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Name: darlene
[ Original Post ]
Just seeing if someone else is dealing with a child with rhizomelic chondrdyspasia punctata. Not a mom but a gandmom. Still if anyone is out there or knows where there is an online shat support group, I would appreciate any info. I have been on the internet but must be looking in the wrong place, Haven't had much luck. Thanks Darlene
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Name: Mindy Cirner | Date: Apr 5th, 2008 9:25 PM
I am a mom of 2 RCDP kids Jake who is 5 and my little girl Jordyn who is 2
www.rhizokids.com 

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