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Name: amanda | Date: Jul 12th, 2008 8:48 PM
hi


i am 32 years old this is my third child. i had my 19 week ultrasound and they said i am going to have son with club feet!!!
is he going to be cast right away? is there different stages? 

Name: hellen | Date: Jul 23rd, 2008 6:01 AM
hi 

Name: PatW214 | Date: Jul 23rd, 2008 8:08 PM
I am 58 years old have have two clubbed feet which were bent totally backwards at birth. I had started walking on my ankles before I had my first surgeries. I have very little ankle motion; I can bend my feet down, but not up and I can wiggle my toes a little. My tendons were cut which caused me to have no ankle motion and my feet were straightened. When I moved to Pennsylvania at the age of seven I was wearing braces. I was blessed to have been taken to Childrens Hospital in Pittsburgh. The first thing the doctor did was taken off the braces, I did not need them. I had one more surgery under this doctor and have been doing fine ever since, even though this doctor told me I probably would not be walking at 16. My left leg is shorter than the right one and I seem to favor this one which is where I have my balance. This has caused my baby toe on my right foot to turn under. I have problems finding shoes and usually have to shop in the children's department. I wear a size two, but usually resort to a size three or four because my feet are wide and short. I have two wonderful children, a daughter 35 (who was also born with her feet turned in, but was placed in casts at birth, the shoes with the bar until she started walking and then the straitlased (?) shoes. She's doing fine and has a 13 year old son who has not problems. My son is 21 and did not have any problems at all. For those persons who have children with clubbed feet, I can attest to the fact that whatever they want to do, they will do clubbed feet and all. 

Name: Maria | Date: Aug 7th, 2008 1:11 AM
Hi, similar to most on this site, I found out about our little boy having bilateral clubbed feet at our 20 week ultrasound. I have learned a lot about this deformity and feel well educated on the Ponseti Method and what to expect at this point...but I have a ton of parenting questions... that I do not see sites discussing. I would appreciate any answers to the following?
-Did you child cry more because of the casting or was he more cranky then other children?
-How did you know that the crying was from the discomfort of casting or something unrelated?
-Do you find that children with casting/bar sleep worse, are woken by the fact that they can't rollover with ease?
-Was there difficulty in finding the right car seat?
-Can you wear one of those front hanging packs like baby bjorn to put the baby in or would that be painful for a child with casts up to their thighs? What about a sling?
-Do they like being swaddled even with the casts on?
After the casting is complete, are they so weak that they need physcial therapy or us to help them exercise there little leg muscles?
Thanks for any responses based on your experience and for any additional tips...like how to bath this child in a cast...
By the way, for anyone looking for great information on the best method (Ponseti) for dealing with club feet, how to find the most qualified/trained Dr's in this method and how to get assitance if one does not live near you visit www.six-feet.com. I pretty much stopped crying after reading through this site because I felt well educated and located the best Dr. in the area. It is also the most touching personal story of a parent with 3 boys, all with clubbed feet. If this lady can do it 3x in a row, I and you can do it too! 

Name: lisasing | Date: Aug 7th, 2008 1:45 AM
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Name: Dana | Date: Aug 15th, 2008 1:45 PM
Hi. My son was born 3/20/08 w/ bilateral club feet. Started casting day 1 and heel cord surgery at 4 months. He's making progress, but still tight. Not sure if another surgery will be needed. Wanted to answer some questions I saw:
Did you child cry more because of the casting or was he more cranky then other children? He was a little fussy for about 24 hours after. Ask Dr. about tylenol.
-How did you know that the crying was from the discomfort of casting or something unrelated? You don't at first, but then you'll notice it's similar each time.
-Do you find that children with casting/bar sleep worse, are woken by the fact that they can't rollover with ease? A little the night after casting, but my son has to wear a hip brace also and he REALLY doesn't sleep well with it. But after reading these blogs I'm really going to make sure I leave it on as long as I'm supposed to.
-Was there difficulty in finding the right car seat? No problem with car seat.
-Can you wear one of those front hanging packs like baby bjorn to put the baby in or would that be painful for a child with casts up to their thighs? What about a sling? Yep, I love my Baby Bjorn and so does he.
-Do they like being swaddled even with the casts on? My son did, until the evil hip brace.
After the casting is complete, are they so weak that they need physcial therapy or us to help them exercise there little leg muscles? Not sure, but they left the casts off one week and I had to stretch his feet at every diaper change.
All that being said I'm going to check out the website you mentioned because I have some concerns about his progress. Good luck to all of you! 


