Chat Room: Cerebral Palsy

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Name: Page Title: Cerebral Palsy

Hi, I have a four year old son with cp and I was just looking for other parents that can relate to raising a child/children with disabilities. ?

Name: Rebecca York • Date: 08/03/2005 08:54:21

Hello, my 10 year old daughter has CP. I am looking to chat with other parents that are raising special children. =

Name: marcy • Date: 08/03/2005 23:25:40

yes it would be nice to talk to other parents not only for support, but mabey some fresh ideas =

Name: Nancy Simpson • Date: 08/09/2005 15:16:48

I have a granddaughter that will be 8 next months with CP. She cannot walk and she and her family just got back from a month in Florida with therapy from bio-feed back with no results. Was wondering if anyone out there has had any experience with this therapy. =

Name: Rebecca • Date: 08/18/2005 15:02:30

Hi. My son is 3 years old and also has cerebral palsy. He does not walk yet, but does roll around to get where he wants to go. He is a happy little boy. I was trying to find a chat room for parents with special needs kids. =

Name: cherry michael • Date: 08/29/2005 15:06:43

Hi I under stand what you are all going through I look after my 6yr old grand daughter who is serverly disabled with cerebal palsey She cannot walk or talk but has the most wonderful smile =

Name: carmel boston • Date: 08/30/2005 11:46:07

Hi I have a 5 year old daughter who has cerebral palsy. She has just had her tendons lengthened and wondered if there were any parents/carers whose child has had this type of operation. =

Name: aaron • Date: 09/02/2005 14:54:13

Hey page i'm 29 and i have cp it's not to bad but lately it hurts my back and legs. Just keep giving your kids love and support and treat them no different than anybody else. =

Name: Jeannette • Date: 09/08/2005 20:53:42

Carmel Boston--My brother had his tendons lengthened when he was little..if you have any questions please feel free...I've also given my mom this site address, so that she may talk with others in this situation like yourself. =

Name: darren mcdonald • Date: 09/12/2005 17:40:02

i need some one to talk to my grilfriend she has
cerebral palsy she is in a wheelchair. she is wondering women
with cerebral palsy can have babys? =

Name: jean • Date: 09/14/2005 10:33:00

I have a 2 year old with CP and seizures. I was talking with my bro last night about having a child with special needs. I am angry at him for suggesting my child is a burden and someday I should place her in a special home. =

Name: jean • Date: 09/14/2005 10:35:38

Is it really hard for parents to handle so many things? =

Name: Rebecca • Date: 09/14/2005 10:41:13

Hey Jean i hear ya i have a 3yr old with Cp and seizures as well.
It's so hard to take care of her and try to take care of me at the same time. =

Name: Ola • Date: 09/16/2005 09:43:07

I have a 5 year daughter with CP we are struggling after recently returning from 4 years in Germany where the care and attention was excellent. Im trying to understand why we have had no physio for 5 months but plenty of assessments. I ask myself if main stream is correct should I move to another borough etc. Help =

Name: ola • Date: 09/16/2005 09:44:53

We were recently told that botox is the next thing to slow the shortening of the leg muscle but noone talks about the arms.

Scarry really, I thought hoorse ridding would help a hot pool daily but where. =

Name: ola • Date: 09/16/2005 09:47:46

we were told the muscle lenghtening operation would happen at 7 and over but we are terrified shes so little and was 618 gramme at birth I think shes 12 kg now and 5 years old. =

Name: ola • Date: 09/16/2005 09:48:48

Does anyone have information aabot PETO or otherwise known as Conductive Educatoion, we are looking for a live in trainer/au pair from Hungary =

Name: Jamie • Date: 09/17/2005 01:56:35

My brother is 10 and has CP and my mum wants nothing to do with him. So now me and my grandma has to take care of him. I just want to talk to someone about whats all been going on. =

Name: Kylie from Australia. • Date: 09/17/2005 07:18:21

I am 34 y/o womam with moderately severe Cp znd seizures . I hope I can at least give some of you some idea of the reslts os varios treatments ,as I have had most .
I attend The Spastic Centre five days a week and go to Conductive Education once a week , The conductors are trained in Hungary ....I find the results brilliant and would recommend it to even the most severely affectcted . I am not able balance out out of my wheelchair alone yet ,but can walk with a frame Almost!!!!!! I was previously unable to unclamp my hand but I am having regulare botox treatments which have almost completely released my hhans as long as I weare my Second Skins to keep them in natural position . Botox has been extremely effective for me ..
Can"t say the same for tendon lengthening as it made it much harder to even move my leg at all....
And with seizures, well we are still looking ..... =

