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Name: charlies_mum
[ Original Post ]
Hello everyone. My son is 13 and is looking to meet some others his own age to chat with. Does anyone know of chat rooms that are safe for kids to meet?
My son is cerebral palsy, has epilepsy and visually impaired he has a great sense of humour so if anyone would like to chat, please contact me.
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Name: lindalu | Date: Oct 23rd, 2006 2:15 PM
Sweeti there are no safe chat rooms. You just have to supervise his activity while on there. Chats can be fun and entertaining at times, but he needs to be aware of the potential dangers and rules of using a chat. Always put youre computer in a room what the whole family has access to like a family rm or kitchen and even a den. 

Name: Nicola | Date: Oct 23rd, 2006 5:04 PM
I have epilepsy, well I did have. I had nocturnal epilepsy so had fits when going into sleep or coming out of sleep. It was very bad, especially when I was pregnant as I lived alone and I was quite worried in case I harmed them but things are alright. Although, i have started having the aura before a seizure these past 15 days and am having a sleep deprivation eeg on thursday, I hate them so much, how can someone go to sleep in a hospital with electordes stuck to their chest, nipples and brain with chewing gum? (Not actually chewing gum, but a gummy like glue) My 9 year old sister is best friends with a set of twins, one of which has cerebal palsy, and she is a real sweetie, though I do wish that she was mine sometimes because her mother does little or one of her excercises that she should with her so her palsy is getting worse each year. What type of epilepsy does your son have if you don't mind my asking, it's just, im trying to look for others with sleep epilepsy and it's so difficult. Google can't seem to turn up anything that I'm looking for, and I must have tried every combination of words created lol. 

Name: charlies_mum | Date: Oct 24th, 2006 12:41 AM
Hi Nicola
My son has complex partial epilepsy. I have not heard of someone with nocturnal epilepsy before. I agree, how does someone get to sleep wired up for an eeg. Soon my son will have to have that done also...that should be interesting! 

Name: Nicola | Date: Oct 24th, 2006 10:44 AM
i had the sleep EEG before, and they said I did get to sleep but I don't remember it at all. I just remember trying really hard to go to sleep. I was around 11 almost 12 when I had it done. I'm sure there are lots of chatrooms that would be suitable for your son but I doubt tthere are any that are actually safe. But with monitoring and lots of discussion with your son, I'm sure you can make them as safe as possible. 

Name: miriam | Date: Nov 2nd, 2006 11:33 PM
I have a 5 yr old child who as a form of austim and is taken risperdal. Lately i have notcie a change now instead of shaking when he is nevors or exicted he does it all the time. can some one tell me what can me done and is this a side effoct of the meds

thanks miriam 

Name: CONCERNED DAD | Date: Nov 8th, 2006 6:10 AM
Hi miriam, my daughter is 4 years old and diagnosed 8 days ago with bipolor and underlining add.was put on risperdal quarter dose for one week than upped to .05 on the seventh day. she has improved tremendesly in those 8 days, however one of the side affects of risperdal is trembling or shaking. my doctor said if this happens to call him. if you go online and look up risperdal side effects it will show you what to watch for.if you look up www.risperdal.com and it will give you side effect including tremors.my wife and i are looking to talk to other parents to talk or learn what we can do to help our children!!and remember your not alone in this. 


Name: derek mallon | Date: Jul 21st, 2007 12:58 PM
Hi i am 14 years of age and my email adress is [email protected] i have speshel need s to and i would like to chat to your son
what is your Name? i am derek 

Name: dereks mum | Date: Jul 21st, 2007 1:12 PM
derek has all the same problems and has emailed you,do what i do have and have the computer in the sitting room so you can supervise all the time,we were also looking for a chat room which would be suitable for derek and havent found any.This is why we found this site.derek loves to chat online but only has his family to to chat to.If you have found a chat room could you please let me know so i can tell derek my email is [email protected] 

Name: katlynr | Date: Apr 13th, 2008 5:19 PM
hi my name is katlyn and i have cerebal paulsy, i am here to meet friends who have special needs like i do. 

