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| Name: momathome | Date: Dec 4th, 2008 11:32 PM |
| It has been a really long time since I last posted and I wonder how all of you are doing. Steven is still in his home and most the time is very happy, however he has had enough "episodes" to make a plan of action. The beautiful thing is I don't have to practice them except on every other weekend. I got a job last June and I love working. Please post so I can hear how you all are doing. ↑ |
| Name: melissasest34 | Date: Mar 9th, 2009 10:25 PM |
| Hello Karen. My name is Melissa. I have a 14 year old son who has autism. He also had to have brain surgery back in 2005 for seizures. He is non-verbal and is not toilet trained so I have to change his diapers every time it needs changing. I also know what its like to not have anyone to talk to that really understands what you are going through. for a very long time I blamed myself for him having seizures because he did inherit the seizures from me but I had no one to talk to about my feelings so I had to work through those feelings by myself. I finally did get over the very deep depression I was in because of those feelings but it took a very long time. ↑ |
| Name: robyngk | Date: Mar 19th, 2009 11:00 AM |
| Hi, I have 3 beautiful boys 2 of whom are on the spectrum ... my eldest is has aspergers and the second is "just" autistic number 3 is as Im sure as he feels ..... No. 3 .... longing to be like his brothers on the spectrum..... (poor kid ...he is popular at school great grades.... he plays every sport ...very well ... and is sad... well he is the odd one out..... ) we are aussie and would love to chat with anyone..... Im am sooo very happy to have my special ..men.... but sometimes... i feel a little .....lost... ↑ |
| Name: nanny | Date: Apr 5th, 2009 9:23 AM |
| Hi Just discovered this site. Am from Oz and have been Nanny to a sixteen year old Autistic child for the past four years. My 25 year old daughter has been her full time carer for this time and she has wormed her way into all our hearts and we all adore her. she is totally non-verbal and does not know many signs but she can usually make herself understood as she is quite smart. Our problem is that just right now she is going through a really violent and destructive stage, she hurts herself badly punching and biting, she constantly rips her clothes to shreds and we just cannot work out why. This behaviour is the same in school and with her respite carer who has her every second week-end and can start for no apparent reason, one secong she is happily watching Shrek or Wiggles or somehing and the next she is hysterical, screaming and hurting herself, has anyone else experienced this sort of thing? She has also become a nightmare with her sleeping, sometimes she may only sleep for 2 hours in 2 day's and I really feel for my poor daughter who is studying to be a special needs teacher at uni, we have tried sleeping meds but she seems to fight it and then she becomes manic and starts bouncing all round the house. Any help or suggestions that any of you may have would be greatly appreciated. I have enjoyed reading all your comments today and look forward to hearing from any of you. ↑ |
| Name: StudentResearcher | Date: Apr 8th, 2009 10:22 PM |
| Hi, I am currently an undergraduate student at Barry university in Miami and I am conducting a survey for my thesis on "parent's perceptions of the link between autism and vaccinations. I am posting the official letter that was approved by the Institutional Review Board at my University. The online survey is on the Autism Speaks website. I am asking that you please log on and respond if interested to help make new breakthroughs on how parents still feel. Dear Parent, I am inviting you to participate in a research study that is examining parental perceptions of the link between vaccination and autism. Along with this letter there is a short survey that asks a variety of questions about the above mentioned topic. I am asking you to look over the survey and, if you choose to do so, complete it on this internet website. It should take you no longer than 10-15 minutes to complete. Results from the first 100 participants will be used. The results of this project will be used as data for a research thesis. Through your participation I hope to understand the perceptions of the link between vaccination and autism. Should you chose to participate you will complete the surveys online via the internet website SurveyMonkey. Contents of the survey may be emotionally disturbing. Some of the survey items may be considered personal and may cause a slight level of anxiety.If you experience any uncontrollable feelings of anxiety or emotional discomfort please contact 888-Austism-2 (288-4762). Benefits of this study include adding to the body of research on the perceptions of the link between vaccination and autism. Your survey submission will be anonymous and will not contain any identifiable information. Because the survey will be completed online from a home computer, there is a possibility that a participants' IP address may be viewed by the PI or PI’s advisor. Participants’ IP addresses will be erased from all data by the PI upon receipt. The PI and the faculty advisor Dr Linda Bacheller will review the data for analyses purposes. Researchers will not retain any identifying information and the anonymous data set will be stored in password protected data file on the PI’s computer. If the IP address appears in the data set received by SurveyMonkey they will be deleted. The anonymous data file will not be destroyed. Your participation in this study is voluntary and you have the right to refuse to participate, to refuse to answer any particular question, or withdraw from participation. A possible alternative to participation is to not participate. By proceeding with this survey you consent to participate. If you have any questions or concerns about completing the surveys or about being in this study, you may contact me at melissa.balgobin@mymail.barry.edu or the faculty advisor, Dr. Linda Bacheller via telephone at 305-899-4576 or via email at lbacheller@mail.barry.edu. The Institutional Review Board (IRB) at Barry University has approved this study. The link is posted on Autism Speaks using Survey monkey software. Here is the link if interested http://www.surveymonkey.com/s.a spx?sm=0cbB4qgG0WIemjcRhUaUww_3d_3d Than k you for you participation ↑ |
