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Name: parksmomof4
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Name: parksmomof4 | Date: Jul 25th, 2007 8:55 AM
niterider ~ PLEASE let me know how the new med. is working!! My son also does the hair swiping thing! Small world! :) My email is SJPARKS6@VERIZON.NET 

Name: mar22 | Date: Jul 28th, 2007 12:08 AM
gcn30, what do you do copy and paste the same message after a period of time? this is the exact message of a few months ago and quite frankly getting old. Obviously you havent done your research and only acting on assumptions. sounds to me like your a pot stirrer and love the reactions of people who may respond to your message. I would like to know why you feel this way? Do you have a personal experience that we should no about? where did you do your research? i want the facts and proof of what you are saying is true as you are saying so?so back your self up with the facts ill be waiting. 

Name: mom2nadhdson | Date: Mar 12th, 2008 12:20 PM
MY SON HAS TICS IM NOT SURE IF IT IS CAUSE OF THE MEDS HE HAS TAKEN OR IF IT COMES ALONG WITH ADHD , BUT I THINK IT IS CAUSED BY THE MED THOUGH....HE HAS FACIAL TICS EYES MOUTH NOSE , THEN HE HAS THIS THING GOIN ON WITH HIS FINGERS , 

Name: KathyK | Date: Mar 15th, 2008 6:37 PM
My son who is 6 has had tics for a while and I am convinced that it is from the medication. He is on Focalin 20mg in the morning and 10 mg after school. I have to take him to the doctor to get his meds changed but our appointment is not for a while now.
He has facial tics where he licks his lips alot and he talks constantly and fast and sometimes can't get his thoughts out and keeps repeating himself alot. He also has hand and finger movements that are making me crazy. I hate to see him like that and there is nothing I can do until I get his meds changed. 

Name: agold | Date: Mar 24th, 2008 12:00 PM
hi i am new here my two sons are just being seen by camhs they think my ten year old has adhd and tics and my older son who twelve has add . when diagnosed what help is there.do you think medication has helped/ can i claim dla any replys will help thanks 

Name: uluru | Date: Apr 22nd, 2008 6:58 AM
hi i keep telling people to chek my squidoo page, adhd "raising connor" it may give you more of an insight into these tics, it could be stress, or tourettes, i tried medication to no avail, my son now takes eye q, and weve seen a diffrence, hope this helps. 


Name: uluru | Date: Apr 22nd, 2008 7:06 AM
agold you can claim dla and carers allowance hun get what your entitled to, ok, email me if you need help with the forms,
uluru11@tiscali.co.uk or just a chat. 

Name: J's Mom | Date: Apr 28th, 2008 4:55 AM
Concerta 36mg now was increased over the last year from 27 mg. Now Tics started but I have no diagnosis yet. I was told by my family doctor might be an allergy, yet there is no red eyes or runny nose and Claritan for children 24 hr. did not make the involuntary eye movements disappear. It did make him less sleepy. I'm thinking that how good is Concerta if my child can not concentrate because of the tics it causes which also affects his social life and ability to ride a bike a straight line? Are we over medicating our children? 

Name: sam | Date: Apr 30th, 2008 10:36 PM
I am new at this,but I am nervous. My son will start Focalim tomorrow. amy Advice 

Name: CoastieWife | Date: May 7th, 2008 11:14 PM
My son is 5 yrs old with severe ADHD. He was first put on Focalin 5mg but that didnt work for him. It took a rollercoaster effect on him. One minute he was fine, the other minute he was angry and and yelling, from that he was crying and very depressed. I was so concerend about his mood swings that we switched his meds to Daytrana 10 mg. It worked WONDERS! He was on the patch for 2 1/2-3 weeks when I noticed him twitching his nose. I thought it was b/c he had a little cold and his nose was bothering him so I didnt think much. He got better but the "ticks" didnt go away. I immediately called his doc and took the patch off right away! His doc said our last option was Strattera. A non stimmulant which wouldnt make him twitch. So hes been on Strattera 10 mg for a week and today I just uped it to 18 mg. I dont really see this working yet, but he did say it took about 3 weeks or so for this to start working. The ticks have not gone away and I am very concerned! though the doc did said it would go away in a few weeks.... I pray that it does b/c a pier asked me today why he does that with his face! 