Name: STACEY | Date: Aug 18th, 2008 4:19 PM
MY SON, CODY, WHO IS NOW 8 MONTHS OLD WAS BORN WITH BILATERAL CLUBBED FEET. I ALSO FOUND OUT THAT HE HAD CLUBBED FEET AT ABOUT 19 WEEKS. AT FIRST I WAS SCARED FOR HIM BECAUSE I DIDN'T WANT HIM TO BE DIFFERENT. ONCE HE WAS BORN I CRIED BECAUSE I FELT BAD FOR HIM AND EVEN WHEN HE WENT IN FOR HIS FIRST SET OF CASTS, I CRIED. BUT NOW THAT WE ARE DONE WITH ALL HIS CASTING AND HE ONLY HAS TO WEAR HIS SPECIAL SHOES AT NIGHT WHEN HE IS SLEEPING, HE IS THE HAPPIEST BABY EVER. HE IS A LITTLE DELAYED, HE ISN'T SITTING UP BY HIMSELF VERY WELL, NOR IS HE TRYING TO CRAWL OR ROLLING OVER LIKE HE SHOULD BE AT THIS STAGE IN HIS LIFE. BUT, THAT IS OKAY. HE WILL GET THERE AND MY LITTLE MAN WILL DO IT WITH A SMILE ON HIS FACE. HE HAS REALLY LIVENED UP OUR FAMILIES LIFE HE IS JUST HAPPY TO BE ALIVE. I HAVE NEVER LOST FAITH AND I NEVER WILL THAT HE WILL WALK LIKE A NORMAL CHILD. BECAUSE HE IS NORMAL. IT'S FUNNY, WHEN CODY HAD TO WEAR HIS SHOES AND BAR 24 HRS A DAY. WE WOULD GET SOME CRAXY LOOKS AND QUESTIONS. WE REFER TO CODY AS OUR LITTLE "SHAUN WHITE", HE'S PRACTICING TO BE PROFESSIONAL SNOW BOARDER. I HAVE LEARNED THAT LIFE IS TOO SHORT TO WORRY WITH THINGS THAT THE LORD WILL TAKE CARE OF. HAVE FUN WITH LIFE AND MAKE YOUR CHILDREN, DISABLED OR NOT FEEL SPECIAL EVRY DAY. LIFE IS TOO SHORT!!! 

Name: Bill Davis | Date: Aug 20th, 2008 4:27 PM
Hello, i was born with bi-lateral club feet and had the casts braces and surgeryto try to correct it all to no avail. i am 38 now and have suffered horrible pain ever since. Please i beg you don't put your child threw this. i just had another surgery on 7/24/08 on my left foot and need surgery on my right when this one is "fixed". I dont know your religous orientation but God has a plan for your child it just may not be to be an olympic athlete. dont let the doctors tell you your child will be perfectly fine after . if he does ask him to show you your childs future in his crystal ball to prove it. lol. my phone # is 330-715-7992 if you ever want to call, is to much to type all the negative impact these surgeries hav had on my life. 

