| Name: Tami | Date: Jan 12th, 2006 4:48 AM |
| My son was recently diagnosed. He's 4. I've known for a long time that he wasn't like other kids now at least I know why. I'd love to chat about our kids, it would be nice to compare idea's and such and to be able to talk with other people who are going through the same things. ↑ |
| Name: Tami | Date: Jan 12th, 2006 5:22 AM |
| Our biggest problem too has been the aggression. Mostly this is pitted toward his teachers (we recently put him into a normal preschool) and his little sister. She seems to deal with it okay and now that she's big enough she fights back a little but it's exhausting to always be breaking them up, appologizing for his behavior and trying to figure out what is triggering it. I believe for him it's the noise levels, lights, so many kids ect. that makes it the worst. If anyone wants to chat through email feel free.. [email protected] ↑ |
| Name: sarah | Date: Jan 16th, 2006 11:41 PM |
| Hi my son is eight and is diagnosed aspergers. he has not got iep at school because they say they cant see where his needs would be different... he can hardly read and it affects all his work and self esteem. wondering what to do ↑ |
| Name: marlene | Date: Jan 18th, 2006 1:59 AM |
| hello i need someone to talk to about my 6 year ole grandson who has aspergers i am trying to make up my mind to home school him or not. i have custody of him . please reply ↑ |
| Name: marlene | Date: Jan 18th, 2006 2:12 AM |
| so sorry i forgot to give my e-mail address [email protected] please i need someone to talk to as i feel like i am getting no where with my grandson and my heart breaks for him. i want to give him ever chance that he can get. he is the sunshine in my life, its like he totally tunes me out. ↑ |
| Name: MariaClara | Date: Jan 19th, 2006 5:06 PM |
| Name: mommysix | Date: Jan 21st, 2006 1:17 AM |
| Tami, I have a daughter that has Aspergers. And I really would like to talk to you. She is 6 and we just put her in Kindergarten this school year. my email is [email protected] ↑ |
| Name: Caroline | Date: Jan 21st, 2006 6:46 PM |
| Hi I have a 5 year old who has aspergers ↑ |
| Name: Eli | Date: Jan 27th, 2006 3:53 PM |
| I am a child care worker working with children with asperger's syndrome. I also am in university studying different types of disabilities. I specialize in formating programs to help childen intergrate in society. If anyone needs help you can e-mail me at [email protected] ↑ |
| Name: hayz | Date: Feb 11th, 2006 8:29 PM |
| 2 of my sons have as its very difficult as1 also has cp down right hand side the other has adhd and ocd they are 11+12and were only diagnosed in last 18 mnths i newfrom a young age my boys were different but drs refused 2 listen now they both have many difficulties no genuine friends and very behind at school i am angryas if dr had listened when they were young they would have had the proper support in school but now im having 2fight 2 get them statemented id like 2 chat 2 any1 with similar circumstances ↑ |
| Name: gloria hartley | Date: Feb 17th, 2006 2:40 AM |
| hi there new too all of this i have a 11 yr old boy who i am seeing a specialist with tomorrow i am not hundred percent wether he has aspergers but we( school) and myself seem too be 99% he likes my 100% attention if he does not get it and when he does he can get himself into trouble the slightest thing can set him off like his pizza if it has a herb base instead of just tomatoe or getting up 5 mins late he has broke my nose given me black eyes and has got progressively worse over the last year everyone seems too think he is just a brat but i know he can be loving and he is very intellegent please help anyone ↑ |
| Name: Wendy | Date: Feb 18th, 2006 3:55 AM |
| I have a 6 year old just starting the dianoses part. Feeling pretty rough right now. He was doing great for a bit. Very few meltdowns a week. Okay stims. Now he has regressed. Newest stim is licking his hands. He is also having about 3 - 10 meltdowns a night (after school). I'm starting to feel overwhelmed. I have to others younger than him. One of which is starting to imitate some things he does to get her way. I don't know were to start, but just to have anyone to talk with going through the same or similar things would be great. ↑ |
| Name: Jessica | Date: Feb 19th, 2006 1:10 AM |
| Wondering if there is a chatroom where children whom have been diagnos with Asperger's can actually talk together. There are many children in our society today whom have learning / socializing difficulty. My child is in highschool and find it very hard to make friends .. He is a very polite boy and in his elementary school years we found that bullying and socializing with friends was a big issue. We found other ways to make him become the very reliable, loyal person he is now and his selfesteem has improved. Anyone whom wants to talk please advise. ↑ |
| Name: Carole | Date: Feb 26th, 2006 11:30 PM |