Name: karryn | Date: May 26th, 2008 9:54 PM
hi my son age 5 was in kinda, when he was assessed by a psychologist and seen by a peadiatrician and 2 other leading specialists in ADHD. As the diagnosis is difficult to accept and as he was so young I wanted to be sure it was ADHD and not developmental. Which it wasn't, I knew underneath as he was always angry, difiant impulsive and extremely active. He started on ritalin straight away, he's been on concerta for 7 months now. he has developed tics, biting nails and fingers, throat clearing and a constant dry cough. I have seen him calm down and focus and sit still at school, overall a great improvement but he won't eat and the tics have stayed. I never wanted him on medication but I thought there was no choice. I searched for alternative and found neurotherapy he attends 2-3 times a week, and has done for 3 months now. He can listen, process and communicate now, he thinks and can have conversations he can remember songs and recall things that happen at school and his tics have disappeared. He doesn't rebound at night an go hypo and manic anymore. There has been no trouble at school since, his teacher says he's a pleasure. After 32 sessions of neurotherapy I took him off concerta for a trial and saw his ADHD had improved but not enough to keep him off medication just yet. We will trial him again in another couple of months and hopefully the outcome will mean no medication for good this time. Neurotherapy really works but takes timeand patience. I saw hope for my son with neurotherapy as he has suffered the effects of ADHD for so long and as mothers we will do all we can for our kids. 

Name: TJ's Mom | Date: Jun 11th, 2008 12:45 PM
This is in response to Karryn. I have a 12 year old that we have been battling since he was in 1st grade. He has been diagnosed with ADHD since 2nd grade. They have also suggested OCD, OC and possible Tourette's. He jumps and bounces everywhere, picks his ears til they bleed, previously had eye and neck tics as well as clearing his throat. He has been on a variety of meds over time but the effectiveness continues to decline. Can you tell me more about neurotherapy? I've not had it suggested. We have seen pediatrician, neuropsychologist, pediatric pychiatrist and psychologist. Any suggestions would be great!! 

Name: karryn | Date: Jun 15th, 2008 9:14 AM
To Tj's mum, from Karryn. Neurotherapy or biofeedback as it is also called. Is a treatment for adhd, depression, migraines, pain management,drug addiction, epilepsy, learning disorders and numerous other things. Treatment can be between 10 -60 sessions depending on the severity, mostly covered by medicare which has been great as I'm a single mum. Firstly a tova test is done which is also called the clicking test, a computer test which measures how impulsive the child is. Then theres the brain map, the neurotherapist puts electrodes on the scalp and measures fast normal and slow brainwave activity via a computer screen. The results are given about a week later and a report is made by the neurotherapist. Then the sessions can start as the neurotherapist knows how to treat the hot spots or brainwaves that are to slow or to fast and train them to fall into the normal brainwave range. To train the brainwaves an electrode is placed on the spot on the scalp, electrical brainwave activity is measured via a computer and trained operator under the guidance of the neurotherapist. Then the brainwaves are sent back to the recipient through another computer in the form of a game. Then the brain recognises that these brainwaves aren't normal and the brain corrects itself through a reward system and using the senses of sight and sound. The process is non evasive, the electrode measures activity, nothing is fed into the brain, it is not unsafe, it can only make the brain function better. It is very calming and my son is very happy to go to neuro as he knows it's helped him heaps. My son's GP, paeditrician and psychologist hadn't heard of this either until I started, now they all want updates of his progress and totally support him. Neurotherapy has been around in Australia for 25yrs, it isn't mainstream therapy here yet, It,s a lot more well known in the USA. Check out the sites on the internet theres heaps. Sometimes you have to try something a little different ! I was pleasantly surprised after the first few sessions and my son was severe ADHD and oppositional and agro. We,re in Melbourne, where are you? 

Name: Renai | Date: Aug 7th, 2008 1:52 AM
This is to Karryn,
I have a little girl who is 9, she has been diagnosed with ADHD and ODD.She was prescribed Dex for 6 weeks and then introduced to Ritalin.Prior to Ritalin she had ticks like picking her nose and nails that seems to have stopped since meds.
I am writing this as I am very interested in neurotherapy, we are in Melbourne.Where is it and is it expensive. I looked at the dore program and they wanted $6ooo.
my email is renai@renoirpark.com. Please let me know where this is in Melbourne. Also I am looking for support groups in Melbourne area if you could let me know if you know of any .
I hope to hear from you.
Cheers Renai 

Name: eveland | Date: Sep 10th, 2008 6:19 AM
Hi just found this site and glad i did, I have 5 childern my second child is now 7 years old and has had tics since he was 17 months old, his tic was stiffening his facial mussells and catching his breath as he got older these tics got worse when we would go out shopping he would do his tics alot and people would stare at him because the faces he would make really didnt look normal he would also stiffen his whole body and clench his hands open and close whin he started school the teachers realised he had a learning problem. I have not given any medication to him as i know that some medication will make his tics worse and he allready does the tics alot and i dont want to make him any worse. Recently he has started making noises and clearing his troat which sounds horrible but i can only hope that this will not last long but so far there has been no signs of him stopping this the other thing i hace noticed with him is seems to be getting very upset about the smallest of things and crys very easy, this leads to him then getting very angry and you can see the anger and fustration in him. He is very loud in everything he does he just cant seem to be quiet in anything he does or says, which i hace to admit can get me down. Another child the third in the family also has a learning problem is also very loud and accident prone he has different behaviour problems than the second child but i also think that he has a mild form of tics as he seems to do alot of eye blinking but he seems to go through stages of this. My fourth child is a little girl of 3 and a half and has had tics since before she turned 2 again this is stiffening her body including her face and making song like noises she will be starting school shortly so only time will tell. So the moral of my story is medication did not cause tics in any of my childern as the ticks were there first before i realised that they had any other problems. What i am not convinced of is the mmr as my second child changed over night after he got that injection. the third child never got his mmr till he was nearly 2 and a half and my fourth child the wee girl got her mmr and she was about 19 months. I have a baby of 19 months that has not had the mmr yet because i am afraid that he will change i know it sounds daft but i cant get rid of the feeling that it adds to the problem of tics and adhd if anyone out there has the same worry let me know. 

