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Name: Debbie
[ Original Post ]
Well it has taken me 71/2 years to finally seek some support from other parents with a child with special needs. I feel so alone. My son is 7 1/2 with global developmental delay, petit mal seizures, non-verbal, with some behavioural problems. He walked at 18months but he is unsteady. He is delayed by 4 years. It is tough to be in public because he looks absolutely normal until he has one of his "moments". Screaming, pulling my shirt or my other sons shirt (to the point it almost off), pulling our hair or other people's or children's hair, or sometimes pushing or biting. I was just wondering it there is anyone on this planet who shares this similar behaviour and life so I can talk to you........
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Name: lindalu | Date: Sep 3rd, 2006 11:13 PM
Debbie I am sorry! I hope you can find some one here that has the same child issues as you. I my self dont but I can understand your lonelyness! My daughter is verry diffrent from your son, she has a spinal cord injury.It doesnt cause any neurolagical disorders but she is physicaly challenged. For many years I too thaugt I was the only one with a child like her and had no one to talk to. It can be hart breaking for a parent to every day have to see their child strugle with the normal things in life. I do trully hope you find some one to talk to! 

Name: Jesenia | Date: Sep 8th, 2006 3:18 PM
iT IS REALLY HARD HAVING TO DEAL WITH A CHILD WITH SPECIAL NEEDS. MY SON IS AUTISTIC AND ALSO DOESNT SPEAK. JUST REMEMBER THAT GOD WOULDN'T GIVE YOU MORE THAN YOU CAN HANDLE. I ALSO FEEL HURT AND CRY ALOT WONDERING IF OTHER CHILDEN LAUGH AT MY SON, OR IF ANYTHING HAPPENS TO HIM HE CANNOT TELL ME WHAT HAPPENED. THIS REALLY CONCERNS ME. 

Name: lindalu | Date: Sep 8th, 2006 5:15 PM
Un fortunatly there will be other kids that will laugh at him, and even refer to him with ignorant ways. That is just simply the way some people are, not only children some adults to!I do understan the concerns about him beeing hurt and not beeing able to relate it to you, all you can do as a parent is be extra carefull as to where he goes and who it it with. I never had that concern, my daughter is able to speak and was taught to always tell me if she has been hurt. Does your son attend public school or private and are you happy with the education he recieves? 

Name: Debbie | Date: Sep 13th, 2006 8:08 PM
I am somewhat happy with his education. He attends the Catholic School Board. The last 3 years he had a fabulous SSP! He has learnt so much in the last year. However, the school feels that they were getting attached and so they now have assigned a new SSP. Change is good but for these children they learn the best through routine. Because he non-verbal, it had taken the 1st SSP 2 years to get to know his signs, body language and grunts. Now, they feel that he needs a change....huh, what do they know. They certainly don't care enough about his gains because they would have never changed the SSP. 

Name: lindalu | Date: Sep 13th, 2006 9:43 PM
I agree with you, it is very dificult for them to get usto another person after working with one so long. When my daughter was younger she recieved OT & PT she would just get comfortable with one person, then they would chane her out for another one. It can be confusing for them when they are young, Im sure your son has dificulties ajusting to some one new. Are you involved with any advocate groups? they can be helpfull if you have problems with getting your son what he needs. With my daughter I had to go it alone! I had to lurn my state disabilitie laws and rights. 

Name: SaraS | Date: Sep 27th, 2006 2:13 AM
My daughter has epilepsy with grand mal and pettit mal seizures. I totally understand the stress and my daughtter has been ok for a while now. 


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