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| Name: aldam2 | Date: Nov 3rd, 2007 10:40 PM |
| Hi, I have a daughter whose neally 14 years old and has aspergers syndrome, she has a lot of Meltdowns aswell. She is also having to deal with hormones and stuff, when she kicks off, ive found the best thing to do is not to argue or shout, just to send her to her room and tell her to come down when she has calmed down and then we will talk. I find this is the only way to cope otherwise she can tantrum for hours and everyone around her gets caught in the crossfire. the problem is autistic kids are always right and are only interested in themselves and dont like addmitting defeat. So you could try this, I know its hard for you to just sit and watch your parents being abused verbally and physically, but as my 11 year old son has found out, if he tries to help!!! then he inturn becomes a target of the meltdown. Sorry if its not much help but try to remember he cant really help his behaviour.XXX ↑ |
| Name: kath | Date: Mar 22nd, 2008 11:26 AM |
| Please take care of yourself FIRST. My daughters know that the best thing to do when their brother gets out of control is to leave the room. Your parents will cope with the problem in whatever way works best for them. We found that without an audience the temper tantrum and hitting decrease markedly. Remember, when your brother is in a rage, he is not the brother that you know and love, he can't be that person right now. But you need to stay safe, so go somewhere else and let it die down. ↑ |
| Name: I know | Date: Jun 2nd, 2008 9:14 AM |
| I have found that walking away or getting them away from the situation- e.g asking them to go upstairs until they calm down is better than trying to convince them to calm down. The problem is that autistic children are always right- they can't back down. It's sad that you feel that you are responsible for your brothers care. Maybe if you and your parents take away the audience he may calm much better. Is there signs of the meltdown before it happens- maybe try and stop it there if you can find a way. I t might be good if your parents could go out for a night if this was possible to recharge the batteries as it is very emotionally draining. Maybe you could also ask his specialists if you could apply fro respite- so that you all get a break occasionally- just a thought. Best of luck. ↑ |
| Name: dalia_in_nevada | Date: Jun 18th, 2009 5:10 AM |
| I am writing you this letter in the hopes of some desperate assistance in Nevada. I have a young Autistic adult son, 19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru. You are not alone. I will be happy to talk to you any time, if anything just to listen and support each other. I will make this brief and to the point. I am a single mom working many hrs 7 days a week, savings is now gone in an attempt to pay on my own for caregivers. My son has severe "episodes" at which he can bite/scratch/pull hair or all of the above. These behaviors all began over the last couple of years and are progressively getting worse.He is 5 foot 10 185 pounds. I am 5 foot 2. I can not restrain him when he attacks. I desperately need HELP now. There are NO group homes or facilities who take children and/or young adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word. I am in fear for the safety of myself and my daughter as we have been attacked a cpl times now without a caregiver here full time. I was thinking there are several folks in the same dilema as myself here in Nevada as well as across the country.. I would like to know if you could : 1.) assist with helping me open a RANCH FOR AUTISM here in Nevada. Pahrump still has land low priced and it's far enough out that folks who don't understand Autism will feel comfy, yet it is close enough for medical needs. I know exactly what these children need to make their life complete and busy with a scheduled routine and space to roam. I know that I could sucessfully provide the care and know how to make it a wonderful structured environment for the children. For instance: an equestrian area music program arts n crafts a green house pool / spa trampoline swings merry-go-round sand box walking paths 2.) help / steer / assist me w/ getting some families together that are looking for longterm placement for their young adults where they will be loved and cared for as if we were there ourselves. Home-like environment with plenty of activities to keep them busy and fulfilled. We need 20 committed families that have a young adult who needs the special care and guidance the Ranch for Autism will provide. We all know as parents we can not be there forever for our loved ones. I know I do not want my son to be institutionalized when I can't be there for him any longer. Of course our children can have visits ( home or on site) anytime. You may have the connections, knowledge to get this request completed. You may know someone with acreage ( we need approx. 50 acres ) that needs a tax write-off, or a family member willing to donate. Maybe help get a fundraiser, some attorney's, doctors, wealthy folks. Get the community involved! I have faith in you. Together we can pull all resources and do this. I currently have an investor to meet/match up to $800K, which is about 1/3 of what we need to reach our goals. Please contact me with any contacts / ideas that you may have. God Bless! Respectfully, Delia Power 702-942-0731 360 Yacht Ave Henderson NV 89012 [email protected] ↑ |
