Hello, guest
|
Name: Tracey A
[ Original Post ]
My husband and I are proud parents of three beautiful boys. Tyler is 4, Joshua and Jacob are 19 months. Jacob and Joshua were born at 32 weeks. While the boys were in the NICU, my husband and I had some very deep discussions about our boys. WHen we found out a week later that JOshua had severe CP, our discussions were even more "theraputic" for both of us. I thank God that our marriage was so strong before the birth of our twins. But, now due to lack of sleep (still trying to find Joshua's nitch), we barely discuss our feelings. Well, I seem to be the one "crying" about our situation all the time. It is hard to talk with friends that have "normal" children and my family because I don't want to feel like I am bringing them down. SO, when I feel I should be able to talk to the ONLY person who is going through this with me, it hurts when we can't talk.

Does anyone else experience this...what do we do??
Your Name


captcha

Your Reply here


 
Name: babygirlsmom1005 | Date: Dec 30th, 2006 9:03 AM
Though my daughter does not have CP, she has many other issues. I understand what you are going through and it is hard. My hubby and I rarely talk about anything but her and what progress she is making, etc....The people with "normal" children, you are right, they don't understand and neither does family. Hugs to you, your not alone in going through this. I wish I had some advice, but I don't.

Marcie 

Name: My sunshine miracle | Date: Dec 30th, 2006 6:01 PM
Tracy hello I have read several of your blogs. How are your boys doing? I hope they are getting better evryday. Josh has the problems and jacob is ok right? How old are they now? My son Logan is going to be a year Jan 3rd. I think you read about him under another blog. It is very hard and it is stressful sometimes on your marriage. But we put God first in everything and put our burdens in his hands and pray alot. Nothing is immpossible for God. I am a stay at home mom that goes to all the doctors appointments and therapy mostly by myself. My son is hooked up to a kangaroo pump 18 hours aday so that goes every where we go. He can't hold his head up or sit or crawl etc,, He is legally blind does not grab things reach up and so on. It is so sad, when i see other kids that can do all that. My heart just breaks for him. But I am going to hold my head up high, keep speaking that he will talk, walk, run etc... Because I believe, Faith is my rock and I will stand on it for Logan. What you speak shall come to past. Remember they don't know any different so it's actually us the parents that have to adjust not our children. My husband and I speak about that everyday. Stay strong love your children and you will see what a special, loving, child you are blessed with and how he will actually teach you things in life. Inspiration to go on is what little Logan gives me and so much more. please keep in touch any of you and remember God is always there for you and your child, never give up hope and always pray. god Bless 

Name: Tracey A | Date: Jan 3rd, 2007 3:13 AM
Hi-

Thank you for your message!

I am so thankful that we have God in our life. I really don't know what I would do without him. It is so comforting...even on days when I just can't take it anymore, that I have Him to talk to.

I cannot tell you how much Joshua has improved our lives. You truly start to look at people in a whole new light. We have met so many wonderful people through Joshua...he is truly our angel.

As for Jacob (Joshua's twin) and Tyler, his brothers, they are truly better off for having Joshua as their brother. They are only 19 mos. and 4 yrs.old respectively and they show so much more compassion at their age than some adults do.


Sometimes, I don't know if my stress is because I have three children and am home with them all day, or if I am still sad that Joshua will not be able to do the things his brothers can do. I guess when you add it all together, it adds up to stress.

Well, sorry for rambling, its nice to feel like someone is listening and can somewhat understand...THanks :) 

Name: T-rabbit | Date: Jan 3rd, 2007 3:43 AM
Tracey A

Tell me every thing on your mind. No I don't have a child with cp but I do have eyes to read and fingers to respond. If you need to vent let it go! Some times I need to vent about my kids too. 

Name: T-rabbit | Date: Jan 3rd, 2007 3:44 AM
Girls 5,6 and a boy 3months. 

Name: twin_troubles | Date: Jan 3rd, 2007 4:43 AM
Tracy I think it's especially hard having twins and all the extra needs that come with twins and then when you add disabilities along with that it's overwhelming. My husband and I have a lot of the same troubles. Our situation is a bit different though. We took our babies into foster care when they were 2 days old. We had no clue there was anything wrong with them at the time. As time went on I knew something was wrong and we searched out Dr.s who could tell us what was going on. When we found out both twins had CP my husband wanted to give them back to the state but I said no way. I love these babies just like they are my own, but at times the stress of all their problems seems to overwhelm me. I can't cry to my husband because he just gets upset that I am taking on all these extra problems.I can't stop loving my babies just because they have special needs and it doesn't matter that they are only my babies temporarliy. At this point we don't know how long the twins will be with us...the social workers think it could be a year or two. I find myslef being so sad when I see normal babies smiling and reaching for toys and interacting. My babies just don't do that yet and I wonder if they ever will.
Connie 


Name: Tracey A | Date: Jan 3rd, 2007 9:19 PM
T-Rabbit,
Thanks for lending an ear (well, I guess your eyes). Today is actually going surprisingly smoothly. We had Joshua's therapy this morning and he did really great. He was trying to reach for a toy...he has never done that before.

I guess the stressful part of life right now, is we have decided to look for a new house. Joshua will be i a wheelchair someday and our house is 2 stories with staris leading to all the entrances. I know there are accomadations that can be made, but we have chosen to try to look for a ranch. The hard part is trying to keep your house in "shape" for people to come through. I am doing the best I can, but when you have three boys with lots of "stuff", and they like to play with their stuff...well that equals a mess... Everything has a place, but it is just getting it to its place before something else comes out. Anyway..Do any of your children have special needs? 

Name: Tracey A | Date: Jan 3rd, 2007 9:27 PM
dear twin troubles,

You are an angel here on earth!! Those babies are so blessed to have you AND your husband in their lives. Enjoy every day you have those babies in your life. Rejoice in EVERYTHING each of them does. Obviously, Joshua and Jacob are two different people, but they are really different when it comes to developing. We had to learn to rejoice with every little thing that Joshua did. Like today, he reached for a toy for the first time AND tried to put it to his mouth. This is amazing for Joshua...and for me :)

I totally understand about not being able to "vent" to your husband. I always feel like...well, he has had a long day at work, the last thing he wants to hear about is my day, fears, and stresses. I hope with time we will be able to talk more openly. Right now we crack the issue of Joshua and all the feelings that comes with it...good and bad.

I would be happy to be your sounding board if you needed to vent!! I know this site has been great for me because sometimes I get my thoughts out and I feel much better. Sometimes you just need to know someone understands what you are going through.
e-mail me anytime: [email protected] 

Name: T-rabbit | Date: Jan 4th, 2007 4:54 AM
Tracey A

I am really speachless. You are the strongest person I have ever met. I mean this with every bit of my heart and soul. I don't think I could handel something like this.

I am so happy for you and Joshua. Improvement comes slowly. You are doing great!! You stay strong I promise the stress is just from being a mom. Are you working? Our job is far more than most people can grasp. Work,kids,house,bills........... You get the point..lol

"Do any of your children have special needs?"
no but my cousin has sp. We were best friends my whole life.
I was reading all the forums one night and your post caught my eye. Just thought I would lend a ear.

GOD Bless you and your family are in my prayers. 

Name: T-rabbit | Date: Jan 4th, 2007 4:56 AM
*CP Sorry I Have been Awake 4 22 hrs I need sleep!lol 

Copyright 2024© babycrowd.com. All rights reserved.
Contact Us | About Us | Browse Journals | Forums | Advertise With Us