Hello I am here and I can definitely relate... ↑ |
hello Huni! I am here for you , I can relate to your problem. xxxx ↑ |
Hello- We have a 23 year old son with developmental disabilities who has just been placed in a group home. He lived home with us until two weeks ago. Our life tends to be different from most families; not better or worse--just different.
I'd be happy to continue communications with you and help you in any way I can. Sometimes it's easier to talk to someone who's "been there". No one understands like we do! ↑ |
Foreveryoung- So how did you cope? Our daughter is 9 month old and I think that I am in denile. She has severe pvl no other diagnosis yet. I know that thinkgs will be differen but I think that if I just work with her enough that everything will be okay, I know that isn;t going to be true. It breaks my heart that she may never run around with the other kids. No one seems to understand- she fusses alot and everyone says that I should let her cry it out - it doesn't work that way with sesory problems.
What does your son have? How did you come to the conclution to put him a group home? Was it hard? ↑ |
My son has multiple diagnoses. His primary diagnosis is CP. He will be 14 years old in two months. He is legally blind, eats with a G-tube, and is a spastic quadriplegic (he does have a couple of other diagnoses, but those will do for now). Yet, I tell everyone that he is happy. I have developed a saying I tell people, “Men just think women are in this world to serve them, my son knows they are”. It took me along time to cope with my son’s disabilities, but I came to realize that if I was to be of any real benefit for my son, I had to come to grips with what I had to work with and find ways to work with his disabilities. Grieving for what could have been for my son didn’t make things better for him. My coming to realize that he was a human being with limited abilities did. I began to work with my son on his level. My son had sensitivity problems his first few years, but after awhile he responded well to touching, hugging, and knowing that I, or someone was near him to care for him. It takes awhile for the parent to adjust, but with patience and love, you will begin to see that your child is still a child that will respond in ways you will recognize. My son can’t communicate at all. He can’t speak, he is legally blind, and he does not have enough control over his body movements to learn sign language. He is also developmentally delayed. There is know doubt in my mind that he knows who I am (he turns in my direction). Sometimes noises confuse him and I need to rub my face against his and give him his special ear kiss before he realizes it’s me. ↑ |