Name: Katie and Willie | Date: Aug 25th, 2008 12:07 AM
I was just 18 weeks along when we found out that our new little one has bilateral clubbed feet. I am now 32 weeks along and cannot wait to meet him or her (we don't know the gender). I keep telling myself that there are a lot other worse things out there that my baby could be affected with, but it still scares me. I worry about the pain that the baby might be in with the casting and such. I worry that the casting might not be enough and that surgeries will follow! However, I know I can't let my worrying steal my joy! I will love this baby with all of my heart and cannot wait until he or she comes. All I can do is pray and trust in the Lord, I know that things will work out the way that they are supposed to. Worrying about tomorrow will only take the joy from today.
Good luck to you!
Katie
Due October 17th 2008 

Name: Shane | Date: Sep 4th, 2008 8:02 PM
I am the the proud parent of a georgous four year old boy who was born with a horrible case of club feet (bilateral - both feet.) When he was born (c-section) my heart sank as his poor legs and feet from about knee down were severly twisted and it almost appeared like he had two sets arms. Within two days we had him at a specialist right here in our home town of Boise, and the casting process begins. The casts do cause discomfort as our baby would cry himself to sleep after each new casting. Our Drs. were Dr. Showhalter and Dr. Shea with Boise Orthopedic, both using the Ponsetti method of casting. Never leaving my son uncasted. Our son went through about 10-12 sets of casts changed out every 7-10 days depending on babys growth. They did a no ansthetic akelieze (I'm not good at spelling) heel tendon surgery in the middle of all the casts, and after about 4 months old he went to a brace. Let me tell you, we saved some of his poor little cast and they are so twisted, they make me cry. When they cut his heel tendon I cried, and I cry every time I remember it. It is a tough process if you are more into your child than yourself. Just hold them close and love them more when they hurt. Out sucess story is due to our Drs. Our insurance would not cover all of our Dr bills because they said our Drs charged to much; if they could see our son now and put him up against some of the horror stories performed by the Drs who were covered these the price would never have been an issue. I gave up stuff to ensure our son had the best care here, and in the end when I seen him run, jump, play, swing and swim with no ability to tell he ever had club feet I cry again, tears of happiness. To you all facing this challenge..... I would never give my son back for any other, the bond we formed due to his need for more comforting is unreplacable. Love them, and they will love you. Stopping them from crying is NOT YOUR JOB, babys cry, hurt babies cry more. Get over yourself this is about your child and what is best for them, sleep is never more important than your child, a phone call is never more important than your child, a party is never more important than your child, a TV program is never more important than your child, your JOB is NEVER more important than your child. Your child is going though an experience they do not understand and can not be explained to them; Love LOve LOVe LOVE is all they need. This to will pass and your committment will he honored with more love in return than you can imagine. Do not give up. Seek the best Dr. you can find 

Name: Reann | Date: Sep 16th, 2008 3:42 AM
Hi I'm Reann from s wales age 27, I ave 4children ashley is neally two and as spina bifida and talipies which at fixed at mo , but ied just like to say it was hard when u first find out and I was afraid of lookin at her feet when she was first born, that didn't mean I wasn't bothered about her I sat with her all day it's just u get scared ESP when there's so many doctors around ,she is now a lovely little girl full of smiles and just as fab as my other 3, I never once thought she wasn't perfect coze she always was she's just a child who was born a little different, and sometimes it's hard to see that in till they start gettin cheeky and things, ashleys the boss in the house all ready ha!! 

Name: not to be named. | Date: Sep 18th, 2008 5:34 PM
i was born with a club foot and am now fifteen years old. the clubedd foot will get worse. get your children treated, im not saying this to scare you im saying it because im about to go for a years surgery. and missing out me gcse's is so hard for me . . .

i wont be able to drive a car because my foot cannot bend like a normal foot and cannot where high heels. 

