| Name: Sonny | Date: Apr 25th, 2010 5:45 AM |
| I was born with club feet. In the early 60's, DR's were still just learning how to deal with it. I had casts on until I was 2. I had surgery then and when I was 12, 18, and 28 yrs old. I am now 48. The most important thing to remember is it is not about you. My DR told my mom when I was a baby not to treat the child different and he will not be different. That was good advise. My mom and dad encouraged me to work just like they did my sisters. No matter how bad the pain was I was never cottled. I just found out a couple of years ago that they were upset and worried but they tried to never let me see it. Medicine and treatment has come a long way. The road will be bumpy and painful sometimes but now days bones can be straightened. ↑ |
| Name: Scott | Date: Apr 26th, 2010 5:53 PM |
| My strong recommendation is to find a pediatric orthopaedic surgeon now and inquire if he/she is trained in the Ponseti Method of correction. Do not have your baby treated any other way. It is 98% effective when done correctly...without major surgery. You may bond with the baby one or two weeks before the casts are started. ↑ |
| Name: ilovegirlstoes | Date: May 15th, 2010 11:21 PM |
| Name: matt | Date: Jun 8th, 2010 3:40 PM |
| what are some qualifications I can get if I have sever pain in my ankles ( I was born with bilateral club feet, and had surgery, im 20 now and the pain is un bare able ↑ |
| Name: Heather | Date: Jul 12th, 2010 3:59 PM |
Re: Dreams
I don't think clubfoot is a reason to ponder not having a child. I adopted a 1yr. old with severe clubfoot. He is now 4yrs. old and running with every other child. I really think parents need to stop trying to create this "perfect" child. Every child is already perfect. Instead of hoping for a child that has 10 toes and 10 fingers couples should really just thank God for the blessing of pregnancy. Life is a blessing. Clubfoot is very easy to treat. They will be casted and then wear braces for awhile but your child will never know what is going on at that age. They will be fine with it. We had an amazing doctor in the Orlando area and my son usually slept thru his castings. ↑ |
| Name: coltynsmommy | Date: Jul 16th, 2010 6:20 PM |
| i didnt know when i was pregnant that my son was going to be born with club feet, i learned about it when the doctor delivered him. I was taken by surprise, my father in law found a really great site for club feet and i have come across some sites myself. here is one www.clubfeetclub.org good luck, i know how you feel my son is 3 weeks old and just got his casts done today.. ↑ |
| Name: fernando | Date: Jul 30th, 2010 10:46 PM |
| Name: cindy | Date: Aug 9th, 2010 2:35 AM |
| my son has club foot on is his right foot and when I take his brace off he just gets so happy how many times a day is it safe to take off and how long. ↑ |
| Name: susan | Date: Aug 12th, 2010 2:16 AM |
| im 24 and my baby boy is 7 weeks old, when i was 20 weeks pregnant we found out he was gonna have clubbed feet and spina bifida, down syndrome,and it was so scary no mother ever wants to here those things, we all want healthy babys with no problems.. when my son was born there was no spina bifida,no down, just clubbed feet, and alittle bit of the clubbed hands,,, it sucked to see him like that but there is worse out there... i blamed myself for this, i still some what do,, even though i had nothing to do with it, its something that runs in the family my grandpa, brothers, and a couple of uncles hand it.., so i knew that it could happen... my son is now on his 7th week of casting and it sucks to see him like that and have to go threw it but there young they will never remember, he has surgery next week to extend his tenions in his heels, it will be scary but god will be with him... i know.... after surgery 3 more weeks of cast then special shoes for possible 3 yrs, as far has his hands... we have splint changes every week and therpy onces a week as well... then when he is 20lbs botoxs in his hands to loosen the tightness in his tenions, that will only happens 2 to 3 times all together, but its better than tenions surgery on every one of his fingers... ↑ |
| Name: susan | Date: Aug 12th, 2010 2:23 AM |
| if anyone is from michigan the best orthopedic doctor is at the University of Michigan her name is frances farley.... she is so nice, and loves kids, and she gives great results, she gets to know her patients and she doesnt forget anything.. she is and has been our savor with my little boy... ↑ |
| Name: Reann Jenkins | Date: Aug 25th, 2010 4:11 PM |
| If you are excpecting a baby with clubfeet or have clubfeet or it's relaps try dr Steve mannion at Blackpool hospital , it's taken us neally 4 year to correct my little girls feet she as spina bifida aswell, in 2 week her feet are done she needed a tendon cut and nerve transfere but it will stop her foot turnin back because she as spina bifida they also did castings , he also as a charity called feet first , my little girl as straight feet now she's in pink cast for 6 week then afos will be fitted , [email protected] pls feel free to email for anymore ↑ |
| Name: Reann Jenkins | Date: Aug 25th, 2010 4:13 PM |
