| Name: Jenny | Date: Oct 29th, 2009 9:00 PM |
| i am also 15 and have mild cerebral palsy, i wore foot braces for most of my childhood and now just need to wear insoles, i cant walk or run anywhere near as fast as my friends and struggle in P.E. it is much better to just get your daughter to tell people that she has the condition, hopefully they will understand. you can live a normal life with mild cerebral palsy. i do. ↑ |
| Name: Gemma | Date: Nov 7th, 2009 4:57 PM |
Hi Crackers
I haven't had any experiences with a child who has mild cerebral palsy, But i can tell you I have been teased all though my high school and it hurt (I have mild cerebral palsy) i was statemented for 5yrs (had extra help in the classroom) at high school, I told my helper about the teasing and she organised for someone who knew about Cerebral Palsy to come in and talk to the pupils, i know u will probabily say it'll won't work, but it will for some of them (they only tease because they don't know what cerebral palsy is) when it's explained to them by someone who knows then more than likely they say sorry (i've just had my ten yr reunion at school and alot of the people that bullied me came up to me and said they were sorry and that they acted like a jerk as they didn't know any better) most of the bulling is peer pressure. My cerebral palsy is hardly noticable when i say to people i've got in they say they never knew. Please tell your daughter i know the pain she;s in as i've been in it myself but it gets better, talking to a teacher she gets alongs with helps. Don't give up your doin great, just continue to be there for you daughter.
I'm 28, Married and a mother of 2, if i can do it
your daughter can do
We can do anything when we put our minds to it.
from Gemma xx ↑ |
| Name: d | Date: Nov 29th, 2009 4:55 PM |
| I have a mild case of cerebral palsy. Cognativly i am ok. i struggle with tightness in my hamstrings, balance and coordination. It takes me a lot longer to learn things and get my body to perform the action. From my family stand point, they dont feel that i have cp because due therapy, i have been able to lead a normal life. I have a college degree and live on my own with no assistance. Yet i still have struggles, i just dont talk about them ↑ |
| Name: d | Date: Nov 29th, 2009 5:04 PM |
| When i first replied i hadnt read the full post. I too was teased growing up, it wasnt until i got strong enough and accepted the disease did the teasing stop. I had to tell those people off, after that happen they left me alone. I believe people tease others to make themselves feel better, tell your daughter to be strong, my mom was there for me growing up thats what made me stronger. I dont think i would have made it this far without her. CP is hard and having a mild case most people expect u to me normal. She can make it, im grateful i have a brain and have been able to use it because most kids with CP cant. I Hope this will bring her words of encouragement ↑ |
| Name: josh | Date: Dec 4th, 2009 2:12 AM |
| hi im 16 and i want 2 play wrestiling for my high school but i have a a slight case of CP can i still play ↑ |
| Name: josh | Date: Dec 4th, 2009 3:29 PM |
| hey again well my mom told me that i have a slight case of cerebral palsy and that i cant play any contact sport but i looked up the signs of cerebral palsy and i dont have any of them the limp the problem talking or any of the other ones but as a baby i did have seizures but when i waz born my lungs collapsed is that a reason y i have CP ↑ |
| Name: Tanner Wiley | Date: Dec 11th, 2009 2:44 AM |
| Hi my name is tanner wiley i;m 17 Male from British Columbia Canada, Looking to talk with other people with cp i;m in a wheelchair and only have use of my left hand , my interests are my utv ranger we just bought and hunting and fishing with my father who is a proffessional fish guide in Prince Rupert BC where i live, tanner ↑ |
| Name: Tanner Wiley | Date: Dec 11th, 2009 3:03 AM |
| My name is tanner wiley i live in British Columbia Canada i;m 17 years old and am looking for other people to chat with cp i;m affected on my right side i;m confined to wheelchair and can only use my left hand, my interests are my utv ranger and hunting and fishing with my family because my dad is a fish guide in Prince Rupert , BC ↑ |
| Name: caitlin | Date: Dec 13th, 2009 12:54 AM |
| Hey I am 14 years old and I have mild cereable palsy I limp when I walk and I can not tie my shoes or ride a bike. I have bad balence and bad eyes dew to the C.P. I am written out of jim because I get picked on so bad in school. To normal people it is not noticeable but to the kids at school it is very noticeable. I get spasms in my leg sometimes when I get tired. well there it is if you want to talk my E-mail is [email protected] ↑ |
| Name: Tanner | Date: Dec 14th, 2009 3:50 AM |
| Hi Caitlin, sorry to hear that people are so cruel. Do you have a Child Care Worker with you at school? ↑ |
| Name: Late Again | Date: Dec 15th, 2009 8:30 AM |
Dear Crackers
You posted your note more than a year ago so perhaps you won't read this!
My daughter is 7 and has mild cerebral palsy which with physio and speech therapy is well under control in terms of what we all expect of her as a normal 7 year old. But I know that she puts in so much more effort than other kids just to do things that they can do automatically. And she knows nothing else but that effort. This is what makes my heart breaks sometimes. How she tries so hard all the time. On the other hand her strength and determination leave me awestruck much of the time!
