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Name: nickg241
[ Original Post ]
Hi everyone, I'm new to this & looking forward to hearing from someone in a similar situation. My daughter Charlie is 8 years old & cant walk, talk or eat (ate till the age of 3 liquidized then stopped with no explanation) Charlie was 4 by the time she managed to sit on her own. Has reflux & also epilepsy which wasn't diagnosed till the age of 7 1/2. Things were hard at the start butmy love for Charlie has took over the bad now i just look at her & thank god for every minute i have with her, she makes me the happiest mummy alive :D. I'v never met another child who's symptoms are similar to Charlie's so would be great to get talking to someone in same position as myself xx
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Name: cinda | Date: Oct 15th, 2009 3:41 PM
Hello,
I am new to this site as well. I have a 6 year old son name Brendin ha has cp, hearing loss, adhd, high risk of epilepsy- we was born with cytomegalovirus. My youngest son is 6 months old, his name is Benjermin, when he was 2 months old i found out he was born with DiGeorge Syndrome- heart defect. He had surgery asap, he is missing his thymus gland = no immune system. only time will tell on w2hat his future holds. I am 21 years old, I got to be strong for my boys and my husband. but deep down I really wish I had someone to talk to who understands.


if you would like to talk, my myspace is.

http://www.myspace.com/cindalong 

Name: nickg241 | Date: Oct 16th, 2009 5:20 PM
Hey there. nice eto here from you. lots of big words that i'v not heard of there, but we get used to it in our position. I will look up what you said so i can have a better understanding of it :) Not sure if im on myspace but will check it out. thanks for speaking :) xx 

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