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Name: Mother of three
[ Original Post ]
My quadruple screen came back saying that my cances of having a baby with Downs Syndrom went from 1 in 464 to 1 in 61. Of course we are terrified. We had a level 2 ultrasound and an amniocentesis two days ago. The ultrasound showed a healthy baby boy with no signs of Downs, and now we are just awaiting the results of the amniocentesis. We are 17 weeks along and were told that if the baby does have Downs we have until we are at the 22 week mark to make a decision one way or another. I already have three very young and healthy children, and my husband and I have already decided we would terminate the pregnancy...are we wrong?
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Name: Mother of three | Date: Dec 21st, 2005 4:24 PM
For those of you considering the amniocentesis I have to add that it did not hurt a bit. It felt like a little prick. I was amazed at how painless it was! 

Name: Sabrina | Date: Dec 21st, 2005 6:12 PM
I feel that abortion is wrong. I understand the struggle especially with 3 other small children but hav eyou thought that they could be so much help to you and your new little one, there are classes you can take together as a family and learn so much before he is actually here. The fact is that he is a living human being and the Lord has put him in your life for a reason, I have a very high risk of having a hemophiliac for a son and even though i am only around 10 weeks along in my 3rd pregnancy i know that if I do have a son that is a hemophiliac I know that God never gives more than we can handle and I hope that you see that He will be with you every step of the way. You and your family are in my thoughts and prayers and I wish you the best! Good Luck and I pray you make the decision that is right for you.
hugs to you 

Name: Jackie | Date: Dec 22nd, 2005 5:55 AM
I understand you point of view. But also keep in mind that there are MANY amniocentesis's that come back saying your baby with have Downs and it ends up your baby is actually perfectly normal. If you don't feel that you can't take care of the baby do you think adoption would be an option for you? 

Name: Julie | Date: Dec 22nd, 2005 12:42 PM
No, adoption would not be an option due to the fact that we come from Catholic Families where we all believe that abortion is a sin....I'll go on and explain. If we were to abort we would give our families a different reason for what happened to the baby...i.e. the amnio caused a sudden miscarriage, the results of the amnio showed the baby did not have Downs but there may be something else wrong (and we would say the baby died...I had a friend who lost her baby around 20 weeks). We would be too ashamed to have the baby and give it up for adoption. We are wonderful parents, just probably under educated on Downs. We are trying to educate ourselves so we make the right decision for us and our family. We are keeping our fingers crossed. We should have preliminary results back today (it has been 48 hours) with the more detailed results some time next week. Please pray for us! 

Name: Julie | Date: Dec 22nd, 2005 9:05 PM
The doctor called with the preliminary results of my amnio and said that everything looks great! They don't believe that the baby will have Downs. The more thorough results will come back next week. Thanks for all your prayers!! 

Name: First Time Mother | Date: Apr 22nd, 2006 4:36 PM
No absolutely not. You need to do what is best for you. And I agree with Julie, if you are not comfortable telling family /friends if you need to terminate, tell them that something else was wrong. I am sure everyhting will work out perfectly anyways! 


Name: Pregnant at 39 | Date: Dec 4th, 2008 3:27 PM
I lost my baby at 16 1/2 weeks due to amnio. The physician went through the placenta which caused an infection. I lost my son 5 days later. Anyone out there, remember to consider whether it is really worth it. I know it won't be for me in the future. 