Name: Tammy | Date: Sep 29th, 2008 1:40 AM
I know how u feel...My daughter is almost 3 months now, her right foot is goin thru this process now, right now she is in the shoes wuth the bar on the bottom, has to wear them 23 1/2 hrs a day and then surgery is scheduled for the middle of Nov...It's tough to go thru this, I think it's been harder on me than on her....She had 6 casts....One every weeks for the first 6 weeks of life...Gotten to the point to just bend when the wind blows.....I have done alot of research about this...Troy Aikman (Dallas Cowboy Football Player) had a really bad case of clubbed feet, and look what he has done....Kristi Yamagoshi (figure skating champion) also had it...Gives us moms hope thats for sure....Everytime I take Taylor to the doctor there is another lil girl that has had it and they are all perfect....Wouldn't ever know otherwise....So hang in there Dreams...It's gonna get worse, but it will get better 

Name: jason smith | Date: Sep 29th, 2008 1:58 AM
im a 25 year old male. born with two bi-latterally clubbed feet. i was in casts above the knee at six weeks old. they were changed every 3 weeks. had my first surgery at a year old. another at three. i never learned to crawl. lots of scooting on the butt. then walking. the third surgery came at five. I dealt with feet that curved inward, and would tripp myself almost every time i ran fast. always did my best to lead a normal life. i was a very self-concious boy about the small calves, huge ankles, and thick calouses on the sides of my big toes, and edges of my heels. so thick i could cut off single pieces from one side to the other, that are 1/4 inch thick... never wore shorts or sandles after the age of 6-7. thats when i realised people starring for the first times.
had permanent staples drilled into right ankle at sixteen. never was told much growing up, about what was wrong with me. parents never really said much. they tried to tell me. my feet cost money, and i shouldnt do certian things others were doing... that only has made me try harder in everything i do. although i have pain EVERY SINGLE DAY. ive never known my feet to not hurt, and have never taken anything for the pain, untill the past year. i have hated having this problem in life, but wouldnt change it if i could. i ride fourwheelers every weekend. and am proud to say im pretty good at it. i can jump it sixty-seventy feet, and about twelve-fifteen feet in the air. athough i pay for it the next two-three days. but the feeling i get is amasing. people see me and give me complements on my jumps. later to find out just how severley deformed my feet were when i was born, and what ive gone through as a child. and are even more amased after..
so if you want your child to have determination in everything they do...... tell them that they CAN'T. (not really) that was just how it went for me.
so if you have foot problems, or are a parent of a kid that does.... remember, it will never get totally better, it will always bother you, youll never not be somewhat embarrised, people will always say mean things, and if the pain will always come right back, then thiers no use getting started with the whole pain pill addiction in the first place. not taking them has made me a stronger person than i could have imagined. it hurts daily, deal with it quietly, and cry when your alone if you have to. but dont ever let the pain stop you from doing what makes you feel free and happy. dont ever let them tell you ya' cant. and whatever you choose to do... take the time to do it just a little better than you planned to do it in the first place.............. Jason Smith. 

Name: Spudd web | Date: Sep 29th, 2008 5:31 PM
who cares, some one with clubbed feet should be shot in the foot and then killed. 

Name: trochester1 | Date: Sep 29th, 2008 8:39 PM
Spudd web way mature how old r u???? like 2 maybe....GROW UP 

Name: Brynn | Date: Sep 30th, 2008 4:46 PM
My son was born with a clubbed foot his left.
We are seeking treatment at Shriner's Hospital in Spokane, Washington. We are using the "French Method" of Physical Therapy. He started out at a 16 on the 17th of September. He is down to a 7! he was born on the 6th of September. We found out that there may be something wrong with a foot at 21wks. We didn't think anything of it. Then when he was born we were a little scared. Knowing that it is fairly common and that we had family members that were successfully treated for the same thing made things better.

He has to have minor surgery on a tendon in the back of his ankle at 3 months. Once he is down to a 2 or 3 a permanent splint is made until he grows out of it of course. But at that time we will not have to make trips to Spokane 3 times a week. I do the taping and message therapy right at home. The Hospital supplies me with all that I need. I do the therapy at least 3 times a day. His splint only comes of 2 hours a day and he is wrapped in the tape for 22 hours as well.

Good Luck to you.
Brynn oh and he is my second child, my daughter is almost 3 and perfectly fine, healthier than most. She is hardly sick, never been to the Doctors for a cold. 

