Just found the site. I have an 8 year old son. Was blessedly normal and average until he was a year old. Started haveing grand mal seizures with resp. arrest. Up to 28 seizures/day Full code at 15 months. Child we got back not the same. Developmentally about 3 years old now, still has seizure disorder (well controlled) hypotonia, ataxia, dyspraxia, pica Absolutely no safety/danger awareness, decreased pain sensation, no impulse control. Extremely loving!!
Like dealing with an out of control 2 year old in a 9 year old body. He is 89 pounds and getting a little difficult to handle. I work full time/husband works full time opposite shifts. Also have 11 year old that always seems to get the short end of the stick. Too hard to take little one to others homes, and can't reallyt sit & have a conversation at my house either. We are alone. ↓
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