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I am just wondering if anyone has any experiences with a child with mild cerebral palsy. My daughter has this, and it is hardly noticable to most people. She walks with a slight limp only. She is affected on her right side and so is weaker in fine motor skills on that side. Her balance is poor and it has taken her longer to learn skills that most kids take for granted, like bike riding and zipping zippers and playing guitar. The thing is, most kids with a more noticable case get more attention. My child tries to fit in to the "normal" category at school but is unable to keep up. She walks slower, etc. but won't tell the kids why. Therefore she is teased and ignored and not given credit for her "major accomplishments". Can anyone relate. I know of no one who is like her and it is really hard to deal with emotionally. We are fortunate in so many ways, but we have our own heartache to deal with as well. She is 15 years old.
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I'm 16.
I have himpelgic CP on my left side. I feel her heartache is well.. If there's anything I can do let me know. = |
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My daughter does not have Cp but early in her life she was miss diagnosed with severe Cp. My daughter is now 22 years old doing wonderful she has since been re diagnosed with a congenital spinal cord injury. Her injury had left her wheel chair dependent and unable to do many things for herself.
I too had to watch my daughter go through the wonders of teen hood, at times with a teary eye. I wondered how things would turn out for her when she finally made it out of those demanding and often times stressful years. Trust me being a parent we all have heavy hearts watch our children go through rough times, when they cry we cry even though we don't show it in tears we certainly feel it in our hearts. Mark my words your daughter will be fine, one day you will wonder what all the worry was about. She seems no different then any other teen her age, she just has a limp. The other kid may have red hair or the next may have splotchy skin. Keep the faith, she will be fine! = |
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i have a little girl with mild cp and i am very worried about her and i wounder how is she goint to be when she turn 18 or 19 -20 is she goint to be a happy person
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crakers youre situation is most like mine, youre talking about youre daughter and is like youre talking about my little girl.
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My little girl will be 2 in May. At 9 months, she was diagnosed with CP. We have heard diagnoses from all across the board from mild CP to severe CP. She rolled over at a year old and now at almost 2, she is so close to walking. She just got leg braces which are a huge help in walking and now the PT is talking about botox injections in her muscles. Has anyone ever had experience with this? Every minute I get of quiet, I cry thinking about if the kids will pick on her if she will be able to walk normal some day and how she is going to deal with being different. To look at her, you don't know anything is wrong with her until you realize she can't walk and she can't keep her balance. Her physical development seems to be the only thing affected, but what if she never walks. It has been over a year since she was diagnosed and I still haven't come to terms with it, and like I said, I still cry every day. I am going to post a poem I was given once, that I read every morning to give me the strength to do everything I can for my precious little girl.
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Ode to Special Moms
Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint, Matthew. Forrest, Marjorie, daughter, patron saint, Cecilia. "Rudledge, Carrie, twins, patron saint, give her Gerard. He's used to profanity." Finally, he passes a name to an angel and smiles, "Give her a handicapped child." The angel is curious. "Why this one, God? She's so happy." "Exactly," says God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel." "But has she patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it. "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make it live in her world, and that's not going to be easy." "But, Lord, I don't think she even believes in you." God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations. "I will permit her to see clearly the things I see . . . ignorance, cruelty, prejudice . . . and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing my work as surely as she is here by my side." "And what about her patron saint?" asks the angel, pen poised midair. God smiles. "A mirror will suffice." - Erma Bombeck, May, 1980 = |
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Hi Crackers
I have a 15 yld son with mild cerebral palsy and I know exactly where your coming from. Its very difficult for these kids to fit into normal schools because they are tease, laughed at and a little different but they are also not severe enough to have in a special school. I have my son in a private small community school. This is his second year and is doing very well. Although the other kids are relatively good with him they still havent warmed to "best mates". My son also has epilepsy which doesnt help. I dont know where your from but if your daughter would like someone to email her own age I think my son would enjoy the same. = |
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Mcamus, that was a beautiful story. It really touched me to realize once again that I am blessed to be a part of this. I have learned so much by having a daughter who struggles. Some of it has been very sad as I see people who I thought I could count on for support not be interested. I have seen my daughter be treated badly by many friends, and she has forgiven easily (or so it seems). I have had to learn patience and love and grace over and over again. My daughter has come thru some hard times now that she is in grade 10, including now being diagnosed with a nonverbal learning disability. She also is recovering from an eating disorder. But we are so rich, even so. My daughter is weak on her right side. Are any of your kids like her?
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