| In response to Cara, with the 10 year old daughter with AS. I also am looking for a chat room for my 14 year old granddaughter to use. She has only recently been dianoised with AS. I have raised her and can't believe that I didn't realise that something was wrong. She is such a lovely girl and never gave me any trouble. She wants friends so badly that she sit in her room and cries for hours because noone will be her friend. Is this new violence a produce of AS? She has never hurt me but she has hit her teachers and her mother. How, is ever, can this be controlled? If you do find any good chat rooms, please email me. Anyone who has any information for me, please contact me. I am just emotionally distraught over this, but I want to do all I can to help her, I love her so much. [email protected] 2/26/2006 ↑ |
| Name: Carole Potter | Date: Feb 27th, 2006 4:23 AM |
| To Jessica, I have a 14 years old granddaughter who is in the same situation with not having any friends or anyone to talk to. She has only been diagnosed with AS for about 9 months and is having a very hard time. She would love to have someone to chat with. Please have your son email her if he wants to talk about life in general. She is high functioning and very bright with spelling and loves cars. [email protected] anytime. Her name is Tiffanee, she is in the 8th grade and is a sweet, loving child. Maybe they could help each other through some difficult times. Grandma Carole 02/26/2006 ↑ |
| Name: Carole | Date: Feb 27th, 2006 4:35 AM |
| Can anyone give us any advise on how to handle temper tantrums and agression. She is 14 years old and her aunt thinks that she is just spoiled. I just plainly don't know what to do. She gets so unset that she hits her mother and her teachers, sometimes cussed badly and when its all over she is very sad and wants to tell us how sorry she is. I am her grandmother and she has never hit me, which is uncommon, that she decides who to hit and not to hit. Her doctor calls it a "melt down" and says she just doesn't know how to express feelings when things don't go her way. Please give me so input, I am just about a my wits end trying to figure out what to do about this. How do you all react to this type of behavior?? I would love to talk to someone about this and how my mixed feelings may be disruptive, she may be able to feel how indecisive I feel. Can anyone help me out? Email me please! [email protected] 02/26/2006 ↑ |
| Name: casedy | Date: Mar 5th, 2006 9:06 PM |
| hey yiou know what calm down you aint alone ↑ |
| Name: jennifer | Date: Mar 10th, 2006 9:10 PM |
| yes email me [email protected] my child is in the process of being diagnosed and all the research i have done i feel his diagnoses will be aspergers ↑ |
| Name: Sue | Date: Mar 29th, 2006 3:53 AM |
| Yes, I have a son with Aspergers syndrome. He is 11 and there are days that are extremely hard, not only for him but for me..I would like to chat with you . I think these have to be one of the most loving kids I know of.. ↑ |
| Name: Mary Ellen | Date: Apr 2nd, 2006 8:45 PM |
| My son is not diagnosed with Aspergers but I happen to think that he has Aspergers qualities. He was diagnosed with ADD & PDD. Please reply if you would like to. ↑ |
| Name: cherrie | Date: Apr 5th, 2006 3:05 PM |
| I am the mother of a 9 1/2 year old boy who has recently been diagnosed with aspergers, tourettes, ocd, anxiety, depression and trichotillomania. He recently was hospitalized for 17 days to try to get his medication under control. He has been back home for 6 weeks and we are trying to deal with his school behaviors along with everything else. he refuses to do his school work and his outbursts in class frighten the other children. is there anyone else out there who has dealt with similar problems and would have any advice for me. please contact me if possible at [email protected] ↑ |
| Name: Shannon | Date: Apr 9th, 2006 9:51 PM |
I have a nine year old boy who has aspergers every day is a chalenge with him. I have the same problem as alot of the other parents I don't know quiet how to discpline him If anyone has any suggestions please feel free to let me know. I appreciate any advice I can get. The proplems we have with him is he has been hitting people at school he is just so angry all the time. The medicines he is currently on is Resperdal 10 mg. and for his ADHD he is on Adderall 40 mg. & Stratrea 20 mg.
Thank you so much. ↑ |
| Name: Lindsay | Date: Apr 10th, 2006 12:42 AM |
Hi, I'm a college student from NY. I'm looking for a parent that would be willing to do an online interview with me about parenting a child with a disability. It would really help me out, and let us soon-to-be-teachers know what the parents think. The questions are very general, like "what have been some of your child's experiences in school?" and "what are some positive things teachers and schools have done to help your child?" Please email me if you are interested. [email protected].
