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Hi, I have a four year old son with cp and I was just looking for other parents that can relate to raising a child/children with disabilities. ↓
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| Name: Rebecca York | Date: Aug 3rd, 2005 12:54 PM |
| Hello, my 10 year old daughter has CP. I am looking to chat with other parents that are raising special children. ↑ |
| Name: marcy | Date: Aug 4th, 2005 3:25 AM |
| yes it would be nice to talk to other parents not only for support, but mabey some fresh ideas ↑ |
| Name: Nancy Simpson | Date: Aug 9th, 2005 7:16 PM |
| I have a granddaughter that will be 8 next months with CP. She cannot walk and she and her family just got back from a month in Florida with therapy from bio-feed back with no results. Was wondering if anyone out there has had any experience with this therapy. ↑ |
| Name: Rebecca | Date: Aug 18th, 2005 7:02 PM |
| Hi. My son is 3 years old and also has cerebral palsy. He does not walk yet, but does roll around to get where he wants to go. He is a happy little boy. I was trying to find a chat room for parents with special needs kids. ↑ |
| Name: cherry michael | Date: Aug 29th, 2005 7:06 PM |
| Hi I under stand what you are all going through I look after my 6yr old grand daughter who is serverly disabled with cerebal palsey She cannot walk or talk but has the most wonderful smile ↑ |
| Name: carmel boston | Date: Aug 30th, 2005 3:46 PM |
| Hi I have a 5 year old daughter who has cerebral palsy. She has just had her tendons lengthened and wondered if there were any parents/carers whose child has had this type of operation. ↑ |
| Name: aaron | Date: Sep 2nd, 2005 6:54 PM |
| Hey page i'm 29 and i have cp it's not to bad but lately it hurts my back and legs. Just keep giving your kids love and support and treat them no different than anybody else. ↑ |
| Name: Jeannette | Date: Sep 9th, 2005 12:53 AM |
| Carmel Boston--My brother had his tendons lengthened when he was little..if you have any questions please feel free...I've also given my mom this site address, so that she may talk with others in this situation like yourself. ↑ |
| Name: darren mcdonald | Date: Sep 12th, 2005 9:40 PM |
i need some one to talk to my grilfriend she has
cerebral palsy she is in a wheelchair. she is wondering women
with cerebral palsy can have babys? ↑ |
| Name: jean | Date: Sep 14th, 2005 2:33 PM |
| I have a 2 year old with CP and seizures. I was talking with my bro last night about having a child with special needs. I am angry at him for suggesting my child is a burden and someday I should place her in a special home. ↑ |
| Name: jean | Date: Sep 14th, 2005 2:35 PM |
| Is it really hard for parents to handle so many things? ↑ |
| Name: Rebecca | Date: Sep 14th, 2005 2:41 PM |
Hey Jean i hear ya i have a 3yr old with Cp and seizures as well.
It's so hard to take care of her and try to take care of me at the same time. ↑ |
| Name: Ola | Date: Sep 16th, 2005 1:43 PM |
| I have a 5 year daughter with CP we are struggling after recently returning from 4 years in Germany where the care and attention was excellent. Im trying to understand why we have had no physio for 5 months but plenty of assessments. I ask myself if main stream is correct should I move to another borough etc. Help ↑ |
| Name: ola | Date: Sep 16th, 2005 1:44 PM |
We were recently told that botox is the next thing to slow the shortening of the leg muscle but noone talks about the arms.
Scarry really, I thought hoorse ridding would help a hot pool daily but where. ↑ |
| Name: ola | Date: Sep 16th, 2005 1:47 PM |
| we were told the muscle lenghtening operation would happen at 7 and over but we are terrified shes so little and was 618 gramme at birth I think shes 12 kg now and 5 years old. ↑ |
| Name: ola | Date: Sep 16th, 2005 1:48 PM |
| Does anyone have information aabot PETO or otherwise known as Conductive Educatoion, we are looking for a live in trainer/au pair from Hungary ↑ |
| Name: Jamie | Date: Sep 17th, 2005 5:56 AM |
| My brother is 10 and has CP and my mum wants nothing to do with him. So now me and my grandma has to take care of him. I just want to talk to someone about whats all been going on. ↑ |
| Name: Kylie from Australia. | Date: Sep 17th, 2005 11:18 AM |
I am 34 y/o womam with moderately severe Cp znd seizures . I hope I can at least give some of you some idea of the reslts os varios treatments ,as I have had most .
