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Hi, My 3 year old, Ella has been diagnosed with C.P. and deafness. She is not walking yet nor does she have any form of communication. I feel so disconnected with her in so many ways. It can sometimes be a little discouraging. I would love to hear from other people who are going through these struggles as well. I would love to hear from parents who might be going through these same struggles. My email is [email protected] ↓
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| Name: yanny | Date: Mar 4th, 2006 1:27 AM |
| Merrideth, You are not alone. There are so many websites and support groups out there. Please avail yourself of the info offered on the internet. I have been reading and writting for three days. Our new nephew was just found to have CF. The first night I heard, I cried myself to sleep. Read the info, it is all not bad. Plus, our cousin had coclear implants a year ago and he is doing just great!! I am sorry that you are feeling alone, but you are not alone. There are womderful, kind, caring people out there. Go for it and stay strong for little Ella. God bless you, Yanny ↑ |
| Name: jerry | Date: Apr 19th, 2006 5:02 PM |
hello,
how are you doing there,please mail me back i will help you out [email protected] ↑ |
| Name: sullykidsmom | Date: Jan 8th, 2007 4:45 PM |
| I to am going through life trying to find answers to all of the questions I have about dealing with my sons CP diagnosis. I feel alone all of the time as I don't know anyone with a child with my sons same disorder. I need people to talk to BAD you can email me at sullykidsmom@yahoo,com ↑ |
| Name: jordy | Date: Mar 31st, 2007 6:34 PM |
| my daughter also 3 and has c.p. makes me mad as i can't find any parents to talk to any where. not even in south africa. could use friends that ubderstand what i'm going through. anybody e-mail me at [email protected]. can't wait to hear from anybody...... ↑ |
| Name: midgie | Date: May 27th, 2007 6:54 AM |
| My son has multiple diagnoses. His primary diagnosis is CP. He will be 14 years old in two months. He is legally blind, eats with a G-tube, and is a spastic quadriplegic (he does have a couple of other diagnoses, but those will do for now). Yet, I tell everyone that he is happy. I have developed a saying I tell people, “Men just think women are in this world to serve them, my son knows they are”. It took me along time to cope with my son’s disabilities, but I came to realize that if I was to be of any real benefit for my son, I had to come to grips with what I had to work with and find ways to work with his disabilities. Grieving for what could have been for my son didn’t make things better for him. My coming to realize that he was a human being with limited abilities did. I began to work with my son on his level. My son had sensitivity problems his first few years, but after awhile he responded well to touching, hugging, and knowing that I, or someone was near him to care for him. It takes awhile for the parent to adjust, but with patience and love, you will begin to see that your child is still a child that will respond in ways you will recognize. My son can’t communicate at all. He can’t speak, he is legally blind, and he does not have enough control over his body movements to learn sign language. He is also developmentally delayed. There is know doubt in my mind that he knows who I am (he turns in my direction). Sometimes noises confuse him and I need to rub my face against his and give him his special ear kiss before he realizes it’s me. ↑ |
| Name: kayla | Date: Mar 30th, 2008 4:10 AM |
| hi so wat is yo favorite thing to do ↑ |
| Name: biilly | Date: Jun 7th, 2008 2:52 AM |
| Name: keke | Date: Jun 13th, 2008 8:36 PM |
| Name: keke | Date: Jun 13th, 2008 8:42 PM |
| Name: Kelly | Date: Aug 6th, 2008 3:03 PM |
| I have a daughter that was in a mva and had sever brain damage. Courtney is now 6yrs old and goes to a regular school and has speacial class once a day for 1hr. She didnt start walking until she was 22 months and sisnt start talking until almost 3 . I had to form a language that was our own that we had to make her feel comfortable. I have an older daughter that is23 months older and she was a big help. If you would like to talk my email is [email protected] and maybe we could exchange phone #s to talk . I am trying to find some info out myslef and out this as well. ↑ |
| Name: lisasing | Date: Aug 7th, 2008 1:46 AM |
| Looking for a safer and easier way to meet other single parents ? Just join the largest single parent community www.soloparentdate.com for free. ↑ |
| Name: meow | Date: Feb 8th, 2009 10:47 PM |
| Name: Bounty2009 | Date: Feb 23rd, 2009 5:39 PM |
Aww hun! It sounds like you are having a tough time at the moment. I would definately recommend you check this out as lots of other parents to chat to http://my.bounty.com/forums/Sub
ject/143/1/1/Special-needs.htm.
