of those Diaper Jeanie's. Maybe that could help with the odor issue because I think that is the whole idea behind them. The diaper is wrapped in a piece of plastic, or you can try using plastic grocery bags. Although trying to be Eco Friendly we are supposed to "flush" stool down the toilet, when you are trying to be discreet and maintain your dignity it may not be possible. Are you able to stand or do you have to lay down to change? Are you able to change yourself or do you have a support person? ↑ |
| Name: safz | Date: Jan 20th, 2009 5:31 PM |
| Name: safz | Date: Jan 20th, 2009 5:44 PM |
| hi every1 i hav 2 disabled children ↑ |
| Name: safz | Date: Jan 20th, 2009 5:49 PM |
| Name: gilmergirl | Date: Feb 9th, 2009 2:27 AM |
| Hi, I am also new to the site. I have a disabled son who is 26 he has Tuberous Sclerosis. He lives at home with his Dad and myself. We have two daughters but they are fine and have familes of there own. It is very hard since he is in school no longer, We tried the adult day care but he got kicked out of all of them due to bad behavior. He loves airplanes so we go to the airport every day but it is a small one so there aren't many airplanes. I would love to talk more but it is really late and I need to go to bed. Take Care. ↑ |
| Name: minimule | Date: Feb 9th, 2009 2:59 PM |
| Helo we are new to the group. We have a thirty year old daughter who lives with us on our Nebraska farm. She has an older sister and a younger brother and seven nieces and nephews. She has Angelmans syndrom and is non verbal. She is the love of our life and we cherish each day. ↑ |
| Name: bert | Date: Feb 16th, 2009 11:53 PM |
Hi, it must be challenging to have two children with disabilities. How do you and your husband cope with leaving them for work or outside activities?
i have 3 children and my middle son, is autistic. He will be 15 this year and while we have been successful with school programs, i can imagine him in a group home setting. What made you and your husband decide to keep your 2 children at home? Do you plan to place them somewhere before you pass on? ↑ |
| Name: cathy knight | Date: Mar 29th, 2009 11:57 AM |
| hi, dsjones57. I live in Desoto and have a daughter 32 with weaver symdrom. she lives in a group home in GrandPrairie and she loves the ladies and I love it to. she just had a fall and had to have hip surgery and is now in a nursing/rehab center in arlington. it is really hard to leave her but she is doing better. how do you handle it. for me I am alone in this journey. her father could not understand her illness and we divorced. she loves him and his side of the family and they love her but it really is hard on me. do you know any other male that could maybe give me some advise on how the male looks at a disable child? ↑ |
| Name: wayne | Date: Apr 1st, 2009 8:42 PM |
| looking for someone that uses an invacare solara wheelchair please help ↑ |
| Name: traciej | Date: Apr 6th, 2009 6:45 PM |
| Hello I have a 24 year old daughter who is profoundly hearing impaired and has developmental delays. just looking for people to chat with about the special challenges parents of disabled adults face. Thank You ↑ |
| Name: traciej | Date: Apr 6th, 2009 7:00 PM |
| Hi again. As i said my daughter is profoundly deaf and developmentally delayed. she is a real sweetheart and a real challenge, right now i am trying to understand how to give her independence, but at the same time keep her safe she is very strong willed, a blessing and a curse for both of us. I am excited to talk to other parents. please visit contact me at boojennings@yahoo.com thanks again ↑ |
| Name: EMM | Date: May 29th, 2009 3:28 PM |
| I'm new too to the group. I have two great kids....a 17 year old mentally retarded daughter and a 19 year old son with aspergers and pdd. My daughter lives in a residential school and is doing well though I miss her terribly. My son lives with my husband and me. I adore them both but feel so isolated....I lost many friends as my kids grew up with their disabilities and can't seem to get past the trauma that caused those problems. Does anyone share these feelings? If so, how do you deal with it? ↑ |
| Name: zachary | Date: Jun 21st, 2009 12:32 PM |
| i need a mom change me because i am a 16 year old adult baby boy ↑ |
| Name: Kaushi | Date: Jun 25th, 2009 4:39 AM |
| im disbled 13 with mum i wear nappies and im ina wheel i cant feel or touch or eat by myslef ↑ |
| Name: nwilson | Date: Jul 13th, 2009 10:09 PM |
| I too have a disabled son he just turned 17 on the 7th and I think it is cool to be able to chat to other families ↑ |
| Name: Denhom | Date: Jul 16th, 2009 12:08 AM |
| Name: Denholm | Date: Jul 16th, 2009 12:09 AM |
| hello i need help, im 12 years old, and disabled, people dont like me because im different from them, it makes me very sad inside... ↑ |
| Name: Andreah | Date: Aug 13th, 2009 12:31 PM |
| I am interested in fostering children with special needs, and was wondering of there is any good advice out there? ↑ |
| Name: barbara | Date: Aug 27th, 2009 2:02 PM |
| i have an 18 year old daughter who is physically handicapped not mentally. Due to her diabilities as a single parent i cant take care of her with qualified help as i would like ]now i must find a long term care vacility that she can have some sort of life in in ny area .Anyone who can help me please reply. ↑ |
| Name: korsan | Date: Sep 3rd, 2009 9:20 PM |
| Name: kran | Date: Oct 8th, 2009 10:55 PM |
Hi Cindy,
My daughter 2 yrs old has been recently diagnoised with 22q13.3, wondering how the life would be? Is your child is verbal and how are the things going? ↑ |
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