| Clubfeet try dr Steve mannion he helps children and adults with clubfeet !!!! ↑ |
| Name: JAY MAIWURM | Date: Sep 5th, 2010 2:54 AM |
| MY DAUGHTER OLIVIA WAS BORN WITH CLUBBED FEET MORE THAN 180 DEGREES. THEY DID SURGERY ON HER (DR. WEINER) AKRON CHILDENS HOSPITAL IN AKRON OHIO. THEY BROKE HER ANKLES AND RE-ROUTED HER TENDIONS AT 6 MONTHS, SHE THEN HAD TO WHERE LEG CASTS FOR 6 WEEKS, AND THEN LEG BRACES FOR 2 MONTHS. SHE IS 4 YEARS OLD AND RUNS JUMPS AND PLAYS WITH NO LIMITATIONS. YOU WOULDNT EVEN KNOW THERE WAS ANYTHING EVER WRONG. I DONT KNOW WHERE YOU LIVE BUT DR. WEINER OF AKRON CHILDRENS HOSPITAL IS ONE OF THE BEST IN THE COUNTRY FOR CLUBBED FEET IT IS HIS SPECIALITY. ↑ |
| Name: leman | Date: Sep 15th, 2010 2:12 PM |
| At 22weeks it a boy doctor told me than another ultrasound28weeks than dr told me it girl what is correct ↑ |
| Name: Omdraea | Date: Sep 28th, 2010 4:15 AM |
| Same here 17 wks and they noticed a bent foot. Instead of calling it club feet, there talking about trisomy 18. No other problem was found for them to believe it that i know of, but as im reading all the post, I havent heard anyone say they where unsure it was just club foot, that they had test done or they were told it could be trisomy instead of a something less stressful like club feet. Has anyone here gone thru the same shock and worrie that the bent foot could be something more extreme??? Im only 27 so i shouldnt be in high risk and if it is trisomy18 its just a bad egg. I do feel for anyone who is a little worried, because with my odds being bad and one being fixable, Im still worried just the same of both. ↑ |
| Name: Blair | Date: Oct 6th, 2010 7:20 PM |
| We were so worried that there was something else wrong. I had all of the necessary tests done to rule out anything. Thankfully, everything else was fine. Just the feet. We did the surgeries starting at 6 months old. He had one surgery per foot, done a week apart from each other. He was then in casts for about 8 weeks after that, maybe…. It is hard to remember the details. They would take the cast off every 2 weeks. The doctors were basically casting the feet to point as outward as possible. After the casts were done, he wore shoes with a bar in the middle for a little while but just at night. He began to crawl and then walking was shortly after that. He has not stopped since. Running is his favorite thing to do. And he can do it perfectly fine….just like any other child. One funny thing that my husband and I used to joke about, because every laugh counts when you are worried out of your mind, was it sure is easy to change a club foot baby’s diaper. Seeing that our son had both feet clubbed, it is like a handle that you just pick up with one hand and slid the diaper under with the other. I hope this helps. Everything will be fine. It is hard while it is happening but trust me, it will be over before you know it. If anything, my advice to you is not to get too caught up in the next doctor’s appt. I have a hard time remembering the things I want to remember, like the first time he did certain things. I was too concerned with when the next appt was or the next casting, the next step to fixing it all. ↑ |
| Name: Brittney | Date: Oct 13th, 2010 5:32 AM |
| I have a son who will be 2 Dec 15th and he was born with club feet. His were pretty severe, it is hard for me to talk about because it brings me back to seeing his little legs in those uncomfortable cast and braces. My husband and I are going to be trying for another baby soon and I was wondering what the chances were that the second baby would be born with club feet? ↑ |
| Name: shy | Date: Oct 14th, 2010 7:29 PM |
| i had club feet but now i can play and run ↑ |
| Name: Max M. | Date: Oct 18th, 2010 12:16 PM |
| I was born with club feet and i'm not going to lie its a hard thing to deal with but there are pleny of great doctors that can help you out with the condition. ↑ |
| Name: Katie | Date: Nov 9th, 2010 3:27 PM |
| Mt 20 week ultrasound sowed my child has one club foot. I hear the Ponseti method has great results, of course varying degrees of success depending on whether the foot is rigid or maeable. I wonder if that rigidity can be determined prior to birth/ and I am now very paranoid about possible neurological diorders like spina bifida or Cereral palsy. I keep crying and stressing. I almost wish I did not know until the baby was born. I am sure all my stress is bad for my poor little fetus. I pray the club foot is his only problem. ↑ |
| Name: Michelle | Date: Nov 19th, 2010 2:00 AM |
| I know that it all seems so hard now, but trust me based on person exsperiance the disability makes the person stronger. It makes them more likely to be self confident. In school they might be made fun of for being different but you need to remind them when they come crying home that their words dont change you. Words are a challenge you just have to prove them wrong. If they say you cant run as fast you have to show them up in your own way; I found music I've won many solo contest, but on the other hand I had to quit volleyball due to doctors orders. ↑ |
| Name: Stephanie | Date: Nov 24th, 2010 11:05 PM |
| How couLd a baby grow into a club foot, He almost five mths old ,my baby boy feet is starting to deform outward look like it's broke, how could this be ↑ |
