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Anyone else's child have this diag.? My daughter was diag. with SID at 10 months old. She also had developmental delays, allergice to both soy and dairy, food aversion, etc.... ↓
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| Name: dana6 | Date: Dec 7th, 2006 1:20 PM |
| Our son will be 2 on the 15th, he has some sensory issues, he loves to swing swing, hang upsidedown forever, he will crawl around on the floor with his head on the floor untill he gets a brush burn, he refuses to eat, he is very under weight, he will however eat bugs , rocks, cat food, cat poop, dog food, ferret food ect. he also seems to like it when you smoosh him tight, i mean tight. he has therapy three times a week for both speech and occupational, and if they don't start with some warm up sensory play forget it, he is screaming biting, hiting, and banging his head off the wall, i have to give him deep pressure massage every two hours, and it really calms him down, he loves to sit in the hammock swing he got through early intervention services, we are also having a hard time getting him to stay seated to eat he is so tiny he can wiggle out of the seat. then he won;t swallow the food he chews it up and spits it out, then there is the rocking as hard as he can in the chair, he almost flips it over. he hates to have his face or hand dirty, he will not move on to anything else untill you clean him off, also we have to watch him in the tub because he will stick his head under and not bring it up. he has just learned who i am he calls me maaaaaa, but now everyone he sees he calls maaaa to get thrie attention, and he screams it at the top of his lungs, he has a mixed receptive/expressive language dissorder also, he says like 2 or thee words. the neurologist also said he sees early signs of aspergers ↑ |
| Name: babygirlsmom1005 | Date: Dec 7th, 2006 11:25 PM |
| That sounds like a lot of stuff my daughter does. She will constantly sit on the floor and bounce on her butt or flap her arms continusly. If she is laying down, she turns her head from side to side constantly - even when sleeping - and one of her arms just flaps. It took a physical thearpist to get her to crawl at 11 months, before that she just sat in one spot without any intentions on moving. The only word she says is Da.....but she does babble some, which is a good sign. She has a totally food aversion, which we are slowly overcoming. She has always nursed, which is great, but food, cups, etc....have been a problem (total titty baby on my hands, which is fine with me, she's getting what she needs from breastmilk). She has fallen right off the growth chart and we are now seeing a Nutricinst for that (another thing to add is she had stomach surgery when she was 7 months old due to reflux with complication of aspiration - or stomach acid in her lungs, so it had to be fixed with a Nissen Wrap and a G-Tube was placed at that time). We do spin thearpy with her (get a lazy susan and a box, my daughter LOVES it) also brush thearpy and oral thearpy (I hate the brushing every waking hour, she hates it also). She also cannot stand to have anything stick to her, she flips out and screams till it comes off. Glad to know we're not the only ones out there. ↑ |
| Name: dana6 | Date: Dec 8th, 2006 8:52 AM |
| It is good to talk to others who understand. he did not sit on his own untill 10 months, crawled at 12 months, and started walking at 19 months. i remember the doctor kept saying any day now he will do it, and the days just went by, with no progress. he was like a lump on the floor to. everyone alwasys said how good he was, because he never made a peep. but it worried me. he would not indicate hunger of thirst, he would just sit there smiling, but as soon as he would see the food or drink, he would go into devil mode and freak out because he was starving. he also loves to spin, he could do it all day. he doesn't flap his arm but he does cross his two fingers the middle and ring finger. he does it allot, when he is trying to pick things up instead of using his thumb and first finger. he is getting a little better though, he went back over the summer for a eval. and he scored a 13 month level for speech, and a 24 month level for congnitive, he just can not get the words out. it is bothersome to have to do the brushing, i am supposed to do it every two hours and then a deep pressure massage, he loves it though he gets all relaxed and then he seems to calm down a bit. i feel bad for him because in our church he goes to a nusery and i tell them everytime he uses sign language, and to watch for it because that is how he gets your attention, well the other sunday i went to get him and they said he was miserable, he was screaming the whole time and kept sayiing no to everything. he says no even if he wants something, he has not cot the concept of yes yet. well we got in the truck to go home and he was coughing so i gave him a drink, and he drank the whole juice box in like 2 sec. he was thirsty. that is what he was trying to tell them, he does not know the sign for drink, but he knows please thank you help, more, eat, open he made no signs to me either that would indicate thirst. it must be horrible to need something so bad and not be able to communicate, also we went out to pizza hut after church and i ordered him a fruit ounch drink and he drank the whole cup, and that was a BIG cup, he did not eat much though but that is nothing new. well it sure is good to talk to someone who understands ↑ |
| Name: babygirlsmom1005 | Date: Dec 8th, 2006 10:43 PM |
| It is good to talk to someone that gets it!!! We started working with ECI (Early Childhood Intervention) at 9 months of age due to she had not yet rolled over and could not sit up by herself (she could sit if put in that position, but could not get into a sitting position). They have worked wonders with her. She crawled at 11 months, and rolled over for the 1st time a few days before her 1st birthday. They have already told us not to really expect her to start walking until after she is 18 months old. ↑ |
| Name: dana6 | Date: Dec 13th, 2006 8:32 PM |
| silas had a rough coulple of days....sorry for not writing, have not had the time, something has him in a whirl, everylittle thing has set him off these last couple of days. ↑ |
| Name: mommyinwaiting | Date: Dec 14th, 2006 6:59 PM |