Name: MAz | Date: Oct 10th, 2008 10:02 AM
I have just read your story Dreams
How did u find out ur baby was going to have club feet?
i was born with club feet - and my foot is severly deformed - due to several operations that went wrong - leaving me to loose the tips of my toes
i was just wondering is it a speical scan or something - cause when i do have children i want to know, as i would never ever wish the disability on any one
MAZ 

Name: clubfootgirl | Date: Oct 15th, 2008 11:52 PM
I am an adult who was born with a club foot. If I can comfort you at all, I would like you to know that I have had a normal life! I was casted at birth, and then had surgery at 2 years old. I have slightly different sized feet and calves, but am otherwise perfectly normal. I played sports throughout life, was a college cheerleader, and am now an avid runner. This is only a limitation if you let it be! 

Name: Victoria | Date: Oct 17th, 2008 9:01 PM
Dont believe all the bad hype. i am 21 years old and had clubbed feet as a baby. ya i went threw surgeries and casts. cold weather kinda sucks. but i am perfectly fine. people arent always going to be mean and make fun.
I am also 30 weeks pregnant and the baby has clubbed feet as well. i guess it works out having already going threw it but these days the processes are SO MUCH DIFFERENT. the doctor told me that there is a good chance casting could fix the problem maybe with a mild surgery to release ligaments. but seriously compared to what i went threw as a child-teenager and what my mom went through. it is nothing. alot of work the first year or two but it makes a difference i'm sure.
things will be fine
DONT BABY YOUR CHILD.
the best thing my mom ever did was let me be a kid and push me to do things. i played soccer, flag football, little league just like every other kid (and i had 9 surgeries) 

Name: Marissa | Date: Oct 18th, 2008 3:35 PM
I am 21 weeks pregnant and we just found out that our baby girl has bilateral clubbed feet. The process of finding out was horrible. The ultrasonographer told us, but wouldn't answer any questions about it, just stating that the baby has clubbed feet. She kept scanning the feet and the spine for over an hour and every question I had got the response- You should really ask the doctor about that. This is our first child and I was completely ignorant about the condition. We then had to wait for over an hour for the doctor to then tell us that we need to pick a pediatrician because they should really talk with us about this. I left there thinking that my child may never walk. It was terrifying! I too have an appointment for a scan with a specialist soon. I am told that often clubbed feet are an indication of other problems, like heart defects or chromosomal defects. I want to know to be prepared and have the appropriate doctors involved so that she can have the best level of care available. The other postings have been very helpful- definitely more than what the doctors have said. If any one has recommendations or words of encouragement, please feel free to e-mail me at
[email protected] 

Name: Kate | Date: Oct 22nd, 2008 2:04 AM
Cpac- You said you went to a doctor in Lubbock, Tx for your childs clubfoot. I am about to go there and would like some info about the doc. Please email me [email protected]

thanks 

Name: Christy | Date: Oct 24th, 2008 7:46 AM
They casted my baby at 6 days old she had casted for 30 weeks and still wears orthodics 

Name: Christina J | Date: Oct 24th, 2008 7:52 AM
I have 2 special needs children, the youngest was born with bilateral club feet (her paternal father also had this defect at birth) Even though I went to all my OB appointments, did the ultrasounds nobody ever noticed that she had club feet. And for about the first 30 minutes after I gave birth to her, still nobody noticed. I thank god for that time I shared with her at birth, 45*
I have 2 special needs children, the youngest was born with bilateral club feet (her paternal father also had this defect at birth) Even though I went to all my OB appointments, did the ultrasounds nobody ever noticed that she had club feet. And for about the first 30 minutes after I gave birth to her, still nobody noticed. I thank god for that time I shared with her at birth, I got lucky and the warming table was on the fritz, so she laid on my chest will they stitched me up. When they finally did take her to weigh her and take vitals, I will never forget the moment lifted her off of me, and I saw her legs. And the nurse said, "You know she was going to have club feet, right?" So be grateful you didn't find out like that. Enough about me though, Mady was casted at 6 days old, there seemed to be no other complications outside the club feet. Dr. Victoria Silas - She is an awesome (dry humored, but you gotta be to make babies cry, I guess) orthopedic surgeon, I believe she works out of 2 different locations, I am only familiar with the Mary Bridge Health Center/Tacoma location. on the severity of the club feet determines the number of weeks casted(Mady wore casts for 30 weeks), flexibility is also a large factor in determining when the casts will be removed and orthodics with a bar that holds the feet at an outward angle. Basically overextending their feet, heels in toes out, working towards flexing them outward at a 45 degree angle. Again depending on the severity, and flexibility of your son's feet, he may have to wear those shoes all the time, except when bathing (which can be a challenge) for 6 months to a year. Then it goes to just when they sleep, a few months of that appt with your orthopedic surgeon to determine progress and will tell you when to just put the shoes on at bedtime. 