Name: Becky • Date: 09/20/2005 12:47:39

I also have a 4 year old son with CP. He is the light and inspiration in my life. He can't walk or talk but he is the most happy boy I have ever met. He gets regular PT, OT, ST, as well as music and feeding therapies and we are looking into stem cell therapy, HBOT, etc. He has been on a mickey-button for several years, but is now almost completely orally fed. Doctors are recommending botox, but I am unsure about it. He was a full term baby, but is still under 11kg at 4 years and 3 months. =

Name: Goldie • Date: 09/26/2005 13:37:26

I have been looking for a live chat room for parents of children with CP. My son is 9 yrs old and quite severe. I would love to have a chat room I could go to, not only for support, but also to encourage other parents in similar situations. If anyone knows of one Please email me at trrapped@yahoo.com =

Name: ola • Date: 10/05/2005 07:39:25

If anyone is interested in setting up a support group in London once a month pleas eemail ruyiartyahoo.co.uk

Daughter 5 y with CP =

Name: jordan • Date: 10/20/2005 04:28:47

hi i am jordan i am 10 and i would like to talk to 10 year olds to

from jordan =

Name: uzma • Date: 10/21/2005 23:13:35

i am student of disabilities study.Currently i am working on cerebral palsy.So please tell me how can i do chat online with you guys. =

Name: uzma • Date: 10/21/2005 23:17:06

does somebody know about online support group for cerebral palsy.Actually i want to join some online group to share ideas.Thanks =

Name: caroline stomboli kelbrick • Date: 10/22/2005 09:18:43

hi i live in scotland but would love to converse with another mum,one of my twins has cp along with spastic quadaplegia,epilesy,sensory impairment,tube fed and has reflux.he was born fine but ended up like this because of chickenpox,he is one of 12 in the world to have taken such A reaction.if you want to talk please contact me at cstomboli@tiscali.co.uk.we have tried some therapies and been to specialist places but all in the uk. take care love caroline =

Name: kathy • Date: 10/22/2005 21:03:35

i have a 2 yr old boy with cp @ siezers lung disase i thought i would find other parents with kids like mine it is very hard to find someone to talk to =

Name: Tee • Date: 10/23/2005 19:02:40

Hi' I have a 6 year old son with cp and i can very much relate to haveing a child with disabilities. =

Name: kathy • Date: 10/23/2005 21:59:02

hi tee i have been trying to find somebody to talk to you can email me redsgirl31@aol.com =

Name: Rodney • Date: 10/27/2005 16:00:01

I would like to chat with you about the special needs of a child with Cerebral Palsy =

Name: Abby • Date: 10/30/2005 05:05:00

Hi, I have a 4 year old son with Quadraplegic CP...if you need a friend let me know and I am there. =

Name: Jessica • Date: 11/01/2005 22:09:49

I was wandering...I know it may be a hard thing to talk about, but I am doing a research project for my Anatomy class...and I was hoping to find someone willing to have an interview with me...would you be? =

Name: Jessica • Date: 11/01/2005 22:14:58

if so, please reply asap! You can email me any time at J_Girl892007@yahoo.com =

Name: kathy • Date: 11/13/2005 19:07:09

my son has cp now i find out he has bad kidneys both are bad i just dont know how to coup with it i feel like iam going crazy everyday something is wrong =

Name: angel • Date: 11/24/2005 11:06:45

wats up peeps are u kool i hopw u have a great life =

Name: Simon Trent • Date: 12/10/2005 04:24:06

Hello i have just found your web site by chance im trying to find out more about stem cell treatment i have a one year old son with cerebal palsy.
my wife and i are still trying to come to terms with what happened charlie sustained cp during labour which we beleive to have been the hospitals fault . =

Name: u think u hav problems • Date: 12/13/2005 08:38:13

honey u think u hav problems... i am 16 and only just recently found out why my mum doesnt know how to help me... my mum has cp... no1 wanted to tell me... i have depression... i am ready to kill myself... i slip through the system cause they dont expect people with cp to have kids... my mum did... and now im not getting any help... i am mentally older than my mum ... i make all the decisions... and you think you have problems =

Name: debbie newell • Date: 12/15/2005 08:03:18

HI THERE I HAVE A 2 1/2 YR OLD LITTLE GIRL WITH QUAD CP . WOULD LOVE TO CHAT WITH OTHER PARENTS WITH CHILDREN WITH CP , =

Name: lisa wilson • Date: 12/17/2005 10:57:52

i am a 28yr old who has a child with quadraplegic cerebral palsy he is now 19 months and not yet walking or talking to move around he rolls i am finding this very difficult to take in as i have 2 older children who were both born normal is there any parents out there that feel the same. =

