| Name: mum24ineed | Date: Sep 25th, 2008 9:07 AM |
| hi i have a 7 year old daughter with cp and developmentally delayed love to chat with people in the same boat ↑ |
| Name: linda | Date: Oct 23rd, 2008 7:50 PM |
| Sarah, I too have a daughter 15 1/2 that is developementally delayed...I also need to talk to moms that have a child with the same needs.. My daughter Dallas is high functioning which makes life very hard...people are always looking at her as being normal...she is an awesome teenager and I would like to meet other families of the same. ↑ |
| Name: donna d | Date: Jan 27th, 2009 6:52 PM |
| Hi Linda. My daughter is 9, almost 10. Diagnosed with PDD-NOS, significantly developmentally delayed. Unfortunately she is not delayed whatsoever physically, taller than kids her age, beginning to show signs of puberty which really has me freaked out. She is also high functioning and although I am thankful for that it also causes it's own problems. I hear you loud and clear. Your daughter is older and you've already been where I am. I'm new to this site, but would love to chat. email me at [email protected] if you need a friend to commiserate with. Maybe we can help eachother? ↑ |
| Name: sabrina | Date: Jan 28th, 2009 9:29 PM |
| Hi Cindy i know what you feel this is why I came here today. My daughter is mild mentally retarded with autistic traits and developmental delays, she is 6 and these past few days I've felt like just walking away and never look back. ↑ |
| Name: Donna | Date: Jan 28th, 2009 9:36 PM |
| Hi Cindy, Hi Sabrina - I just wrote yesterday, can't really figure out how this site works. Sabrina, I know how it feels to want to walk away and never look back. Stressful! And the thought that it will only get worse can make it downright depressing. I'm 3 years ahead of you, my daughter is 9. I'm looking for a support group otherwise I will go insane. I thought this site would allow chatting live, but that is not the case. Maybe we can exchange email addresses? ↑ |
| Name: tina | Date: Jan 30th, 2009 2:09 PM |
| Hi my daughter has just turned 11 she has global development delay. I'd like to chat with others who understand ↑ |
| Name: tina | Date: Feb 22nd, 2009 8:58 PM |
i have a son almost 5 who is globally developmentally delayed, sensory integration disorder, unknown coordination problems, and extreme agrression behaviour plus speech delays. What im curious about from the moms of older children did the delay as they got older get worse? right know kaleb is about a year behind in most things except he still refuses to potty train. The have told me they dont know if one day his brain will just stop maturing or not im very scared this might happen and would like to trade info back and forth with a mom to see what she has done or anything that could give me some insight into the future thanks
[email protected] ↑ |
| Name: Bounty2009 | Date: Feb 23rd, 2009 5:29 PM |
Having a child with a disability can definately be tough and i think its great for parents to meet up and share there thoughts, concerns and experiences. This another really great place to meet and chat http://my.bounty.com/forums/Sub
ject/143/1/1/Special-needs.htm,
my friend has told me how much it has helped her out in the past. Best of luck to you all x ↑ |
| Name: pink-lady82 | Date: Mar 27th, 2009 9:14 PM |
| Hi cindy, im new to this site only just joined. My daughter is 5 and has global developmental delay and possible cp. Like you i find friends dont always understand how our children can be at times and not only friends, families too. My daughter is 2/ 2 and a half years behind. How does it effect your daughter. michelle ↑ |
| Name: Flowergirl17 | Date: Aug 7th, 2009 2:03 AM |
| Hi everyone my name is Susan and this is my first time in the fourm, and just like Cindy I have a teenage daughter her name is Briana and she just turned 17 in June. She has grown up mostly at home since she was taken out of public school in 6th grade, She is a wonderful young lady but she is also lonely from girls like her. most of her cousins treat her differently and hurt her feelings beacuse she dosent dance or go out on dates, or have boyfriends like they do. She loves toys and simply Disney shows . Are there any other parents with young daughters like my prescious girl? ↑ |
| Name: nikki | Date: Oct 15th, 2009 1:59 PM |
| Hi everyone. I have an 8 year old girl Charlie. Since the day Charlie was born i knew there was something up, but i waited 9 months before dr took note. Charlie cant walk talk or eat (did eat liquidised till age of 3). Charlie was 4 by the time she managed to sit by herself. Still no diagnosis apart from epilepsy even that took 7 1/2 years to get diagnoses also reflux. would be great to hear from someone in a similar situation x ↑ |
| Name: cinda | Date: Oct 16th, 2009 7:49 PM |
hello, how are you? I am 21 years old with two special need boys. my oldest is 6 years old. Lately it has been so streesful and hard, im scared im taking it out n him. He has adhd, hearing loss, he is a little behind. My youngest is 6 months. He was born with a defect that effects his heart, his growth, and learning. He has heart surgery at 2 months old. He doesnt roll over by him self yet, but that is exspected....im not all good with this wold email thing, all im good at is myspace, please for give me. if you could contact me at.. http://www.myspace.com/cindalong
I gave up all my friends so i can raise my children with out all that drama kinda stuff at my age, my family doesnt know what im going through because out of all there children, they are perfect healthy.. so i really hope i gain a friend who understands. ↑ |