I attend The Spastic Centre five days a week and go to Conductive Education once a week , The conductors are trained in Hungary ....I find the results brilliant and would recommend it to even the most severely affectcted . I am not able balance out out of my wheelchair alone yet ,but can walk with a frame Almost!!!!!! I was previously unable to unclamp my hand but I am having regulare botox treatments which have almost completely released my hhans as long as I weare my Second Skins to keep them in natural position . Botox has been extremely effective for me ..
Can"t say the same for tendon lengthening as it made it much harder to even move my leg at all....
And with seizures, well we are still looking ..... ↑ |
| Name: Becky | Date: Sep 20th, 2005 4:47 PM |
| I also have a 4 year old son with CP. He is the light and inspiration in my life. He can't walk or talk but he is the most happy boy I have ever met. He gets regular PT, OT, ST, as well as music and feeding therapies and we are looking into stem cell therapy, HBOT, etc. He has been on a mickey-button for several years, but is now almost completely orally fed. Doctors are recommending botox, but I am unsure about it. He was a full term baby, but is still under 11kg at 4 years and 3 months. ↑ |
| Name: Goldie | Date: Sep 26th, 2005 5:37 PM |
| I have been looking for a live chat room for parents of children with CP. My son is 9 yrs old and quite severe. I would love to have a chat room I could go to, not only for support, but also to encourage other parents in similar situations. If anyone knows of one Please email me at [email protected] ↑ |
| Name: ola | Date: Oct 5th, 2005 11:39 AM |
If anyone is interested in setting up a support group in London once a month pleas eemail ruyiartyahoo.co.uk
Daughter 5 y with CP ↑ |
| Name: jordan | Date: Oct 20th, 2005 8:28 AM |
hi i am jordan i am 10 and i would like to talk to 10 year olds to
from jordan ↑ |
| Name: uzma | Date: Oct 22nd, 2005 3:13 AM |
| i am student of disabilities study.Currently i am working on cerebral palsy.So please tell me how can i do chat online with you guys. ↑ |
| Name: uzma | Date: Oct 22nd, 2005 3:17 AM |
| does somebody know about online support group for cerebral palsy.Actually i want to join some online group to share ideas.Thanks ↑ |
| Name: caroline stomboli kelbrick | Date: Oct 22nd, 2005 1:18 PM |
| hi i live in scotland but would love to converse with another mum,one of my twins has cp along with spastic quadaplegia,epilesy,sensory impairment,tube fed and has reflux.he was born fine but ended up like this because of chickenpox,he is one of 12 in the world to have taken such A reaction.if you want to talk please contact me at [email protected] have tried some therapies and been to specialist places but all in the uk. take care love caroline ↑ |
| Name: kathy | Date: Oct 23rd, 2005 1:03 AM |
| i have a 2 yr old boy with cp @ siezers lung disase i thought i would find other parents with kids like mine it is very hard to find someone to talk to ↑ |
| Name: Tee | Date: Oct 23rd, 2005 11:02 PM |
| Hi' I have a 6 year old son with cp and i can very much relate to haveing a child with disabilities. ↑ |
| Name: kathy | Date: Oct 24th, 2005 1:59 AM |
| hi tee i have been trying to find somebody to talk to you can email me [email protected] ↑ |
| Name: Rodney | Date: Oct 27th, 2005 8:00 PM |
| I would like to chat with you about the special needs of a child with Cerebral Palsy ↑ |
| Name: Abby | Date: Oct 30th, 2005 10:05 AM |
| Hi, I have a 4 year old son with Quadraplegic CP...if you need a friend let me know and I am there. ↑ |
| Name: Jessica | Date: Nov 2nd, 2005 3:09 AM |
| I was wandering...I know it may be a hard thing to talk about, but I am doing a research project for my Anatomy class...and I was hoping to find someone willing to have an interview with me...would you be? ↑ |
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