Name: Tara • Date: 12/27/2005 15:23:43

I have a one year old who has CP. Am looking into HBOT. Would love to talk to someone who has put their child though it. Email me at tglandorf@wral.com =

Name: amberL • Date: 12/28/2005 01:33:25

I'm a 23 year old mother of four. I have a five year old daughter, a two and a half year old son, and twin boys seventeen months. One of which has CP. I would love to chat with moms who are going through the same things I am.:therapy, doctors,other children, etc. =

Name: amberL • Date: 12/28/2005 01:42:06

To Lisa Wilson: I would like to talk to you. I have other children who are fine too. My son is seventeen months and doesn't even roll over yet. It's even harder because he is a twin and it is so hard to watch him struggle while his twin is advanced. If you would like to chat please submit a request for my e-mail. I look forward to hearing from you. AmberL 23 =

Name: laurie • Date: 12/30/2005 20:25:05

i feel sorry goodbye =

Name: lisa wilson • Date: 12/31/2005 12:28:51

hello amber l its lisa wilson only just got your message i am really struggling at the moment with depression and feel like i cant cope any more i find myself looking at other children and wishing that my son could do the things that they do.he is very alert and bright but cannot walk or crawl yet. i think its the not knowing if he will or not or that he might be in a wheelchair. i just dont seem to be dealing with it too well. last christmas he nearly died twice after getting bronciolitis and had to be ventilated for 3 wks before this he was born 11wks early and had a twisted bowel and 2 hernias so he had 3 operations up until june this year i was ok then everything hit me i have felt very suicidal but i have to keep going for my kids do you know of anything that can help my son. =

Name: AmberL • Date: 01/01/2006 14:34:53

Hey Lisa Wilson, its AmberL I think the best thing for your son is to love him and treat him as normal as possible. I know it's hard, i have the same issues as you do I would like for you to email me so i can talk more discreet to you. I would like to share so much with you that this isn't enough room. As i am typing my baby with cp is crying because i put him down. do you have that same problem with your son. Please email me : maticbass@yahoo.com. I would love to talk to you more. I also was depressed so i got put on antidepressants. I completely understand and am so glad i fiinally found someone like you to talk to =

Name: Katealim • Date: 01/03/2006 00:53:17

I have a 9mo. old daughter who was diagnosed with spastic diplegia cp at only 2 mo. My daughter was also born with a cleft palate and a heart defect. =

Name: lisa w • Date: 01/03/2006 14:28:01

hi amber i have tried to email you but you havent replied from lisa =

Name: lisa w • Date: 01/03/2006 14:30:15

hello katealim how was your daughter diagnosed at only 2 mth from lisa w =

Name: Connie • Date: 01/19/2006 15:49:56

I also have a 4 yr old but a girl. She has spastic quadriplegia cp w/ dystonia. I would like to talk about our kids. It's hard for me to take to my husband. He thinks we can just fix it some how. How do you get them to understand it doesn't work that way =

Name: Mandy • Date: 01/29/2006 21:03:12

Hello, I have a five year old son with cp starting full time school this year which is kind of a mind field, especially when his teacher has no ideas on how to deal with it. =

Name: Mandy • Date: 01/29/2006 21:08:16

Anyone who wants email me : cerebal2@bigpond.com =

Name: donna • Date: 01/30/2006 22:59:01

Hello I have a four year old with severe spastic quadraplegic cerebral palsy I would like to talk to other parents in similar situations. please if there are any e-mail me at chaseaddington@aol.com =

Name: Amber L • Date: 02/07/2006 18:45:47

It's been a while since ive written on here. I see a few new moms have written inalso. To Connie, i so understand the husband issue. Mine just ignores the problem, i mean he loves his son, but doesnt understand that its here forever. If you read this please email me aat maticbass@yahoo.com =

Name: carla • Date: 02/08/2006 01:15:04

Hi, I have a newborn baby facing many challenges ahead. She is four months old and she had a stroke at birth. =

Name: LISA • Date: 02/08/2006 10:52:38

HI MY 8 YEAR OLD SON HAS SEVERE CEREBRAL PALSY SEIZURES AND SEVERE LUNG DAMAGE HE S ON CONSTANT OXYGEN AND A LOT OF THE TIME WE ARE HOUSE BOUND CAUSE HE S UNWELL WOULD BE NICE TO TALK TO OTHERS .YOU CAN EMAIL ME ON LISA150278@YAHOO.CO.UK =

Name: carla • Date: 02/08/2006 23:36:25

I had a baby 10 wks early. She had a stroke and now faces cp among other problems. She is now 4 months old and the neurologist recently confirms a blood clot on the back of her brain. Anyone want to talk? Can you relate? This is all so new to me. toddcarla@earthlink.net =

