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Name: Lori
[ Original Post ]
I have a 4 year old son with Klinefelter Syndrome and would like to connect with other moms who are dealing with this.
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Name: Reiligha | Date: Nov 3rd, 2005 4:30 PM
I am a student doing research on Klinefelters syndrome. 

Name: sarah | Date: Nov 18th, 2005 9:33 PM
Hi tori, I have a 14 year old son with ks. He is loving but is prone to tantrums and has learning difficulties. I am struggling to get any understanding or help from the health professionals ( in england) 

Name: Lynn | Date: Feb 21st, 2006 12:57 AM
Hi Tori ... we have three children. The oldest, our son, was just diagnosed in October with KS. He just turned 17 this January 06. The diagnosis came from a sports physical. We are just learning about KS. Up to this point he has not really exhibited some of the "characteristics" of KS ... delayed speech, low IQ, etc. He is tall (6' 2"), but so is his father. He has been a delightful child -- always well behaved, etc. . We are just beginning on this journey. He is seeing a pediatric endocrinologist (sp?) and just started receiving testosterone therapy. 

Name: Stephanie | Date: Feb 26th, 2006 5:33 PM
I am pregnant and due in April. I had an amnio which tells us that this son has XXY KS. I have been researching an got some info about starting testostoerone therapy after the baby is born. Apparently the body releases testosterone when a boy is a baby and throughout his life. Therefore, you must find a dr. who is willing to give these shots b/c it is a fairly new concept. I have found one and cannot wait to go see him, when the baby is 2 weeks old. Good luck. 

Name: JCN | Date: Mar 16th, 2006 2:13 AM
I have known about having xxy/ks for 35 yrs. and I am now 60 yrs. old 

Name: ryko | Date: Mar 20th, 2006 11:14 PM
hy 


Name: leslie | Date: Jan 19th, 2012 12:39 AM
im 45 hes 47 with klinefelters, were looking for a married or single couple that is going through the same as us, I would like to chat with the wife or girlfriend to exchange concerns and feelings. looking for a couple to chat with. 

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