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I'm a first time mom and I just found out that my three week old baby has sickle cell. I'm really not sure of what to expect and what I should know and I was wondering if there were any other mothers out there that are going through the same thing. ↓
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| Name: STACIE | Date: May 29th, 2008 3:45 AM |
| YES I AM I'M A MOM OF 5 BUT LAST 2 BORN HAVE THE DISEASE WHILE 1 HAS THE TRAIT. SO YES I KNOW WHAT YOUR GOING THROUGH ↑ |
| Name: tweety | Date: Sep 23rd, 2008 4:51 PM |
| Hi my name is tweety. Im 22 years old and i Have Sickle Cell and I just want 2 say that my mom and I have beem through alot but keep your head up and keep God first. Also you and your children can survive, ive survived for 22 years and im still surviving. ↑ |
| Name: Eric | Date: Nov 25th, 2008 3:53 AM |
| Hi My name is eric and i am 18years old i have a 21yr old girlfriend who has sickle cell and i really love her but im worried for her because she doesnt want to scare me and i want to know is there anything i can do to help her when she has an "attack" Please E-mail me at Sk8pyrobord90@yahoo.com ........THANK YOU ↑ |
| Name: Mommyluv | Date: Dec 5th, 2008 10:12 PM |
| I have a 7 year old son with sickle cell and it is very hard when he is sick. You will go through many emotions, and it will tear you apart when the pain is bad for them and you can't take it away. My son has been able to manage and has less painful episodes with the help of the medicine hydroxyurea. This year has been tough. He is just now understanding what he has and sometimes he hates it. He prays that a cure will be found, and so do I. I am not going to say it will be easy but study and learn as much as you can about the disease so that you can understand how to help when there is a crisis. I wish you the best. ↑ |
| Name: Sarah | Date: Dec 15th, 2008 11:35 PM |
| Hey, as a person who has Sickle Cell I want you to know that, always. ALWAYS, keep God first. Don't back down, you know what's best for your daughter and don't let doctors tell you something else when you know that it's wrong. All mothers' know best! You mill look at her and wish you can take the pain away...It's hard I know it will be but do your best just to comfort her. Heat packs, massages, blankets, toys, anything but first and foremost is PRAYER. I really wish you the best and I know you will help her get through this and you'll be a great mother to a bright child. May God Bless You and your daughter who I know will do well and I will keep you in my prayers. ↑ |
| Name: Tonya | Date: Dec 29th, 2008 1:42 AM |
| Yes, me too I have ss also.Don't worry about your baby she will be alright put it in the lords hands! As your baby get older don't take no wooden nickels from "NO" doctors if they don't your baby's best interest at heart!! Follow your motherly instict if "U" feel something ain't right don't let no doctor do it. Always get a second opinion. ↑ |
| Name: shawn | Date: Jan 2nd, 2009 12:30 AM |
Hello
I am going through the same thing.. My daughter is now 12 months and its very scary. Are you in California?? ↑ |
| Name: Blanche | Date: Jan 24th, 2009 2:33 PM |
| my daughter was born with sickle cell 15 years ago. My advise to you is stay strong. It can take a toll on you. Hopefully there will be a cure soon. ↑ |
| Name: keisha | Date: Jan 26th, 2009 6:42 PM |
| i found about my baby's disease when he was 6 months. i am trying to cope with it but its hard. Have SC. He is 20 months old. Can you give me some advice on how to handle the situation and how to cope with it please. Because it is really hard. ↑ |
| Name: Tieyon Hendry | Date: May 14th, 2009 11:27 AM |
| Hello, I am a first time father and my wife and I just found out that our 2 month old son has Sickle Cell. We are also in search of more information on this subject and are looking to network with other parents and individuals in our similar situation. I your intersted, we would love to share information with you as we discover. Please feel free to contact my by email at tieyon@comcast.net ↑ |
| Name: aneesh | Date: Jun 1st, 2009 5:57 AM |
| Name: Dove | Date: Jun 14th, 2009 10:16 PM |
| I'm so sorry, you have a long road ahead of you, I'm 29 with hemo SC, I don't have advice for your little ones cause when I was little my mom had no clue, Just learn all you can about it, I love this site, www.scinfo.org. Penicillin is a treatment when their young, for blood counts under 8 hydroxyurea when their older, 5mg daily folic acid, plenty of water, keeping warm when your cold, no over exersion, deep breaths is good too. Shower your baby with love and have them bathe only in warm/hot water with no drafts of cold air, don't take any small illness for granted, hospitalize during severe crises, if you can afford it invest in a jacuzzi, its good for the blood vessels and great for oncoming crisis, they can take a strong pain killer, soak for about 15, 20 minutes, dry off, rub with heating oil, bandage the area, fully clothed they then cover with a blanket and go to sleep should be better by morning, this is for when they are much bigger though, and please don't play with fever, also see a opthamologist for eye exams every year in order to catch early retinopathy a good sign is floaters in their vision. B vitamins is also good. when a crisis is coming on always rest, plenty water, take painkiller, rub with heating, once it starts it can only get worse with constant mobility, they key is to catch it, threat it before it gets worse. God bless, remember your baby is normal except for this and make him or her healthy in spirit. ↑ |
| Name: Sharolyn | Date: Jun 19th, 2009 10:05 PM |
| My daughter was diagnosed 15yrs ago. I like you was very scared and didn't know what to expect. My advise to you is to love her with everything you have. Treat her as normal as possible. I not going to lie and say its all peaches and cream, you and your daughter have a long road ahead of you. With prayer and a great support system you both will make it. ↑ |
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