Name: hayz • Date: 02/11/2006 15:02:57

my son has cp down right hand side he also has aspergers that was only recently diagnosed he was born 10 wks early and cp was discovered at 9mnths due 2 his cp he has developed scoliosis of the spine he cannot walk very far due 2discomfort it would b great 2 chat 2 any1 wanting an understandin person. =

Name: LESLIET • Date: 02/14/2006 00:53:21

My adoptive son is two and just had surgery in november for heel cord lengthening and is now in physical therapy. They say his cp is mild, but am noticing other signs, does it get worse. he just recently got his brace for his right leg, I live in Ohio and would love to talk to other mothers with similar concerns and would love to know more about this, am new to it, he was just diagnosed last oct 05, so not sure about everything. I would just love someone to talk to with similar age and development of their child to help each other.
Thanks Leslie
My email address is herefwhile2002@aol.com if anyone would like to talk to me. =

Name: mandy-Australia • Date: 02/17/2006 03:01:22

My 5 year old son jesse has CP.He is slightly blind in the left eyedue to scarring on the brain.his intelligence is well above average, but his physical abilities affects his everyday life. He understands whats wrong with him and that why he is different to other kids. It gets a bit disheartning when im watching him on the school play areas, where other kids wont let him join in their games because he is slow and his co-ordination off. Last october we tried the Botox injections into his leg.But now they say it didnt work?There is a 5% chance that it wont. Has anyone else had experiance with BOTOX? =

Name: sara • Date: 02/19/2006 16:47:01

Hi, i posted on here a couple of weeks ago...my son also has CP. I don't know if anyone is available to talk, but, I'm here. :) =

Name: Lisa • Date: 02/19/2006 18:30:06

I have a son who will be 14 on tuesday. He has moderate CP. I would be happy to talk. I have been thru several surgeres with him, home modifications, vehicle purchases.; you name it. email me at lvoisin@rwbaird.com =

Name: merrideth • Date: 02/21/2006 10:37:25

hi I have a 3 1/2 year old with c.p. Lets talk sometime =

Name: Jamie • Date: 03/10/2006 00:46:26

i am sixteen years old and i have a little brother who is eleven years old now, he has cp also =

Name: Jaclyn • Date: 03/10/2006 15:21:16

Hello. I have a six year old boy with cp and a seizure disorder. Thankfully, he hasn't had a seizure for about 2 yrs now.

Would you like to talk? =

Name: aaron • Date: 03/10/2006 17:02:30

Hi jaclyn i'm 29 and ihve cp tooo.wanna talkek? =

Name: stacey • Date: 03/20/2006 10:17:15

hi, i am writing to ask if any parents of a child with CP would like to talk to me and help me find out what it is like to bring up a child with CP. I am asking for this information because i am 15 years old and i take health and social care as a study at school. i am doing a case study on children with CP. please if you feel alright with speaking to me please get incontact thank you for your time from stacey x x x =

Name: JASMINE • Date: 03/20/2006 12:44:04

Hi stacey i'm 27 and i have a 5 year old boy with CP it's pretty bad and he's in a wheelchair. So if you have any questions i would be happy to answer them. =

Name: Taohidul Hassan • Date: 03/23/2006 14:21:24

My wife and I both have same blood group (O+ve). What are the chances of having a child, and please also let me know if there are any problems for the couple having same blood group if they want to have child? Because I have heard that if parents have same blood group then the baby born with some problem with disorders… so what about your thinking??? please reply to my email address: dearhassan@yahoo.com. thank you. =

Name: Sue • Date: 03/31/2006 01:52:39

I have a four year old son with CP. I was wondering if anybody has tried HBOT - Hyperbaric Oxygen Therapy. We are considering the treatment in Australia, but cannot contact anybody who has had the treatment to see if the outcome is worth it. My son has low tone - especially his trunk, but is up walking on a frame. He cannot stand indepentatly and is very unstable is all positions. If anybody had tried it I would greatly appreciate feedback to see if the treatment is worth considering. =

Name: Cass • Date: 04/02/2006 19:58:41

I have a daughter who is five and has mixed cp mild to moderate. Developmental delayed but notlearning impaired. She was a 25 weeker but her twin has no symptoms =

