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Name: kimdaffeh
[ Original Post ]
i have a beutiful two year old daughter who has just been diagnosed with leukodystrophy akira was fine until she was 7 months old and then lost all her skills a few months later she lost her ability to feed and most of her vision, she has severe muscle spasms which are controllled my meds but she is very much like a newborn again but we never give up hope. she is starting a special school in january 08 so every step is a good thing
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Name: lindalu | Date: Jul 20th, 2007 2:36 PM
Yes Kimdaffen, every step is a good thing... not only for your daughter but for you as well. You will learn so much as your daughter grows and appreciate much more! Always remember you will be your daughters best advocate, no one will ever care for her as you do!
Best wishes hun! 

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