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Anyone out here (NC) who has a young child with hydrocephalus and willing to share stories......pls. contact me. ↓
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| Name: carrots | Date: Apr 29th, 2007 3:11 PM |
| how about communicating hydrocephalus? e-mail me @ kmwo76@hotmail.com ↑ |
| Name: pwheatle | Date: May 1st, 2007 2:27 AM |
My six month old daughter has hydrocephaly. Diagnosed at three weeks. Has had three shunts...one initial, one revision and now has two functioning shunts at the same time.
Tricia ↑ |
| Name: Alonzo Robinson | Date: Jun 12th, 2007 5:55 PM |
| I have hydtrocephalus and I've had it for 15 years. ↑ |
| Name: kimber | Date: Jul 3rd, 2007 12:58 AM |
| Yes, my sister had a son with hydrocephalus and he is now 9 yrs. old. He never had a shunt placed and the water finally went away on its own. We did get the diagnosis that he is mentally challenged. ↑ |
| Name: kimber | Date: Jul 3rd, 2007 1:00 AM |
| Oh, I am from NC too, but it is probably my sister you would want to talk to about it. ↑ |
| Name: dawnmaq | Date: Oct 17th, 2007 3:25 PM |
| I ahve a 10yr old son with hydrocephalus who is not showing problems (acting like a stroppy teenager) can anyone help ↑ |
| Name: dawnmaq | Date: Oct 17th, 2007 3:25 PM |
| I have a 10yr old son with hydrocephalus who is not showing problems (acting like a stroppy teenager) can anyone help ↑ |
| Name: david | Date: Jan 19th, 2008 2:29 PM |
| Name: david | Date: Jan 19th, 2008 2:33 PM |
| i have a 2 moth old born 26 week with hydrocephalus ↑ |
| Name: lindz | Date: Mar 8th, 2008 2:16 PM |
| i have hydrocephalus. i'm 15. ↑ |
| Name: Tina | Date: May 4th, 2008 1:06 AM |
| I have recently been diagnosed with hydrocephalus at age 32 and don't know if it is congenital or caused by an injury 3 years ago. looking forward to possible surgery. mother of four children who need their mom back. hoping i will return to the way i use to feel. ↑ |
| Name: Jack | Date: Oct 10th, 2008 12:53 PM |
| I Have Hydrocephalus For 13 Yrs Since I was born I Am Now In Yr Nine ↑ |
| Name: sian hodkinson | Date: Apr 6th, 2009 8:54 AM |
| i'm 28 weeks pregnant my baby as hydrocephalus and currently going through promknown as premature ruptureof membranes i am looking for advice ↑ |
| Name: Cindy | Date: May 27th, 2009 5:14 PM |
| Our Grandson had his shunt placed when he was just 2 days old & then redone at 2 months. Since then it has functioned just fine. He turned 5 in FEB and we have noticed emotional problems. Is this one of the side effects or is it just imaturity? He has also been teased by his school mates about his big head... any suggestions? I can be reached at tollirg@hotmail.com and would apreciate any comments/thoughts. ↑ |
| Name: beads15 | Date: Jun 21st, 2009 6:05 PM |
| hello i am 35 years old i was born with hydrocephalus i never had a shunt i dont think it was an opption back then tryin to get into a chatroom 4 people with hydrocephalus ↑ |
| Name: Cindy | Date: Jul 30th, 2009 4:22 PM |
Hey my name I'd cindy and I'm 15 yes old I was diagnosed with hydrocephulus when I was 7 years old I have never met anyone else with it I was wanting to share my story with anyone who will listen thanks
Cindy W ↑ |
| Name: Danny Lamb | Date: Aug 22nd, 2009 12:16 AM |
Hey. I have hydrocephalus and have had it since I was 3. I'm a singer/songwriter and have been working on a song with the piano player of Canadian Idol. I wrote a song that is inspired by kids with hydrocephalus and I have big plans for it. If anyone is interested in hearing more or being involved please I would be greatful if you got in touch!.
Dklamb10@hotmail.com. Thanks.
My name is Danny Lamb and i'm 21 years old ↑ |
| Name: Gloria | Date: Nov 20th, 2009 8:38 PM |
| I have a 1 month old newborn, she was diagnosed with Hydrocepahlus in the womb. She had a Third V surgery a week and a half ago, and it was unsuccessful, now the doctors must proceed with the shunt. I would like to speak to someone out there who I cantalk a little bit with about this, I am worried and I would like to speak with others who is and have been in this situation with their children. ↑ |
| Name: Gloria | Date: Nov 20th, 2009 8:41 PM |
| you can reach me at oquendo519@hotmail.com and my AIM is mommylovesu1098 Thank you ↑ |
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