Name: MICHELLE • Date: 04/06/2006 13:10:19

HELO TO EVERYONE. I HAVE A 6 YEAR OLD SON WHO HAS CP, AUTISIM AND A SEIZURE CONDITION. HE DID NOT START TO WALK UNTIL HE WAS 3 YEARS OLD. HE STARTED PUBLIC SCHOOL AT 21/2 THEY USE TO PUT HIM IN THIS CRAWLLING SWING THING AND THAT GOT HIM MOVING AROUND MORE THEN AFTER THAT THERE WAS THIS WALKER THAT IS SOLD AT TARGET OR WALMART THAT THEY HAD GOTTEN TO SEE IF THAT WOULD HELP AND IT DID. IT IS THE ONE THAT YOU CAN TAKE THE SEAT OUT OF AND IT TURNS INTO A WALKER LIKE WHAT THE ELDERLY USE. ANYWAYS HIS CAN RUN NOW AND LEAVE ME BEHIND. HE DOES WALK ON HIS TOES AND HIS TOES POINT IN WARD BUT THAT DOES NOT SLOW HIM DOWN. THE DOCTORS ARE LOOKING INTO HIM GETTING BOTOX TO HELP HIM WITH THE TOE WALKING I GUESS WE'LL SEE HOW THA GOES. HE DOES NOT EAT REGULAR FOOD YET THOUGH HE WILL ONLY EAT STAGE 2 BABY FOOD NOT SURE WHY BUT WE ARE LOOKING INTO THAT. HE GETS THERAPY AT SCHOOL AND OUT SIDE OF SCHOOL. HE IS VERBAL BUT DOES NOT KNOW HOW TO COMMUNICATE YET. THAT IS STARTING LATELY. THE SEIZURES STARTED LAST MAY AND HE HAS HAD 7 ALL TOGETHER IN THE LAST YEAR. THEY ARE GETTING BETTER WITH MED'S. THE FIRST 2 WERE VERY SCARY BUT NOW I AM GETTING USE TO THIS AND I PRAY ALOT AND HOPE THAT WE CAN GET THEM UNDER CONTROL OR GONE. HE IS A WONDERFUL BOY AND FULL OF HAPPINESS AND LOVE. I FEEL BLESSED AND CAN NOT WAIT TO WAKE UP THE NEXT MORNING TO SEE WHAT WILL HAPPEN NEXT. I LOOK AT HIM EVERY DAY AND THINK ABOUT HOW BLESSED I AM TO HAVE SOMEONE THAT IS SO PERFECT. WHAT I MEAN IS PURE NOT KNOWING THE HARD THINGS WE ALL MUST KNOW ABOUT THIS WORLD THE WAY IT IS TODAY. HAVING A CHILD THAT IS SO INNOSENT IS A GIFT AND GOD WILL MAKE THINGS HAPPEN. WE ALL HAVE A PERPOSE AND EVERYTHING IS FOR A REASON. JUST ALWAYS GIVE ALL THE LOVE AND AFFECTION YOU CAN GIVE AND ENJOY LIFE AS MUCH AS POSSIBLE. GOD BLESS =

Name: ******* • Date: 04/07/2006 00:05:28

Hi, I'm 19 years old and have CP. I have difficulty walking, I stutter, and have some vision problems. I have been in therapy almost all my life. I’ve had surgery; I wear AFO braces, and get Botox injections in my legs every 3 months. What I can tell parents of children with CP is to treat the kids and talk to them as if there were nothing wrong with them. Expect them to do things like chores and helping out depending on the severity of the CP. If your child wants to try something new don’t deny them the opportunity because you do like they can’t do it. With time they will learn what things the can or can’t do and will learn from failure. Make sure you have open communication with your child so they will feel comfortable talking to you. As they grow older and enter school there will be a lot of very hard times and bad experiences and need to feel comfortable talking to you. Even if some of the conversation will be uncomfortable for you to listen too, listen and be patient. They need to have at least one place were they can feel comfortable being themselves and that should be home. Always keep in mind that just because someone has a disability doesn’t mean they can’t find success in life. =

Name: chris • Date: 04/10/2006 01:20:38

my son was just dignosed with cp he is 15 months old I'm really confused on what to do now =

Name: jane • Date: 04/11/2006 16:03:09

hi =

Name: kye • Date: 04/19/2006 13:50:38

hello,
how are you doing there,please mail me back i will help you out so let me know exactly what you need.mail:kye_mya@yahoo.com.i will be expecting you mail.

cheers =

Name: Tammy • Date: 04/25/2006 23:56:06

I have a 10 year old with CP, and would like to talk to others moms who have children with CP =

Name: michelle • Date: 04/28/2006 10:22:18

I have a 7yr old with cp,eating disorder, hearing loss,vision loss,things seem so hard i cry a lot i hate seeing her suffer. Were always at the doctors or hospitals. She goes thru so much testing shes so strong.She doesnt walk or talk. Her father dont have anything to do with her because of her condition =