| Name: dalia_in_nevada | Date: Jun 18th, 2009 12:47 AM |
| I am writing you this letter in the hopes of some desperate assistance in Nevada. I have a young Autistic adult son, 19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru. You are not alone. I will be happy to talk to you any time, if anything just to listen and support each other. I will make this brief and to the point. I am a single mom working many hrs 7 days a week, savings is now gone in an attempt to pay on my own for caregivers. My son has severe "episodes" at which he can bite/scratch/pull hair or all of the above. These behaviors all began over the last couple of years and are progressively getting worse.He is 5 foot 10 185 pounds. I am 5 foot 2. I can not restrain him when he attacks. I desperately need HELP now. There are NO group homes or facilities who take children and/or young adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word. I am in fear for the safety of myself and my daughter as we have been attacked a cpl times now without a caregiver here full time. I was thinking there are several folks in the same dilema as myself here in Nevada as well as across the country.. I would like to know if you could : 1.) assist with helping me open a RANCH FOR AUTISM here in Nevada. Pahrump still has land low priced and it's far enough out that folks who don't understand Autism will feel comfy, yet it is close enough for medical needs. I know exactly what these children need to make their life complete and busy with a scheduled routine and space to roam. I know that I could sucessfully provide the care and know how to make it a wonderful structured environment for the children. For instance: an equestrian area music program arts n crafts a green house pool / spa trampoline swings merry-go-round sand box walking paths 2.) help / steer / assist me w/ getting some families together that are looking for longterm placement for their young adults where they will be loved and cared for as if we were there ourselves. Home-like environment with plenty of activities to keep them busy and fulfilled. We need 20 committed families that have a young adult who needs the special care and guidance the Ranch for Autism will provide. We all know as parents we can not be there forever for our loved ones. I know I do not want my son to be institutionalized when I can't be there for him any longer. Of course our children can have visits ( home or on site) anytime. You may have the connections, knowledge to get this request completed. You may know someone with acreage ( we need approx. 50 acres ) that needs a tax write-off, or a family member willing to donate. Maybe help get a fundraiser, some attorney's, doctors, wealthy folks. Get the community involved! I have faith in you. Together we can pull all resources and do this. I currently have an investor to meet/match up to $800K, which is about 1/3 of what we need to reach our goals. Please contact me with any contacts / ideas that you may have. God Bless! Respectfully, Delia Power 702-942-0731 360 Yacht Ave Henderson NV 89012 daliap_exhibitorhousing@yahoo.com ↑ |
| Name: dalia_in_nevada | Date: Jun 24th, 2009 12:49 PM |
| I am writing you this letter in the hopes of some desperate assistance in Nevada and across the country. I have a young Autistic adult son, 19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru. You are not alone. I will be happy to talk to you any time, if anything just to listen and support each other. I will make this brief and to the point. I am a single mom working many hrs 7 days a week, savings is now gone in an attempt to pay on my own for caregivers. My son has severe "episodes" at which he can bite/scratch/pull hair or all of the above. These behaviors all began over the last couple of years and are progressively getting worse.He is 5 foot 10 185 pounds. I am 5 foot 2. I can not restrain him when he attacks. I desperately need HELP now. There are NO group homes or residential facilities who take children and/or young adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word. I am in fear for the safety of myself and my daughter as we have been attacked a cpl times now without a caregiver here full time. I was thinking there are several folks in the same dilema as myself here in Nevada as well as across the country.. I would like to know if you could : 1.) assist with helping me open a RANCH FOR AUTISM here in Nevada. Pahrump still has land low priced and it's far enough out that folks who don't understand Autism will feel comfy, yet it is close enough for medical needs. I know exactly what these children need to make their life complete and busy with a scheduled routine and space to roam. I know that I could sucessfully provide the care and know how to make it a wonderful structured environment for the children. For instance: an equestrian area music program arts n crafts a green house pool / spa trampoline swings merry-go-round sand box walking paths 2.) help / steer / assist me w/ getting some families together that are looking for longterm placement for their young adults where they will be loved and cared for as if we were there ourselves. Home-like residential environment with plenty of activities to keep them busy and fulfilled. We need 20 committed families that have a young adult who needs the special care and guidance the Ranch for Autism will provide. This will be private pay and also state/federal funded, so it will apply to all. We all know as parents we can not be there forever for our loved ones. I know I do not want my son to be institutionalized when I can't be there for him any longer. Of course our children can have visits ( home or on site) anytime. You may have the connections, knowledge to get this request completed. You may know someone with acreage ( we need approx. 50 acres ) that needs a tax write-off, or a family member willing to donate. Maybe help get a fundraiser, some attorney's, doctors, wealthy folks. Get the community involved! I have faith in you. Together we can pull all resources and do this. I currently have an investor to meet/match up to $800K, which is about 1/3 of what we need to reach our goals. Please contact me with any contacts / ideas that you may have. God Bless! Respectfully, Dalia Power 702-942-0731 360 Yacht Ave Henderson NV 89012 daliap_exhibitorhousing@yahoo.com ↑ |
