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Name: My sunshine miracle
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Hi I am a first time momof a 11 month old son. He was born at 37 weeks with the umbilical cord around his neck. They say (neonatal asphyxia) He is g-tube fed, has seizures, cp , and is legally blind etc..There are days I just need someone who knows what i am going through to talk too. My family is very supportive but it is not the same. I go to the doctors a whole lot. We have speech, physical and occupational therapy 2 days a week. He is on 8 meds 4 times a day. I wish so bad I could take away all his problems. God is with us always and watches over little Logan. Without him I couldn't have gotten this far already. Though I am so discouraged at times I look at my son and he gives me inspiration, to go on. He always has a smile on his face and is a joy. But being a first time mom It's frustrating to go through this. Your life can truley change in a second. But we know Logan is a miracle baby and has already changed so many lives in our family. I know I must keep the faith and remember I must stay strong for my son, my angel, my little miracle. I would love some support and a friend to talk too. May God bless all of you and your children. ↓
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| Name: sweetcaramalkiss | Date: Dec 17th, 2006 10:59 PM |
| Hello I would love to chat with you sometimes I was also a first time mom to a son with special needs he is 4 years old now. I understand completely what you are going through. my email is [email protected]. My name is Donna I am 27 years old and have two children. Looking forward to hearing from you......Stay strong ↑ |
| Name: lindalu | Date: Dec 18th, 2006 2:56 PM |
| My firs was also special needs, she had a spinal cord injury. Now she is 21 and she does great! I look back at all the years of worry and ask myself why? Having my daughter taught me more than I could have learned on my own! Enjoy your sweet boy he will teach you much! ↑ |
| Name: charlottesmommy | Date: Dec 18th, 2006 5:50 PM |
| Hey hun! I'm Aislynn (16) and a first time mom as well of a beautiful 3 1/2 m/o baby girl named Charlotte with CF (Cystic Fibrosis). She has daily CP (Chest Percussion) as well as respiratory therapy with the use of a mask. She also takes enzymes in granular form with her formula. It's tough to be honest and my heart aches that she's had such a rough start in life already but she's the absolute light of my life . I totally understand how you feel. I would love to get to know you and your little guy and would love share all the joys of raising our babies as well as be there if you just need a shoulder to cry on. Because I know that feeling. Feel free to e-mail me [email protected] and huge congrats on your precious little boy!!! ↑ |
| Name: My sunshine miracle | Date: Dec 18th, 2006 8:23 PM |
| Hello sweetcarmel, lindalu,and charlotte, Thank you so much for responding back. I hope all of you and your children are doing well. I'm trying to get ready for christmas and Logan's firt birthday which is jan 3rd. They grow so fast. I was wondering besides the therapy I take Logan to is there any thing else that is good for strengthening neck muscles , keeping the head up and for sitting. He just started botox shots 2 weeks ago waiting on how they will work. Also I read about laser point percussion Therapy, does anyone know about that or where it is offered. I live close to Knoxville Tn. Keep in touch and may God's arms embrace your children and you.. ↑ |
| Name: lindalu | Date: Dec 19th, 2006 5:54 AM |
| A good way to help neck strenght is to lay him on his back, grasp the upper part of his arrms. Slowly lift his upper body from the surface he is laying on, be sure to do it slowley lifting only a couple inches from the surface. At the same time call his name he will try to look up at you thus lifting his head. I use to do this with my daughter all the time at least twice a day it helped a whole lot. ↑ |
| Name: jessica2006 | Date: Dec 27th, 2006 7:59 AM |
| I just wanted to tell you that you have given me much encouragement by your faith being so strong. My daughter is not going through anything like your son but it is so hard to have a child that has special needs. my daughter has kidney and heart failure. you just want to take all it away for them. Children are such an inspiration. It is amazing what God has planned for us and for our children what a blessing that he has given to us. What I have to read alot is jeremiah 29:11. Thank you for your faith and being so strong. God Bless you. If you want to chat more you can write me at [email protected] ↑ |
| Name: Kim Mori | Date: Dec 28th, 2006 11:22 AM |
Hi Miracle Mum! I'm from Australia amd I too have a son very similar to your little fellow! You sound like you've got it all together,your child is very lucky to have such a great mother! Well done, keep up the wonderful love!