Name: Mom of 6 | Date: Apr 16th, 2008 12:54 PM
OMG, I just googled special needs chat rooms and found your request. I have 6 special needs children. I have to teenage boys with really no "real" friends. They struggle with the social cues and regularity of the world. I thought a chat room with others that understand them more would be awesome. Please respond if interested. Sons are 17,& 14. 

Name: Carol | Date: May 2nd, 2008 4:32 PM
A student at my school has Down's Syndrome....he is eight years old and has been making sexual gestures...is this typical ? Is he imitating something he's seen?...trying to figure this out.... 

Name: zachman | Date: Jun 4th, 2008 10:18 PM
hey everyone im a 13 year old kid and im perfectly fine i dont have any dissoders or things like that but i feel sad for the unfortunet children that do so if any of you mothers and fathers wants there kids to talk to someone there own age have them email me at [email protected] sorry for my grammer :) 

Name: charlies_mum | Date: Jun 12th, 2008 8:15 AM
Im so happy that everyone is sending in their messages and talking together in this site. Charlie has found a good friend from here in Scotland,. Even though he isnt close to us here in Australia they can still have great mateship in email and live chat and even on the phone. I really just wanted everyone to know this is not a waste of time and there is hope of finding someone in a similiar situation as yourselves. 

Name: richelle | Date: Jul 3rd, 2008 5:48 PM
hi whats ur name 

Name: Carmelita | Date: Jul 4th, 2008 8:48 AM
Hello everyone. My son is 7 mo and he's never been fed by mouth. He's got a g-tube and I was wondering if anyone is in this kind of situation? It's just hard not to be able to talk to ANYONE that doesn't have this in common. I just want someone to talk to. Please email me: [email protected] or reply to this. 

Name: martin harris | Date: Jul 4th, 2008 2:21 PM
hi there can i tell you about www.specialfriendsonline.com.this is a great new site where you and your friends will make friends and enjoy messaging other people.check out one of our heroes daniel with c.p. he is a star. please feel free to message me when you join and let me introduce you to a few people.there is a small fee but this pays for the safety and moderators.cant wait to hear from you...Martin 

Name: martin harris | Date: Jul 4th, 2008 2:34 PM
hi again this is for eveyone.Reading more messages i see there are many of you worried about chat rooms for your family.I am the founder of www.specialfriendsonline.com which is a unique site for people with learning disabilities and parent/carers.We have lots of security measures and the site is fun and inspirational.there are lots of people waiting to make friends with you now and lots of inspirational stories.please message me as soon as you join..see you soon and please spread the word...martin 

Name: Charlies_mum | Date: Jul 16th, 2008 8:39 AM
Thanks for your post Martin. I checked out your site and it looked good from what I could tell. I was going to join it but I noticed that when I went to pay it wasnt a secured site. I was always told that there should be a padlock on the page to show its secure but there wasnt. So based on that, I didnt put all my credit card details. 

Name: kobie | Date: Aug 15th, 2008 6:47 AM
can anyone give advise on finding superior school systems state by state via the web? 

Name: Junior | Date: Jan 22nd, 2011 10:27 PM
Hiya
I wish I could find a mummy to help with my nappies im 28 years old with a mind of a child and have to wear nappies and drink from a bottle and just wish i had someone to cuddle please contact me - [email protected] 

Name: shauna Johnson | Date: Jan 28th, 2011 11:10 PM
My son Eric is 4 and has mild CP and seizures. I would love to help anyone in need...I started a new blog please take a look.

http://johnsonspecialneeds.

blogspot.com/2011/01/about-eric.html
 

Name: chirag | Date: Feb 20th, 2011 7:56 PM
hello 

Name: ZAFER | Date: Jun 26th, 2011 1:27 PM
SASADF 

Name: teene | Date: Jul 15th, 2012 5:54 AM
my 2yr old daughter is globally delayed and autistic. just looking for advice 

Name: Rosey | Date: Jan 9th, 2013 7:00 AM
Would like to recommend a speech therapy service in Malaysia, if anyone is looking... LEMM International Therapy (http://groups.yahoo.com/group/Lemmit ). It's a unique home-based program catering to children with special needs... also keeps the parents involved in the therapy. Contact info is on the brochure if you follow the link. All the best. 

Name: Elaine | Date: Jan 25th, 2013 5:23 PM
Yes, http://www.abilityonline.org has a chat line for youth with special needs. 

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