Hello, my 4 year old son was recently diagnosed with PDD-NOS. My wife and I, parents of younger twin girls too, have suspected that there was something different about him over the last year or so in comparison to his peer group and younger sisters. He is a very happy and social child; however, he is obsessed with planes and trains. Almost all of his conversation either starts with or quickly changes to plan and train subject matter. He rarely volunteers information about any other activity he has participated in during the day. He can play by himself for hours with Thomas the Train squinting at the wheels or wings very closely. When we remove the things he is most obsessive with he creates imaginary planes out of almost anything in the room. Ultimately, everything is a plane or train given enough time.
For many months, we though he was very imaginative. We now know there is a more serious issue. In addition, he can not tolerate any performances or events with bright lights, loud noises or echoes. He immediately starts to panic, covers his ears and cries, “Too loud, too loud”. Once removed from this type of venue he is able to regain composure very quickly. Our pediatrician suggested that he would outgrow his quirkiness; but after several months of hesitation we had him evaluated by a developmental pediatrician, speech therapist and occupational therapist. Over the last six months he has been in speech and occupational therapy twice a week. Just last week we were told, after the second visit the developmental pediatrician, he has PDD-NOS. Several tests were performed to determine this diagnosis.
The last six months for us have been mixed with joys and triumphs, as well as set-backs. We remained optimistic that after his first evaluation many months ago his speech and motors skills would improve with therapy; however, his obsessive behavior continues to grow stronger. His diagnosis of PDD-NOS has helped us understand his behavior better. We are now in a discovery phase of seeking ways to improve his life. ↓
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| Name: KellyMarie | Date: Dec 5th, 2006 8:59 PM |
| Wow! The Plane and Train thing really hit home. My 35 month old son was just diagnosed yesterday with PDD - NOS. He is absolutely obsessed with wheels and fans, and anything that contains either of those items. He makes everything into a "choo - choo". Like your son, he is very happy, smart and social. Our extended family is constantly telling us "There's nothing wrong with him - he's fine." Of course, we as parents know better. My son does the opposite with lights - he will stare into painfully bright lights, but when he was a baby he would scream and cry when he was around laughing, clapping or fireworks. ↑ |
| Name: jadynsmom | Date: Dec 5th, 2006 10:15 PM |
| It is great how positive you are. I think that is key. My daughter was diagnosed with Autism Spectrum disorder. too young to tell how mild. she is in early intervention at school and it is really wonderful. there are moments when she behaves perfectly normal, then the quirky autistic tendencies rear their ugly heads. Oh well. God love them. ↑ |
| Name: shanak10 | Date: Dec 6th, 2006 2:06 AM |
Hi Jason and Tracy,
I am sorry to hear about your child. I know how difficult it is to accept a condition in your child and I know how difficult it is to deal with it. I might have some encouraging news for you. Please email me at [email protected]
Lots of luck
shana ↑ |
| Name: onlinedizzy | Date: Dec 6th, 2006 5:50 AM |
| For bright lights try baseball cap and sunglasses. For noises headphones can provide relief. He cluld listen to his favourite music played softly to distract him. Understand that this could be very painful or overstimulating for him. It is great your son is verbal ad can tell you what is painful for him. He may move on to other obsessions as he gets older or he might oneday work for the railway or design planes. Goodluck. ↑ |
| Name: KellyMarie | Date: Dec 6th, 2006 7:47 AM |
| Dizzy, you are so right! We should all stay focused on the strengths of our PDD kids (some days, easier said than done!). ↑ |
| Name: SPEDMom | Date: Jan 22nd, 2007 9:02 AM |
Hi Jason and Tracy,
I'm also a parent/mother of a 4 year old child(his a boy) who's been diagnosed of PDD NOS by his developmental pediatrician,I've read your situation in baycrowd,com. and I know hoe you feel about your son.It's nice to hear that you don't stop supporting your son,well keep it up. As of now I'm doing a thesis about my son and I'm making a program to help him develop his communication and socialization skills, actually I started withit last year, if the program will work to my son, I am very willing to share it, to those parents with PDD NOS.
Well, God bless you and keep up the good work in supporting your child.
Best regards,
SPEDMom ↑ |
| Name: Heather Ann | Date: Jan 26th, 2007 12:27 AM |
Hi, my husband Dwight and I have two boys with autism. One is considered as autism in remission and the other is autistic and high functioning. You can reachb us at [email protected]. We would love to chat with you about new ways to help your son. We have been on tnis road for 5 years and have learned alot.
Heather Ann ↑ |
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