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Name: question
[ Original Post ]
please keep us in your thoughts and prayers today. daisy is not doing good and i am very worried about her.last night they did a ph probe (for reflux)and then they did a sleep study where they watch her heart lungs and brain while she sleeps.in the first 20 minute she quit breathing 3 times!then many many more times through the night.she is doing it more and more.they said its not that she isnt trying to breath but that she is trying hard but cannot.she also had periods where she quit and didnt even bother trying but that is normal for a baby born as early as she was.we are still in denver and dont know when we are going home.we have been here a week now,i am tired but so happy to be in such a good place.and happy to know she is once again getting the care she needs.i have found it much easier to relax here this time around and am just trying to trust the docs.
well,I hope everyone is having a good day!
(((hugs to all)))
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Name: Randi | Date: Oct 11th, 2007 4:52 PM
I'm sorry all of this is happening. I can't even imagine how hard it must have been to bring her home only to have to take her back again. I really hope that she starts to get better and they figure out what is wrong. Take care of yourself and Daisy. 

Name: Opheiliamath | Date: Oct 11th, 2007 5:08 PM
Thanks for the update. Hope little miss Daisy gets better soon so you can take her home again. 

Name: ..RoSey.. | Date: Oct 11th, 2007 6:29 PM
Aw Sal, im sorry your going thru that.
Daisy has come so far, she IS going to make it that little more to stay here.
she sounds extremely strong. you have a real little fighter !!
my thoughts are with you and little daisy. 

Name: 04nidak | Date: Oct 11th, 2007 6:40 PM
I'm sorry that she is having more trouble! I am keeping both of you in my thoughts. 

Name: DaneseS | Date: Oct 11th, 2007 6:41 PM
aww sal im sorry..im sure she will be fine though she is getting good care! and i am glad its easier for you to be in denver this time..! 

Name: question | Date: Oct 11th, 2007 11:19 PM
well,they think they possibly have found an answer....they are thinking now that possibly her vocal cords are paralized from being on the ventilator and that they are collapsing when she breathes.tomorrow we find out more. 


Name: question | Date: Oct 11th, 2007 11:19 PM
oh.i added more pics of our tests to our myspace page....again =) 

Name: lacirrom | Date: Oct 11th, 2007 11:23 PM
well atleast they are getting closer to a cause, then they can figure out how to fix it. i'll be think of you guys. 

Name: vane20 | Date: Oct 12th, 2007 1:17 AM
oh sal...i will keep your little Daisy in my thoughts. She is a strong girl who's been through SO SO much, i know she will get better. Good luck and keep us updated 

Name: NIKKIS | Date: Oct 12th, 2007 3:25 AM
love you, and i will be praying. whisper in her ear she is a fighter for me, and tell her that there are so many people that love her. 

Name: FatallyYours | Date: Oct 12th, 2007 7:37 AM
just keep your head up and we'll keep praying. and remember no matter what happens god has a plan 

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