So I completely understand your feelings which I can see don't go away as your child gets older. Only the challenges change with time.
Best regards ↑ |
| Name: Caitlin | Date: Dec 15th, 2009 3:14 PM |
| my name is Caitlin and i am 14 years old. when I was a baby i was told I had mild c.P. What is amazing is this sounds exactly like me. My mother could have written it. i am in the 8th grade. I walk slower than everyone I am always tired when i run witch I do not know if that is a problem or not for you. I walk with a limp but I am have issues with my left side. i do not play sports because I do not want people to see.i myself can not tie my shows ride a bike or roller scate. i have poor balence so I do not play kickball but I love basketball.i know how you feel I know of no one like me. i only have My cousin Krystal but she lives so far away that it is hard. ↑ |
| Name: caitlin | Date: Dec 15th, 2009 3:17 PM |
| I am 14 and have the same thing as your daughter. The things you are saying I could have written. If you ever need to talk just E-mail me [email protected] ↑ |
| Name: Amanda | Date: Jan 7th, 2010 7:26 PM |
| Yes my daughter was just dignosed with mild cp.She wallks on her toes because she can;t walk on her heal and she 's slow in other areas.It took me almost a year and a half to find out what was going on.But know she has a geoup of doctors that are really great.If you need to talk to someone let me know. ↑ |
| Name: marina | Date: Jan 8th, 2010 12:50 AM |
| My daughter is 3yr and is too diagnosed with mild CP, Hemi Paresis. She uses a kaye walker and manuevers it well but is in therapy to strengthen her trunk. We have been told that she will eventually walk but we don't know when. I am home full time to work with her, she has a made a lot of progress. My daughter's balance is poor too, she can stand for almost 1 minute, I'm so happy because a year ago she couldn't do this! ↑ |
| Name: adaloves | Date: Jan 13th, 2010 7:12 AM |
| my son is 3 and has cp. it's mild, he walks normally and cognitively is doing great. however he doesnt speak and drools quite a bit. if you ever need someone to talk to, dont hesitate. ↑ |
| Name: Payal Sharma | Date: Jan 20th, 2010 7:20 PM |
Hello there,
I have a 3 yr old daughter who has a mild C.P and she too is like ur daughter.she is smart, intellegent and has a weak left side.she has to wear a brace in order not to trip...she will be starting school this Sept so I am anxious, although she is doing gr8 in playschool....i always encourage her no matter what.....i do sometimes get the stares ans the tip toe comments but I am so proud of her every day achievements that I make sure she knows abt them.... ↑ |
| Name: Anthony | Date: Jan 21st, 2010 4:37 AM |
| Jennie, I'm in my 20's and when I was in that age group I was like everyone else. One thing I would have done more was hang out more with people my age with or with out CP to make me feel better. Make sure she get a lot of exersice in an early age. I also would have been nice for me to also interact with people like me. Don't try to hid her disablity from her. Try to combine both sides of her and your worlds ↑ |
| Name: Anthony | Date: Jan 23rd, 2010 2:08 AM |
| I am just like your daughter. I find that if I work both side of my body the same it makes my right side better. When I was 15 I tried to do the same thing but sometimes it didn't work. I was teased multiple times durning high school. By the time I was a jounour no body realy wanted to tease me. As long as she knows someone cares it may be better. I am now 22 and reliase being disabled is not as bad as I thought it was. It only gets better with time. ↑ |
| Name: nimo | Date: Feb 8th, 2010 11:15 PM |
| yes i can relate to your frusration i do have son with mild cp just like your daughter, his five now, sometimes i think about if my child will have normal life or not,i really wanna get to know you and your daughter get some advise from you, pls email me at [email protected] ↑ |
| Name: kim davis | Date: Feb 10th, 2010 6:03 PM |
I am very saddened by all of your stories. I am a 48 yr old who has been gifted by the grace of my boy friends daughter who is 13 with mild CP.
She goes to a public school also. She does have a hard time making friends. She has other difficulties as well.I am wondering if we should put her in a special school because it might not be as stressful because she wont be the only child with a handy cap?? She does worry about the kids at school,Shes not as interested in school as much,Depressed all the time.I just need a lil advice.Thanks for all your stories,They helped both of us understand this disability.
