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Name: tangerine75

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I am new to this forum and so happy to have found it. It has helped me so much. My son is 2 years and 9 months. He never said very many words. Mostly copy from the TV. I took him to get evaluted to apply for speech therapy. They told me he has PDD-NOS. I freaked! I am still dying inside. Cry all the time! Crazy! I'm trying to stay focused. He has always been a good boy. No huge tantrums. Crying and some screams sometimes when he doesn't get his way but he gets over it pretty quickly. He is shy, quiet, to himself. He will play next to someone and when they smile or laugh he does too. He watches them like he wants to join them but doesn't know how. If they chase him he runs and laughs. He is such a happy boy. He wakes up smiling. I was a stay at home mom and didn't socialize him enough, at least that is what I thought. He has always been picky but is now extremely picky. Only eats some cereals, tortilla chips and yogurt covered raisins. He has never called me Mama. His talking is not the best. He knows what things are. He knows the parts on the face and says them. He knows his name when called and follows direction without much trouble and for the most part understands. He doesn't pretend play with people. He loves Thomas the Tank Engine. He doesn't obsess about it. If I turn it off he never makes a peep. He has a toy Thomas and he misplaces it all the time but never cries about it. Not once. If I ask him "where is Thomas?" he starts looking for him but doesn't cry. He doesn't play with stuffed animals. He gets a little anxious when we go somewhere crowded but usually gets over it. He just recently started walking the perimeter of the fence in our backyard a few times in a row. He does it at daycare too. That worries me. He also sometimes talks like Pee Wee Herman or makes strange sounds. Babbles alot. He used to say Hello and Arms up but doesn't anymore. He has been in therapy and daycare for about 7 weeks and is now saying bye bye and waving and pointing. He says alot more words. He knows shorts, socks, shoes and says them. But also not wanting me to initiate affection as much anymore. He is always wanting me to hold him. All the time. He is very attached to me and my husband. He seems to like to hang out with older kids. He seems to play the right way. He sometimes lines up cars and says choo choo but he likes trains so....He is never inappropriate. Never violent. I am doing stuff everyday to help him. I buy all sorts of toys. Flashcards. he loves books and take him to the library and read to time. He has been opening books and pretending to read for as long as he could hold a book. I am worried about his eating. I want to get it better. If anyone has suggestions I would love to hear them. How to get him to call me mama. He will copy when I show him a pic and knows who I am. Would a gluten/dairy free diet help him?? I am scared the symptoms will get worse! I am so very worried and scared! He is ok to me now but I have been reading so much about kids who get worse and I don't know what to do. I appreciate any help/suggestions. Thank you ↓

Name: Edwardliu | Date: Jun 14th, 2011 2:13 PM

Hi
Tanderine

I think you do the right thing. Using your picture and let him know you are his mama. Practice more. Using your son and his daddy's picture too.
Try to teach him, "where is mama?" and let him point to you. This is link the picture to real mama.
Then the main point is how to let your son understand "call me xxx" . This is very easy for normal child, but it is hard for this delayed children. They need a lot of practice and modeling.
For example, let your husband say to your son "Call mama", then he call you a lot of times, your son may not copy at first time. Don't worry and keep practising it.
Your son like to hug, teach him, "mama hug." Then hug him after at least 10 seconds.
Hide yourself and let your husband teach him " where is mama?" and take him to find out you.
Make some silly mistake. " put shoes on your head" let your husband say " look, mama" then psleep to you.
Then sleeping mama, crying mama, singing mama, running and catching mama, falling down mama. Laughing mum, ready,set,go mama, dancing mum, animal mum, Crashing train mama, kissing mama and hiding toy in your cloth mama, up and down, open and shut mama. Jumping, hopping mum. Remember teach him to say mama more.
Then, time will come. When you find the most interesting game he want to play, you tell him call mama, wait until he call you. ( about one or two minutes) try a lot of times. I am sure you are the best mama he called. Also I think it is a good idea to let daddy to take your son in the someplace usually you are not going. Then you come to meet him by surprise. Keep a distance at first, then walk very slowly to him. Let him to think why mum is here. Happiness maybe easy for him to call you mama.
Then it is daddy's turn. Swap the role with your husband.
Also I think you need to see DAN doctor as well. Even my little daughter has no problem, she check out with high mercury as well. Lucky we remove all the mercury from her using the natural medicine. And she is very smart and a good teach to my son.
Your son only eat limited food, it is very bad for brain development. And we all know about it, but It is very hard to let him eat health food from the begining. Every parent is very stress to do that. Worry about they will eat nothing. I think it is very worth to try gluten and diary free food. Try it. I see the delayed girl (which is not autism) benefit well from that too. She improved her language skill a lot from that.
Also don't forget teach him to help you do a simple job at house. Such as pick up a leave, tap on and off, open and close the door,
Mix the cake, give you shoes, give you cup, speak and let him learn. Also don't make him too tired.