| Hi Dana and babysgirlsmom, it is nice to talk to someone else who also has gone thru some of the same things as I have. I was just writing in a different area about the crawling, when I came to this one, because my son has sensory problems and I saw that Dana's son also does the head crawl thing. Michael didn't start to sit up on his own until about 2 to 3 months ago. And the crawling is a couple of weeks old skill he is still working on mastering. His neurologist thinks he will walk as does his therapist, but probably not by 2. He is like having a baby longer. Stange how things come around, when my daughter was a baby she was growing up soooo fast. I used to say I wish she'd stay a baby longer. And with Michael, he is staying a baby longer. He is about a 8 to 9 month old age level. ↑ |
| Name: dana6 | Date: Dec 14th, 2006 9:24 PM |
| hi mommyinwaiting how old is your son? silas did not sit up on his own untill he was 10 months old, and he did not walk untill he was 18 1/2 months, i know what you mean with my other 4 kids i was wanting them to stay young forever, and with silas i got my wish, i wouldn't trade him for the world.....even on his worst days ↑ |
| Name: babygirlsmom1005 | Date: Dec 14th, 2006 11:04 PM |
| Madeline sat up around 6 months (if placed in a sitting position). She was able to sit up by herself if placed on her tummy at around 9 months, she started pulling up on the table if placed next to it at 10 months, she started crawling at 11 months and rolled over for the 1st time a couple of days before her 1st birthday. She waved Bye Bye last week for the 1st time. She is doing her "milestones" totally jumbled up. ↑ |
| Name: dana6 | Date: Dec 15th, 2006 6:59 AM |
| that is so good to hear....silas goes to the doctor today so we will se what he has to say, we are a little nervous, he also goes back to the neurologist on jan 30th, i am nervous for that one to. he is doing a little better but not alot. but i guess you can not rush these things ↑ |
| Name: babygirlsmom1005 | Date: Dec 15th, 2006 11:10 PM |
| Your right, there is no rushing these kiddos, they will do it when they want to. ↑ |
| Name: luckielisha | Date: Dec 17th, 2006 12:06 AM |
| I have a two and a half year old boy. He has developmental delays in speech, allergies, and very bad food aversions. He has not been officially diagnosed with SID but his theripists all aggree he has it. He doesn't do alot of spinning but he does not like his hands dirty (especially with food). He wipes his tongue off alot with paper towels. He also makes himself gag and vomit if food is uncomfortable in his mouth. I have tried the brushing but he hates it and I cant get him to sit through it. I seem to be chasing him all around the house. He has just began to talk within the last month or two but he still uses alot of signs. Signing Times videos are great. I was wondering if any other mothers are having problems with aggression. He plays to rough with other kids and he is constantly hitting and biting. I just don't know what to do anymore. I am starting to loose friends. I cant take him anywhere. He becomes very overwhelmed in situations where there are alot of people. It is like he is spinning out of control and cannot concentrate on one thing at a time. Family thinks I just don't have a good handle on him but they really dont have a clue. I don't really know anyone in my area that is going thru the same thing so support is very scarce. ↑ |
| Name: babygirlsmom1005 | Date: Dec 17th, 2006 1:19 AM |
My daughter has a BAD biting problem. She will crawl over to me and bite what ever body part she can sink those razor sharp teeth into. She also thinks it's funny. For a child with oral issues, she has no problem putting my body parts in her mouth (she also is still breastfed, thank god she is not biting b oobie).
People just don't understand, your not alone. Madeline also freaks out if anything sticks to her (food, stickers, dirt, etc...). My parents said that it's because I have come to her becond call every time she screams, but it's not, it's something they don't get. Since they have never heard of SID, they don't believe it exists or I am making it up....yeah, I made up the diag., funny how the thearpist are the ones who made the diag..... ↑ |
| Name: dana6 | Date: Dec 17th, 2006 3:13 PM |
| our son silas got kicked out of the nusery for biting, and he hits screams and totally freaks out, if the slightest thing goes wrong. he bites everyone and everything, even his therapist, now it has gotten a little better with therapy but he still does it occasionaly, they put up a playpen in the nusery for him and he seems to love it, he is away from the other kids and they said he never makes a peep in there he just lays down and does his own thing, this morning was a joke, we went to church and i should have remembered to take his coat off before we sent him in to the nusery like we usually do, they tried to take it off and he went screaming across the room, and was clutching his coat like if you took it off he was going to die, well they got it off but with alot of hitting done by him, and kicking and screaming, i will have to remember from now on, he does not take to change very well, he has to know what is comming, he likes a routine. ↑ |
| Name: LFLORIO | Date: Dec 27th, 2006 3:13 PM |
Hello everyone... boy am I glad to read what you have all written!
My 3 year old was diagnosed 2 months ago with a sensory
problem... and I am new to all this- though I have been pulling me hair out since he was one. His problem manifests in his
behavior in crowds, sleep and eating... he is on OT and I have not seen much improvement... we do the brushing and that
does seem to help... any advice for me.. I am due with baby #2
Feb 6th and and stressed beyond belief with this whole thing..
he is sooo hard to handle and other times he appears to be fine. ↑ |
| Name: corrie grimes | Date: Nov 1st, 2007 5:41 PM |
| my son is 8 he has sensory intergation it's been real hard for me.please help ↑ |
| Name: daniel017 | Date: Apr 9th, 2009 9:55 AM |
| my son fell from a high chair 3feet high and bump his head on the ground real hard and i dont know what to do coz i see something on his head but his not bleeding and i dont know what to do can someone pls give me a good advice its ok to say something bad to me coz its my faultbut i dont want anything happens to my son i will give my life to him coz his my only son ↑ |
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