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Name: Jessica
[ Original Post ]
My son Jailen is almost 3 and he has CP, seizures, hydrocephalus with a VP shunt, slit ventricle syndrome, he's beginning to lose sight in his left eye, and right now he has casts on both feet since recent botox injections. He eats pureed foods only and weighs only 22 lbs at 3 feet tall. We are waiting for his wheelchair to come in, it should be here in about 4 weeks. I'm a single mom and I also have a 7 month old girl. I've only begun to actually realize the severity of my sons conditions and I'm beginning to suffer from some anxiety and depression and at times I'm not really sure if I can handle much more. If there's anyone in the same situation, I could really use a friend. I'm 29 by the way. Thanks for listening.
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Name: sweetcaramalkiss | Date: Mar 6th, 2008 11:15 PM
Hello I am 28 years old and I have 3 children. My son anthony is my oldest and he has cp. He has cortical visual impairment and he can not walk or talk he is 100% dependent on me and also has a g-tube and weighs about 30lbs at 5 years old. I also have a 19 month old named Jayden and a 2 month old named Isaiah and believe me I know how hard it is. Love to chat sometime... 

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