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Name: Jennifer
[ Original Post ]
I have a 3-year-old with cerebral palsy, right heme. Her rehab therapist wants us to do heel cord lenghtening surgery and made an appointment with the orth doc. I find this strange since her heel isn't lifting and we've done casting once with great results. Does anyone have any input?
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Name: Tina | Date: Jan 23rd, 2006 12:41 AM
I have a son, now 9, with right spastic hemeplegia CP. We have serial casted him 3 times. Worked great until he kept sprouting. Kid won't quit growing! It was hard to keep him stretched, although after the last casting we placed him in a hinged brace that really helped keep his foot stretched. We are now scheduling him for heel cord surgery due to extreme pronation in his ankle. We are worried it could deform his bones. I would be be cautious of doing the surgery if the serial casting is working, however, just be sure to do your homework, and ask your doc to give you references of other kids they have done the surgery on with a similar problem as your child, and speak to the parents. They'll give you the straight answers of what to expect. Good luck, I know exactly where you're at. 

Name: Cass | Date: Apr 3rd, 2006 12:07 AM
I have a 5yo girl and our ortho at Loyola in Chicago says do not lengthen until 8-9 or you have a higher chance of doing it again. We have casted w/ and w/o botox. It is doing good. Hope it helps 

Name: kye | Date: Apr 19th, 2006 5:34 PM
hello,
how are you doing there,please mail me back i will help you out [email protected] will be expecting you mail.

cheers 

Name: opiesmoki | Date: Apr 27th, 2006 4:21 PM
My 8 year old daughter was born with spina bifida and has had numerous heel cord lengthening due to club foot, orthopedic docs, tried numerous afo's to fix this before the surgery, try and get a second opinion before going through with anything. Sometimes doctors like to use our children as guniea pigs, hold your ground, you in the end make the decisions. 

Name: Jennifer | Date: Apr 29th, 2006 1:32 PM
Cass - I also have a 5 year old daughter with CP. She was diagonsed with spastic diplegia at age 2 and has been wearing afo's since. I am taking her next week to see if she would benefit from botox and casting. Any information or advice you can give me would be really helpful. 

Name: Carol | Date: May 27th, 2006 12:31 AM
Jennifer, I have a 9 yr old with the same type of CP. My daughter has also had botox, AFO splints, casting and lots of PT. Sometimes it is necessary for a child to have this surgery, but my input is to have the ortho doc look at your child and then get a 2nd opinion. Once the muscle is cut for lengthening, it usually loses strength for good. At least that is what has been told to us by docs and therapists. There is another type of surgery called SDR. I'd look that up and see what your doctors suggest. Remember the most important thing to know is that you are your child's best advocate - ask questions and lots of them until you are confident of the decision being made. Good luck. Carol 


Name: lisa | Date: Sep 21st, 2007 9:10 PM
Hi I also have a three yr old and my doc told me to do the same thing after trying a number of braces and botox and casting nothing helps so if anyone has had this please e-mail me at [email protected] 

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