| Name: Worries | Date: Nov 15th, 2009 4:51 AM |
| Hello Cindy. I know how you feel. I have a 3 1/2 yr. old son who is developmentally delayed. I have recently taken him to a neurologist who has ordered some blood tests and urinology to get him started on early intervention. We still don't know what's wrong with him exactly and we are very worried that what he has is not a temporary delay. He can say his alphabet and can count to 10 but he is not communicating. When he needs something he takes my hand and attempts to tell me what he wants. He can't even point out exactly what it is he wants. He can also recognize his alphabet if you write it down and can say a few words (not sentences) but cannot carry a conversation. He can say cookie and no and yes etc. What's frustrating to me is that he has a cousin who is only 4 months older and he's already having conversations. I know I shouldn't be comparing him to other kids but it breaks my heart that he can't do what other kids his age can. I am waiting for his blood test results and a referal to a child psychologist to do a behavioral analysis. I am hoping that the delay is temporary and someday will start communicating with us. It 's hard when nobody understands. It's been really hard on me and my husband but we remain positive. ↑ |
| Name: sherri74 | Date: Nov 25th, 2009 1:43 AM |
| hi cindy, i am the mother of an 11 yr old boy with aspergers and high functioning autism...its not easy...im new here and looking for new friends. i have none, at least none who really know what moms like us go thru...e mail me [email protected] ↑ |
| Name: Jessica | Date: Jan 27th, 2010 11:06 PM |
| Hi! I'm Jessica. I don't exactly have a kid, I am one. I'm developmentally delayed, and I was wanting to meet people like me. But... I think I came to the wrong place. ↑ |
| Name: michele hill | Date: Jan 31st, 2010 2:07 PM |
i have a daughter Macy who is 7 yrs old. She has epilepsey which is well controlled with medication and learning difficulties. I feel isolated and very down at times is there anyone with advice for me please. I have never had the chance to discuss with any other parents who is in the same situation as me.
Thankyou ↑ |
| Name: kylie nz | Date: Apr 14th, 2010 5:10 AM |
| hi im new to this forum,and im glad i found this sight too,i have a 2yr old daughter named darlene,i really dont know how to explain this as it is a complete mess,so please bare with me,darlene is number 6 child so im an old gun when it comes to how children should appear at birth,i gave birth to my daughter in a birthing pool,my midwife i currently had i knew well as she delivered 1 of my other children,prior hopping into the pool i had meconium exposed i asked my midwife is this ok to still hop in the pool as with my last child she delivered she told me to get out of the pool as baby would need suction and with meconium being exposed it isnt good,but this time round it was totally fine to have my daughter in the pool,as my daughter surfaced from the water i was concerned as she was asleep and breathing very fast with short breaths i asked my midwife if this was ok thinking my daughter needed suction,my midwife reassured me that this was ok.as i held my daughter for the first time it just didnt feel right and i new something was wrong with her breathing,anyway due to complications with myself we both ended up in hospital,after i was sorted out a ward midwife came to take darlene for a bath after 15mins she returned with no baby and told me darlene went blue in the bath and was rushed to special care unit and put on a breathing ventilator,drs ran tests here and there mri scans,and found she had low muscle tone,developmental delay,breathing difficulties,all from lack of oxygen to the brain,my daughters dr wanted reports of the labour and birth and my midwife wouldnt send them,he couldnt understand how my daughters apgar scores were so good and yet myself and my husband had told him she was born asleep and breathing funny and not once did we hear her cry,she was fed through a tube,was very floppy when she would sit in her carseat i had to have her head supported up to 9mths old or it would lie on her shoulder,tshe couldnt move a muscle i was angry at why my first girl ended up with all these problems,i learnt that my daughter had no sound to her cry but a chuckle noise,drs cannot give me a exact answer for the cause.at 3 months old she come off the tube and went onto a specially made bottle where the teet fills up with milk and you can squeeze the milk into babys mouth,for 4 months of my girls life i expressed breast milk 4 hourly everyday and night,here at 13mths old babies were walking around and my girl was just starting to commando crawl (on her stomach)now at the age of 2yrs she is now properly crawling,she can stand with support she can walk with support but is very wobbly unstable i have lost how many times she has banged her head sometimes i had other mums look at me as though i had beaten my own daughter up because she had a bruise on her forhead that stuck out a mile,darlene is currently under paediatricians,a speech language therapist a occupational therapist,a neurologist as well and all though the ot has been great i have found with darlene she improves on things in her own time or learns to do things in her own time,for a whole year of my daughters life we were in and out of hospital with breathing or fever problems with my girl most times i balled my eyes out when the dr told me she needed to be admitted because we just got out of hospital a week before,i noticed with my girl too if someone she came into contact with had a cold she would get it too but it would be worse with her,so i have learnt to keep her away from such things,im proud of my daughter as she has risen out of a hectic start to life and each day she gets stronger she can say mum dad now she can eat food picking at it,i just cant wait till she walks and can start being active with other kids her age,im glad ive been able to spill my guts about this and share to the world that my daughter is like others out there who have the same problem,as it has been 2yrs where i have finally spoken out,as i wasnt ready to talk about it but now i am.half the problems i have missed out as the labour and birth are under investigation but when i have a result i will be back in with more details,thanks for your time ↑ |
