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Name: Masons Mom
[ Original Post ]
My son is now 6 years old, and has just recently received a diagnosis of ADHD, encpholopathy, and an anxiety disorder. We have seen what feels like a million doctors, and they have all had different opinions, and they always refer us other places. He has two half siblings who have Autism, and this is definetly something I suspect. He does not meet all of the criteria for Aspergers, so they won't diagnosis, even though many dr.'s have suspected also. I have been fighting the school system. Last year they said he was "a perfect child", even though I have saved all e-mails notes and write ups that state otherwise. Last school year they acted as though I was crazy, and it was all me, even though he was sent to the principals office weekly, and the after school program was trying to kick him out. They said that it is normal to send a child to a seperate room when they can not stay on task, and did not see an issue with doing this regularly. When they did there evaluation, they blamed the behaviors on a movie that my son had watched three months before. Then this year, the new school was takeing the advice of the old school, I guess beliveing that I am crazy, and said that they couldn't provide services for him. I had to send an e-mail to the director of the school system to get anything done. That and of course, since my son started first grade, he has been completly out of control. Now the new school is starting to realize that I am not crazy, and doesn't understand and said that "there is no way possible that the kindergarten did't see any of this." I am glad that someone is finally believing me, but why do I have to fight so hard, I just want help for him!!!! If the school last year would have done what they were supposed to, he wouldn't be haveing these problems this year already. (they just started school last week and he has had to have some with him all day to help) He has also had to be removed from the class several times and taken to their "safe place", because his fits have been so severe. They did install a motion sensor at the before and after school care that sounds when people enter and leave because he likes to run off. I just feel like i have done everything that has been asked of me, and still keep hitting roadblocks. He is such a sweet boy, he just needs some extra help. I hate that he is veiwed as a bad child!!! Has anyone else had this problem???
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Name: question | Date: Aug 23rd, 2006 2:21 PM
For 18 months I had a 6 year old little boy living in my home with most of the same dx and then some.I saw this kind of behavior daily for the entire 18 months he was here. Yes,EVERONE thinks we are the crazy ones and not the child,I had people such as OTs,PTs,and lots of other parents say I was just expecting too much out of him or that he was a good kid but I didn't know how to deal with him.I even had one parent tell me that he was totally normal and that he acted just like her kids.....But he did not because I never saw anyone elses kids choking a baby or screaming for 5 hours straight.I am a young single parent and with this little boy I had pretty much no support so it was VERY difficult and when I was asked if I wanted to go through with adoption I couldn't even think about it because of the way I had bee treated for the past 1 1/2 years when all I was trying to do was my very best and and what was best for him.Last school year I homeschooled him because I know he never would have made it in a public school.If you need any help or advice please feel free to ask.I have worked with disabled children for the past 5 years and have a special needs daughter of my own. 

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