Name: Deb | Date: Mar 1st, 2009 2:22 AM
C'mon people,
What kind of statement is it to say that adoption would be too embarrassing, and that abortion is a better alternative? This is not in line with Christianity to have your baby aborted because he has Down Syndrome. How can you justify such immoral thinking? Please check out the youtube called, "God doesn't make mistakes" 

Name: Still hopeful | Date: Mar 19th, 2009 6:58 PM
I am 19 weeks pregnant and just went for my 20 wk anomoly ultrasound. They said our baby has one clubbed foot, a hole in between the two sides of his heart, spina bifida and a problem with the connection between his stomach and mouth (but they can't tell for sure about the stomach thing as the ultrasound can't see that far into it). They think it might be Trisomy 13 or 18, but want us to do an amnio to confirm. They also keep saying that the baby probably won't make it to term. I do not want to do an amnio with the risk of miscarriage involved. We are so worried about our child and don't want ot do anything that might cause his death. We just don't know what to do about the not knowing. Of course, we are praying and also hoping for a miracle or healing of some sort for our child.....but it is hard not knowing what we might be dealing with when and if the delivery date approaches.

Has anyone out there ever been told so many things about their baby and then the baby was born with less or even no problems like the doctors were fearing? We are lost and trying to to feel hopeless in a situation where the doctors are even saying the baby is "not compatible with life." I'm so sick of hearing that about my child and hearing the words terminate. What has happened to hope and valuing every precious life? 

Name: 1st Time Mom | Date: May 26th, 2009 5:33 PM
Can you tell who the dad is from the amniocentesis? 

Name: Wow that's sad | Date: Jun 24th, 2009 11:45 PM
No, you cannot tell the parent from the amniotic fluid. Only DNA testing would confirm that.

I, myself, had to get an amniocentesis done yesterday because I had 2 soft markers for Downs Syndrome. But I chose the test so that I would know if the baby had it or not, not so I would terminate if it did had it.

The amniocentesis was not painful at all. It stung for about 5 seconds. There are stats online that say it is a miscarriage rate of 1 in 200. But the guy who did mine is world reknowned and said not to believe everything you read online. It is probably more like 1 in 2000 because of the modern day ultrasound technology.

That truty breaks my heart that people out there are like Mother of 3. Children with Downs Syndrome are the more wonderful people ever. I understand your fear, but lying and abortion are wrong. If you feel like you can't take care of a baby with Downs, then give it up for adoption. there are people out there that want a baby with Downs Syndrome.


I recommend everyone listen to the song, "Sometimes miracles hide." It comes with a book, too. It is basically about 2 parents that find out that their child may be special needs. It is the most wonderful and is a very eye-opening song. When I first found out my baby may have Downs, I cried because I was worried about all the things he couldn't do. I didn't focus on what he can do. Anyone can raise a child with Downs Syndrome. It just takes a really special person to do it.

So everyone that has a special needs child or may have one, please listen to the song ,"Sometimes Miracles Hide." I can't think of who sings it, but it's worth listening to. 

Name: Gabby | Date: Jun 29th, 2009 2:38 PM
I feel the same way. Not only do you have three healthy children that you need to care for, but I don't see the need to bring an unhealthy child into the world. There are enough challenges that they will have to face as it is. I think that you are a smart lady and I am behind you 110%! 

Name: Lisa | Date: Aug 6th, 2009 12:41 AM
Sabrina,
I have a son who is 11 and has hemophilia. I can't say life was easy in the beginning. Until I learned to infuse my son at the age of 5, there was alot of late night visits to the E.R. or the clinics on weekdays. But, when I learned to infuse him, life seemed so much more normal. I would not trade him for the world. He is so loving and caring. I have come to have a peace with it after many years. I love him so much ! 

Name: LT | Date: Aug 25th, 2009 10:12 PM
You are totally not wrong. This is you and your husbands decision and one that should not be judged. I'm having an Amnio next Tuesday as they told me my risk was 1 in 105. I'm also terrified and having nightmares.
I wish you all the very best. 

Name: Natalie, RN | Date: Sep 19th, 2009 4:13 AM
All you ladies who are in fear because of positive AFP screens, please keep in mind that most screen positive results do not mean the baby has a problem. This is only a risk assessment, and there is a wide margin of error. For example, one in 20 is actually only a five percent risk and a 95 percent chance the baby is fine! It all depends on how you look at things- is the cup half full or half empty? After 25 years in OB, I would not recommend risking amnio for any screening test. Amnio is not 100% anyway. Why are we afraid of "imperfection?" These kids teach others about patience and and compassion. They give so much to the world, and touch lives and hearts. if you are chosen to parent a special child, don't run away from the gift- embrace the opportunity and seek counsel from other families who have done so. I have never heard anyone say they regret their child, but many say they regret their abortion... 