Name: Sarah Jean • Date: 04/28/2006 20:28:40

I have a brother with CP who was told he was blind and deaf when he was born. They told us he would be a vegetable... Through the grace of God we prayed over Caleb every night. We would trail m&m's on the floor to get him to crawl. Movies if he could stand for a full thirty minutes and many other sweet treats along the path. Now he is nineteen and in college, walking with a cain. This miracle can only be explained by knowing Jesus Christ as your savior. If you are facing a lifetime with a cp child let me encourage you to stop and ask Jesus to come into your heart and forgive you of your sins, turn your life over to God and begin a new life full of miracles!!!!!! This world can be filled with more Calebs! =

Name: Jen • Date: 04/29/2006 10:03:58

I have a 5 year old daughter with CP. She was diagonsed with spastic diplegia at age 2 and has been wearing afo's since. I am taking her next week to see if she would benefit from botox and casting. Any information or advice you can give me would be really helpful. =

Name: Kim • Date: 04/30/2006 00:36:06

I have an almost 4yr old with CP. It is the hardest thing to do. I would love to chat about raising him with you. =

Name: kimberlin • Date: 04/30/2006 00:51:54

My 4 y old Hunter was diagnoised withCP just before his 2nd birthday. I have a stepson who is almost 11, my eldest is almost seven then there is Hunter and we just had a new arrival in January. I find it real challanging trying to spread my time between all of them, but somehow I manage it. Hunter cannot talk, but he does walk. Which I'm very greatful for. But it doesn't make me anymore happy about his situation. I love Hunter. he is a beautiful boy, but i feel constantly sad for him and feel horrible guilt about it. I know I didn't pass it on to him, but the fact that we don't know how he got it is hard for my husband and I to not feel guilty. My emailaddress is kim.berlin@bigpond.com I would love to chat to other mums about raising a child with cp =

Name: bob • Date: 05/03/2006 13:48:28

teaching suggestions on it =

Name: chevi • Date: 05/03/2006 23:10:45

hi, my son is 4 yrs. old with cp. he was a preemie and diagnosed at a year. he's had heavy therapy since then. and he is currently walking with a walker, and in a mainstream class.
we did surgery with Dr. Nuzzo in NJ. he had percutaneous releases and we've seen some decent results in his range of movement and ability. But i really want him out of the walker. we started him with crutches, but he has such poor balance that its really early. weve gone to Ramon and his medek method, but my son screamed through it. i have a therapist who uses the medek method, i find it helps, along with ndt. anyone out there who has info for me would be great thanks. =

Name: sandeep • Date: 05/04/2006 13:33:46

do we have any problems, if parents have same blood group.\
i.e if both mother & father have same blood group do we have any problem for pregnancy. =

Name: Margie • Date: 05/09/2006 10:09:00

Chevi,
To answer your question there are other option which could further your child's development. I am a physical therapist with years of experience with children with cerebral palsy and I have seen good results in children who have completed intensive suit therapy. This intensive program increases strength, balance and overall function in a short period. If you have any questions or need more info please feel free to ask me. =

Name: chevi • Date: 05/10/2006 23:51:21

margie,
thanks for your response. i've heard differing info on the suit therapy, there are soooo many out there how do i know who is good? we actually are using theratoggs at times with his pt but its so not user friendly! he also goes swimming which is great. =

Name: Nichole • Date: 05/11/2006 10:01:18

I have a 3 year old son with mild CP and have been looking for groups/individuals to talk to with children similar to my son. In my area, northern Illinois, 2hours west of Chicago, I feel like there are not many kids like him. His condition is mild, basically it affects his walking and coordination the most, his hearing, vision, mental capacities are good. He does have mild dysarthria, which affects his tongue and he is unable to produce some letter sounds, but mostly he is well understood with a very large vocabulary. But I feel like he is stuck between the "normal kids" and kids with worse handicaps. He's been in physical therapy since he was 6 months old, and currently he is seeing a PT, OT, speech therapist, neurologist and phyziatrist. He has used AFO's, SMO's, Benik vest, Theratogs, and Botox. And while these appliances help when they are on, he reverts back to the pigeon toed, unbalanced walking when they are not on. Family members are still having a hard time adjusting to his needs, and my husband and I try the best we can but I would like to start correspondence with other parents of kids like my son Hayden. We are currently involved in a lawsuit because of my sons condition, I would like to hear from anyone involved in or done with a lawsuit, to know what I can expect or to help others involved in a case like mine. My email is nbrongiel@yahoo.com. =

Name: Margie • Date: 05/11/2006 15:19:35

Chevi,
There are over 65 clinics using therasuit method in the U.S. People who originated it here are parents of a child with cerebral palsy (she is now 14 and walking), she was in a wheelchair until she was 8 years old. The clinic who started the therasuit method is located in Michigan. Their website is www.suittherapy.com. You can find more info and clinics in your area on this website. Look for a clinic that employs therapists from Euromed Poland. This is where this type of therapy originated prior to being brought to the U.S. and these therapists have a wealth of knowledge and experience. I have been utilizing the therasuit method over the past few years with great results. If you have any further questions please feel free to ask. =

