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It drives me crazy how some people call their children autistic when they are pdd -nos or Asperger's. My child is severely autistic with an IQ of 69 and will attack anything and anyone that comes near her. She spreads her poop over everything every day even though she has occupational therapy, physical therapy, speech therapy, aquatic therapy, music therapy etc....... If you can hava a conversation with your child, thank your lucky stars and stop trying to find something wrong with your child. ↓
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| Name: Loree | Date: May 21st, 2006 3:19 AM |
| Thank you for your comment. I have been having a hard week and sometimes I feel pretty sorry for myself. My son is 6 and he dosen't really speak, some words, meltdown...you know the story, you made me realize what I do have to be thankful for and even though I have not met you I wish you love and support and I think your child is very lucky to have a parent who is such a stand for her well-being. ↑ |
| Name: sue | Date: May 22nd, 2006 4:21 PM |
AUTISM SPEAKS:
http://www.autismspeaks.org
/sponsoredevents/autism_every_day.ph
p
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| Name: Cristi | Date: May 26th, 2006 2:42 AM |
| I understand you completely. However, the other side of autism isn't any prettier. My son has an IQ of 167. He is labeled an idiot savont. He is shunned by his peers and has 0 social skills. He looks "normal" but when you begin to talk with him you quickly notice something isn't right. Both sides of autism affects families and these sites give people a chance to vent. ↑ |
| Name: jody | Date: Jun 15th, 2006 1:32 AM |
| i agree with cristy the other side isnt pretty either it makes people feel better to vent.if your child as aspergers that is not good either my child is extremly cruel to me and her siblings,that is not fun either when u have to deal with it every day,if it bothers u to hear other people venting why are u on this site.its here for everyone that wants some support. ↑ |
| Name: belinda | Date: Jun 15th, 2006 10:51 PM |
| i can see both sides here. i have 4 children between the ages of 23 - 17. Sure the classically autistic child is a challenge 24/7, but i have to say that it isnt any easier with aspergers syndrome - just different! my youngest son was diagnosed autistic, my other 3 aspergers....its hard for all parents with a child on the autistic spectrum and we need other parents to talk to....no-one else can truly understand what life is like ↑ |
| Name: Darcy | Date: Jun 19th, 2006 4:15 AM |
| The way I look at it, if you can at all feel love and affection from any of your autistic children ie...hugs, kisses, I love you's, laughing, singing, any connection then all the other stuff is not so bad...I'm not saying it's not hard, but if your daughter spreads her poop all day, and can't read, and you can't even have a conversation with her, but she will hug, kiss, smile and need you, that satisfies me because that will last the rest of her life and you can build upon that no matter how hard it gets. The most important thing "some" mothers want from their children is to feel loved and needed. My daughter is on the spectrum. ↑ |
| Name: C. Veres | Date: Jun 20th, 2006 9:41 PM |
| My son is severe also and i feel that same way at times. you are not alone ↑ |
| Name: KAREN | Date: Jun 20th, 2006 11:40 PM |
HI, I WILL DRINK TO BEING FED UP AND I DON'T DRINK!!!
I WISH THEY WOULD COME UP WITH A WHOLE NEW HEADING FOR THESE SO CALLED AUTISTIC KIDS. MY SON HAS AN IQ OF 69 ALSO AND WE DON'T HAVE THE LIFE I SEE THEM HAVING! YOU ARE SO RIGHT- IF YOU ARE ABLE TO HAVE A CONVERSATION WITH YOUR CHILD, KISS THE GROUND, THE CHILD, THE WALLS.
FEDUPPOSERS PLEASE READ MY E-MAIL RESPONSE TO THE QUESTIONS ABOUT POPSYCLES MAYBE THERE WILL BE SOME DATA THAT MIGHT BE HELPFUL. IF YOU WANT TO COMPARE DATA , I POSTED A HEADING GRADUATION/ HELP WHAT'S NEXT? I WISH YOU WELL! ↑ |
| Name: rain | Date: Jun 21st, 2006 12:07 AM |
| I have seen this discussion many times lately. I understand how you feel, when you see children who are higher on the spectrum. But, I think it is cruel to tell the parents of high functioning autism, that their children should be grouped somewhere else, or that their children don’t have autism, because it doesn’t look the same as your Childs autism. Yes, they have some different issues, but believe me you are all in this together. I work with children who have autism. I feel the same way about low function as high function. Rejoice in every boundary they cross. Plus here is another problem, I have personally seen some children who were dx , low function, and after therapy and meds they turned out to be high function. And yes I have seen low autism that stayed in that category. Yes thank God, if you get hugs, but the pain that the mothers feel is the same pain you feel. Don’t try to separate your self, come together with all moms in this spectrum. You need one another. ↑ |
| Name: jacksmom | Date: Jan 28th, 2007 5:17 AM |
Jack's story....
After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.
Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.
What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!
Also check out Dr. Amy Yasko's work. www.holistichealth.com
We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor. Don't use supps until you research things for yourself. Cilantro for example...should possibly not be used until some other detox has been done.
Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) [email protected] ↑ |
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