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HI IM A MOM OF AN 8YR OLD BEAUTIFUL LITTLE BOY. BUT 8 YEARS LATER WHEN NO ONE IS LOOKING I STILL CRY MOSTLY AT NIGHT. SOMETIMES I FEEL LIKE IM IN CONTROL AND EVERYTHING IS ALRIGHT AND THE NEXT THING I KNOW IM LOOSING IT. WHAT WILL HIS FUTURE HOLD, WHAT IF SOMETHING HAPPENS TO ME?? DO YOU EVER STOP CRYING??? SOMEONE ASK ME IF I HAVE THOUGHT ABOUT PLACEMENT FOR HIM I THREW UP!! I DONT EVEN GO THERE.. ANYWAYS I JUST FOUND THIS SITE AND I LOVE IT AS I HAVE LOST MOST OF MY FRIENDS BUT NOW IM STARTING TO BELIEVE I HAVE THEM GO THEY DIDNT LET ME GO? TAHNKS FOR LETTING ME VENT ↓
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| Name: lindalu | Date: May 21st, 2007 8:58 PM |
| It is a hard task raising a special needs child while at the same time holding your composure. I to have had many teary nights wondering how my child's life will unfold. So many questions with yet no answers! They will come in time all you can do is live for today and worry about tomorrow. I to feel I have taken that road alone with no support or a shoulder to turn to. My daughter is grown now, I found my worrying was for nothing. She has turned out just the way I would have wanted her to. In the process of raising her it has made me a much stronger person. I am now able to challenge life with a clearer view and I have my wonderful daughter to thank for it. You will find as time passes that the answers will come you just need to take a deep breath and have a bit of hope! Its not easy but you will one day look back at today as just another day. Keep the faith you, you will get through it and with every day you will become stronger. ↑ |
| Name: midgie | Date: May 27th, 2007 6:52 AM |
| My son has multiple diagnoses. His primary diagnosis is CP. He will be 14 years old in two months. He is legally blind, eats with a G-tube, and is a spastic quadriplegic (he does have a couple of other diagnoses, but those will do for now). Yet, I tell everyone that he is happy. I have developed a saying I tell people, “Men just think women are in this world to serve them, my son knows they are”. It took me along time to cope with my son’s disabilities, but I came to realize that if I was to be of any real benefit for my son, I had to come to grips with what I had to work with and find ways to work with his disabilities. Grieving for what could have been for my son didn’t make things better for him. My coming to realize that he was a human being with limited abilities did. I began to work with my son on his level. My son had sensitivity problems his first few years, but after awhile he responded well to touching, hugging, and knowing that I, or someone was near him to care for him. It takes awhile for the parent to adjust, but with patience and love, you will begin to see that your child is still a child that will respond in ways you will recognize. My son can’t communicate at all. He can’t speak, he is legally blind, and he does not have enough control over his body movements to learn sign language. He is also developmentally delayed. There is know doubt in my mind that he knows who I am (he turns in my direction). Sometimes noises confuse him and I need to rub my face against his and give him his special ear kiss before he realizes it’s me. ↑ |
| Name: sweetcaramalkiss | Date: May 28th, 2007 9:49 PM |
| Oh man u sound just like me, sweetie I dont think the tears will ever stop I mean its impossible. Everyday I look at my son and want to cry but I try to think more positive about things he is such a happy little boy he loves to laugh and roll over and just be free out of his braces and wheelchair. When I read your entry i felt like i wrote it because u sound so much like what i am feeling. If u would ever like to chat sometime please feel free to email me at [email protected] ↑ |
| Name: corysmom | Date: Oct 29th, 2007 2:31 AM |
| hi, my name is barbara and i have an amazing little boy named cory who is serverly autistic, i understand exactly what you are saying, the tears are several times daily for me, everyone says you gotta start dealing with this but i cant seem to get over the fact my little boy is lost in a world i might not beable to reach, i know im very depressed, this is the fist time i have ever been on a computer, and i would love to talk again.......thanks ↑ |
| Name: irish Amy | Date: Oct 29th, 2007 11:56 PM |
| I dont believe they ever will stop, certainly not for me, while my son is the light of my life and I know he is a happy child ( well I hope he is ) I cry for him and what he will have to endure, maybe they just make us feel better to get them out? ↑ |
| Name: taylord | Date: Dec 5th, 2007 4:21 PM |
| Hi I am the mother of two children with special needs. My heart goes out to you. I have spent a lot of time worrying about what would happen to my kids if something happened to me . Every parent thinks about that, but the fears are greater with our beautiful but vulnerable children. The fear will always be there to some degree, how much you allow it to affect you though is up to you. Living in the moment is easier said than done but one of the many gifts my kids have given me is to live in the present as much as possible. Planning for the future helps and advocating for your child lets people know that you are on top of how your child is being treated. It seems unfair that with all the struggles involved with caring for a special needs child that you have to fight for things that most people take for granted, like an education. Pour your heart and soul into making the quality of you child's life as full as possible. Don't be afraid to challenge him that's the only way to find out how much he can do. Also make sure you get some time for your self, even if it's only for a short time. There is a grief process involved, I'm sure you had many hopes and dreams for your child. Letting go and accepting that things will not be how you imagined them does not mean that all is lost. Fighting for my child's rights at first was emotionally draining, it still can be, but it has given me a deep sense of purpose and meaning in my life . You cannot change what has happened, but you are in complete control of how you decide to face it. It's not easy, but your life is not defined by your struggles it is defined by how you deal with them. All the best to you. ↑ |
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