Name: liana faircloth | Date: Oct 28th, 2008 4:54 PM
Dream,

I am going to tell you know do not except a doctor telling you that you baby will not walk. Do not let them tell you not to do anything until they get older. It is better for you to find a specialist and get it taken care of at a young age. Most of the time the unless at a good hospital that deals with it they do not do anything at the hospital. If you find a good specialist they will know what to do. I have a daughter will both feet clubed and she has had three surgarise so far but every week for the first mounth we had to change the case then once a month, it all depends on how bad the feet are and how fast they grow. It may also take time to find the perfect brace method for you child. The braces are a pain if they don't want to go on right and if they don't stay on enought the feet will start to curve in again, not good. I know it sucks to go through but the younger they go through it the more chance the will forget going through it. 

Name: amy | Date: Nov 5th, 2008 6:33 PM
i know what you are going to go through, because i have a normal 15 year old daughter and a son who will be a year old soon and he was born with no cartlige in his ankle and some of his toes are missing, too. 

Name: amy | Date: Nov 5th, 2008 6:36 PM
you can reach my email at [email protected] 

Name: jeena | Date: Dec 1st, 2008 6:27 AM
hi i am pregnant with twins both are them are boys one of my baby show in ultrasound that he has a club foot i am so sad and streesful i am going to get crazy help me what should i do
by the way i am 26 weeks pregnant 

Name: Mother of Clubbed feet | Date: Jan 8th, 2009 4:11 AM
I am here to tell you all that your first thoughts of having a child with clubbed feet are so much worse than what it needs to be. It really is no big deal...so he has casts on..so he wears funny shoes..if you can't handle those little minor things in life...maybe kids arent for you anyway. Life isn't perfect....you have to roll with the punches. 

Name: Deann | Date: Jan 15th, 2009 9:36 PM
HI , WOULD LOVE TO HEAR FROM ANYONE WHO HAS CLUB FEET AND DISLOCATED HIPS. MY DAUGHTER WHO IS NOW 3 WAS BORN WITH CLUB FEET AND DISLOCATED HIPS.SHE HAS BEEN CASTED 3 TIMES NOW .OUR PROBLEM IS WITH THE NIGHT BRACES. SHE GETS IN VERY WEIRD POSITIONS AT NIGHT AND IT TURNS HER RIGHT FOOT TOTALLY SIDEWAYS. HAS ANYBODY ELSE HAD THIS PROBLEM WITH THESE BRACES . WE ARE IN DESPERATE NEED FOR ANSWERS. DR. SAYS WEAR BRACES OR FEET WILL RELAPSE. THERAPISTS ARE CONCERNED ABOUT HIPS BEING AFFECTED FOR LIFE. PLEASE EMAIL ME IF ANY ANSWERS FOR US .GOD BLESS [email protected] 

Name: Deb | Date: Jan 23rd, 2009 12:52 AM
My son is now 2 1/2 years old and was born with 1 club foot he was in cast from 3 days old till about 3 months when he then had surgery and worn shoes (they had a bar across the middle) that held his foot in place. There is no stopping him now and you would never know that he had anything wrong with his foot as a baby unless you looked closely at the back of his foot. 

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