Hello,
I am new to the forum. I am a mom of an 11 month old boy that I just love dearly. He has alot going on with him developmentally and physically. He has overcome alot of the "issues" He was born premature at 29 1/2 weeks. He also has a cleft lip and palate. HE was in the NICU for 4 months. HE has a G button because of feeding issues. He has had 2 cleft surgeries, his next cleft surgery is next month. He has plagiocephaly so he wears a helmet and he has torticolis. He also had GERD so bad that we could barely hold him for months without him projectile vomiting. It was so sad and stressful. However, his GERD went away so he does eat solids and drinks a little out of the cup and he enjoys eating. He has 1 more month for the helmet and 2 months for the nasal stents from his cleft nose surgery. HOwever because of all of what was going on with him he is behind developmentally but he is catching up and doing good according to the PT from his nursery follow up appointment.
Whew that is alot. Here is my issue. I live in St. Louis with my husband and I have no family here. My inlaws are here and they are so unsupportive. My mom is my only support system and it is hard because she is 400 miles away and is not able to come as much as she would like because of financial issues. But regardless she has brought him stuff and she adores him. But my inlaws are just ridiculous. When our son was in the hospital my mother inlaw visited him 2 times. She lives right up the street from us. WHen my husband and I tried to vent to her she has this attitude its will be alright and shrugs it off. I am like wow! No one hardly visited him in the hospital. I was there every day and spent the night 98% of the time. It broke my heart to see other families but not my inlaws in the NICU. It tore my husband's heart and I felt so bad to see him so down because of his families lack of love for our son. When we went to the family reunion (his mother's family) they were like what's wrong with him. I literally bit my tongue. Then they avoided him like the plague. Our son is adorable and sweet and full of life. I am really bitter towards them because of this. I do not want special attention for our son but I want them to treat him like every other child in the family. This also goes for my husbands father's side of the family. One of his aunt's told my husband she did not want to go see our son in the NICU because she does not like hospitals. He has been home since Jan of this year and she has not even came by once. Hell none of them NEVER called to even check on him. Has anyone ever been in this situation? ↓
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