Name: Casandra Moreno • Date: 05/13/2006 17:09:52

Hi everyone! I have a 7 yr old daughter with CP and seizures. Isn't it odd how these little angels suffer from so many things but yet their smile brightens everyone's day? They suffer from surgeries, seizures, ridicule from other children but yet they keep that smile. We could learn something from them, well, at least I could. =

Name: penny • Date: 05/15/2006 17:18:30

hi am new to this forum and just wanted to talk to someone eles out there with special need children =

Name: penny • Date: 05/15/2006 17:35:14

my son has cp seizures and also a blood disorder and he is my sun shine all the time =

Name: Christi • Date: 05/16/2006 00:08:55

My son is ten years old and he has CP. I would really like to chat with someone else who is raising a child w special needs. =

Name: Christi • Date: 05/16/2006 00:15:43

Dear Ola, I have heard of Conductive Education. There is a center that does it here in the US. My son is ten years old and about two years ago I was going to tkae him to the center. I live in Texas, and the center is in Michigan i think. Anyway, I wabted ti ask a question. My son is toilet trained, but when he needs to go to the bathroom he rocks back and forth. Does anyone else children with CP do this? =

Name: Christi • Date: 05/16/2006 00:20:49

If anyone has a child with special needs and wants to talk, my email is cjcsweets@aol.com my son is ten and has cp =

Name: Christi • Date: 05/16/2006 00:34:41

Dear Margie and Chevi, what is Medek Mehtod and suit therapy? My son uses his gait trainer by himself now and he is also in mainstream classes. His Orthopedic Surgeon performed an abductor release on him when he was four and he says with a lot of hard work he should be able to lead a normal life. I am supposing that means living alone and he also said he would be able to walk. =

Name: Margie • Date: 05/17/2006 18:03:31

Christi, To answer your question...Suit therapy is this very intensive exercise program(usually 3hours a day,5 days a week,for three weeks straight) designed many years ago in Poland for children with cerebral palsy and other neuromuscular disorders...It has been used in US for the past few years with great results(it was introduced here by parents of a child with CP , therapist themselves who used to fly to Poland for many years in a row for this type of therapy-their daughter is walking now and she was a bad case ...) There are over sixty clinics in US now and they are all listed on :www.suittherapy.com
I am a pediatric therapist for many years and have been using this method for some time now and never had better results in treatment of kids with CP.It's really worth trying if your son is close to walking...I am in the NY area, but I know many great therapists all over,so let me know if you need any info... =

Name: snoopi botten • Date: 05/19/2006 08:21:53

Not a parent but very active in the diabled community, i may have some good connections for you and steer you in the right direction being i have cp myself, age 41. you may contact me at dectalk@aol.com =

Name: Caroline Bamber • Date: 05/20/2006 19:23:11

My son is 2 and a half and has CP with severe global developmental delay I find it difficult to relate to other parents who do not have a child with disabilities and would like to chat with others who are in a similar situation. =

Name: Genny • Date: 06/07/2006 15:42:09

i wanna chat with anyone who has cerebral palsy =

Name: bridgette • Date: 06/08/2006 00:13:00

hi i have a son who was born premature,was diagnoised with cp at 4 moths and has alot of disabilities and we are trying to get disability for him and are having alot of trouble on this =

Name: carly kelbrick • Date: 06/08/2006 12:53:04

i love you mum =

Name: SamanthaHarper • Date: 06/28/2006 15:28:38

hey peolpe =

Name: Jane • Date: 06/30/2006 17:02:40

hi caramel,

I am an adult with cp who had the heel cord lengthening done at age 13. Before the surgery I was a toe-walker, and the lengthening enables me to walk with my soles flat on the floor. I also had other tendon work done which straigtened my feet although they used to turn in. The recovery period was long for me, but don't let me mislead you, as my operation was done twenty-three years ago. =

Name: Michelle • Date: 06/30/2006 18:49:49

i do not have children but i take care of a 16 y/o boy with CP and severe mental retardation. i would love to chat with others who have children with developmental disabilities or CP. email me at alwayssweet89@yahoo.com =

Name: mtip • Date: 07/03/2006 23:42:17

Hi, I have a 3 1/2 yr old son with cp. I'm also looking to chat with other moms that are rasing children with cp or other special needs. I live in a small town and i don't have much support it seems as though no one understands my feelings and what i'm going through. I would love for you to email me at rtipton@kirbyrisk.com =