Name: Angie-Mom of 4 | Date: Sep 24th, 2008 11:39 AM
I have been dealing with the "tic" issue too. My 5 yr old son has been on meds for 3 months now. We are now trying our 3rd medication, Vyvanse. My son has ADHD and his tics which were not very noticable before are very noticable when he is on the ADHD meds. He shruggs his shoulders all the time, none stop. He rubs his head and makes a smacking/clicking sound with his mounth. He was off meds for a week before starting the Vyvanse two days ago. The "tics" went away duing the week off meds. Now they are back. 

Name: julian | Date: May 22nd, 2009 10:23 PM
Hello Parents yes I am a child and i have ADHD and terrets. I am 11 years old and i have alot of tics that i cannot control. If yu know how to control it please call me at 561 891 4414 

Name: gumball | Date: Jul 11th, 2009 11:27 AM
i hear ya! sounds like your lad has assoisiated ocd condition,...but im no xpert,....adhd often has an assosiated condition right behind it thats brewing but not noticable until the child realizes consenquences from ca. age 9 and up,...b4 that age thoughts just come and go,..but when u have adhd the thoughts get stuck and wont move on, then overfocusing are the resaults,...the more u think the more u can think............my lad has adhd and low and behold at the age og 10 he started with the rituals of picking and voice sounds,.(cough/clearing of throught) and then he startded with the hand washing,...wouldnt toutch anything that was xposed by public ,...washed continueously,....i then brought him to the dr. and he had to receive cognetive therapy "xposure" i then asked him about the tics,...he said that it can b assosiated,...i notice it xpecially when my lad gets stressed or frustrated,...the tics get worse,...and my lad is not on medication, so u can ask your dr. if there could b an assosiated condition since what you have xperienced with your lad is a mirror image of mine,...my lad is diagnosed adhd/ocd. good luck and i wish the best for u and yours. 

Name: Dee | Date: Jul 16th, 2009 11:14 PM
My son was on Medadate and started getting ticks...it was so noticable that people would comment who didn't even know he was on medicine. As soon as we talked to his doctor, his rx was changed to Focalin and it has been so much better. I would try a different med. 

Name: Elizabeth | Date: Sep 24th, 2009 11:30 AM
My child has been on foclin now for 3 year. She is 9 and has trouble with tics as well. My child scratches her ears until they bleed and have scabs. She is constantly picking at her feet, arm, and hands as well. I don't know what to do about it either. I try to ignore the tics so she will not be contious, but it is hard because to me it seems like it would be easy to just stop but I know she can't. I don't have any real advice but to just keep truckin on!! 

Name: Haz | Date: Sep 29th, 2009 1:09 PM
My 8yr old son is on Ritalin. I feel we should not even put our kids on meds! what is normal acceptable behaviour? I m puzzled, when his out in d park or any outdoor play, his so fun loving, no one will notice or suspect he has ADHD. When he was in private school (18mth - 4yr old), school was a breeze. praises. 15 students per class, clustered into smaller group full of activities. When he started public school which is 28 student in a class, 'he comes home teling me school is boring, nothing to do. freq mischief and complaints. now still ace in class with medication, still with complaints, well at least his honest to admit and confides in me when he up to his mischief. Is he just being a boy? try reward chart system. i have yet to try the health supplement EFALEX. i heard is good and to use concurrent with meds, and when manageable, can be off d meds... anyone tried it? 

Name: itsagift | Date: Oct 4th, 2009 1:39 PM
Hello, as a individual with adhd/add I have been doing some intense research into the "disorder" and one of the areas im working on is understanding the "tics" most of them are sensory stimuation i have found thus far, things like playing with hands and feet. now this stimulation is happening non conciously as the brains way of stimulating the sensory recepors, to increase the dopamine release in the brain over a synaps. you will find these "tics" will become more evident when the person is trying to consentrate or working on problems. As a university student now, i have developed many tricks to work with my adhd/add, one of them is listening to music while i study, now i didnt understand why this worked till just recently when i decided to do more research on adhd and began to fully understand what was going on in my brain/body. on another note i was able to fully matriculate high school with out the use of medication, though used in im elementry school when first dignosed. the best way to address adhd/ add uses is to get a better understanding of the "disorder" but i like to call it a gift!! 

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