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| Name: aaturci | Date: Jul 15th, 2007 2:20 AM |
| HELLO-- I HAVE A SON THAT WILL BE 4 IN JANUARY AND HE IS AUTISTIC- BEING WE ARE GOING THROUGH THE SAME THINGS, MAYBE WE CAN TALK, IT WOULD BE NICE TO KNOW SOME OTHER PARENTS WITH AUTISTIC CHILDREN. IF YOU LIKE MY EMAIL IS ATURCI@TAMPABAY.RR.COM ↑ |
| Name: dianna | Date: Jul 15th, 2007 8:38 AM |
| Hi Crofty, when you say he is non-verbal, does he say anything at all or just make sounds and such? ↑ |
| Name: crofty | Date: Jul 15th, 2007 3:58 PM |
| Hi Dianne, he just makes a few different sounds. ↑ |
| Name: dianna | Date: Jul 16th, 2007 5:54 PM |
| Hi again crofty, I ask if he can speak because maybe some of his behaviorisms are because he cant communicate. My four year old is in the same boat. I don't know if he is moderate or severe. I do know that is it frustrating though. Mine does not speak either. Just a few words here or there. He is not potty trained yet, and loves to eat which is beginning to cause a weight problem. Does he enjoys toys or games etc? Mine really doesn't enjoy imaginative play. ↑ |
| Name: crofty | Date: Jul 18th, 2007 2:47 PM |
| Hi dianna, you are probably right about some of his behaviours being linked to the fact he can't communicate. It does make it so hard sometimes though, I hope one day we can master using pictures to help him get his needs met. Also finding toys that motivate him has been hard, he does like a big inflatable banana shape that we got him that he bangs and climbs on and roles around. Also he likes tickling games. ↑ |
| Name: mom2twins25 | Date: Jul 26th, 2007 1:42 PM |
| Our son is a low-functioning autistic boy. He has never been verbal but he's full of moans and sqreeches. He always palys be himself. And people stare at us because he's a big boy, and he's in a stroller still. Sometimes I wonder what the future will bring for our Dominic but reality is nobody has those answers we can teach him as best as we can and get him the best early intervention programming there is here in Canada but the future is definetly hazy. I guess like every other family..we have good/bad days but at the end of the day, it's the kisses(which he just learnt to do) that make it worth it. ↑ |
| Name: mom2twins25 | Date: Jul 26th, 2007 1:46 PM |
| I wanted to add something . After months of working with him, Dominic can do 2 signs...Please and More. He doesnt always use them. His professionals say that they're not sure if he knows the meaning of these words, but it's wodnerful to see him try. And he has an obsession with cars and wheels. But that's a 'classic autism' trait. ↑ |
| Name: pevansmum | Date: Aug 22nd, 2007 10:05 AM |
| my 9 yo son is severely autistic...my aol screen name is evan45rj if you want to talk anytime...im here to sympathize with you and share experiences... ↑ |
| Name: crofty | Date: Aug 22nd, 2007 2:47 PM |
| Hi Pevansmum, could i email you, I'd love to find more about your son, and maybe you might understand what i'm going through at the moment. Friends of mine that have autistic children are all more like my 5 year old so they can't always sympathise in the same way as someone who has a more severely autistic child. ↑ |
| Name: asdmom | Date: Sep 21st, 2008 10:26 PM |
| My son is low functioning asd, but he is 11 years old now and although he does not use speech to communicate. He can read a little and loves books. I bought him (although he has grown out of it now) A powertouch learning system from fisherprice, its similar to a leap pad but better. Louis would repeatedly become obsessed with this book reading him a story all the time. He also became obsessed with the computer and now he is obsessed with his nintendo ds. I have also oredered a glockenspiel/percussion for him which is basically an xylaphone. I always just tried to let my son become obsessed in appropriate activities rather than repeatedly rocking back and forth or hand flapping, as and when their obsessions center onto other tasks the really innappropriate behaviours such as head banging etc will finally minimise to none at all. hop this helps. Just find little snippets of interesting things they like. ↑ |
| Name: Mellissa | Date: Oct 10th, 2008 10:02 PM |
| Hi, I have a severe autistic boy named Jacob and he is 5.I am looking for advice from other parents because I have just about given up on the doctors.We've been through everything between diets,vitamins tests and about 10 different meds.I have no idea what to do.Jacob is extremely hyper,has no communication,he pinches and bites.His teachers don't know what to do with him anymore.He is very happy and I think he knows what hes doing but won't listen to anyone and has no focus at all. ↑ |
| Name: crofty | Date: Oct 13th, 2008 1:56 PM |
| Hi Melissa, my son is extremely hyper ative too. He is constantly on the go from getting up to going to sleep, it can be exhausting sometimes! ↑ |
| Name: Annmarie | Date: Oct 24th, 2008 10:33 PM |
| Hi, My son is 5, and he is moderately to severly autistic. We found out this year, so in other words we are new to this. Would to chat with someone. ↑ |
| Name: stongandscared | Date: Oct 28th, 2008 10:19 AM |
| my son Aaron is 4 and is non verbal they are going to order him a go talk at school for him. but i sure would love to talk with others. email me at kristenlain@rocketmail.com ↑ |
| Name: dalia_in_nevada | Date: Jun 18th, 2009 12:56 AM |
| I am writing you this letter in the hopes of some desperate assistance in Nevada. I have a young Autistic adult son, 19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru. You are not alone. I will be happy to talk to you any time, if anything just to listen and support each other. I will make this brief and to the point. I am a single mom working many hrs 7 days a week, savings is now gone in an attempt to pay on my own for caregivers. My son has severe "episodes" at which he can bite/scratch/pull hair or all of the above. These behaviors all began over the last couple of years and are progressively getting worse.He is 5 foot 10 185 pounds. I am 5 foot 2. I can not restrain him when he attacks. I desperately need HELP now. There are NO group homes or facilities who take children and/or young adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word. I am in fear for the safety of myself and my daughter as we have been attacked a cpl times now without a caregiver here full time. I was thinking there are several folks in the same dilema as myself here in Nevada as well as across the country.. I would like to know if you could : 1.) assist with helping me open a RANCH FOR AUTISM here in Nevada. Pahrump still has land low priced and it's far enough out that folks who don't understand Autism will feel comfy, yet it is close enough for medical needs. I know exactly what these children need to make their life complete and busy with a scheduled routine and space to roam. I know that I could sucessfully provide the care and know how to make it a wonderful structured environment for the children. For instance: an equestrian area music program arts n crafts a green house pool / spa trampoline swings merry-go-round sand box walking paths 2.) help / steer / assist me w/ getting some families together that are looking for longterm placement for their young adults where they will be loved and cared for as if we were there ourselves. Home-like environment with plenty of activities to keep them busy and fulfilled. We need 20 committed families that have a young adult who needs the special care and guidance the Ranch for Autism will provide. We all know as parents we can not be there forever for our loved ones. I know I do not want my son to be institutionalized when I can't be there for him any longer. Of course our children can have visits ( home or on site) anytime. You may have the connections, knowledge to get this request completed. You may know someone with acreage ( we need approx. 50 acres ) that needs a tax write-off, or a family member willing to donate. Maybe help get a fundraiser, some attorney's, doctors, wealthy folks. Get the community involved! I have faith in you. Together we can pull all resources and do this. I currently have an investor to meet/match up to $800K, which is about 1/3 of what we need to reach our goals. Please contact me with any contacts / ideas that you may have. God Bless! Respectfully, Delia Power 702-942-0731 360 Yacht Ave Henderson NV 89012 daliap_exhibitorhousing@yahoo.com ↑ |
