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| Name: crofty | Date: Feb 18th, 2008 6:42 PM |
| Hello again, We see the specialist tomorrow and unfortunately I am still no wiser about whether puting my son on some kind of medication would be appropriate. I've been trying to sift through all the posts, desperately looking for any sucess or unsucessful stories to help me. I suppose I will just have to hope that my sons specialist will be able to suggest something. Regards Crofty ↑ |
| Name: jacob92398 | Date: Mar 9th, 2008 3:29 AM |
| Hi, there is hope, don't give up. Using medications does not mean that you are a bad parent. We have gone thru many meds in the past 61/2 years. Risperdal is the BEST but yes it does cause weight gain. But if your child could use some weight it is well worth it. Before Risperdal, I had broke ribs, broke nose, and black eyes from a 3 year old. After meds I have not been seriously hurt. Yes I still get bruises and pushed around but not to the point that I can't take it. So if you have a neuro that you really trust and they suggest it, go for it! you won't regrett it. Mind, body and soul will thank you. God bless, jacob92398 ↑ |
| Name: crofty | Date: Mar 9th, 2008 7:38 PM |
| Thank you jacob for your kind supportive words, you sure seem to have had alot of tough times yourself to deal with. Good luck with things in the future. Crofty. ↑ |
| Name: BlakesMom | Date: Mar 12th, 2008 2:41 AM |
| Hi Crofty! My son started taking Risperdol 7 months ago, which I felt so guilty for doing, However, he was getting so unbelievably aggressive......towards not only me and his dad, but his sister, the dog and any other children in our home. IT HAS BEEN A MIRACLE!!!! His aggressions, which were typically 300+ per day, now occur only 2-8 times per week. He is not a zombie......which was something I feared, but instead, so much more in tune with what is happening. He will now 'listen' to me when I talk to him and comprehend what I am saying (instead of getting frustrated and becoming aggressive). For instance, if he wanted to go outside, he would pull me to the door.......if I did not snap my fingers and immediately put him outside, he would go into a rage. Now, if he pulls me to the door, I can look him in the eye and say no (if it is not a time to go out........and he understands) or I can say, yes -- but we need to put on your shoes and coat. I can then take the time to get his shoes, put them on, get his coat, put it on and he will tolerate ALL of that. It is amazing! I know that weight gain is the most prominent side effect..... My son is so active that we did not experience a lot of gain......4 lbs. This side effect is different for all children and we were informed that he would most likely gain a lot of weight, but fortunately, it did not happen. If you have tried all you can try, what can it hurt. My son was such a miserable sole.........who could possibly be happy being so angry all the time.....to the point they are physically aggressive to the ones they love most ( and in his case, also being self abusive and hurting himself). I tried the GF/CF diet, sensory diets, and on and on and on......... This is what FINALLY helped him and I am sorry I did not try it sooner. I don't car what anyone says......or thinks.......this is what was right for his little body!!!! Take care! Cindy ↑ |
| Name: crofty | Date: Mar 12th, 2008 6:19 PM |
| Hi Blakesmom, thank you for your post, it has made me feel alot better. It's great to hear the amazing positive effects it has had on your son. As nothing else has worked for our son, then maybe it could be the right choice for us too. We just want our little boy to be happy again and gut instinct is telling me that this could be the one thing that is missing. All the best to you and your family, don't worry what anyone else thinks, you definitely did the right thing! Regards Crofty ↑ |
| Name: kimkok | Date: Mar 13th, 2008 11:53 AM |
| Hi Crofty, I was reading your initial post and it reads word for word like my first post on Facebook (they aslo have suport groups for children with Autisma nd ADHD) when I found out my son (also 5) has ADHD and Aspergers and we had to make that choice of medication or not.... I knew that my son didnt have quality of life the way he was living was not what I wanted for him Granted we had some terrible incidents where we almost lost him that pushed our decision forward a little, he was and is very aggressive and angry at everyone and everthing, our deciding moment came all too quickly as he punched my front window in of our front door (Double safety glass) with his two little fists he cut his pulse open deeply and we had to call the ambulance ect (this was his 5th hospital trip in two months) he didnt realise what he had done as he doesnt feel pain... His peadiat said we needed to medicate him and by then my husband and I were exhausted and scared so we agreed to medication-it was the toughest adn easiest decision I have ever made-Bittersweet! My son is now on Concerta-he has reacted very well to it although his appetite is very bad-but it was bad before. Its a slow release drug so it enables him to function during the day and in th evenings he peaks one (very badly still but apparently that will get easier with age) his agression is still high and we ahve been advised to get therapy for him. As he didnt sleep with or without meds he has Melatonine (herbal natural sleeping enhancer-works wonders to get him to sleep) Medication is not a miricle but I can only say they are working for our son-giving him a better life. I know the internal 'hell'you are going through and all of the advise you are getting but make peace with your situation first and then make the decision based on your goals and aspirations and his needs! If you need vent this is a good as place as any ;) ↑ |
| Name: crofty | Date: Mar 14th, 2008 5:46 PM |
| Hi kimkok, thanks for your advice I can totally relate to you saying how exhausted and scared you and your husband felt. I am glad the meds are working a bit for your son, how old is he and what therapy has been suggested to try alongside it? Our therapist has said they don't recommend medication, or if they do it's in extreme cases and for short term periods only. I feel abit let down, maybe it's down to cost and our NHS service in england. I will however try more therapys and strategies until I feel I have tried everything I can. Regards Crofty ↑ |