| Name: Stephi | Date: Dec 17th, 2010 4:31 PM |
| I have a 2 year old that was born with severe bilateral clubbed feet. hes had a few sugeries and has had to go through the casting process twice. if you are just finding out about your baby having clubbed feet i would look into shriners hospital and see if theres one near you. its the best place in the world and the doctors love helping the kids. its also, in case you didnt know, a donational hospital, so at first i was skeptical. but as soon as i met the doctors i knew it was right for us. the hardest part are the first two castings and then surgery but other wise its not THAT bad compared to all the other scary things you can be born with. my problem now is that my 2 year old is being recasted for four weeks and i have no idea what to expect! ↑ |
| Name: Afton | Date: Dec 29th, 2010 3:16 AM |
Iam now 22 yrs and when i was born i had serverly clubbed feet. My doctor said that it was one of the worst cases they have ever seen. It was not just one of my feet but both of them. I have been lucky enough as of today to have only had 7 surgerys to get my feet as close to perfect as they probally will ever be. When i was younger before and going to school i didnt think i would be like the other students and be able to do anything. Once I hit middle school that all changed and I told my self that just becuase i was born with a disability I would not let that ruin my life. I then did track doing both long jump and 100 meter dash. I felt amazing because I was able to do anything my friends and fellow classmates could do. I was so happy, better yet when i was around 11 i decided that I wanted to try gymnastics and what do you know I was a natural! again just because I was born with a disabilitly I have never let that stand in my way. If I ever once would have let my disibility stand in my way im pretty sure i would have never tried half of the things I did when I was
younger. I have gone through alot in school from beeing called names because of my feet to just being made fun of. There is never a day that i dont wish i could have been normal or just like a typical person with "normal" feet. I can say that after all the surgeries i have had and all that i have put up with over the years, having this disability has deffinatly made me a stronger person. I was lucky to have had my last surgery because my doctor told me that if i didnt have that last surgery i would have never been walking today... but again i feel like my disablity has made me a lot stronger and i feel like i could do anything now because of it! Im so glad to have found this website because i can sit and talk to others who are dealing with it and who have delt with it. ↑ |
| Name: vine | Date: Jan 20th, 2011 1:03 AM |
| Hello Dream, I have a 4 year old daughter the was born with clubbed feet, yes it seems crazy and was at times but don't worry. It was really hard at first but when you see your child getting better it will not regret what he had to go through. the best thing you can do is not to let a doctor tell you anything, they know nothing unless they specialize in it. I had one tell me my daughter may not walk but he know nothing of the possibilities. If a doctor tell you to wait until they get older to wait until he is one for surgery or older I would be worried just a little because the older a child get the stiffer harder they get an they are not as easy to deal with. The best surgery was when I get to TX, great job they did. They may have to reconstructed his feet but it will be the best thing for him if that is what he will need but now she runs, jump, climbs the step and dances around like she was never born. ↑ |
| Name: Jen | Date: Feb 3rd, 2011 2:50 AM |
| I am now 33 years old & was born with bilateral clubbed feet. I had 3 surgeries before the age of 5. I also had casts, braces and corrective shoes. I dont have any problems now except poor circulation when i run my feet go numb and my toes are starting to curl under again. When i was small i do remember the pain after surgery but now as an adult I have no pain and no one can tell i was born this this problem. ↑ |
| Name: kelly | Date: Feb 9th, 2011 4:09 PM |
| hi my lil girl got bilaterial clubfeet meaning both feet !we found out 5 weeks ago all tests came bk clear but theres still things u wana know like can she wear sleepsuits or will her feet b ok wen shes older can any1 help?thanks ↑ |
| Name: kelly | Date: Feb 9th, 2011 4:14 PM |
| this is my second child n ill love her no matter what was a big shock wen i found out bout her feet but sn got ova that!just nice to talk 2 others who have bn or goin through the same.just cnt wait 2 meet her now ↑ |
| Name: Keyera | Date: Feb 25th, 2011 1:28 AM |
| Hey , I am a child born with bilateral club feet. I am 19 years old and has only had to have one surgery in life. I am very grateful . I am doing a speech to inform my peers about bilateral club feet and one of the requirement is to interview someone , it can be on the phone , in person or online . to contact me email [email protected] ↑ |
| Name: lover | Date: Feb 28th, 2011 12:53 AM |
| Name: Finn | Date: Mar 23rd, 2011 5:27 PM |
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