| Name: JusticeMommy | Date: Jun 7th, 2010 8:19 AM |
| Greetings everyone! My name is LaTrice and I am the mother of a 15yr old daughter that has been diagnosed as being mild congnitive delayed. At age 7 she was diagnosed with having an irreversible hearing loss that does not allow her to hear high pitch or consonant sounds. To look at her you couldn't tell there's anything wrong with her. Her body is developing at a much faster speed than her brain. She's verbal but her speech is severely impaired and sometimes its hard to make out what she's saying. It's been a struggle, I gotta tell ya. Cindy, I do understand how hard it is to talk to people who don't have a child of their own like ours. They do their best, but they don't get it! I'm reaching out to other parents like myself for encouragement and advice. I want to teach her as much as possible but she learns at a very slow pace. I would love to hear any encouraging feedback. Be it here or I can be emailed at [email protected] ↑ |
| Name: Julie | Date: Jul 12th, 2010 5:30 AM |
| Hi babyhuie61, I can totally relate to you. That is why I'm on this chat. I can't find anyone who understands that I have time to associate with.I have a son with Autism. ↑ |
| Name: zachabeesmom | Date: Jul 15th, 2010 2:57 PM |
| In the same bnoat babyhuied61, my son is 15yrs, and i feel no one understands the termoil we go threw. ↑ |
| Name: Eline | Date: Jul 25th, 2010 5:10 PM |
Hi Cindy,
I know how you feel, I'm a mother with two mental and development delays. It hard sometimes, mine are boys one 21 and 17yrd. And they also have behaviors problem and what I call now alphabet soup. so when I fell discourage I try to member some of they things they do that make me laugh and used as subtitute for the bad time. And I pray. But I do understand not having anyone who understand the problems. I guest we can get to know each other. this is my first time here.
Do not give up for your daughter needs you and God will show you the way handle all. But we all need a live person to relate to. there's my email: [email protected]
God bless you and your darling daughter. ↑ |
| Name: Christine | Date: Aug 8th, 2010 4:05 PM |
| I have a son who is ten now but found out when he was 6 yrs old that he has a learning development delay. Would really like to talk to someone who is has a children going thru this. ↑ |
| Name: Sarah | Date: Aug 31st, 2010 3:23 AM |
| I have a son who is about to turn 3 who is developmentally delayed and ppl always look at him and treat him as if he "should be" acting normal. He doesn't talk he just yells and babbles and runs around. I am sick of ppl who dont understand and would like to meet moms who share the same problem with him ↑ |
| Name: Sarah | Date: Aug 31st, 2010 3:24 AM |
| Name: bec | Date: Sep 23rd, 2010 12:15 AM |
| hi cindy know how u feel my son is 8 and they told us 3 yrs ago when he started school that he was delayed ↑ |
| Name: dont know what to do | Date: Sep 23rd, 2010 3:22 AM |
| matt my son is 15 yr old mild mr in lif skills i high school. he wont wash up or do his chores and definite ↑ |
| Name: KyleighsMom | Date: Sep 23rd, 2010 3:28 AM |
| I have a 13 month old girl with XXX chromosome, and low muscle tone. She has been on a feeding tube since she was a month and a half old. Is there anyone here that relates? Do you have a child with these issues. There isn't much research, and so answers are hard to find. Thank-you ↑ |
| Name: catsy101 | Date: Oct 5th, 2010 6:40 AM |
| Hi my name is carla. I have two boys both dev. delayed. My husband insists if they r delayed it is MY FAULT. He says he cannot remember me ever going over numbers or letters with them. I said, I tried. He said I wasn't calm and insistent that they learn. I am considering a divorce. Right now I hate him. ↑ |
| Name: prisdicanzio | Date: Oct 13th, 2010 11:43 PM |
| Hi there, my daughter is 14 months old with hypotonia. She doesn't crawl, sit herself up or pull herself up and doesn't cruise either. I have her in an early intervention program but still feel so alienated from other parents in playgroups, etc. I feel so alone and wish I knew what to do. The neurologist assures me that nothing else is wrong with her, she just has low muscle tone, but I can't help but think there might be something else since the progress is so slow. ↑ |
| Name: SUNANA | Date: Dec 9th, 2010 12:03 PM |
| I HAVE A 6 YR OLD WITH DOUN SYNDROME HE IS ↑ |
| Name: shaunz77 | Date: Jan 20th, 2011 10:02 PM |
I have a 4 year old child with mild Cerebral Palsy as well as seizures and global developmental delays.
Please check out my blog:
http://johnsonspeci
alneeds.blogspot.com
Life
With a Child With Special Needs
Please pass it on if you know anyone interested.
Thank You,
Shauna Johnson ↑ |
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