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Name: Chelsie
[ Original Post ]
Hi everyone,

I am a graduate student studying elementary education and have to conduct an interview of a parent with a child that has special needs. If anyone could answer any of these questions, it would be greatly appreciated! Thanks so much! (No names or identifying information will be used)

1) What is the biggest challenge for you as a parent having a child with special needs?
2) What do you think the biggest challenge for your child is?
3) What kind of help/support do you receive?
4) Does your child have any school accommodations?
5) How do you think the disability will affect your child as he/she gets older?
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Name: Beth | Date: May 6th, 2011 10:34 AM
Hi Chelsie,

The biggest challenge is being afraid that you can't meet all the childs needs. Am I doing all I can? Am I giving her everything she needs to climb the developmental ladder?

The biggest challenge for "Lily" is communication. She has hydrocephalus and Autism. She gets very frustrated trying to communicate what she wants or needs.

"lily is 6 years old". At school she receives OT, PT, Speech and PE. She has teachers trained with autistic children also. She is my client, I have had her since she was 3 mos. old. I have a team of case workers, social workers, nurses etc....and of course her parents are involved also.

#4 answered above, she also has equipment to assist her mobility (wheelchair, gait trainer) and a Dynovox communication device. Recently they have her working with an I-pod. She is doing very well with this too.

Again, I think communication is the biggest issue. What you need to understand is "Lily's" prognosis when I brought her home was grim. They told me she'd be a vegetable. "This baby will never roll over, she'll never sit up, she'll be blind and possibly deaf. She will lose her ability to suck and will require a feeding tube.' They couldn't have been more wrong! She doesn't walk (yet) she is very smart...but communication is our largest and most difficult hurdle. 

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