Thank you~ ↑ |
| Name: Susanne | Date: Apr 12th, 2006 10:07 PM |
| I just try to be as honest as I can. And making light of a serious situation seems to be the easiest and most natural way to go. ↑ |
| Name: lisa | Date: Apr 17th, 2006 7:40 PM |
Our almost 6 year old son has Aspergers. Since he was a baby, we knew he was a handful. However, he was our first child, so we thought all babies must be this draining - we wondered why people decided to have three or four children!! We have some strategies that have definitely helped, that I wish we had known about when he was two. The first thing I believe every parent of any type of challenging child should know about is the "Magic 1-2-3" system by Dr. Phelan. Either the book or the video, but be prepared to do it exactly as it shown. These kids need consistency, so give it to them. If you believe it won't work for your child DON'T BE SO SURE! My little guy was speaking like a trial attorney at 3 and even though I was skeptical, my husband and I implemented it properly. We still use it today. The one caveat is that this system must be balanced by lots and lots of positive reinforcement. Constantly try and catch them doing something good and tell them - and REWARD them with something tangible - like a toy, no kidding. It sounds over the top, but soon enough, they'll catch on and then the toy can be replaced by directed, specific praise. By that time, another inappropriate behaviour will have emerged that you'll need the tangible reward system for again. Try to ignore as much of the inappropriate stuff as possible (this, according to his psychiatrist). For example, our son was a face-grabber - he would grab our faces, his grandparents' faces, the faces of children in the sandbox and literally leave scrapes on everyone. If a child does this, for example at bedtime, you can't say "You scratched my face! Now there's no bed time story!!". Instead, (after composing yourself) you must gently take his hand away and say "that hurt mommy, please touch gently" and show him how to touch acceptably. He'll probably scratch you again immediately, so be prepared for it and teach him again. This type of response might seem pointless if the behaviour keeps continuing, but even though it takes time, you're filling the child's "toolkit" with the tools that other children have naturally to socially interact in a successful way. Then continue on with the bedtime story.
Two things we're currently working with: Social Skills Workbook by Jed Baker - I have heard through our son's psychiatrist and seen on an AS website that a commitment (a reliable schedule) to a social skills program can virtually turn these kids around. The most essential thing is to maintain a calm, calm, calm household (not easy, but give it a try - they really begin to relax in a calmer environment.) Of course, we still pay attention now and then to the miracle cures. A girlfriend told me two days ago about a mom she was talking to who uses a fish oil (she thought it was called Nutri-Seal maybe spelled NutraZeal?? sorry! In any case, this is in Canada, so I'm not sure it's available in the US) for her AS son. Then just yesterday, another girlfriend in London told me that many mothers in England use Cod Liver oil for their hyperactive children. In just two days, I was told about fish oil!! Very strange and I don't think it could hurt, so we are going to give it a try and if there is any sort of change, I will let you know (by the way both of my friends said they heard that the liquid oil is better than capsule form). ↑ |
| Name: kye | Date: Apr 19th, 2006 5:57 PM |
hello,
how are you doing there,please mail me back i will help you out so let me know exactly what you need.mail:[email protected] will be expecting you mail.
cheers ↑ |
| Name: mechswaggie | Date: Apr 22nd, 2006 3:38 AM |
| Hi i am a mum of 4, my 2 oldest are girls they are fine, my 2 sons one has aspergers the other adhd and 2 sleep disorders he is very violent at times, now they are older both teens they fight and are so strong i dont know how to stop it, i try to keep them busy, on the up side my aspergers boy now plays sport rugby union without being ill from nerves, he could always train but come the game he couldnt play and would quit, now he plays and i think it is wonderful he also has high iq and excells in all he does is school DUX every year, he has a future mapped out for himself in the fitness industry, but could do so much more but wont, he gets angry and agressive verbally but rarely physical unless it is with his brother, we have nasty neighbours who call them RETARDS all the time now my sons wont leave the house??? no matter what i say they refuse to go outside unless it is with their drivers to and from school... any suggestions? ↑ |
| Name: Leanne Phair | Date: Apr 23rd, 2006 10:40 PM |
| Looking for someone who has a daughter with aspergers. Just wondering what a normal day looks like. They think my daughter has it, but she refuses to talk to anyone so can't get diagnosis. ↑ |
| Name: Beckie | Date: Apr 25th, 2006 1:13 AM |
| I am a mom that is looking to see where to start on having my 11yr. old daughter diagnosed with AS. she fits 99% of the symptoms that i have researched on this form of autism. Any help would be greatly appreciated. ↑ |
| Name: Ollie | Date: Apr 28th, 2006 6:19 AM |
| Do I want to chat? YOU BET! If you're still available, I'm ready to talk, to scream, to cry, to ponder, to dream, to share, to rather be in Italy than Holland. ↑ |
| Name: Eileen | Date: Apr 28th, 2006 7:09 AM |
| Uh-Oh. Me again. I don't quite know how this site works. Em me at [email protected] and we'll talk. If you want, that is. ↑ |
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