Name: Debbie | Date: Oct 7th, 2009 1:28 PM
Hello there, i am in the same boat as you, I am 32 years old and 21 weeks pregnant, we had an amnio done yesterday 1:180 for chance something is wrong.
I am anxiously awaiting results... i am trying to stay positive, but its hard to think of anythign else.. awaiting that call is SOOO hard.
We too would terminate, I don't think it is a right or wrong decision it is a personal one, and no one should judge you! 

Name: Natalie, RN | Date: Oct 13th, 2009 4:30 AM
To Debbie-
I really want to stress to you that a risk assessment of 1:180 is a less than 1% chance that your baby has a Chromosome abnormality. Women need to be positive when they are pregnant- and not go into it with anything less than embracing the baby growing inside. Why are we allowing those who fear lawsuits to scare us so much? Do they really care about our children, or is it all about lawsuits? We are mothers, and these children are our sons and daughters- Please do not terminate your children based on all this testing- it reeks of Nazi Germany and the eugenics movement. Testing should prepare us for a disabled child, not invite us to destroy the child. You don't destroy family members when they are sick or have special needs. 

Name: freddy bee | Date: Nov 3rd, 2009 11:35 PM
wow - what a site - i came here to hear from others worried about the results of an amnio... instead, i read the rantings of know-it-alls looking to espouse their own beliefs on others... surely there's a place to have an open discussion with openminded folks someplace online? 

Name: KLove1111 | Date: Dec 17th, 2009 8:20 PM
I am having an amnio tomorrow and I watched a video of it in youtube so that I know what I am in for. My first u/s came back with a spot on its bowel and I NEED to know if there is a problem or if its nothing and will go away. I dont think there is anywhere online to talk about this w/o people being judgemental. I think all the people who are being judgemental are not going through what the rest of us are! 

Name: Me | Date: Dec 28th, 2009 9:30 PM
I have a daughter who is mentally retarded due to a birth injury. Although I would not change her for anything, if someone has 3 children and decided to terminate this child and send them to the Lord earlier than planned before he/she had to suffer through so much. It is not about being a hero, and it is not as easy as getting counciling. It is life changing, expensive, tiring, frustrating, and many other things besides having a beautiful baby. This children grow up and the world is mean, and you can't teach a child with the IQ of 50 why these people are mean, or why they are different. If you choose to terminate now that is your own choice. If you choice to keep that is your own choice. NO ONE should make someone feel guilty for a decision made between parents. God Bless you sweetie 

Name: Natasha | Date: Jan 18th, 2010 5:49 PM
Not to contradict anyone else, but my Amnio was THE MOST PAINFUL EXPERIENCE OF MY LIFE!!!!!! I also did it to detect downs, and am actually waiting to hear today. If you are considering termination then yes, its worth it. But seriously, I felt it go in, not too bad through skin and fat, but the muscle and unterus were excrutiating! Also, I had a FISH done too, where they take a lil more fluid. This made mine take a lil longer than 3 minutes. I actually bit dents into my fist! Good Luck! 

Name: Fanny | Date: Mar 2nd, 2010 5:05 PM
No you are not wrong. This is a personal decision to be made by only you and is no one else's business. And nobody has the right to judge. I think God has very little to do with these things. (It's similar to people saying God chose to save that one child in the schoolbus accident, but decided it best to let the others die.) DS is an event that takes place in the bodies of various women, no matter their parental readiness or personal habits. Only you can decide what is best for you and your family. I wish you the best of luck! 