You also might want to chat to your doctor and find out if there are any local support groups where you can meet other parents for face to face support? Dont feel discouraged, your relationship with her is special and unique and im sure you are doing a great job, she needs you to not show any signs of giving up though. Best of luck to you, hope things seem better soon xxx ↑ |
| Name: ANWER | Date: Sep 4th, 2009 4:28 AM |
| HI HAW ARE YOU AM ANWER AND I HEF 21 YERS AND I LOK FOR GERL OR WOMEN ↑ |
| Name: kat | Date: Sep 12th, 2009 1:14 PM |
hi our son was born on the 7th july he ws born by emergency c section at 33 weeks although the specialist are saying he fits more with a 28/29 weeks gestion,
he has server damage on both sides of his brain and has been diagnoised with cp and also suffers with fits , and forgets to breath alot through out the day and is on the coni scheme, when we were allowed to bring him home in august i knew and have known about his diagnosis from the start but i think i covinced myself he would be one of those miracle stories you hear about all the time doctors said she/he wont walk and they end up walking.lol
but he had his 1st consultant appointment on thursday and she said he is displaying the sighns of cp already like she had thought she also said fromt he begining she thought he would have spastic something i cant rember the word but where his legs go in wards
low and behold at our physio appointment on friday , she picked up on his pigeon caved in foot and stiff jjoints mostly on his right side also he has a husky / astmastic like breathing which apparently is a part of cp i am only 26 and have 4 other children and i read last night cp isnt just a plain sailing disabilty , it says they will need at least one or more operatons ? is this true and what am i to expect from all this as im in the world of the unknown and the unknown scares me
thanx
kat ↑ |
| Name: cinda | Date: Oct 16th, 2009 8:16 PM |
hello, are you doing today. i am writting you because there are so many people out there jus like oui as a single 15 year old mother trying to finish middle school, when I gave birth to my son. When my son was born they discovered he has CMV, whiched caused him to have cp, hearing loss, adhd,kidney problems, high risk of epilepsy. Brendin didnt walk until he was about 2 1/2. He was 3 years old, started preschool for the hearing impaired and did not learn how to speck yet. the 1st 3 years he depended on sign. He is now 6 years old and talking up a storm.. when i thought all the nightmeers was over with, I gave birth tomy youngest son who is 6 months. He was born with DiGeorge Syndrome- heart defect, effects your growth, your hearing, learing, bones.. when he was 2 months old he had to have heart surgery and 4 or 5 more to go through out his life.i know how it feels when you feel like your the only one struggling and know one to turn to. I believe God will take care of my babies, and i will defenitily pray for your baby ella- to make her strong and be able to communicate whether its sign or speech. mommies are all so proud of there babies no matter how they learn..im not good with all the email thing, but if you would like to talk, my myspace is.
http://www.myspace.com/cindalong
you are in my prayers ↑ |
| Name: MARTHA | Date: Nov 9th, 2009 2:58 AM |
| I HAD THE SAME THING WITH MY CHILD ,NOW SHE IS NOT WITH US WE WERE IN A CAR CRASH AND SHE CRACKED HER SKULL OPEN AND 3 HOURS AFTER THAT THE DOCTOR SAID SHE WAS NO LONGER WITH US , LIVE EVERY DAY LIKE ITS HER LAST. ↑ |
| Name: MARTHA | Date: Nov 9th, 2009 3:01 AM |
| I HAD THE SAME THING WITH MY CHILD ,NOW SHE IS NOT WITH US WE WERE IN A CAR CRASH AND SHE CRACKED HER SKULL OPEN AND 3 HOURS AFTER THAT THE DOCTOR SAID SHE WAS NO LONGER WITH US , LIVE EVERY DAY LIKE ITS HER LAST.PLEASE BE CARE FULL WITH HER LIFE ↑ |
| Name: deseray | Date: Nov 9th, 2009 3:18 AM |
| i need some one to talk to my 3-year-old mary kate ,has been really ill and the doctors can not tell me what has they say she might have a cancer and im crying right now,i just my other son skyler is only 5 and he is in a wheel chair and i hate seeing my kids like this but i can't pay for my kids medical bills and i can't pay the house payment please reply ↑ |
| Name: ROYADAMS | Date: Dec 20th, 2009 10:23 PM |
HI HOW YOU MY ANGEL
ORYOU OK ↑ |
| Name: seugnet strydom | Date: Jan 9th, 2010 7:14 PM |
| Hi to u,my daughter is turning four in march,and she was diagnosed with cp,i was told that she might only live up to 3month,but she is alive and a real fighter,her name is Daniella,she cant walk crawl,talk or sit without assistance,shes almost like a newborn baby,she suffers from chronic pneumonia.and chronic constipation.its extremly hard,but i cant imagine her being any different,if u would like to talk more my cell 0848033825 all the best 4 u ↑ |
| Name: imecia | Date: Apr 28th, 2010 11:01 PM |
| Name: jennifer | Date: May 29th, 2010 10:14 PM |
| I know what you mean in so many ways. I have a 17 month old baby girl with a brain injury from birth. She is unable to sit alone and is not communicating at all. I want to be in her world so that I could know what she needs. I fell lost sometimes. My email is [email protected] ↑ |
| Name: demi lovoto | Date: Jun 21st, 2010 10:06 PM |
| Name: omid | Date: Jul 15th, 2010 11:41 PM |
| Name: hankins | Date: Sep 20th, 2010 1:04 AM |
| My 13 mnth old little girl walks with a limp and wont use her right hand and limp on her right leg can she have cp I was diagonsed with ICP when i was pregant can that have some thing to do with it ↑ |
| Name: Ricky | Date: Nov 29th, 2010 7:17 AM |
| Name: shauna johnson | Date: Jan 21st, 2011 9:07 PM |
Hi there. My son, has mild CP as well as seizures. I am sorry to hear you are feeling disconnected. It is so hard in so many ways! Its great that you are here though.
I just started a blog http://johnsonspecialneeds.blogspot.com
Have you ever thought about starting a blog? It has been the best thing for me as a parent with a child with special needs. Try it...or even read other peoples blogs...definitely helps.
Shauna Johnson ↑ |
| Name: shauna Johnson | Date: Jan 28th, 2011 11:13 PM |
My son Eric is 4 and has mild CP and seizures. I would love to help anyone in need...I started a new blog please take a look.
http://johnsonspecialneeds.
blogspot.com/2011/01/about-eric.html
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| Name: damond | Date: Feb 10th, 2011 6:49 PM |
| Name: Jacob Hurley | Date: Jun 27th, 2011 4:50 AM |
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