Cheers! ↑ |
| Name: My sunshine miracle | Date: Dec 28th, 2006 4:47 PM |
| Kim Mori hello. Thanks for the support. I would love to share stories could you tell me a litlle more about your child. How old is your child? I like to hear new ideas and other things from people that know where I am coming from. Wish you all the best of luck , let me know if I could be of any help too. God Bless ↑ |
| Name: Tracey A | Date: Dec 30th, 2006 3:15 AM |
| Hi- my son Joshua was born at 32 weeks along with his twin. He also feeds only through a tube, is legally blind, and has severe cp. I would love to talk more. E-mail me at [email protected] ↑ |
| Name: Mary Kish | Date: Jan 17th, 2007 1:52 PM |
| So sorry to hear of Logan's issues. I too am a Mom of aspecial needs girl. However, she will be turning ten in March. My best advice is to take it one day at a time. Those first few years were very bad for us too. She still is g-tube fed, trached and vented at night. But it does get better. She walks, talks, plays to a point, She is in dance class, brownies and Sunday school. Let your little one grow. Offer him as many opportunities to integrate into a social world with you. Church, movies, family outings, the library reading groups. Yes it is alot harder taking out a special needs baby or child than a normally developing child, however, in the long run everyone wins. He will have opportunities you may have not believed possible and you will get away from the tedious grind of caring for a special needs situation. Sure the work will be more at times, but believe me it will be worth it. Be sure to say yes, even though it is hard, to anyone that wants to help you with anything. Take them up on all their offers for dinners, learning Logan's care, a walk around the block, anything!! It will help you tremendously in your mental and physical help. Good luck to you, I know your road is rought, but there are beautful rainbows just over the horizon. God Bless! Mary ↑ |
| Name: mommyof2 | Date: Jan 22nd, 2007 3:29 AM |
| Hi! my name is Amanda and I am a mother of an 18 month old boy named Colton. I know that every situation is different but we all go through the same emotions and we need someone to talk to. My son was born at 38 weeks and we did not suspect a thing. When I delivered him c-section they rushed him to the nicu immediatly. After being in there 3 weeks we found out that he has a chromosome abnormality with all that implies! He was pretty much okay until he was 5 months old then he started to decline. Now he is still like a new born, he has seizures several times a day, and is on 2-3 meds a day. It has been the hardest experience that I havve ever been through but God has given me strength to make it through this. Everyone keeps telling me that God only gives special children to special parents....and I am not special. I know what you are going through. I joined this forum hoping that there would be other parents like me. I hope that it gets easier for you and I will be praying for you and Logan. ↑ |
| Name: mommyof2 | Date: Jan 22nd, 2007 7:25 PM |
| Hi! I am a mother of a child who has several problems also. I know what you are going through. It is hard to talk to other people who have no idea what we are going through, but that is why I joind this forum. I have an 18 month old son named Colton and he is at about a 3 month level. He has seizures, reflux about 5 different doctors, 4 therapist, and it does not seem like it is doing much good. I am learning to trust in God that maybe someday he might be healed, but I know that God gave him to us for a greater purpose. I hope that great things will happen because of all of this. If you would like to talk I am here. My name is Amanda, and I would love to find other parents who actually know what I am going through. It is hard to be strong all by yourself. ↑ |
| Name: lifelongmom | Date: Jan 23rd, 2007 9:38 PM |
| my sunshine miracle, I will be praying for you. and your family. I have two dissabled adult children, one is 26 and the other 23, Its good to have a supportive family, although its even better to find others with the same or almost same in their familys. My family has loved my kids and treated them special, although to just sit and talk about the problems with them, they dont understand. I didnt know they had a website like this, and thats great! I wish something was available like this 20 years ago. Now I have a grandson with dissabilities I take care of. Hes 16 months old, and they havent decided yet what is wrong with him. If youd like to contact me, my email is [email protected]. email me anytime. ↑ |
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