Name: Maurice | Date: Mar 31st, 2010 2:52 PM
Amniotic fluid stem cells 

Name: Maurice | Date: Mar 31st, 2010 2:54 PM
a company that cryopreserve amniotic fluid stem cells.
www.biocellcenter.com
1-886-624-62720 

Name: Anti-Amnio | Date: Jun 25th, 2010 2:07 PM
Hello,
If I had it to do all over again, I wouldnt have had ANY test done except some simple blood tests. I think God gave us these babies for a reason and now that I have messed with Mother Nature I am now faced with a miscarage from the amnio that I elected to have. So what if the baby has downs or even a bad heart defect. I think God gives us trials to teach ourselves and others. If you have ever known someone with Downs you know that they can touch the heart of people and really make special differences in people's life. It's not our decision on who lives and who dies. 

Name: bena | Date: Jun 29th, 2010 12:53 AM
wow! im so surprised at how many people are being so judgemental...it is your decision and only yours!!! i am actually going tomorrow to have the amnio done as well....being that i am 22 years old and my 20 week ultrasound had markers for down syndrome i being a mother of an 18 month old would not want to bring a child into this world if i knew it had d/s..thats your personal decision but to me its just being selfish if you choose to...specially having other children..not to mention all the things the child will go through growing up... 

Name: lauren | Date: Jun 30th, 2010 12:36 AM
To thyself Be True. And Each to Their Own. Everyone is judging here, the adamant ones are the guiltiest. Say what you mean and mean what you say. We all look to whatever our God may be- for strength, help, and guidance. Trust in your heart you are doing what feels right. A right; as individual as each of our pregnancies. Find strength and hope in each other, not justifications, rationalism's, and opinions to convince ourselves of the why--for our choice we made. The why lies in each of your hearts and souls. Trust that innate sense that God gave you, it never steers you wrong. 

Name: alan | Date: Apr 10th, 2011 6:03 PM
My girlfriend just had an amniosantesis done and our baby girl isabella was diagnosed with monosome 21. So instead of having 2 21 chromosones she only has 1. THis is far worse than down syndrome. 1 percent chance of survival. less than point 1 that the baby will be perfectly fine. We are not medically termating our little princess. we are leaving it in the hands of god. amnios come up false all the time, but in the end we gave the baby every chance in the world to live, we did not cut her time short. IF she can live we are giving her that chance. idc if its impossible she does not deserve to be cut short. Babies feel the abortion with anything after 20 weeks, and my baby is not going through that. Down syndrome would be a blessing for us. I pray for you, i pray for anyone in a perdicument like thi9s. I support all decisions just i could never live with the what if she was perfectly fine. cause you will never know 

Name: mmr | Date: Jun 24th, 2011 7:30 AM
keep the baby no matter wat, hes a gift from god 

Name: LostMyGirl | Date: Feb 27th, 2012 2:00 PM
You are not wrong! This is the most difficult decision you will ever have to make! You have to think about the quality of life your baby will have. Take you and your family out of the equation for just a moment and think about nothing what the baby will feel....what your baby's life would be like. I was pregnant last year with my first child....we found out at 20 weeks that she had severe spina bifida and would never no matter how many surgeries live past 15 and she would constantly be in pain....have multiple surgeries every year....very likely be one step up from a vegetable. We had less than 2 weeks to get results and then figure out what would be best for our baby. If you have already made your decision....then follow through with it as soon as possible....From my experience it is much harder the longer you keep your baby...and by 22 weeks....you basically give birth to a still born baby. You are not wrong for keeping your child's best interest at heart and dont ever let ANYONE tell you differently! 

Name: samantha | Date: Nov 11th, 2012 2:17 AM
im faced with decision of amniocentisis im 24weeks and was told imy serum test came back positive 1-2% chance of my baby having down syndrome they put in the risk of 1 in 48 but genetics centre said they think baby will b 98% healthy has anyone else gone through same thing im so scated to duh test and put possible baby in harms way of loosing her 

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