Kim Davis ↑ |
| Name: Tanya | Date: Feb 16th, 2010 12:27 PM |
| I have a beautiful 5 year old daughter who was dianosed with spastic diplegia when she was 10 months old. Her left side is worse than her right side, she has poor balance and a weak trunk. She wears AFO's on both legs and goes for therapy in a heated pool twice a week. She walks with a limp and tends to drag her feet, her legs also turn in quite a bit. She has just started prep school and the teacher explained her condition to the class on her first day to try and minimize the questions. She is in a girls only school and do get questions such as "why do you walk funny" or "why do you fall so much" or kids tend to not want to play with her because physically she can't keep up. I cannot decribe the heartbreak that I have endured, all the worrying about the future and all I want to do is protect her from the big bad world. She is very strong willed and determined, which helps her do things she struggles with. All I can do is take each day at a time and deal with each challenge as it comes. She has given us such joy and have made us so proud, I would not change it for the world. I am at the point now where I am not sure how to answer her questions, am so scared of damaging her self-esteem, yet I have to teach her how to fend for herself. I am also constantly worrying if I am doing everything for her that I possibly can. Are there any surgeries or treatment out there except phycical therapy that could improve her life? Please let me know if you know of any. Keep your chin up, you have to be strong for her. ↑ |
| Name: alexis | Date: Feb 19th, 2010 1:40 AM |
| Actually i can relate, I have CP and it is very mild as well. I have some of the same type of phsical limitations. Firstly I would encourage her to tell others about her CP show that their is a reason for her difficulties with time and her balance. As a parent you could encourage her in the things she can do individually to build a sense of herself , but also try to encourage her to help others as well. ↑ |
| Name: krystinakoleen | Date: Feb 20th, 2010 2:40 PM |
My son is only 2 years old, but when he was 3 months old I was told he was blind, he would never walk, never talk, never even crawl..he would be in a wheelchair his whole life and that was it....and this boy runs now!! I have a 2 and a 3 year old, both special needs, my three year old has a genetic disorder and my two year old has a genetic disorder called fragile x but he also has static enceohalopathy and CP....his cp is minimal at this point and it sounds a lot like your daughter. Its on his right side, and fine motor is one of the biggest problems...its very frustrating because the little things he learns to do are HUGE to me, because frankly he wasn't even supposed to crawl! And other people think I'm nuts because I'm excited my son can throw a fit, and jump up and down...But they don't see his problems as easily as I do, they don't see the hurdles he has over come, which means they expect him to be able to do the things that they other kids do, and he just can't.
Good luck with your daughter!! ↑ |
| Name: Shaylie | Date: Feb 25th, 2010 5:36 AM |
| No i dont have a child but im 14 and i have CP in my Arms and legs it mostly effects my legs im in high school some people dont notice it .but i use a laptop in class and there always asking why and i dont like it.. the reason i use a laptop (as you know) People with CP in their hands cant write that fast due to their muscles and its so hard ↑ |
| Name: kate | Date: Feb 26th, 2010 3:17 AM |
Hi, my name is Kate. I have a son that is 2 1/2 and he has just been diagnosed with cerebral palsy. He has been developmentally behind since he was born and I am desprate to chat with some other moms that are going/ have gone through what we are dealing with. Tagen(my son) was three weeks premature and has been doing therapy PT, OT, and Speech since he was about one. He is walking now, but he is very unbalanced. He is not talking yet, and he has some trouble swallowing liquids. I have just found a doctor that specializes in developmental delays that I really like, but I have really struggled with the way "society" treats things like cerebral palsy. I hate the word "normal". Tagen is a very special boy with a heart of gold, and I would not have him any other way. If you have any advice I would love to trade experiences.
kate
ps. I am a horrible typer! Please excuse all the horrible spelling! ↑ |
| Name: kate | Date: Feb 26th, 2010 4:55 PM |
| *tagen was 3 months premature ↑ |
| Name: Rich | Date: Mar 3rd, 2010 1:07 PM |
| I have cerebral palsy as well. I am 18 and can do nearly everything anyone else can do, because I have an extremely mold case of CP, except I cannot swim. My toes sometimes curl involuntarily while I walk, but other than that I am ok. I hope your daughter is accepted as normal in life, as I am. ↑ |
| Name: ellie | Date: Mar 4th, 2010 2:18 AM |
| I am 14 and have very mild C.P. I am an effortless straight A student who is top of my school and nobody outside of family knows I have C.P. I limp when I'm tired. I get yelled at because I struggle to touch type (I type with one hand). My PE teacher hates me because I don't try hard enough, even though I'm giving my all. Most of the time i forget I have it, i'm encouraged to never use it as an excuse. My peers just think I'm very unco and that I limp from a sports injury. Of course my C.P is very mild. ↑ |
| Name: Amanda | Date: Mar 8th, 2010 10:21 PM |
| Hey, I know I can be no help to you, with the exception of telling you that they are about to diagnose my 5 mth old with mild CP. I have these fears, but before I was a parent, I was a teacher, so I am lucky to have friends in education. Including one who is a Speacial Ed teacher in Middle School. She was telling me about a boy in her school with mild CP. I hope that just knowing that others exsist helps ↑ |
| Name: Parker | Date: Mar 11th, 2010 2:30 AM |
| I am 15 years old i have a mild case of cerebal palsy. Mine is on my left side though. I play all sports and once i told my friends about my cp they accepted me perfectly into their group. i have self taught myself into almost everthing normal children do with two hands. just tell them what you have! who cares what they will think. When somebody notices and says "what's wrong with your arm? " I say nothing I have a mild case of CP. their reply is "oh" and we move on! its that simple. Never doubt yourself. ↑ |
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