Name: jitan • Date: 08/13/2006 09:56:14

hi michelle i have a child with cp.as u r dealing with a 16 year old u must be knowing more.i will like to know more.seeking and waitting for replly.my id jitrmfeo_2006@yahoo.com =

Name: a.sawdon • Date: 09/19/2006 12:59:57

I have a 3 year old daughter with CP and i am finding it difficult to realise. any one else feel the same? =

Name: Brose1971 • Date: 09/20/2006 23:28:02

My daughter is 18 years old with CP. I was 16 when I had her and she was born at 29 weeks. To all the parents Having a disabled child is the hardest and most rewarding job you will ever have. My daughter is my best friend and has made more progress then they ever said she would. Praise all progress no matter how small. Celabrate all accomplishments. And Love each other even when you want to scream. =

Name: Brose1971 • Date: 09/20/2006 23:35:28

To the 19 Year old. My daughter with CP is my best friend. We talk about everything. Your right ,but the truth is most of the time she teaches me more than I will ever be able to teach her. She is my hero. =

Name: sweetcaramalkiss • Date: 09/21/2006 09:40:12

Becky,
I dont know if u still visit this site but your situation seems similar to mine. My son is about to be 4 oct 15 and he has cp. He can't walk or talk but he is the happiest little guy ever. He also has a mickey button and he is still underweight be doesnt care for food by mouth unless its a good day or week. His weight has always been a issue he weighs only 27lbs. Its stressful at times he also has acid reflux and he vomits from time to time which doesnt help with his weight gain. But anyone interested or had the same similiar issues with their children please feel free to email me at sweetcaramalkiss@msn.com =

Name: t • Date: 09/22/2006 09:29:57

Hi I am A lady that have Cerebral palsy. I thought I would give all the parents out there a tip, just because your child have Cerebral palsy dont mean you should treat them special, you need to find out what they can and can't do. I have many friend with a disablied and I find that the people who parents wouldn't let them do anything but stay in their wheel chairs or whatever they didnt want to see what they could do on their own. I had a mom that made me clean up after myself and for that I am thankful I have a speech problem and people look down one disable people a lot. I have a 14 year old daughter that is in good health. so there is hope for you children with Cerebral palsy. if there parent out there that want to know what their children are in for I can answer your questions. Thanks T =

Name: sphillips_inspring06 • Date: 09/22/2006 16:20:00

Hi, My name is Sarah and I have a six year old boy with cerebral palsy. =

Name: constance • Date: 09/24/2006 17:28:54

Hi, I have A 9yr old boy with cp. He has come so far in the past 3 years it is amazing. He had the surgery on his legs and he can walk now. Recently we have had a set back. He has been potty trained for at least 3 years but now he has started going in his pants. It is only #2 he goes #1 in the potty. It is so strange I have no idea what to do. =

Name: tammieharrison • Date: 10/03/2006 23:22:15

I have daughter that is 17 months old with mild spastic diplegia cp. We are just beginning to see the difficulties MacKenzie is going to have. =

Name: mspeachpit • Date: 10/04/2006 09:56:06

hi. my daughter was diagnosed with neurofibromatosis at 9 months old. =

Name: cheerygirl05 • Date: 10/28/2006 02:08:31

Hi, I am a mother of a 14month old little girl with CP and she is underweight. I was wondering how it is to have a gtube and is it a good choice? =

Name: maureen • Date: 11/03/2006 20:47:30

hicarla my son had a stroke at birth also he is two and a half now =

Name: babyhuie61 • Date: 11/04/2006 15:35:38

Hi there. I ahve a 15 yr old daughter who has a syndrome called 22q13. She also has a new diagnosis of acquired brain injury due to a horrible accident at school last year.

Cindy =

Name: tamara • Date: 11/06/2006 22:06:25

My 16 month old has CP and microphepholy and a g-tube... I try and stay up on all the latest and best therapitist and I would like to recommend Medic PT verse NDT PT it's really changing my daughters life. =

Name: tamara • Date: 11/06/2006 22:07:17

what kind of difficulites do you see now? =

Name: Jen2006 • Date: 11/07/2006 00:18:05

Hi, I have twins with special needs. My daughter has cp. I am feeling really tired and down about EVERYTHING. My twins are now 13. I'm looking for someone to relate... =

Name: julie_duffek • Date: 12/06/2006 23:26:35

how long ago was your son diagnosed? =

Name: sullykidsmom • Date: 01/08/2007 11:09:47

I have a 15 month old with CP and I am looking for other parents that can relate with me as well. I was wondering if you have ever heard anything about hyperbaric oxygen therapy? =

Name: wdasd • Date: 06/11/2007 18:51:15

you guys are moms