Emily ↑

Name: tangerine75 | Date: Jun 14th, 2011 3:00 PM

Thank you Emily for responding to my post. I have read other things you have written to people and you seem so kind, helpful and knowledgeable. I cannot find a DAN doctor in my area. I live in south Florida. I do not trust doctors anymore. I stopped going to regular pediatrician when my son was 15 months. I did not want to do vaccinations when he was born and they told me I had to. I knew autism had something to do with vaccinations. He had trouble gaining weight because I breast feed him and when I stopped he got sick. They kept giving vaccines. Sometimes 3 at a time! It made me sick. I had bad feeling so I stopped taking him. I have taken him to two other doctors and will not continue seeing him if I don't vaccinate! My son, my choice. I will not do it till I know my son is ok. He gets good nutrition I think. When I give him juice it is always the kind with vegetables in it(V8 fusion). He used to drink milk all the time. I added pediasure, vitamins, carnation instant breakfast. Now since this happened I have been trying to change his milk. He likes any I bring home. Soy, almond, whatever. I am afraid to add vitamins, carnation instant breakfast or pediasure. I am also not supposed to give him the bottle but that is the only way he drinks the milk. I only give it to him in the morning. He has lost weight but now he only drinks almond milk and soy milk for the past week. Lot of pooping. I don't know what to do. The food is hard but I will do it. He eats tortilla chips and french fries which I think are both gluten free so I will just give him that. Have you done probiotic or detox? Do you know anything about that? I read Jenny McCarthy did a detox and her son began to vomit and diarrhea but began talking right away. It is to remove wheat in the body. Also you said on another forum about busy bee dvd and cards? I can't find it. Is it babble bee? Thank you so much for taking time to help me. It is so very appreciated! ↑

Name: tangerine75 | Date: Jun 14th, 2011 4:32 PM

I found a list of DAN doctors. Far but I will go! Waiting for one to call back! ↑

Name: Edwardliu | Date: Jun 15th, 2011 3:42 AM

Hi
Tanderine

The DVD name call bumblebee baby. It teaches delay children or autism to speak. Also after that, you maybe to buy watch me learn DVD. Sometimes go to eBay to buy it.

My son only drink milk like your son before. Get rid of it. Very very hard at the beginning, but you need to do it. Also chip is not very health food too. Go to TACA parents chat and you can find a lot of hope. I do use probiotic and detoxic for him. But from the beginning, I only do diary and gluten free for him, he call me mum.

Also for the first time when we use the medicine for him, he becomes more meltdown, don't panic for it. I still remember I ask my speech pathology the question " why he cry now, before he didn't ?" my speech pathology tell me the reason is before he didn't see the children at pre school, he only get his car and happy for it. He didn't see the animals, then he find there are so many farm animals come here that scare him. Every time we change the medicine, he always looks a little new bad behavior. Control it, then you find he becomes smart.
Select doctor is very important too. We don't want our children got hurt. Do it slowly first, then do the test to make sure he is not get hurt. I live in sydney. So the doctor is different. Talk to TACA parents there. You can find one suitable for you. For my experience, DAN doctor is most important. Think about that, if the mercury inside his body, he can't get rid of it by himself. How his brain work. Some children is different, low zinc or high copper. That is why you need to take your son to check out. At least you want to know what is wrong?
Cod liver oil, m-b12 injection is very helpful and it doesn't hurt anything.
Your son have a lot of pooping, like my son before. That why they lose weight. Their body can't handle milk. Read TACA recovery autism story and you will get the idea soon. When they can speak, they will tell you their tummy get hurt. That why they need probiotic. I am not a doctor. So you need to find a doctor to help you. They have more experiences than us. They are two part of doctor, one is believe autism never recover, one think it is possible. Most of them can't believe that.
I guess autism can divide a lot of different types. Like before we only know we get cold, now we know it has many different type virus causeit. It needs different medicine to cure it. I do believe some autism can improve a lot, the children can go to mainstream school. Some can't. At least to have a try. I think I never be lucky before. And now I think I am still struggle but close to it. I don't want my other children take the burden when I die. I still remember I sent my first daughter to different city university and tell her never come back if your brother is not well. Work in that city after you graduate because I think my son never be normal. I scare he affect her life in the future. Now I tell my daughter you can go home if she likes.

Sorry, English is my second language and I try to learn for that.

Emily ↑

Name: tangerine75 | Date: Jun 15th, 2011 8:49 PM

Thank you for all your help. Your English is great! You get your point across just fine. God bless you and your family. ↑